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1/23/2017

Dr. Matthew Wappett Named New Director at CPD (UT UCEDD)

The Center for Persons with Disabilities at Utah State University welcomes Dr. Mathew Wappett as their new director on January 25. Wappett, an Alaskan native, received his doctorate in special education from the University of Utah. He began his career in education as a high school English teacher before climbing the collegiate ladder. Wappett's background in disability includes a stint as an associate director of the Center on Disabilities and Human Development at the University of Idaho.

 
 
AUCD conference attendees share what they believe makes America great.

1/20/2017

AUCD Asks: What Makes America Great?

Today, Donald Trump is being inaugurated as President of the United States. His campaign slogan, "Make America Great Again," has inspired many Americans. At our 2016 conference, we asked attendees: What makes America great? What inspires you?

 
 

1/19/2017

AUCD Expresses Serious Concerns Over Confirmation Hearing of Betsy DeVos

The HELP Committee is urged to postpone her confirmation vote pending additional information

The Association of University Centers on Disabilities expresses serious concerns with a number of the responses that Betsy DeVos provided at her confirmation hearing earlier this week, and to urges the Senate HELP Committeeto postpone any votes on her confirmation until Mrs. DeVos has clarified her support for the federal role in ensuring that every child with a disability receive a free, appropriate public education consistent with federal law.

 
 
Liz Weintraub shares an exchange with Senator Bob Casey, while Shawn Aelong looks on in the background.

1/19/2017

Building Our Future: Election Outcomes and What's Next

At our 2016 Annual Meeting, prominent members of Congress spoke about priorities for the coming years, as well a post-election debrief and ideas on the potential directions of the new Administration.

 
 

1/19/2017

Dr. Frederick B. Palmer Retired from Boling Center for Developmental Disabilities Universities of Tennessee Health Science Center

Dr. Palmer retired from the Boling Center for Developmental Disabilities, University of Tennessee Health Science Center on January 6, 2017 after 23 years as Director and Shainberg Professor of Pediatrics. The Boling Center is a University Center for Excellence in Developmental Disabilities (UCEDD) and a Leadership Education in Neurodevelopmental and related Disabilities (LEND) program. The center is administratively housed and supported in part through the Department of Pediatrics.

 
 

1/18/2017

Relive 'Building Our Future: Leveraging our Experience from Public Roles'

At the AUCD 2016 Conference, our moderator and panelists explored what's next for people with disabilities and families under the new Trump Administration and how families and people with disabilities have played and can continue to play a lead role in building bipartisan collaboration and advancing disability policy. This Storify contains social media posts that summarize the event.

 
 

1/17/2017

CT LEND has had an Exciting New Start this Year

The CT LEND has had an exciting new start this year. Nine UCONN graduate students from various disciplines, two Yale Developmental-Behavioral Pediatric fellows, four community trainees, and four Human Services/Family Studies students from Goodwin College fill our conference room at UCONN Health each Friday. We welcome family faculty and several UCEDD staff members to each weekly seminar as well.

 
 

1/17/2017

IHD-AzUCD Welcomes Dr. Kelly Roberts as New Executive Director

Dr. Kelly Roberts has worked in the disability, education, and health and human service fields for over 29 years. During this time she worked as a teacher in grades 6 through 12, researcher, AT specialist, postsecondary education instructor, and administrator. She has extensive experience working with individuals from multicultural and linguistically diverse backgrounds as well as with individuals with a broad range of disabilities.   

 
 

1/17/2017

MNLEND Nov 2016 Forum Video Released

MNLEND invites the AUCD Network to view a 3-part video of the MNLEND November 2016 Forum: "Litigation: Advancing the Rights of People with Developmental and Intellectual Disabilities," which features U.S. district court judge, The Honorable Donovan W. Frank, and a panel of legal experts. Over 100 people attended this event on November 17, 2016.

 
 
White House at Night

1/17/2017

Relive 'Building Our Future: Lessons from the Obama Years'

During the AUCD 2016 Conference, present and past members of the Obama Administration reflected on top priorities coming into their positions, most significant accomplishments, and lessons they learned to inform the new Trump Administration. This Storify summarizes the session using social media posts.

 
 

1/17/2017

Report: Indiana Teacher Evaluations Bring Positive Change, But Improvement Needed (IN UCEDD)

Indiana should make changes in its teacher evaluation system to provide more clarity and consistency for schools and stronger support for and engagement by educators, according to a white paper released today by an Indiana University research center.

 
 

1/17/2017

Tuesdays with Liz: Affordable Care Act Part I

 
 

1/9/2017

Developing Social-Emotional and Behavioral Supports for Culturally and Linguistically Diverse Students (TX UCEDD)

The Behavior Support Collaborative lead by Dr. Mack D. Burke in conjunction with the Center on Disability and Development in the Department of Educational Psychology at Texas A&M University was awarded a catapult grant from the College of Education and Human Development (CEHD). The purpose of the catapult grant (Improving Quality of Life Through a Culturally Responsive Lens: Developing Social-Emotional and Behavioral Supports for Culturally and Linguistically Diverse Students At-Risk for Emotional and Behavioral Disorders) is to improve the quality of life and well-being of students from culturally and linguistically diverse (CLD) backgrounds who are at-risk of developing emotional and behavioral disorders (EBD) by promoting school adjustment.

 
 

1/9/2017

Four UCEDDs (TN, TX, MN, KY) Collaborate to Put Faith and Jobseekers with Disabilities to Work

A new manual outlines how faith communities can support members with disabilities in finding and maintaining employment. The manual was spearheaded by the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities (TN UCEDD) and its partners at the Human Development Institute (KY UCEDD), the Texas Center for Disability Studies (TX UCEDD), and the Institute on Community Integration (MN UCEDD). All four UCEDDs facilitated the two-year Putting Faith to Work project as an activity of the National Collaborative on Faith and Disability.

 
 

1/9/2017

Our Role in Early Identification (CO UCEDD/LEND)

By Act Early Ambassador, Nancy Lewis, MPA, MS, CCC-SLP

Communication difficulties are among the most widely reported developmental delays in young children. Here"s how we can get more involved in early identification.

 
 

1/9/2017

RFK CERC Holiday Party (NY UCEDD/LEND)

RFK UCEDD and LEND in the Bronx celebrated its annual Holiday Party with individuals and families served at RFK Children's Evaluation and Rehabilitation Center (CERC) at Monterfiore . It was an awesome experience for everyone - participants, volunteers, and staff!

 
 

1/9/2017

Speech-Language Pathologist Screening of Sleep Problem Grant Awarded to Rose F. Kennedy Center (NY UCEDD/LEND)

This grant will pilot sleep problem screening by SLPs, using validated tools for sleep-disordered breathing and behavioral (insomnia-type) sleep problems. Focus groups will assess SLP and family experiences; screening tools will yield sleep problem prevalence. This grant, from the American Sleep Medicine Foundation, will be led by UCEDD Co-Director Karen Bonuck, PhD and Supervisor of Speech-Language Services, Nancy Tarshis, MA, MS. CCC-SLP.

 
 

1/9/2017

UI Earns No. 1 Ranking in University Website Accessibility (IA UCEDD)

The University of Iowa ranks first in the nation in an assessment of how accessible its websites are to people with disabilities. UI topped the list of 140 American universities, according to rankings presented at an Educause conference poster session by Jon Gunderson of the Division of Disability Resources and Education Services at the University of Illinois - Champaign/Urbana.

 
 

1/5/2017

2017 EHDI Meeting Scholarships for LEND Audiology Trainees

AUCD has made available six (6) scholarships of up to $500 each to support LEND audiology trainees in attending the in Early Hearing Detection and Intervention (EHDI) Meeting on February 26-28, 2017 in Atlanta, GA. All current LEND audiology trainees are eligible to apply. However, priority will be given to trainees from programs that do not currently receive supplemental funding and trainees that have not attended the EHDI Meeting in previous years. Application deadline: January 29, 2017.

 
 

1/4/2017

21st Century Cures Act Signed into Law

On December 13, President Obama signed the 21st Century Cures Act into law. The law is a $6.3 billion omnibus health bill that includes $4.8 billion in funding for several major NIH medical research initiatives. It also funds opioid addiction prevention and treatment grants and makes some reforms to FDA regulations.

 
 

1/3/2017

Tuesdays with Liz: Siddarth Nagaraj

This week's edition of Tuesdays with Liz: Disability Policy for All Liz interviews Siddarth Nagaraj, a program specialist at AUCD, about the 21st Century Cures Act.

 
 

12/30/2016

FA Olmstead Session (GA and IA UCEDD)

Earlier this fall Sue Jamieson, prominent civil rights lawyer and lead attorney in Olmstead v. L.C., travelled to Iowa to speak at the HousingIowa Conference about the history of the landmark Supreme Court decision and the importance of housing in community integration. The session also featured Iowa's Money Follows the Person coordinator Brooke Lovelace and program participant Monnie Hall, and was moderated by Caitlin Owens, who along with Brooke works for Iowa's UCEDD at the Center for Disabilities and Development. Sue is the Disability Law Project Co-Director at the University of Georgia's Institute on Human Development and Disability (one of Georgia's two UCEDDs).

 
 

12/29/2016

Iowa UCEDD Capitalizes on Partnerships to Promote Employment First

Recent production of a two-part television series highlighting National Disability Employment Awareness Month combines the Iowa UCEDD's emphasis on promoting Employment First with its commitment to information dissemination. Entitled "The Power of Employment," the series aired on "Hello, It's Us!", a weekly Public Access Television program produced by the UCEDD dedicated to educating viewership about a variety of disability-related topics through the lens of community inclusion.

 
 

12/28/2016

Tuesdays with Liz: Holiday Message

This week's edition is a special holiday message from Liz. Tuesdays with Liz: Disability Policy for All will return in 2017. See you next year!

 
 

12/27/2016

Oklahoma's New Portal Seeks to Help Thousands on Medicaid Waiver Waiting List (OK UCEDD/LEND)

The first phase of a new state portal that aims to improve online access to information about services and resources for those with disabilities in an easy-to-understand manner is expected to be up and running by the end of 2017.

 
 

12/22/2016

"Learn the Signs. Act Early." Resources Now Available in Vietnamese

The "Learn the Signs. Act Early." Team is pleased to announce the completion of its project to translate and adapt the Milestone checklists, Milestones brochure, and tip sheets (How to Help Your Child & How to Talk to the Doctor) into Vietnamese. These materials were professionally translated and adapted in consultation with a small group of Vietnamese parents of young children and a group of Vietnamese subject matter experts.

 
 

12/22/2016

AIR-P Network Activities

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on underserved communities. Two key goals of the AIR-P network are to provide opportunities to develop collaborations and partnerships with clinicians and researchers and to support junior investigators in developing their research efforts to improve medical care of children with autism.

 
 

12/22/2016

AIR-P Network Activities

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on underserved communities. Two key goals of the AIR-P network are to provide opportunities to develop collaborations and partnerships with clinicians and researchers and to support junior investigators in developing their research efforts to improve medical care of children with autism.

 
 

12/22/2016

Autism CARES Grantees Share Resources, Best Practices for Transition

ITAC, in collaboration with SPHARC and HRSA-MCHB, hosted the Autism CARES (Collaboration, Accountability, Research, Education, and Support) Grantee Virtual Meeting on July 21, 2016. This bi-annual meeting was an opportunity for over 200 MCHB-funded Autism CARES legislation grantees - representing research, training, and state implementation stakeholders - to share information about activities within their respective network, discuss emerging trends, and facilitate meaningful collaboration. This year's theme was "Integrated, Person-Centered Approaches to Transition."

 
 
CT LEND students and faculty are excited to start a year of interdisciplinary training.

12/22/2016

CT LEND: An authentic interdisciplinary experience

The CT LEND has had an exciting new start this fall. Nine UCONN graduate students from various disciplines, two Yale Developmental-Behavioral Pediatric fellows, four community trainees, and four Human Services/Family Studies students from Goodwin College fill our conference room at UCONN Health each Friday. We welcome family faculty and several UCEDD staff members to each weekly seminar as well. Our true interdisciplinary cohort includes participants from an AUCD Auditory supplement and also a Diversity grant, several of whom are first generation college students.

