2016 Autism CARES Grantee Virtual Meeting: Integrated, Person-Centered Approaches to Transition

2016 Autism CARES Grantee Virtual Meeting: Integrated, Person-Centered Approaches to Transition

Thursday, July 21, 2016
1:00pm ET - 4:00pm ET
Location: virtual meeting

The 2016 Autism CARES Virtual Meeting was held virtually (i.e. through an online portal) on Thursday, July 21 as a half-day event exploring the topic of transition. During this annual meeting, MCHB-funded CARES legislation grantees (representing research, training, and state implementation stakeholders) shared information about activities within their respective networks, discussed emerging trends, and engaged in meaningful collaboration around transition research, policy and services. This meeting was hosted by ITAC, in collaboration with SPHARC and HRSA-MCHB.  

Agenda

Using a web-based meeting platform, participants had an opportunity to: (1) learn about the transition landscape, (2) explore the work of other grantees, (3) discuss topics of mutual interest, and (4) hear from autism community stakeholders about the transition process and its critical role across the lifespan. An agenda is available here.

Keynote Speaker

Anne Roux smilingAnne Roux, MPH, MA,is a research scientist at the Life Course Outcomes Research Program, a part of the A.J. Drexel Autism Institute.  She is the lead author and producer of the award-winning National Autism Indicators Report series.  She currently serves on advisory committees for the Health Care Transition Research Network for Autism Spectrum Disorders and the Autistic Global Initiative.

Anne has a master's degree in public health from Washington University in St. Louis, where she completed training in health communication and participated in a NIMH pre-doctoral fellowship in Social Work. She also holds a master's degree in speech-language pathology and has 15 years of clinical experience in autism early intervention. Her recent publications include journal articles on various postsecondary outcomes for adults on the autism spectrum and autism screening for underserved populations. 

As a past executive director of Missouri Families for Effective Autism Treatment, Anne participated in state-level legislative advocacy, system transformation initiatives, and policymaking activities including an appointment to the Missouri Autism Commission. She authored Navigating Autism Services: A Community Guide for Missouri which was replicated in several states.

>>> Watch a recording of the keynote here. 

>>> Download a pdf of the presentation here. 

Special Preview: Grantee Presentations

Through brief, pre-recorded videos, this event showcased transition-related projects from diverse grantee groups.  Following the video presentations, participants participated in small discussion groups facilitated by each of the grantee presenters.  During these sessions, participants explored existing synergy among grantees and opportunities for future collaboration around related topics. Notes from the break out sessions will be posted in the near future. 

Click on the presentation titles to view the grantee video.  

Assessing the Utility and Feasibility of Existing Transition Tools 
Marji Erickson Warfield, PhD (Brandeis University -  AIR-P Research Network)
>>> Download a pdf of the presentation here.

Primary Care for Autism and Other Developmental Disabilities
Alice Kuo, MD, PhD (University of California, Los Angeles - Health Care Transition Research Network)

Inclusive Postsecondary Education: New Opportunities for Students with Autism and Related Disabilities
Daniel Crimmins, PhD (Georgia State University - State Implementation Grantee)

Surviving & Thriving in the Real World: Development and Refinement of an Intervention for Adolescents with Autism
Amie Duncan, PhD (Cincinnati Children's Hospital Medical Center - LEND Training Grantee)
>>> Download a pdf of the presentation here.

Transition to Adulthood the MINT DBP Way
Symme Trachtenberg, MSW, LSW (The Children's Hospital of Philadelphia - DBP Training Grantee)

Collaborative Transitions: From Fragmentation to Integration 
Wendy Parent-Johnson, PhD, CRC, CESP (University of South Dakota Center for Disabilities - LEND Training Grantee)
>>> Download a pdf of the presentation here.

Cultural and Linguistic Adaption of an Education and Support Program for Families with Adolescents with Autism 
Stephanie Borjas (University of Wisconsin-Madison - LEND Training Grantee)

Transition and Extension of Social Skills into Work, Community, and Healthcare Settings 
Sarah O'Kelley, PhD (University of Alabama at Birmingham - Former LEND Training Grantee)
>>> Download a pdf of the presentation here.

Interdepartmental MOC Transition Project 
Alison Schonwald, MD (Boston Children's Hospital - DBP Training Grantee)
>>> Download a pdf of the presentation here.

Share a Resource

As part of this event, we will be creating a transition resource document for grantee and public dissemination. If you know of a good transition-focused resource, please  email the resource directly to Sarah Peterson at speterson@aucd.org, identifying it in as much detail as possible (including a URL if it exists on the web).

Autism CARES Policy Update

The AUCD Policy team has prepared a summary of autism related federal policy activity including the status of budget appropriations, legislation, and administrative rules. Click here to download the policy update. 

Please Note:

  • Only portions of this event will be archived.