Council on Community Advocacy (COCA)
The AUCD Board of Directors has established a number of Councils and Committees that are made up of experts in the field to help the Board address emerging trends and issues, and to facilitate communication across and beyond the AUCD network. The Council on Community Advocacy, also known as COCA, is made up of individuals with disabilities and family members from each University Center across the AUCD network.
COCA assists AUCD to advance policy and practice for and with people with disabilities, their families and communities. The Council helps the association to:
- Build effective partnerships with other AUCD Councils and Committees, federal agencies, and other national disability groups.
- Build the capacity of local University Center Consumer Advisory Committees (CACs), including identifying needs for assistance, providing technical assistance, and disseminating information about exemplary and innovative practices.
- Envision, actively advocate for, and disseminate information about the next generation of policy and practice that will help make the promise of full participation a reality.
- Develop leaders and mentors that build the capacity of the network to affect change at the local, state, and national levels.
- Assist in the development of standards for participation of people with disabilities and family members in UCEDD education, research, and service programs and in AUCD functions.
- Serve as a model and resource for others desiring to infuse the participation people with disabilities and family members into program planning, research, and evaluation.
The Council on Consumer Affairs first convened in the fall of 1994. The Council was formed as a result of AUCD's (formerly AAUAP) increasing recognition of the importance of receiving consistent and ongoing consumer feedback. Start-up activities were funded by the Administration on Developmental Disabilities, through a Project of National Significance entitled "Leadership and Choices." Principle support was provided by Bruce Eddy of AUCD and Carl Calkins of the University of Missouri/Kansas City, Missouri's UCEDD.
The Council leadership structure includes several internal committees and two co-chairs. 1998 By-Laws stipulate that one co-chair must be an individual with a disability, and the other be the family member of an individual with a disability. The three-year, staggered co-chair positions carry with them a slot on AUCD's Board of Directors.
Full Council membership consists of one representative of each UCEDD, designated by that UCEDD's director. The Council continues to strive to meet its long-term goal of full membership.
In 2003-2004, AUCD made a commitment to revitalize the role of COCA within the network. Past President of AUCD, David Johnson appointed an ad hoc COCA Workgroup. This workgroup, chaired by Carl Calkins, solicited feedback from the AUCD network and met several times to develop a renewed vision to strengthen the role of COCA. A final set of recommendations was produced and presented to the board and UCEDD Directors at the UCEDD Directors' retreat May 2-3, 2005 in Chicago, IL.
New on the COCA Web Pages
Now available online at www.iddtoolkit.org, the 'Health Care For Adults With Intellectual And Developmental Disabilities: A Toolkit for Primary Care Providers' (IDD Toolkit) offers health care providers best-practice tools and a wealth of information regarding specific medical and behavioral concerns of adults with IDD, including resources for patients and families.
AUCD strongly supports the agenda of equality and opportunity that the President laid out in the State of the Union address last night. While the President did not mention people with disabilities specifically, his agenda includes policies that the disability community has long championed and we believe that when he says everyone he means everyone.