 
 

12/22/2016

Developmental-Behavioral Pediatrics Research Network Update

The Developmental-Behavioral Pediatrics Research Network (DBPNet) is a 14 site Network whose mission is "to conduct collaborative, interdisciplinary research in developmental and behavioral pediatrics that advances clinical practice, supports research training, and optimizes the health and functional status of children with developmental and behavioral concerns and disorders, including children with autism spectrum disorders and other developmental disabilities". The Network had a successful competitive renewal in the past year and is now funded from 9/16 through 8/21.

 
 

12/22/2016

Got Transition Releases MOC Module, Announces CME Course, and Launches Advisory Group

The University of California San Diego/Rady Children's Hospital with the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition (NASPGHAN) partnered with Got Transition to develop a new pediatric Maintenance of Certification (MOC) Part 4 Module on transition. The web-based activity - "Transitioning Youth from Pediatric to Adult-Centered Care - will evaluate adequacy of participant documentation of patients' transition from pediatric to adult centered care within the 6 Core Element framework developed by Got Transition: Center for Health Care Transition Improvement.

 
 

12/22/2016

Health Care Transitions Research Network (HCT-RN) Updates

The Health Care Transitions Research Network (HCT-RN) for Autism Spectrum Disorder (ASD) and Other Developmental Disabilities was funded to support the creation of an interdisciplinary, multicenter research forum for scientific collaboration and infrastructure-building with a focus on research designed to improve health care transitions and promote an optimal transition to adulthood (including physical, psychosocial, educational, and vocational outcomes) among youth and young adults with autism spectrum disorder (ASD). Since April 2016, our network has been actively engaged in the following research and practice improvement efforts related to the transition to adulthood of youth with ASD.

 
 

12/22/2016

MCHB Update DMCHWD

As we near the end of 2016, I want to acknowledge the ongoing accomplishments of the Autism CARES grantees. Your dedication to supporting children and youth with autism spectrum disorder (ASD) and developmental disabilities (DD) and their families is making an impact. Collectively, you are improving access to screening and diagnostic services for children with ASD, training the pipeline of future leaders in neurodevelopmental disabilities, advancing the evidence base around the effectiveness of autism interventions, reducing barriers to care for underserved populations, and pursuing new, innovative models of care and training to extend your reach.

 
 

12/22/2016

New Resource from "Learn the Signs. Act Early." Milestones in Action Photo and Video Library

Milestones in Action is a FREE image library that features photos and videos of children demonstrating developmental milestones from 2 months to 5 years of age. This tool was created to help parents, early care and education providers, and healthcare providers identify developmental milestones in children and know if there is cause for concern.

 
 

12/22/2016

New Resource from "Learn the Signs. Act Early." Milestones in Action Photo and Video Library

Milestones in Action is a FREE image library that features photos and videos of children demonstrating developmental milestones from 2 months to 5 years of age. This tool was created to help parents, early care and education providers, and healthcare providers identify developmental milestones in children and know if there is cause for concern.

 
 

12/22/2016

New State Grantee Community of Learners Kicks-Off!

SPHARC, in partnership with HRSA, recently held an October in-person kick-off meeting in Washington, DC for the new Autism Community of Learners state grantee cohort. his meeting helped lay the ground work for national partner and peer-to-peer support around grantee activities for the project period, which focus on implementation three key evidence-based/informed strategies: Shared Resource, Family Navigator and Telemedicine/Telehealth.

 
 

12/22/2016

News from the Healthy Weight Research Network (HWRN)

The Healthy Weight Research Network (HWRN), coordinated by the E.K. Shriver Center at UMass Medical School and Tufts University School of Medicine, was refunded for the next 5 years from the Maternal Child Health Bureau. The mission of the HWRN is to advance the understanding of obesity risk factors in children with ASD and other developmental disabilities, to promote the development of evidence-based solutions to achieve healthy weight in this population, and to disseminate research findings to broad and diverse audiences.

 
 

12/22/2016

Resources for Zika and Developmental Monitoring Available in Public Health is for Everyone

There is an urgent need to educate public health practitioners on developmental monitoring, screening, and early identification of the health complications for infants and children affected by Zika. Babies affected by Zika may experience a spectrum of needs from the most severe cases of microcephaly, to vision problems, hearing loss, seizures, intellectual disabilities, reduced speech and language abilities, and other long-term developmental disabilities. Even though babies affected by Zika may look typical at birth, subtle changes that turn into serious health problems could occur as they become older.

 
 

12/22/2016

Sibling Leadership Network Update

The Sibling Leadership Network (SLN) receives lots of questions about the Family and Medical Leave Act (FMLA) as it applies to siblings of people with disabilities. To assist siblings in understanding more about FMLA, we compiled responses to some of the most commonly asked questions as a reference.

 
 

12/22/2016

Teaching Disability Awareness to Fourth Graders (Boston Children's Hospital)

This article was written by Carol Wilkinson, MD PhD, DBP Fellow at Boston Children's Hospital.

Every fall, the Boston Children's Hospital Division of Developmental Medicine fellows in Developmental Behavioral Pediatrics and Pediatric Psychology partner with the Brookline Public Schools (MA) to teach fourth graders about various disabilities. Fellows are trained in a hands-on curriculum and then spend several mornings implementing the curriculum to educate children about people with physical, sensory, or developmental disabilities. Understanding Our Differences is an interactive disability awareness curriculum that teaches children to "see the person and not the disability." Taught over several weeks, the activities harness a child's innate curiosity and desire to understand differences, coupled with lessons of how to engage with and respect peers with disabilities, the program focuses on acceptance in an inclusive world.

 
 

12/22/2016

UC Davis CEDD awarded LTSAE grant

The Center for Excellence in Developmental Disabilities (CEDD) at the UC Davis MIND Institute was awarded a Learn the Signs / Act Early (LTSAE) grant from the Association of Maternal and Child Health Programs (AMCHP) for 2016-2018 to support the dissemination of LTSAE resources designed to increase parent-engaged developmental monitoring. CEDD is partnering with the California Autism Professional Training and Information Network (CAPTAIN), the State LTSAE Ambassadors, the LEND at UC Davis and the LEND at USC in this effort.

 
 

12/22/2016

Updates from the State Public Health Autism Resource Center

AMCHP's State Public Health Autism Resource Center (SPHARC) has released several new resources and technical assistance opportunities designed to aid and assist ASD/DD grantees.

 
 

12/22/2016

What's New in AIR-B3?

The AIR-B3 network consists of 5 sites--- UCLA, UC Davis, University of Pennsylvania, Drexel University and University of Rochester. We have been actively preparing for the intervention studies we proposed, Mind the Gap and Building Better Bridges. Both of these intervention teams have been collecting pilot data, and refining the interventions which focus on the gap between diagnosis and services for many low-resourced families (Mind the Gap), and in maintaining continuity between major schooling transitions, such as between preschool and Kindergarten, elementary to secondary school (Building Better Bridges).

 
 

12/21/2016

#AUCD2016 Sponsors - Thank you!

Thank you to the sponsors of the AUCD 2016 Conference! Because of your participation, our theme of "Navigating Change: Building our Future Together" was truly realized.

 
 

12/21/2016

AUCD Network and Concept Maps

Adriane K. Griffen, DrPH, MPH, MCHES

As many of you know, I recently completed a Doctorate of Public Health with a concentration in leadership at the University of Illinois at Chicago. This training experience has forever changed how I think about issues and challenges. I think in concept maps now-believe it or not! One of the most recent concept maps that I've created is around the mission of AUCD. This comes up every time I do outreach to a new partner or give a presentation. I just don't feel like words on a page do our work justice. Here's how I explain the AUCD network-concept map style.

 
 
AUCD Board of Directors (not pictured: Jack Brandt)

12/21/2016

AUCD Welcomes 2017 Board of Directors

AUCD is governed by an elected Board of Directors that includes professionals, individuals with disabilities, and family members. On December 7, 2016, we thanked outgoing Board members for their dedicated service and welcomed the members of the 2017 AUCD Board of Directors.

 
 

12/21/2016

Congratulations to the AUCD 2016 Awardees

The AUCD Honors Celebration gives us an opportunity to recognize individuals, programs, and organizations that have demonstrated exceptional leadership and made outstanding contributions in advocacy, research, policy, and practice that further diversity and create more inclusive communities for people with disabilities and their families. Comprised of 11 categories, the AUCD awards represent the 'best of the best' within our network, and local, state, and federal partners. AUCD congratulates this year's honorees for their commitment to improving the lives of people with disabilities and their families every day.

 
 

12/21/2016

Harkin International Disability Employment Summit 2016

Inaugural event deemed a success, 2017 event planning underway

The inaugural Harkin International Disability Employment Summit was held in Washington, DC, on December 8 and 9 of 2016. Over 180 participants from 31 countries gathered to identify strategies for increasing competitive integrated employment around the world. Sponsored by the Harkin Institute for Public Policy and Citizen Engagement and spearheaded by Sen. Tom Harkin (retired) of Iowa, the Summit was attended by international business leaders, philanthropists, disability advocates, and government representatives.

 
 

12/21/2016

LEND Project Looks at Developmental Surveillance and Screening in Early Childcare settings (OH-Nisonger Center UCEDD/LEND)

Nisonger LEND trainees and faculty Andrea Witwer, PhD and Jennifer Walton, MD, MPH, are involved in a multi-year project examining developmental screening and surveillance of Ohio children in early childhood settings. The goal of the project is to improve early identification of children with developmental delays. As more very young children spend time in childcare, providing training on evidence based screening to childcare providers can potentially provide an additional safety net to help identify children with delays early. Now in its third year this leadership project has completed a needs assessment of childcare providers and childcare center directors with regard to developmental surveillance and screening of children with developmental delays.

 
 

12/21/2016

Martha Thurlow (MN UCEDD) Speaks at White House Convening on Education

Martha Thurlow, Director of the National Center on Educational Outcomes (NCEO) at the Institute on Community Integration (MN UCEDD), participated in the White House Convening on Better, Fairer, and Fewer Assessments in Washington, DC. The Convening brought together about 100 representatives from states, districts, and schools, as well as researchers and assessment developers. The purpose was to discuss how to improve assessments and reduce the burden of redundant assessments, consistent with the Obama Testing Action Plan released in October 2015.

 
 

12/21/2016

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Member Developing App to Help Children with Disabilities Who Have Challenging Behaviors

A Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) special education researcher has been awarded a $1.5 million grant by The Institute of Education Sciences to develop an app for use by parents who have young children with disabilities who also exhibit challenging behaviors.

 
 

12/20/2016

Tuesdays with Liz: Taylor Carley

This week's edition of Tuesdays with Liz: Disability Policy for All Liz interviews Taylor Carley, the host of Chit Chat with Taylor, where they discuss his video show. In case you missed last week's episode, Liz interviewed Oregon State Senator Sara Gelser where they discuss the senator's experience as a mom and how that influenced her career as a policymaker. Senator Gelser also addressed AUCD at the annual meeting.

 
 
Catherine Lhamon

12/15/2016

AUCD Statement on the Nomination of Catherine Lhamon to the U.S. Commission on Civil Rights

President Barack Obama announced the nomination of Catherine Lhamon to the U.S. Commission on Civil Rights. Lhamon is currently the Assistant Secretary in the Office for Civil Rights of the U.S. Department of Education, where she has provided key leadership in achieving educational equity for all students, including those with disabilities. AUCD endorses her appointment and believes she will be an outstanding leader on the U.S. Civil Rights Commission.

 
 
Ryan King

12/15/2016

Ryan King Released from Guardianship

In a landmark victory, Ryan King, a man with a developmental disability, was freed from 15 years of unnecessary guardianship. AUCD celebrates with Mr. King on his new legal status. He now has the right to make his own decisions through supported decision-making.

 
 

12/13/2016

Tuesdays with Liz: Oregon State Senator Sara Gelser

Liz interviews with Oregon State Senator Sara Gelser where they discuss the senator's experience as a mom and how that influenced her career as a policymaker. Senator Gelser also addressed AUCD at the Conference last week.

 
 

12/12/2016

2017 START National Training Institute (NH UCEDD/LEND)

The Center for START Services, a national initiative based at UNH's Institute on Disability/UCED, works to address the service gap for people with IDD and Mental Health issues in communities across the country. The annual START National Training Institute (SNTI) provides an interactive forum aimed at the sharing of best practices, engaging in experiential learning opportunities, and "feeling the strength of START".

 
 

12/12/2016

Dr. Stephen Sulkes Receives First Special Olympics New York Golisano Health Leadership Award for Advancing Inclusive Health for People with Intellectual Disabilities (NY UCEDD/LEND)

In October Dr. Stephen Sulkes of Rochester, New York received the 2016-17 Golisano Health Leadership Award. The Golisano Health Leadership Award was established in 2016 in partnership with Special Olympics International and the Golisano Foundation, and is given to one of only 32 individuals or organizations in the world who are dedicated to improving the health of people with intellectual disabilities and advancing the health work of Special Olympics. "Special Olympics New York is delighted to be able to present Dr. Stephen Sulkes with the Golisano Health Leadership Award.

 
 

12/12/2016

Dr. Therese Willkomm Presents at White House Summit (NH UCED/LEND)

Dr. Willkomm served as a panelist during a discussion on "Promoting Innovation in Assistive Technology & Prosthetics." Shea Tanis, Associate Director of Research at Coleman Institute for Cognitive Disabilities at the University of Colorado, moderated the panel. Other panelists included Dr. Cathy Bodine, Associate Director and Executive Director in the Department of Bioengineering and Department of Pediatrics at the University of Colorado and Alexis Kashar, Board Chair at the National Association of the Deaf.

 
 

12/12/2016

Institute on Disability Receives Grant for National Disability Employer Practices Survey (NH UCEDD/LEND)

The Institute on Disability (IOD) at the University of New Hampshire has been awarded a $265,000 Signature Employment Grant by Kessler Foundation to conduct the "Kessler Foundation Employer Practices Survey." The IOD will collaborate with the University of New Hampshire Survey Center on the project.

 
 

12/12/2016

IU Report Provides Employment and Inclusion Data About Hoosiers with Disabilities (IN UCEDD)

Indiana residents who receive employment services and other support from disability service providers have made few gains in the past year, according to a new report from Indiana University's Center on Community Living and Careers. Findings about how people with intellectual and developmental disabilities are interacting with their communities are included in the 2016 "Day & Employment Services Outcomes Systems Report." The report is published annually by the center, a division of the Indiana Institute on Disability and Community at Indiana University Bloomington.

 
 

12/12/2016

Labor Secretary Tom Perez Addresses Harkin International Disability Employment Summit

On December 8 and 9, high-level representatives and grassroots implementers from around the world convened in Washington, D.C. for the inaugural Harkin International Disability Employment Summit - an event designed to identify and create strategies to increase the employment opportunities for people with disabilities around the world.

 
 

12/12/2016

Linking Latino Parents to Autism Resources (IL UCEDD/LEND)

For parents who have a child with autism, navigating the service system to find ways to help their child can be overwhelming. Within the Latino community, promotoras - community health workers who are indigenous to the community - help educate parents on autism and appropriate services. Two UIC researchers are going global by expanding a parent educational intervention designed for Latino parents in the U.S. to Colombia.

 
 

12/12/2016

Student "Draft IEP" Interactive Tool Enables Students in New York State to be More Active in their IEP Development (NY UCEDD/LEND)

Students who are engaged in their program planning are more successful in school and in later life. However, many students do not attend their IEP meetings, and of those who do, very few participate meaningfully. The IEP meeting is devoted to the individual student and it is therefore critical that students be heard and have a way to impact on the decisions made. Student participation is meaningful only if they understand the purpose and process. Preparation is important to assure full engagement.

 
 

12/12/2016

the Housing Iowa Conference about the history of the landmark Supreme Court decision and the importance of housing in community integration. The session also featured Iowa's Money Follows the Person coordinator Brooke Lovelace and program participant

The Tarjan Center in partnership with the Center for Cerebral Palsy and David Geffen School of Medicine at UCLA is one of four sites working to transform healthcare for women with disabilities. The focus at UCLA is to improve access to reproductive health care and pregnancy experiences of women with cerebral palsy.

 
 

12/12/2016

The Illinois UCEDD Director and Distinguished Professor, Tamar Heller, is featured in a documentary titled, "Going Home: A Full Life in the Community" (IL UCEDD/LEND)

The Illinois UCEDD director and distinguished professor, Tamar Heller, is featured in a documentary titled, "Going Home: A Full Life in the Community" . It makes the case for community living and for closure of large state institutions in Illinois. The film cites research conducted at the UCEDD and is partially filmed in its building.

 
 

12/12/2016

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Rett Syndrome Clinic has been Named a Rett Syndrome Clinical Research Center of Excellence

Led by Vanderbilt Kennedy Center Investigator Sarika Peters, Ph.D., and Cary Fu, M.D., Vanderbilt�s clinic is one of only 14 sites nationwide to receive this designation. The award acknowledges that these clinics not only provide treatment for patients but work collaboratively to provide support for families, as well as with specialists in a range of studies, including developmental and behavioral pediatrics, neurology, sleep disorders, gastroenterology and more.

 
 
Senator Casey speaking at the AUCD 2016 Conference

12/7/2016

Senators Casey & Hatch Introduce the "Respond, Innovate, Succeed, and Empower Act of 2016"

Sen. Casey speaks at the AUCD Conference immediately before introducing bill in the Senate

With Congress poised to begin efforts to reauthorize the Higher Education Act, the introduction of the RISE Act signals that students with disabilities will be part of the effort to increase access to postsecondary education and their needs will be addressed.

 
 

12/6/2016

Tuesdays with Liz: Paulina Larenas

This week's edition of Tuesdays with Liz: Disability Policy for All Liz interviews Paulina Larenas, DREAM Fund recipient, about Latino families and her dream for her daughter with developmental disabilities. In case you missed last week's episode, Liz celebrated the 100th episode of TWL! To celebrate this milestone, Sara Luterman, communication assistant at AUCD, interviewed Liz Weintraub, advocacy specialist about her thoughts and dreams for Tuesdays with Liz: Disability Policy for All.

 
 

12/4/2016

Photos from the AUCD 2016 Conference

View our albums on Flickr

The AUCD2016 Conference was full of memorable moments. View our Flickr albums to relive some of the best.

 
 

12/1/2016

Rose F Kennedy UCEDD at Montefiore Partners with Bronx Developmental Disabilities Council for 13 Annual Health Services Conference

The Rose F Kennedy UCEDD (NY) at Montefiore partnered with the Bronx Developmental Disabilities Council for its 13th Annual Health Services Conference on November 18, 2016, entitled Physical and Behavioral Health Care for Persons with Developmental Disabilities. For years the RFK UCEDD has worked collaboratively with the Council, an association of parents, advocates and professionals that is advisory to the New York City Department of Health and Mental Hygiene and the New York State Office for People with Developmental Disabilities.

 
 

11/30/2016

2017 DMCHWD Diversity and Health Equity Peer Learning Collaborative

Deadline: December 5, 2016

Are you interested in improving your MCH Training Program or institution's practices around diversity or health equity? Are you revamping your existing practices related to training on cultural and linguistic competence or looking for resources, tools, and best practices related to diversity, cultural and linguistic competence and health equity initiatives? If so, consider applying for the 2017 Diversity and Health Equity Peer Learning Collaborative!

 
 

11/30/2016

AUCD 2016 Conference App Available

AUCD has again partnered with Guidebook to bring you the entire conference agenda and more on your mobile device, for free! Download the guide to plan your day with personalized schedules, browse exhibitors, view maps of the hotel and surrounding area, view the attendee list and connect with people before you arrive, access exclusive online content, and much more. The app is compatible with iPhones, iPads, iPod Touches and Android devices. Windows Phone 7, laptop, and Blackberry users can access the same information via our mobile site.

 
 

11/30/2016

AUCD Joins Amicus Brief on FAPE Supreme Court Case

AUCD joined the National Disability Rights Network (NDRN) and the National Association of Councils on Developmental Disabilities (NACDD) on an amicus brief in the U.S. Supreme Court case Endrew F v. Douglas County School District.

 
 

11/29/2016

Tuesdays with Liz - 100th Episode

Can you believe its Tuesdays with Liz: Disability Policy for All 100th episodes?! To celebrate this milestone, Sara Luterman, communication assistant at AUCD, interviewed Liz Weintraub, advocacy specialist about her thoughts and dreams for Tuesdays with Liz: Disability Policy for All. In case you missed last week's episode, Liz provided a preview of the upcoming AUCD Conference, which will take place from December 4-7. Liz highlights important sessions and opportunities to learn more about disability policy at the conference.

 
 

11/28/2016

ESSA Final Regulations Fact Sheet

The Department of Education has issued final regulations to implement provisions of the Every Student Succeeds Act (ESSA) that concern school accountability, data reporting and state plans. This fact sheet provides information about the regulations and new requirements that states must fulfill.

 
 

11/28/2016

Increasing Folic Acid Intake through Public Health Education (WI- Waisman Center UCEDD/LEND)

Folic acid is a crucial B vitamin that can prevent up to two thirds of cases of neural tube defects if taken daily before a woman becomes pregnant. Over the past year, faculty, staff and trainees at the Waisman Center UCEDD and the WI LEND program at the University of Wisconsin-Madison, have been working to increase awareness of the significant public health impacts of daily folic acid use. The current "Folic Strong" Initiative is a 3-pronged public health approach based on 1) policy changes that improve access to prenatal vitamins containing folic acid for all women of reproductive age, 2) healthcare provider education and 3) direct-to-consumer education to increase the number of women in Wisconsin who are taking vitamin supplements with folic acid.

 
 

11/28/2016

Iowa's UCEDD Training Behavior Teams Improve Outcomes for Students Engaging in Challenging Behaviors

The CDD training teams have worked with 19 school-based behavioral teams, varying in size from one to nine members, to teach them how to design, conduct, and analyze results of different behavioral assessments (e.g., preference assessments, functional analysis). Ten of the 19 teams have graduated from training and are now training other personnel in conducting these assessments.

 
 

11/28/2016

WIHD offers Intensive Parenting Support for Parents with Intellectual Disabilities (NY UCEDD/LEND)

Project IMPACT is an intensive, home-based parenting program that was created at WIHD to meet the needs of parents with intellectual/learning disabilities in Westchester County, NY. Project IMPACT's evidence-based curriculum was developed to assist parents with intellectual disabilities in developing parenting skills.

 
 

11/22/2016

Background on why a Medicaid per capita cap/block grant would lead to devastating cuts in Medicaid

The health plan that Speaker Paul Ryan and other House Republican leaders unveiled today would radically restructure Medicaid by forcing states to accept reductions in federal funding for their Medicaid programs through either a per capita cap or a block grant, both of which would shrink federal funding for state Medicaid programs over time, relative to current law. This would shift significant costs to states and almost certainly lead states to cut Medicaid substantially over time, potentially placing millions of low-income Americans at risk of losing part or all of their health coverage...

 
 

11/22/2016

Tuesdays with Liz - AUCD 2016 Conference Preview

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz gives a preview of the upcoming AUCD Conference, which will take place from December 4-7. Liz highlights important sessions and opportunities to learn more about disability policy at the conference. In last week's episode, Liz provided her thoughts on the presidential election outcome amid the transition to a new administration.

 
 

11/21/2016

AUCD Announces 2016 Emerging Leader Scholarship Recipients

The Emerging Leader Scholarship Fund was established to support emerging leaders in the AUCD Network with an emphasis on self-advocates, family members and early career professionals. Recipients receive a travel scholarship and registration funds for the AUCD Conference in Washington, DC, where they gain valuable opportunities in networking, mentorship, and professional growth.

 
 

11/21/2016

East Meets West: Helping entrepreneurs who have disabilities make dreams a reality (IL UCEDD/LEND)

In 2010, Renko began a collaboration with Sarah Parker Harris, professor of disability and human development, to begin a pilot program called Participation Through Innovation, which led to a second collaboration, the Chicagoland Entrepreneurship Education for People with Disabilities (CEED). The effort, funded by a two-year, $300,000 grant by the Coleman Foundation in 2014, provides support for entrepreneurs with disabilities.

 
 

11/21/2016

TennesseeWorks Employment Summit Focuses on High Expectations and Hard Work (TN UCEDD, IDDRC, LEND)

TennesseeWorks, a collaborative project led by Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Investigator Erik Carter, Ph.D., recently hosted the fourth Annual Think Employment! Summit, which focused on hard work and high expectations.

 
 

11/21/2016

Voices of ASD Video Library Launched (CO UCEDD/LEND)

We are excited to announce the new Voices of ASD Video Library, a collection of videos that explore the lives of individuals with ASD, with a focus on first person accounts and an exploration of what it means to live with ASD. Our goal is to deepen understanding among individuals with ASD, their families, and communities through the sharing of personal stories. The first video in the series profiles four adults living with autism as they share their personal stories including their challenges, strengths, advice and hopes/beliefs about the future.

 
 

11/15/2016

Tuesdays with Liz - Post Election

During this week's edition of Tuesdays with Liz, Liz Weintraub provides her thoughts on the presidential election outcome.

 
 

11/14/2016

Center for Leadership in Disability funded for Health Disparities Research Within HIV/AIDS and Disability Populations (GA UCEDD/LEND)

The Center for Leadership in Disability (CLD) at Georgia State University in collaboration with the Phoenix Group Foundation has received funding from the Morehouse School of Medicine Transdisciplinary Collaborative Center (TCC) for Health Disparities Research to conduct a community-based evaluation focused on the availability and quality of HIV/AIDS prevention services for individuals with intellectual, developmental and significant learning disabilities in the Atlanta metro area.

 
 

11/14/2016

Integrating Access and Functional Needs within Active Shooter Awareness Guidance Organization: California Governor's Office of Emergency Services, Office of Access and Functional Needs

Following the active shooter attack in 2015 at the Inland Regional Center in San Bernardino, initial reports indicated it was an assault on the disabled. Though we later learned this was not the case; the thought of an attack on individuals with disabilities raised serious concerns over the current lack of guidance regarding the access and functional needs (AFN) considerations associated with an active shooter attack. To address this issue, the California Governor's Office of Emergency Services brought together a work group consisting of representatives from law enforcement, the California State Council on Developmental Disabilities, emergency managers, the California Specialized Training Institute and other disability stakeholders to update its Active Shooter Awareness Guidance. The revised guidance, which now integrates access and functional needs considerations, has been completed and is now publicly available! A copy is attached for your use and reference. We encourage you to share it with your stakeholders.

 
 

11/14/2016

Iowa UCEDD Capitalizes on Partnerships to Promote Employment First

Recent production of a two-part television series highlighting National Disability Employment Awareness Month combines the Iowa UCEDD's emphasis on promoting Employment First with its commitment to information dissemination. Entitled "The Power of Employment," the series aired on "Hello, It's Us!", a weekly Public Access Television program produced by the UCEDD dedicated to educating viewership about a variety of disability-related topics through the lens of community inclusion.

 
 

11/8/2016

Tuesdays with Liz - Election Day

During this week's edition of Tuesdays with Liz, for Election Day, Liz speaks about the importance of voting. In case you missed last week's edition, Liz interviewed Shea Tanis, of the Coleman institute, about technology and the Declaration of Rights for Technology for people with disabilities

 
 

11/7/2016

A Personal Story of a Cultural Broker (MA UCEDD/LEND)

By Oanh Thi Thu Bui, Diversity Fellow, Institute for Community Inclusion, UMass Boston

When parents reach out to me, their stories may be very complicated, requiring intensive support in multiple areas, from medical and educational to social support. A few families have contacted me more than 150 times over the course of one year, both in person, or on the phone or via email. Communicating with schools and participating in school activities is often not part of Asian culture. Many of these families have high expectations for their children, but they don't expect a child with disability to be independent and to work. It's been satisfying to see some of the parents who attend my support group get more involved in their children's education. In Part 2 of our series about cultural brokering, Oanh shares more about how her organization supports Vietnamese parents whose children have disability.

 
 

11/7/2016

Beyond the Classroom: Wyoming Institute for Disabilities Partners with Local Arts Center (WY UCEDD)

An innovative collaboration proved to be a powerful example of the benefits of bringing learners of all abilities into a single classroom setting. The Wyoming Institute for Disabilities (WIND), Wyoming's UCEDD, piloted Disability Advocacy and Justice through the Disability Studies Minor, a core component of the pre-service education and training at WIND. Disability Advocacy and Justice started in the spring of 2016, bringing together five students from the Cooper Center for Creative Arts in Laramie and five students from the University of Wyoming's Disability Studies Minor to explore disability rights, services and policies, and to collaboratively identify and research current disability advocacy issues of concern to class members.

 
 

11/7/2016

Children of the Kingdom: Bridging Genetics and Islam to Save the Children of Saudi Arabia

Terrence R. Dolan, Ph.D., former long-time director of the Waisman Center (UCEDD, LEND & IDDRC) at the University of Wisconsin has published his first book: Children of the Kingdom: Bridging Genetics and Islam to Save the Children of Saudi Arabia. Dr. Dolan, in addition to his 20 year tenure at the Waisman Center, has been an outstanding leader in the network serving as the Board President of AUCD (then called AAUAP), Chair of the IDDRCs, and President of the International Association for the Scientific Study of Intellectual Disabilities (IASSID). He has also served on NIH National Advisory Committees and was a Member of a National Academy of Sciences Standing Committee,

 
 

11/7/2016

UM Launches Statewide Adaptive Bike, Recreation Initiative (MT UCEDD)

Montanans living with disabilities will have access to adaptive cycles through a new statewide initiative spearheaded by the University of Montana. The Wheels Across Montana program will host its second state regional Adaptive Bike Clinic from 2 to 5 p.m. Friday, Aug. 19, at the Southwest Family YMCA in Dillon.

 
 

11/3/2016

Report Addressing Workforce Challenges in NH Community Mental Health Centers (NH UCEDD/LEND)

The NH Children's Behavioral Health Workforce Development Network recently released a report looking at the workforce challenges in NH's Community Mental Health Centers.

 
 

11/3/2016

Associate Director Interviews: Amy Health, Director of the Autism Program (TX UCEDD)

One of our most exciting projects and collaboratives is The Autism Clinic (TAC), which partners with the Center and community providers in the Brazos Valley and statewide to provide services that address the education and community support needs of individuals with autism, including those with severe behavior challenges, and their families.

 
 

11/3/2016

AUCD Welcomes Connie Dong as Meetings Intern

Xiaobao "Bonnie" Dong is a Meeting Intern at AUCD, mainly assists with AUCD's 2016 Annual Conference and upcoming 2016-2017 AUCD meetings. Bonnie's past work experiences extended to the hotel and hospitality industry. She also volunteered and participated in a number of events, such as XX ANOC General Assembly, Nation's Triathlon, and IMF Annual Conference etc. Bonnie is bilingual in Chinese and English and has a great passion in event planning and non-profit organization services.

 
 

11/3/2016

Center for Leadership in Disability Partners with Georgia Tech's Center on Advanced Communications Policy (GA UCEDD/LEND)

The Center for Leadership in Disability (CLD) at Georgia State University has partnered with Georgia Institute of Technology's Center for Advanced Communications Policy (CACP) on a recently awarded $4.625 million grant to support research and development of wireless devices and technologies for people with disabilities.

 
 

11/3/2016

Dean's Development Council: Extraordinary Service Award received by Dr. Jeni Ganz (TX UCEDD)

Dr. Jeni Ganz was awarded the "Extraordinary Service Award" from the College of Education Dean's Development Council on Friday, October 28th at the Hilton hotel. Throughout her career, in public education, as a graduate student, and as a faculty member, Dr. Ganz has demonstrated a commitment to people with developmental disabilities and their families, to the community, to colleagues, and to students. Below, I note career-long efforts on her part and will highlight efforts she spearheaded at TAMU and in affiliation with the Center on Disability and Development (CDD) at TAMU. Major outcomes of these "above and beyond" efforts have resulted in (a) the development of community partnerships resulting in provision of previously unavailable diagnostic assessments, treatment, and family services for individuals with autism spectrum disorder in the Brazos Valley, as well as (b) the development and delivery of an online program to prepare students to become certified behavior analysts, which increases the capacity throughout the state and beyond to provide evidence-based treatments for individuals with autism. Dr. Ganz is currently a tenured professor of special education at TAMU, where she has worked for 8 years.

 
 

11/3/2016

Dr. Amanda Reichard Appointment (NH UCEDD/LEND)

Dr. Amanda Reichard recently became the new Chair of the Disability Research Interest Group (DRIG) for AcademyHealth. In this role, she will be working to elevate the importance of recognizing people with disabilities as a health disparities population.

 
 

11/3/2016

Einstein Buddies: Experiential Learning Partnerships Change Perceptions (NY UCEDD/LEND)

Einstein Buddies is an innovative Community Based Service Learning program (CBSL) at Albert Einstein College of Medicine that joins pediatric occupational and physical therapists, individuals with developmental disabilities and their families at the Rose F. Kennedy Children's Evaluation and Rehabilitation Center (CERC) UCEDD with first year medical students to develop collaborative relationships while engaged in experiential learning.

 
 

11/3/2016

Fellowship Grants Awarded to Three Goodwin College Students (UCONN UCEDD)

Thanks to a grant focused on encouraging professional development for individuals from diverse backgrounds in human services, three Goodwin College students will have a rare - and challenging - educational experience that can profoundly shape their careers and benefit the clients with whom they will work.

 
 

11/3/2016

Former Student Success Story (TX UCEDD)

Keariel Scott, Postsecondary Access and Training in Human Services (PATHS) Class of 2015, was accepted into the Vista College Medical Assistant (MA) program in the fall of 2015. She is currently finishing up her second year in the program and will be on her "externship" at a pediatrician's office in the spring of 2017.

 
 

11/3/2016

HANDS Model in Practice - Intensive 3-Day Programming and Workshop (IN UCEDD/LEND)

HANDS in Autism will be conducting a series of Intensive 3-Day Programming & Workshop events over the next few months. Our intensive training focuses on providing hands-on experience and coaching in a simulated work environment. Individuals with disabilities participate, facilitating a rich learning environment for all. While the program includes traditional methods such as lectures and discussion, the emphasis of training is building increased knowledge and skill of the process of making appropriate programming decisions for each individual, workplace, and/or intervention team through hands-on application and learning.

 
 

11/3/2016

Healthy Community Living: Real People. Real Places. (MT UCEDD)

The Healthy Community Living (HCL) project is about all people having opportunities to live well and participate fully in their communities. We had an opportunity to present, via a short video and a variety of sponsored sessions, at the 2016 APRIL Conference in Reno, Nevada. We spoke to disability advocates from Centers for Independent Living and other organizations. Attendees learned how that they could help tell the story of their communities, through sharing photos, videos, and stories with the HCL team. The media we collect becomes public, and will also go to support two curriculums: Community Living Skills and Living Well in the Community. The goal of these curriculums is to improve people's health by providing support, health promotion, education and opportunities for people to succeed by reaching personal goals. These curriculums will encourage participants to explore skills for community living both online and in person with peers and allies.

 
 

11/3/2016

Ivanova Smith presents to CLD My Voice. My Participation. My Board. (GA UCEDD/LEND)

Ivanova Smith, Self Advocate and faculty for the University of Washington LEND at the Center on Human Development and Disability (CHDD), was the Keynote speaker for My Voice. My Participation. My Board. (MVMPMB) Cohort 4 participant's Part 2 training session.

 
 

11/3/2016

MNLEND Call for Applicants - Early Admission Cycle

MNLEND (UMN - Twin Cities) is inviting 2017-18 cohort applicants to apply for Early Admission consideration (Early applications accepted between October 1 thru November 15, 2016). General Admission applications will be accepted between February 1 thru March 15, 2017. MNLEND, a year-long interdisciplinary leadership program in neurodevelopmental disabilities (NDD), is funded by the U.S. Maternal & Child Health Bureau and it spans 16 disciplines.

 
 

11/3/2016

MNLEND Webinar Archived on Neurobiology of Poverty

Professor Gunnar reviews theories that predict how poverty and the stressors associated with it will impact the activity of stress-mediating systems and that these systems can help explain how poverty "gets under the skin" to influence life course trajectories of health and disease. She then reviews the evidence available to date for these theories and points to the need for a "next generation" of stress research to better understand the role of poverty in human development.

 
 

11/3/2016

New Partnership Formed to Prepare People with Intellectual and Developmental Disabilities for Training Law Enforcement Personnel (MD UCEDD/LEND)

The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute (MCDD) has entered into an agreement with the Maryland Department of Disabilities to work with community partners in preparing and supporting people with intellectual and developmental disabilities (I/DD) to educate law enforcement personnel on ways to safely interact with citizens who may have disabilities. The MCDD is partnering with three leading disability advocacy groups People On the Go of Maryland, Pathfinders for Autism, and The Arc Maryland.

 
 

11/3/2016

Think College Student Named 40 Under 40 in Vermont Business Magazine Organization: Center on Disability and Community Inclusion (VT UCEDD)

Stirling Peebles, former Think College Vermont student and current Think College Dissemination Assistant, has been recognized by Vermont Business Magazine as a 2016 Rising Star. The Rising Stars program was started in 2010 to show Vermonters-particularly the youth of Vermont-that there are people under the age of 40 who contribute significantly to this state, and that they are a valued resource when it comes to their employers and their communities. The list is comprised of 40 winners all under the age of 40. Award recipients are selected every year by a panel of judges for their commitment to business growth, professional excellence, and involvement in their communities.

 
 

11/1/2016

Tuesdays with Liz - Shea Tanis

During this week's edition of Tuesdays with Liz, Liz interviews Shea Tanis, of the Coleman institute, about technology and the Declaration of Rights for Technology for people with disabilities. In case you missed last week's edition, Liz interviewed Renee Tajudeen from the Office of Disability Employment and Policy. As see an interview, from September of this year, with Michelle Bishop of on voter rights.

 
 

10/31/2016

Mammography Awareness for All Women

Throughout Breast Cancer Awareness Month, the FDA Office of Women's Health is conducting outreach to educate women about the importance of mammography screening for breast cancer early detection. Our Pink Ribbon Sunday Program helps to empower community leaders and health professionals to conduct mammography outreach activities for the women they serve. The program initially targeted African American and Hispanic churches but has since expanded to local and national organizations serving women from diverse backgrounds. This year the Pink Ribbon Sunday Program is collaborating with the American Association on Health and Disability and the Association of University Centers on Disabilities to disseminate FDA mammography information to women living with a disability.

 
 

10/27/2016

Rep. Cathy McMorris Rodgers to Speak at AUCD2016

U.S. Representative Cathy McMorris Rodgers (WA-5th), a six term Congresswoman and the highest ranking woman in Congress who currently serves as the House Republican Conference Chair, has accepted our invitation to be the featured speaker during the Tuesday evening AUCD Honors Celebration. Rep. McMorris Rodgers will share her thoughts about federal disability policy and the outlook for disability focused legislation in the 115th Congress.

 
 

10/27/2016

Resources, Relationships and Meaning. National Disability Employment Month

An open letter from the Chairman of the WIOA Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities (ACICIEID), David Mank.

October is Disability Employment Month. We celebrate the employment successes of people with disabilities, have respect for people's contributions, and at the same time know we must expand and improve employment outcomes in communities across the country.

 
 

10/26/2016

IDDRC Reporter 2016

The IDDRC Reporter is a once-a-year summary of research conducted by the IDDRC Network programs. This newsletter will highlight some recent advances in Down syndrome research from the Eunice Kennedy Shriver Intellectual and Developmental Disabilities Research Centers (IDDRCs), a network supported by the National Institute of Child Health and Human Development (NICHD) at the National Institutes of Health (NIH).

 
 

10/25/2016

Tuesdays with Liz - Renee Tajudeen

In celebration of National Disability Employment month, during this week's edition of Tuesdays with Liz, Liz interviews Renee Tajudeen from the Office of Disability Employment and Policy (ODEP). In case you missed last week's edition, Liz interviewed Bruce Darling (Community Organizer for ADAPT) about the Disability Integration Act.

 
 

10/24/2016

A Diversity Community of Practice Funded by the Administration on Intellectual and Developmental Disabilities

The Georgetown University National Center for Cultural Competence (NCCC was awarded a new project funded by the Administration on Intellectual and Developmental Disabilities - a Diversity Community of Practice. The project is funded through a Cooperative Agreement for five years (9/1/16- 8/31/21). The project has two primary objectives. To create and implement a multifaceted Community of Practice (CoP) designed to facilitate peer exchange, share information, provide technical assistance, and leverage resources to increase diversity and advance cultural and linguistic competence in state/territorial DD systems. To integrate content from a proven curriculum (Georgetown Leadership Academy) into a multi-state/territory CoP model designed to foster leadership for system transformation.

 
 

10/24/2016

First MS Self-Advocacy Fellow Begins in MS-AR LEND Partnership Program

Mississippi LEND has First Self-Advocacy Fellow Robert "Taylor" Carley recently began his training year as the first self-advocacy fellow in the Institute for Disability Studies' (IDS) Leadership Education in Neurodevelopmental (and Related) Disabilities (LEND) program in Mississippi. IDS' LEND is made possible through a sub-contract with the Arkansas LEND Program and is in its seventh year of existence. This year's Mississippi cohort also includes fellows in counseling psychology, social work, applied behavior analysis and family nurse practice. Taylor's first connection to IDS was through volunteering and then serving in the first TRIAD Service AmeriCorps Program. It was during his initial volunteer and service experiences that he found his "voice" and passion to serve others as a self-advocate leader. He then served as president of the STEP UP Advisory Council composed of youth and young adults with and without disabilities.

 
 

10/20/2016

AUCD's 2016 Group Hotel Rooms Are Sold Out

The block of rooms under AUCD's contract with the hotel is full and they are no longer able to offer rooms for most of the nights over our conference dates at our negotiated group rate. You may contact the Renaissance directly at 877-212-5752 to check on current availability at their regular room rate, or view a list of hotels within walking distance of the Renaissance that you might consider for your stay.

 
 

10/18/2016

AUCD Launches International Fellowship Program on Inclusive Education

This new exchange program, a partnership between AUCD, the Institute for Community Inclusion at the University of Massachusetts Boston and sponsored by the U.S. Department of State Bureau of Educational and Cultural Affairs, will promote the growth of future leaders in inclusive education in countries and communities across the globe. 20 mid-career disability and education professionals from Brazil, Peru, Kenya and Tanzania will be placed at partner host sites across the United States, including UCEDDs and LENDs. During their time in the U.S., Fellows will learn about policies and practices that have influenced inclusive education in the U.S. and will plan a project upon their return home. The program honors the work of former Senators Bob Dole and Tom Harkin in the field of disability rights and inclusive education.

 
 

10/18/2016

AUCD signed onto a Letter from the Friends of HRSA to House Leaders Urging Support for Discretionary Programs

AUCD signed onto a letter from the Friends of HRSA and the American Public Health Association urging lawmakers to support an original FY 2017 request of $7.48 billion for discretionary HRSA programs in the final FY 2017 spending agreement. The letter was sent to the Chairmen and Ranking Members of the House Appropriations Committee and the House Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies. The signatories to the letter requested that the committee members restore funding to HRSA programs that were made in earlier bills this year and urged lawmakers not to add any harmful policy riders.

 
 

10/18/2016

AUCD signed onto a Letter from the Friends of HRSA to Senate Leaders Urging Support for Discretionary Programs

AUCD signed onto a letter from the Friends of HRSA and the American Public Health Association urging lawmakers to support an original FY 2017 request of $7.48 billion for discretionary HRSA programs in the final FY 2017 spending agreement. The letter was sent to the Chairmen and Ranking Members of the Senate Appropriations Committee and the Senate Appropriations Subcommittee on Labor, Health and Human Services, Education and Related Agencies. The signatories to the letter requested that the committee members restore funding to HRSA programs that were made in earlier bills this year and urged lawmakers not to add any harmful policy riders.

 
 

10/18/2016

Tuesdays with Liz - Bruce Darling

During this week's edition of Tuesdays with Liz, Liz interviews Bruce Darling (Community Organizer for ADAPT) about the Disability Integration Act. In case you missed the last two editions, Liz interviewed Jennifer Mathis (Director of Policy and Legal Advocacy at the Bazelon Center for Mental Health Law) in a two-part series on mental health and the connection to people with disabilities - part one, part two.

 
 

10/13/2016

AUCD Participates in the #HireMyStrengths Campaign

October is National Disability Employment Awareness Month, and in recognition, AUCD is participating in the Hire My Strengths Campaign. Each person employed at AUCD has unique strengths that they bring to the job and office culture. Regardless of their diagnosis or label, each person plays a vital part in advcing our mission to drive change for and with people with disabilities and their families, and creating a supportive and fun work environment where we value our differences and celebrate accomplishments.

 
 

10/12/2016

A New Path: 2016 PCPID Report to the President Now Available

The report, Strengthening an Inclusive Pathway for People with Intellectual Disabilities and their Families, recognizes the "great strides" made since President John F. Kennedy established a blue-ribbon panel to address the needs of people with intellectual disabilities and their families and PCPID Chairman Jack Brandt notes that, "despite these advances, the trajectory for a person with an intellectual disability remains limited."

 
 

10/11/2016

Tuesdays with Liz - Jennifer Mathis - Part 2

During this week's edition of Tuesdays with Liz, Liz interviews Jennifer Mathis for part two of the two-part series on mental health and the connection to people with disabilities. View part one of this two-part series here.

 
 

10/10/2016

Enabling Community Participation in the Bronx (NY UCEDD/LEND)

RFK CERC Einstein/Montefoire UCEDD occupational and physical therapists, LEND trainees, children with developmental disabilities and their families happily joined together to visit epic sites in the Bronx. Tim Conly, OTR cultivated new partnerships with Yankee Stadium and Mosholu Golf Course this summer so that CERC families could tour the iconic baseball stadium and learn to play golf. Therapists and therapy LEND trainees created the optimal experience for participants: enhancing abilities and modifying the environment so each person obtained the maximal benefit during the visits. For many it was the first time to Yankee Stadium, participants were so grateful that one child presented a beautiful picture he made to our tour guide, Paul Ward, creating a lasting partnership. For all, this was the first time on the golf course; golf pros taught us to drive, putt and play a hole.

 
 

10/10/2016

Maine UCEDD CAC Members Share Lived History of Disability with LEND Trainees

Two members of the Maine UCEDD's Community Advisory Committee (CAC) recently shared their lived history of disability with University of Maine trainees and faculty in the New Hampshire-Maine LEND Program, as part of a Leadership Intensive on the history of disability.

 
 

10/7/2016

TRIAD's Pablo Juarez receiving national honor from The Arc for Supporting Inclusion for People with Disabilities (TN UCEDD/LEND/IDDRC)

By Kristen McKiernan and Jennifer Wetzel

Pablo Juarez, M.Ed., BCBA, director of the Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) in the Vanderbilt Kennedy Center, has been named Educator of the Year by The Arc, the nation's largest national community-based organization advocating for and serving people with intellectual and developmental disabilities and their families.

 
 

10/6/2016

Dr. Blake Works To Give Others A Voice While Keeping Her Own (TX UCEDD)

"Psychologists have been studying implicit bias for years, and it's good that we're finally talking about this nationally and examining how it impacts diverse student's school experiences. I'm interested in uncovering more - thinking about interventions and prevention strategies we can do to address implicit bias." While Dr. Blake has been extremely successful both professionally and personally, she's the first to admit that balancing work and life is not always easy.

 
 

10/6/2016

Maine UCEDD CAC Members Share Lived History of Disability with LEND Trainees

Two members of the Maine UCEDD's Community Advisory Committee (CAC) recently shared their lived history of disability with University of Maine trainees and faculty in the New Hampshire-Maine LEND Program, as part of a Leadership Intensive on the history of disability.

 
 

10/3/2016

Angela Tomlin, PhD joins Interdisciplinary Research Leaders (IN UCEDD/LEND)

As one of only 15 three-person teams selected, Angela Tomlin, PhD, Associate Professor of Clinical Pediatrics at IUSM and Director of the Section of Child Development and the Indiana LEND program joins Interdisciplinary Research Leaders, a new program led by the University of Minnesota with support from the Robert Wood Johnson Foundation. Dr. Tomlin is partnering with Shoshanna Spector, Executive Director of Indianapolis Congregation Action Network (IndyCAN!) and Karen Ruprecht, PhD, Director of Innovation in Early Education at Early Learning Indiana to form a team that will examine the effects of parental incarceration on young children. The Indianapolis team will join researchers and community leaders from across the country to collaborate and innovate to solve persistent challenges and advance a Culture of Health-one that places well-being at the center of every aspect of life.

 
 

10/3/2016

AUCD Celebrates Down Syndrome Awareness Month

This October, AUCD is proud to join several federal and organization partners to celebrate National Down Syndrome Awareness month. Join us as we share blogs and resources, and host a twitter chat to talk about creating a stronger community in which everyone is fully included.

 
 

10/3/2016

AUCD Celebrates October as National Disability Employment Awareness Month

October is National Disability Employment Awareness Month (#NDEAM), sponsored by the Department of Labor's Office of Disability Employment Policy. While the Americans with Disabilities Act has made access to buildings, programs, and almost all walks of life, the one area that has stubbornly been slow to improve has been employment for people with disabilities. Join AUCD as we highlight both the need to increase disability employment and the great value that people with disabilities bring to businesses. #InclusionWorks!

 
 

10/3/2016

AUCD Welcomes Christine Liao as MCH Program Specialist

Christine Liao is a Program Specialist for AUCD's Maternal and Child Health technical assistance team. Her role is to engage and promote leadership among trainees and early career professionals. Christine also provides support to the UCEDD's technical assistance team. Coming to AUCD, Christine brings a diverse range of experiences. She has worked with people with disabilities from different backgrounds and cultures in a mental health, academic, health care and community settings. Many of her past projects were innovating programs to address gaps in the community. Her passions include intersectionality, language accessibility and inclusion.

 
 

10/3/2016

Cassie Hicks with MS UCEDD Named Member of Inaugural National HUD Housing Committee

Cassie Hicks, director of Housing at The University of Southern Mississippi Institute for Disability Studies (IDS), has been named as one of 12 members of the inaugural Housing Counseling Federal Advisory Committee.

 
 

10/3/2016

Family Behind "When Sean Speaks" Gives Back to the Center on Disability and Development (TX UCEDD)

Sean Carter has become an important Texas voice in the fight against drunk driving. When Sean was attending school at North Texas, he climbed into the passenger seat of a car being driven by a drunk driver. On the drive home, the car spun out of control and slammed into a tree. He was rushed to the hospital and declared paralyzed. Sean's mother was told that he had Traumatic Brain Injury (TBI) and to "hope for the best." Over the years, Sean slowly began to make progress and can now communicate through assitive technology. Presently, he uses his computer to speak to other young people across Texas about the dangers and consequences of drunk driving.Sean's message has reached tens of thousands of young Texans and he and his family continue to spread his message and raise money for TBI research through his nonprofit organization "When Sean Speaks."

 
 

10/3/2016

Kennedy Krieger Institute's Maureen van Stone Receives Academies Appointment (MD UCDD/LEND)

The Health and Medicine Division of the National Academies of Sciences, Engineering, and Medicine (the Academies) has appointed Maureen van Stone of Kennedy Krieger Institute to its Committee on Improving Health Outcomes in Children with Disabilities. Ms. van Stone joins a diverse group of experts who will produce a comprehensive report on federal, state, and local programs, services and supports available to school-age children with disabilities and their families. Maureen van Stone is the associate director of the Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute and the director of Project HEAL (Health, Education, Advocacy, and Law), a MCDD community-based program. Project HEAL is Maryland's only medical-legal partnership, which provides advocacy and legal services to low- and-moderate income families and children with disabilities who receive services at Kennedy Krieger.

 
 

10/3/2016

New Iowa LEND Trainees have a Capital Time at the Iowa State Capitol

The Center for Disabilities and Development, Iowa's University Center for Excellence on Disabilities, welcomed the Iowa LEND (ILEND) trainees for 2016-2017. Orientation began with a brief welcome by Lenore Holte, ILEND Program Director, followed by faculty, staff and trainee introductions. The group of trainees and staff members then traveled to Des Moines to tour the state capitol building and to learn about state and federal legislation related to individuals with disabilities.

 
 

10/3/2016

Tuesdays with Liz: Disability Policy for All - Jennifer Mathis - Part 1

During this week's edition, Tuesdays with Liz, Liz interviews Jennifer Mathis in a two part series about mental health and the connection to people with disabilities. In case you missed last week's edition, Liz interviewed Michelle Bishop about the importance of voting.

 
 

10/3/2016

WIHD Welcomes New LEND Class (NY UCEDD/LEND)

WIHD is pleased to welcome the new 2016-2017 LEND class. The new LEND class represents a numbers of disciplines: Advocacy, Audiology, Family Specialist, Genetics, Occupational Therapy, Nursing, Public Administration, Public Health, Psychology, Social Work, Special Education and Speech Language Pathology. The trainees represent 9 affiliated universities: Fordham University, Mercy College, New York Medical College, New York University, Sarah Lawrence College, University of Iowa, University of Puerto Rico and University of the Virgin Islands.

 
 

9/30/2016

Access Press Honors MN UCEDD Staffer Cliff Poetz Organization: Institute on Community Integration (MN UCEDD)

Access Press Honors MN UCEDD Staffer Cliff Poetz Access Press, Minnesota's disability newspaper, has named Cliff Poetz as the Charlie Smith Award recipient for 2016. Poetz, a community liaison at the Institute on Community Integration (MN UCEDD) Research and Training Center on Community Living, will be the guest of honor at the annual banquet on November 4, when the award will be presented. "I'm humbled and grateful," says Poetz, who knew Smith (see below).

 
 

9/30/2016

AUCD Applauds the Passage of Legislation to Fight the ZIKA Virus

AUCD is thrilled to report that President Obama signed into law a continuing resolution (CR) that includes $1.1 billion emergency funding to address Zika.

 
 

9/30/2016

Oregon Health & Science University Join the Nation's Largest Autism Study (OR UCEDD)

The Simons Foundation recently launched a landmark autism research project in the U.S with the goal of creating a new research cohort of 50,000 individuals with autism and their families. The project is called SPARK, which stands for 'Simons Foundation Powering Autism Research for Knowledge.' Oregon Health & Science University (OHSU) is one of the 21 project sites selected to be involved in this effort. Specifically, over the next three years, OHSU will recruit 2,600 individuals with a professional diagnosis of Autism Spectrum Disorder (ASD), and when possible, their biological parents.

 
 

9/29/2016

Trinity Centre for People with Intellectual Disabilities

Newly Accredited Higher Education Certificate in Arts, Science and Inclusive Applied Practice

The Trinity Centre for People with Intellectual Disabilities (TCPID) is delighted to announce that our new 2 year certificate course in Arts, Science and Inclusive Applied Practice has recently been accredited by the University Council of Trinity College Dublin. The TCPID, in the School of Education, Trinity College Dublin aims to promote true inclusion for people with intellectual disabilities and encourage students to realize their full potential through higher education. The newly accredited programs means that students will now, for the first time, receive a formal qualification upon graduation from university.

 
 

9/28/2016

The Bazelon Center Releases Updated Voting Rights Guide

The guide, "VOTE. It's Your Right: A Guide to the Voting Rights of People with Mental Disabilities" lists key legal principles and focuses on four areas of concern: 1) voter-competence requirements, 2) state photo-ID laws, 3) voter challenges and 4) providing help to voters with disabilities. The guide also includes an updated chart listing each state's laws affecting the voting rights of people with mental disabilities.

 
 

9/27/2016

Tuesdays with Liz - Michelle Bishop

During this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Michelle Bishop about the importance of voting. In case you missed last week's edition, Liz interviewed Joe Caldwell about the Money Follows the Person (MFP) program.

 
 

9/26/2016

Home Accessibility May Impact Community Participation (MT UCEDD)

New research from the Research and Training Center on Disability in Rural Communities (RTC:Rural) at UM Rural Institute for Inclusive Communities, in collaboration with the Rehabilitation Research Training Center on Community Living, presents the state of inaccessible housing for people with mobility disabilities. The data reveal most homes lack critical accessibility features, not meeting individual needs, and potentially impacting broader community engagement and participation.

 
 

9/26/2016

WV UCEDD Diversity & Disability Fellow Tackles Stigma

Louma Sebaihi is a Diversity & Disability Fellow at the West Virginia University Center for Excellence in Disabilities (WVU CED). Louma's upbringing in the Arab/American culture led her to be interested in reaching out to that community to help reduce the stigma associated with disabilities. As a part of her capstone project, Louma presented two sessions (one in English and one in Arabic) at the Islamic Center of Morgantown on the "Learn the Signs, Act Early" initiative to introduce the participants to developmental milestones that children should be achieving.

 
 

9/23/2016

AUCD Statement on Zika Virus

Given that the Zika virus is now spreading locally in the US, a whole cohort of babies may now be born with this virus. "There is an urgent need to educate public health practitioners on developmental monitoring, screening, early identification of issues, and how to speak sensitively with families about their concerns," said Andrew Imparato, Executive Director of the Association of University Centers on Disabilities (AUCD).

 
 

9/23/2016

AUCD's National Voter Registration Campaign

Join AUCD in observing National Voter Registration Week Sept 26-30, 2016. We urge everyone, especially people with disabilities, to make sure they're registered to vote for the upcoming local, state, and national elections. Learn how to spread the word, find resources, and register!

 
 

9/22/2016

FIT FOCUS Video Library Launched (NM UCEDD/LEND)

The New Mexico Family Infant Toddler (FIT) Program and the Early Childhood Learning Network of the University of New Mexico's Center for Development and Disability have launched a new FIT FOCUS Video Library to provide illustrations of evidence-based and recommended early intervention practices in New Mexico.

 
 

9/22/2016

New Assistive Technology Data Brief Available from ICI MA UCEDD/LEND

New from the Institute for Community Inclusion. The Assistive Technology Data Brief is a national summary of State Assistive Technology Programs' FY 2015 data featuring customer success stories and highlighting the return on investment AT programs have generated nationwide.

 
 

9/22/2016

New Autism Data Portal From The Child And Adolescent Health Measurement Initiative

Compiling the research from four national surveys, this portal provides easy access to data on the health and well-being of children and families with autism. In addition to helping people learn about family experiences, the portal can be used as an advocacy tool. It also allows you to see how others are using autism data.

 
 

9/20/2016

AUCD Statement on the Final Report of the Advisory Committee on Increasing Employment for Individuals with Disabilities

The Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities delivered their final report to U.S. Secretary of Labor Thomas E. Perez today. AUCD thanks the Advisory Committee for their hard work and supports the recommendations of the Committee.

 
 

9/20/2016

Tuesdays with Liz - Joe Caldwell

During this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Joe Caldwell about the Money Follows the Person (MFP) grants. In case you missed last week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviewed Kelly Ethridge her experiences in the Post-Secondary Education Program at Texas A&M University.

 
 

9/19/2016

New Video: Being Amy's Sister - On Having a Sibling with a Disability (CO UCEDD/LEND)

This video has important messages for family members of children with disabilities, especially sisters and brothers, as well as providers who offer support for families. This video is a companion to the video A Reunion with Amy (see below) in JFK Partners' ENRICH Early Intervention Reunion Videos.

 
 
Alaska Training Cooperative (AKTC) trainers Sarah McConnell (left) and Elizabeth

9/19/2016

Suicide Interventions: A Tribal & University Partnership between the Tanana Chief's Conference & the Alaska Training Cooperative (AK UCEDD)

The Alaska Training Cooperative (AKTC_ is part of the Alaska UCEDD Center for Human Development at the University of Alaska Anchorage. The AKTC is a statewide effort to develop coordinated and accessible opportunities for professionals working with Alaska Mental Health Trust Authority beneficiaries. Beneficiaries include people with: mental illness; developmental disabilities; chronic alcoholism and other substance related disorders; Alzheimer's disease and related dementia; and traumatic brain injuries. The AKTC is dedicated to collaborating with Alaskan communities to train rural behavioral health care providers by blending traditional wisdom with evidence-based practices.

 
 

9/16/2016

Notice from the U.S. Department of Homeland Security Office for Civil Rights and Civil Liberties, FEMA Office of Equal Rights, and FEMA Office of Disability Integration & Coordination

The U.S. Department of Homeland Security (DHS) reminds its recipients of federal financial assistance that are engaged in emergency management (e.g., state and local emergency management agencies, other recipients) and their subrecipients of federal funds, of their obligations to ensure that individuals and communities affected by disasters do not face unlawful discrimination in the provision of federally assisted services to disaster survivors.

 
 

9/14/2016

House of Representatives Approves Perkins Act Reauthorization - the Strengthening Career and Technical Education for the 21st Century Act

The House of Representatives voted to approve H.R. 5587 - the Strengthening Career and Technical Education for the 21st Century Act, which reauthorizes career and technical education (CTE) programs and increases student access to career development and employment training opportunities across all states.

 
 

9/14/2016

Save the Dates: Fall 2016 AARC Webinars

Our monthly webinar series alternates autism research and care themes, and are available to all AS ATN/AIR-P network members, CAAI-sponsored programs, the entire LEND and DBP Fellowship networks, various other autism and pediatric organizations, collaborators, primary care providers as well as autism advocates. Research webinars feature current AIR-P research study principal investigators, while care focused themes cover hot topics in the field of autism, and promote idea generation for future research. We offer one continuing medical education credit for each eligible webinar attendee. Webinars are also recorded and available for viewing after the event. Please join us!

 
 

9/13/2016

AUCD2016 Hotel Reservation System Now Open

Make your reservations today to stay at the Renaissance DC Downtown Hotel, the official host hotel of the AUCD 2016 Conference! Online and phone reservations are now open at a rate of $239/night for single or double occupancy.

 
 

9/13/2016

Tuesdays with Liz - Kelly Etheridge

For this week's TWL , Liz Weintraub, the AUCD advocacy specialist, interviews Kelly Ethridge about her experiences in the Post Secondary Education Program at Texas A&M University. In case you missed last week's edition, Liz spoke with Michael Gamel-McCormick, Director of the Promise TA center and Leon Barnett, Program Specialist for the Promise TA center about the Promise TA center.

 
 

9/12/2016

AUCD 2016 Registration is Open!

Registration is currently open for the AUCD Conference! We welcome network members, partners from outside the network, experts from across the disability field, individuals with disabilities, family members, and students to learn and grow together during this exciting event. Whether you're a newcomer to the field or a seasoned professional, the AUCD Conference provides countless opportunities to share with and learn from colleagues across the network and beyond.

 
 

9/12/2016

It's A Small World (GA UCEDD)

"It's a small world' is a phrase typically referred to events that are related in unexpected ways. While I have heard and used this phrase many times throughout my life, a recent series of events led me to a new and personal appreciation for just how small our worlds can be. Allow me to explain: Jane Roberts, my mother, is a professor in the School of Psychology program at the University of South Carolina. In her current position as program director, she has received nearly 20 million dollars in grants to forward her work and passion for supporting individuals with disabilities - specifically people on the autism spectrum.

 
 

9/12/2016

Montana UCEDD Leverages Community Partnerships to Address Violence Against People with Intellectual Disabilities.

"Nothing About Us, Without Us" is the driving principle behind the community-based participatory research (CBPR) study, The Safety Project. Self-advocates are too often excluded from participating in research targeting the needs of their community. To increase inclusion, researchers at the University of Montana's Rural Institute for Inclusive Communities are partnering with self-advocates and other community partners to develop, implement, and evaluate an innovative and accessible group safety awareness program for men and women with intellectual disabilities. This article describes two vital community partnerships used in The Safety Project.

 
 

9/12/2016

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Programs SENSE Theatre, TennesseeWorks, and TRIAD Share Key Tools for Program Replication

Three project replication guides on the topics of community participation through the arts and transitioning practice to community-based employment are now available through the Vanderbilt Kennedy Center for Excellence in Developmental Disabilities (TN UCEDD, IDDRC, LEND).

 
 

9/8/2016

A Personal Story of a Cultural Broker (MA UCEDD/LEND)

By Oanh Thi Thu Bui, Diversity Fellow, Institute for Community Inclusion, UMass Boston

In this 3-part series, a mother of a child with special needs describes how she became a cultural broker to support other families.

 
 

9/7/2016

Nutrition is For Everyone

Inaugural Newsletter

Thanks to the Walmart Foundation, AUCD introduces the "Nutrition is for Everyone" program. The program's objective is to implement nutrition education interventions, including direct training for people with disability and community members across four states, which have the lowest consumption of fruits and vegetables for people with disabilities.
This is the first in a series of newsletters that will be sent on the first Wednesday of every month to observe #WellnessWednesday and to share healthy eating and nutrition tips for people with disabilities.

 
 

9/6/2016

AUCD is Hiring!

Director of Research and PROMISE Technical Assistance

AUCD is seeking a Director of Research and PROMISE Technical Assistance, to oversee the day-to-day operations of the PROMISE Technical Assistance Center. The Director will work closely with the Associate Executive Director for Research and Policy, the PROMISE Technical Assistance (TA) team, the Senior Director for Technical Assistance and Network Engagement and others.

 
 

9/6/2016

AUCD Welcomes Nicole LeBlanc as Public Policy Intern

This week Nicole LeBlanc, former Advocacy Director for Green Mountain Self-Advocates, began her 13 week public policy internship. Nicole was chosen by the Arc to be this year's Paul Marchand Disability Public Policy intern, which will be hosted by AUCD.

 
 

9/6/2016

MCDD Law Trainee Honors (MD UCEDD/LEND)

Lauren Wood, a former law trainee with the Maryland Center for Developmental Disabilities graduated summa cum laude from the University of Baltimore School of Law in May 20216. Lauren was also admitted to the Heuisler Honor Society, for graduating within the top 10 percent of the graduating class. Following her first year of law school, Lauren earned a grant from the University of Baltimore Students for Public Interest to work as a law trainee. Lauren provided over 400 hours of services to Kennedy Krieger patients and families while working for Project HEAL (Health, Education, Advocacy, and Law). The MCDD is very proud of Lauren's accomplishments, and wish her continued success as a judicial clerk in the Circuit Court for Baltimore City.

 
 

9/6/2016

Providers Face Cultural Challenges when Evaluating Refugee Children (NY UCEDD/LEND)

Numerous challenges face providers who are administering developmental screenings for refugee children, including differences in cultural and religious beliefs, language barriers, and disparate education levels, according to new research from the University of Rochester Medical Center (URMC) published in the journal Pediatrics.

 
 

9/6/2016

Tuesdays with Liz - Promise TA Center

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Michael Gamel-McCormick , Director of the Promise TA center and Leon Barnett, Program Specialist for the Promise TA center about the Promise TA center. In case you missed last week's edition, Liz spoke to AUCD's Director of Public Policy Kim Musheno, about the Consortium for Citizens with Disabilities (CCD) and the ways in which it engages with lawmakers to support and encourage legislation that is in the interest of individuals with disabilities. Kim also serves as the Chair of CCD for 2016.

 
 

9/2/2016

AUCD Welcomes Elizabeth Koss (OH LEND) as the 2016-17 Virtual Trainee

Elizabeth Koss, Liz, is pursuing her Master's of Occupational Therapy at The Ohio State University. She is passionate about working with individuals with developmental disabilities and Autism Spectrum Disorder to increase independence and enhance quality of life. Liz became a Nisonger Center LEND trainee in 2015 where she has worked towards building and sustaining interdisciplinary communication and collaboration. During this time she also found a new passion for advocacy for persons with neurodevelopmental differences and has advocated at the state and national level.

 
 

9/2/2016

Mailman Center Receives Prestigeous Grant to Develop Training Program to Build Language Skills (FL UCEDD/LEND)

Many South Florida children with developmental disabilities benefit from assistive technology devices to improve their hearing, vision or communication skills. "Unfortunately, a substantial number of child care workers, pre-school teachers and parents have not been trained in how to use assistive devices to help these children, especially in underserved neighborhoods," said Michelle Schladant, Ph.D., assistant professor of pediatrics and Assistant Director of the Mailman Center at the University of Miami Miller School of Medicine.

 
 

9/2/2016

MN UCEDD Partners with State to Increase Graduation of Black and American Indian Students with Disabilities

The Check & Connect program of the Institute on Community Integration (MN UCEDD) has received a five-year grant from the Minnesota Department of Education (MDE) for a new project, "Using Check & Connect to Improve Graduation Rates in Minnesota for Black and American Indian Students with Disabilities." Check & Connect is a comprehensive intervention developed at the Institute that is designed to enhance student engagement in school and with learning for marginalized, disengaged students in grades K-12. In this project,

 
 

9/2/2016

New Video: Being Amy's Sister - On Having a Sibling with a Disability (CO UCEDD/LEND)

This video has important messages for family members of children with disabilities, especially sisters and brothers, as well as providers who offer support for families. This video is a companion to the video A Reunion with Amy (see below) in JFK Partners' ENRICH Early Intervention Reunion Videos.

 
 

9/2/2016

Prescription To Play (IA UCEDD/LEND)

Prescription to Play is a program to lend therapeutic equipment to families seen at the Center for Disabilities and Development (CDD), Iowa's University Center for Excellence on Disabilities. CDD's Disability Resource Library assists the family in filling play prescriptions by locating and checking out the material for each child's identified developmental need.

 
 

9/2/2016

UCLA PEERS Clinic Conducts Certified Training Seminars in Australia

In August 2016, Dr. Elizabeth Laugeson, Director of Training at the Tarjan Center for Excellence in Developmental Disabilities at UCLA, conducted a symposium on "Parent-assisted social skills training for preschool children with Autism Spectrum Disorder (ASD): The UCLA PEERS for Preschoolers Program" at the International Association for the Scientific Study of Intellectual and Developmental Disabilities (IASSIDD) 15th World Congress in Melbourne, Australia.

 
 

8/30/2016

Tuesdays with Liz - Kim Musheno, CCD

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviewed AUCD's Director of Public Policy Kim Musheno, about the Consortium for Citizens with Disabilities (CCD) and the ways in which it engages with lawmakers to support and encourage legislation that is in the interest of individuals with disabilities. Kim also serves as the Chair of CCD for 2016.

 
 

8/29/2016

Center on Disability and Development Awarded Two Grants Under the Autism Grant Program (TX UCEDD)

The Center on Disability and Development was awarded two grants from the Division of Academic Quality and Workforce. Dr. Jennifer Ganz, the Project Director for both projects, is a professor of Special Education in the Department of Education Psychology and is an affiliated faculty member at the Center. She has received several grants to fund research projects involving students with autism spectrum disorders. Further, her efforts, alongside Cheryl Allen, CEO of Easter Seals East Texas, resulted in the opening of the Autism Clinic at the Brazos Valley Rehabilitation Center, currently directed by Dr. Amy Heath, which provides for children and adults with autism and their families.

 
 

8/29/2016

IU Research: Indiana Teacher Evaluations are Improving but Remain Inconsistent (IN UCEDD)

Teacher evaluation plans developed by Indiana school districts are inconsistent and erratic and vary widely in quality and comprehensiveness, according to research by the Indiana Teacher Appraisal and Support System project at the Center on Education and Lifelong Learning at Indiana University Bloomington.

 
 

8/29/2016

Project HEAL's 11th Anniversary (MD UCEDD/LEND)

On Thursday, September 8, 2016, Project HEAL(Health, Education, Advocacy, and Law), a community-based program of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute will celebrate its 11th anniversary. The celebration will take place from 5:30 p.m. - 7:30 p.m. at the Baltimore landmark, Bertha's Mussels, in Fells Point. Bertha's will graciously offer food and drinks specials, complimentary mussels, and the owners will donate 11 percent of the sales to benefit Project HEAL.

 
 

8/29/2016

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Investigators Using Virtual Reality to Help Teenagers with Autism Learn How to Drive

Astronauts and pilots use them. So do truck drivers and Formula One race car drivers. Now, Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) investigators have developed a virtual reality simulator specifically designed to help teenagers with autism spectrum disorder (ASD) learn how to drive.

 
 

8/23/2016

Tuesdays with Liz - Melody Stevens, CCD

During this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Melody Stevens from the Centers for Disease Control and Prevention on the current state of Zika. In case you missed last week's edition, Liz interviewed Shannon Haworth (AUCDs Public Health Program Manager) about the Public Health Workforce Competencies.

 
 

8/22/2016

SEANET Student Interns Gather Data on Invasive Green Crabs (Maine UCEDD)

The Center for Community Inclusion and Disability Studies (ME UCEDD), with funding from Maine EPSCoR/Sustainable Ecological Aquaculture Network (SEANET), is partnering with the Community Environmental Health Laboratory (CEHL) at MDI Biological Laboratory to train and engage middle/high school students with disabilities from coastal Hancock County in intertidal census work. CEHL works to identify and help remedy threats to public health and water quality on and around Mount Desert Island. Enrolled students are offered paid internships and receive training in the identification of invasive species, such as green crabs; data collection and data management. Student interns, superv

 
 

8/18/2016

AUCD2016 Scholarships Available for Trainees

Application Deadline: October 17

AUCD is pleased to announce the availability of 20 trainee travel scholarships of up to $500 each AND 4 trainee volunteer scholarships of up to $500 each to support AUCD Trainees in attending the AUCD Conference. Scholarships are available to (a) current trainees and (b) former trainees presenting work conducted while a trainee. The AUCD Conference is an amazing learning and networking opportunity, and we're excited to support you in attending.

 
 

8/16/2016

Tuesdays with Liz - Shannon Haworth

During this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Shannon Hayworth, AUCD's Senior Public Health Program Manager, about the Public Health Workforce Competencies.

 
 

8/15/2016

Assistive Technology Services Expand in Utah (UT UCEDD)

People with disabilities in the Uintah Basin in central Utah will soon have more help meeting their goals for independence, thanks to a grant from the Christopher & Dana Reeve Foundation and the new Assistive Technology Lab at Utah State University in Roosevelt. The lab and the $73,925 award from the foundation will open new possibilities in obtaining and learning about assistive technologies that could make a difference to people with mobility, communication, vision, hearing or other disabilities. "We have a physical presence over there in the Uintah Basin now," said Alma Burgess, the grant's principal investigator. "That allows us to do something similar to what the AT Lab does in Logan now."

 
 

8/15/2016

Diversity Competence: Tailoring the Scope of Cultural Competence Education using an Innovative Self-Reflective Training Curriculum (FL UCEDD/LEND)

With widespread recognition of the need for cultural competence being more prevalent than ever in today's diverse society, Dr. Kira Knight has embraced her role as the AUCD Diversity Fellow of the University of Miami's Mailman Center for Child Development. Eager to foster change - a change that embraces diversity, appreciates common humanity, and channels inclusion, Kira is in the process of revising and strengthening the Cultural Competence curriculum for LEND/UCEDD trainees, medical students, residents and fellows throughout the University of Miami's Miller School of Medicine and Jackson Health System in Miami, Florida. This curriculum development project involves the implementation of an innovative, online cultural competency training module series, coupled with in-person workshops, geared towards reducing health disparities and barriers to healthcare, and cultivating university-wide culturally competent healthcare professionals.

 
 

8/11/2016

Routing a Path for Everyone (KY UCEDD)

A group of students and HDI employee, Darrell Mattingly, led by HDI Disability Program Specialist Anna Bard, set out on a mission last year to map accessibility on campus so that everyone - no matter how they're navigating - can have the information they need to get around campus efficiently. In the fall 2016 semester, UK Facilities Management's Facilities Information Services will unveil the new interactive campus map that includes accessibility attributes and can route an appropriate path depending on a user's needs.

 
 

8/9/2016

Tuesdays with Liz - Dianne Dressler

During this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Dianne Dressler (Senior Associate with Community Life Resources) about housing issues.

 
 

8/8/2016

Careers in the Arts Online Dialogue (CA UCEDD)

The U.S. Department of Labor's Office of Disability Employment Policy (ODEP), the National Endowment for the Arts (NEA) and the UCLA Tarjan Center's National Arts and Disability Center (NADC) convened a Careers in the Arts Online Dialogue June 6 through June 19, 2016.

 
 

8/8/2016

Disability Policy News In Brief

AUCD, Disability Policy News In Brief, every MondayHouse and Senate are on recess; Zika Response Funding; Labor Statistics; ESSA Implementation; and more

 
 

8/8/2016

It's a Small World (GA UCEDD/LEND)

A personal account from a GA-LEND trainee documenting his interest in working in the disability field and how events and people in his life have come full circle.

"It's a small world." This phrase typically refers to events that are related in often unexpected ways. While I have heard and used this phrase many times throughout my life, a recent series of events led me to a new and personal appreciation for just how small our worlds can be.

 
 

8/8/2016

Welcome Ambassadors!

Four Nutrition Ambassadors were competitively selected to provide practical solutions to common barriers of proper nutrition including cost, access to fruits and vegetables, and basic knowledge of healthy foods. Ambassadors will develop a tailored work plan based on their specific state needs to help prioritize in-person nutrition education events and creative partnerships.

 
 

8/3/2016

Thank You, Interns!

This summer, AUCD was fortunate to have two amazing interns in our office. Toby Henley and Caitlin Chasar have been a welcome addition to the AUCD team. Their willingness to try new things and cheerful demeanor has quickly made both of them invaluable to the summer operations of AUCD, and it has been a joy to watch them grow in their skills, confidence, and leadership. We greatly appreciate their contributions to the AUCD office and network, and are excited about what the future holds for both Kate and Toby.

 
 

8/3/2016

The Michigan UCEDD Announces Several New Collaborations

MDHHS received a three-year grant from the Centers of Disease Control directed at increasing education on diabetes prevention for people with disabilities. Working in collaboration with the National Kidney Foundation of Michigan, DDI will develop recommendations for implementing the Diabetes Prevention Program (DPP) with people with intellectual and developmental disabilities. The revised curriculum will be used to train DPP trainers statewide to improve the educational program for persons with disabilities. DDI staff will also utilize the disability network to disseminate information to people with disabilities to increase their participation in the DPP.

 
 

8/3/2016

TIME Magazine Feature on Disability Rights and the Democratic Convention Quotes AUCD's Andy Imparato

"Disability rights advocates understand the politics at work. 'Donald Trump mocking the reporter from the New York Times is something the Clinton campaign has decided is an important issue for them,' said Andy Imparato, executive director of the Association of University Centers on Disabilities. 'Having people with disabilities take on Trump is an effective strategy for Secretary Clinton. But I'm hoping that it's more than that.'"

 
 

8/2/2016

Cognitive Testing Using Tobii I-15 Eye Gaze System (IA UCEDD/LEND)

Typically cognitive assessments have not been reliably completed for individuals with significant motor impairments and complex communication needs. However with advances in technology, cognitive assessments are possible when early intervention of a communication system has been introduced. Psychologist, Angela L. Smith, PsyD and Speech-Language Pathologist, Laura M. Bohnenkamp, MA, CCC-SLP at the Center for Disabilities and Development, Iowa's University Center for Excellence on Disabilities used eye gaze technology to assess cognitive status in a patient.

 
 

8/2/2016

NIH Names Dr. Diana Bianchi Director of the National Institute of Child Health and Human Development

National Institutes of Health Director Francis S. Collins, M.D., Ph.D., announced today the selection of Diana W. Bianchi, M.D., as director of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD). Dr. Bianchi is expected to join NIH on Oct. 31, 2016.

 
 

8/2/2016

Project SEARCH Southern Miss (MS UCEDD)

"We do not fear the future for we are the future," was the wording featured on the inaugural Project SEARCH Southern Miss Class of 2016 graduation invitation. Seven Hattiesburg High School students participated in an employment skills program at The University of Southern Mississippi (USM) Hattiesburg campus for the 2015-2016 high school year. These student became interns and participated in daily employment training and completed three work internships, all at USM.

 
 

8/2/2016

Tuesdays with Liz: Disability Policy for All - AAPD Summer Internship Program

During this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews three interns from the American Association for Persons with Disabilities (AAPD) Internship Program - Frances Isbell and Jovan Ruvalcaba - as well as AUCD's intern, Caitlin Chasar, about their summer experiences and their disability policy interests.

 
 

8/2/2016

WaPo Article on Implications for Babies Born with Zika in the US Highlights Work of Miami, FL UCEDD/LEND

America is now seeing babies born in the US with microcephaly resulting from the Zika virus. The Mailman Center for Child Development in Miami, FL, an AUCD network member, is at the center of work in Miami to identify and provide care for these children and their families.

 
 

8/1/2016

2016 SDBP Meeting Scholarships for DBP Trainees

Application Deadline: August 22

AUCD is pleased to announce the availability of two (2) scholarships of up to $500 each to support DBP trainees in attending the Society for Developmental and Behavioral Pediatrics (SDBP) Meeting on September 16-19, 2016 in Savannah, GA. All current DBP trainees at any MCHB-funded DBP training program are eligible to apply. However, priority will be given to trainees that have not attended the EHDI Meeting in previous years.

 
 

8/1/2016

A Collaborative Learning Community to Benefit Youth and Young People with Disabilities

By Jessica Queener, Communications and Outreach Manager, Youth Transitions Collaborative and the National Youth Transitions Center

The Youth Transitions Collaborative (YTC) is a community of organizations that share the goal of empowering youth and young people with disabilities to create a self-directed path to adulthood and employment, and to participate in and contribute to society. The National Youth Transitions Center (NYTC) provides a single location in the nation's capital for modeling cross-systems collaboration and improving the transition services available to youth and young people, their families and communities.

 
 

8/1/2016

ICI Staffers to present at DCDT conference

Meg Grigal and Frank Smith submitted a proposal and were accepted to present at the Division on Career Development and Transition (DCDT) conference this Fall. Their presentation will be on "The Role and Impact of Vocational Rehabilitation in Inclusive Higher Education for Students with Intellectual Disability and Autism."

 
 

8/1/2016

MCDD Law Trainee Honors & Recognition (MD UCEDD)

Hilary Tebeleff, a former law trainee with the Maryland Center for Developmental Disabilities graduated cum laude from The University of Maryland Francis King Carey School of Law. Hilary also received the 2016 Public Service Award and The University of Maryland School of Law Litigation and Advocacy Award.

 
 

8/1/2016

Publication of the PEERS for Young Adults Treatment Manual (CA UCEDD)

The UCLA PEERS Clinic and Dr. Elizabeth Laugeson are delighted to announce the release of the newest social skills training manual, PEERS for Young Adults, in December 2016. Dr. Laugeson, Director of Training at the Tarjan Center for Excellence in Developmental Disabilities at UCLA, is the developer of PEERS, an evidence-based, caregiver-assisted social skills intervention for adolescents and young adults with Autism Spectrum Disorder and other social challenges. The PEERS for Young Adults Treatment Manual is empirically-supported, providing ecologically valid skills related to developing and maintaining friendships and romantic relationships for young adults with autism spectrum disorder and other social challenges. Each session chapter includes didactic lessons, handouts, homework assignments, descriptions of what to expect, how to handle treatment challenges, and customized tips for caregivers and therapists.

 
 

8/1/2016

Reflections on the 26th Anniversary of the Americans with Disabilities Act

By Christine Grosso, MS, Public Policy Analyst, AUCD

The Americans with Disabilities Act (ADA) is the Nation's first comprehensive civil rights law that addresses the needs of people with disabilities by prohibiting discrimination in employment, public services, public accommodations, and telecommunications. As a policy specialist with AUCD, I was invited to attend two White House events celebrating the 26th anniversary of the ADA: an East Wing tour of the White House followed by a summit at the Department of Education.

 
 

8/1/2016

Think College Professional Development (MA UCEDD/LEND)

Nearly 100 directors and staff from TPSIDs, as well as Think College staff, came together for networking and professional development opportunities at the annual meeting from July 11 - 13th in Indianapolis, IN. There were updates from the coordinating center and organizational partners, presentations on critical topics, and small group discussions.

 
 

8/1/2016

UM's Rural Institute Awards 2016 Community Investment Fund (MT UCEDD)

In an ongoing effort to promote the full inclusion of people with disabilities into their communities, the Rural Institute for Inclusive Communities (RIIC) offers an annual Community Investment Fund (CIF) grant to organizations that advance this mission. The RIIC maintains a CIF Review Committee comprised of individuals with disabilities and a few others who make the funding decision.

 
 

8/1/2016

Vanderbilt Kennedy Center (TN LEND, UCEDD, IDDRC) LEND Director selected as a Macy Faculty Scholar

Tyler Reimschisel, M.D., director of the Division of Developmental Medicine and director of the Vanderbilt Kennedy Center LEND (TN LEND, UCEDD, IDDRC) Training Program, has been selected for the 2016 Class of Macy Faculty Scholars.

 
 

8/1/2016

VCU Professor and Va-LEND Faculty Member Selected to Collaborate on International Team on CP

By Jennifer M. Drummond

Stacey Dusing, PhD, PT, PCS, was among three distinguished individuals from the United States invited to participate in a workshop to develop an International Early Intervention Research Collaborative. The workshop was held just prior to the 2016 International Conference in Stockholm on Cerebral Palsy (CP).

 
 

7/31/2016

Indiana LEND Faculty Member Receives Teaching Award

Trustees, graduates honor IUSM's top teachers Each year the Indiana University Board of Trustees recognizes faculty excellence in teaching through a program known as the Trustee Teaching Awards. Excellence in teaching is the primary factor for selection. The awards are announced annually during IUSM (IU School of Medicine) commencement.This year, Paula Sullivan, PhD, a faculty member in Psychology with the Riley Child Development Center (Indiana's LEND) received the award.

 
 

7/27/2016

ABLE2work - Celebrating the 26th Anniversary of the ADA

On the 26th anniversary of the signing of the ADA, this event built on the bipartisan effort of the ABLE Act to tear down the barriers to economic independence for people with disabilities.

 
 

7/26/2016

Ringing in a New Year of Disability Inclusion

By Susan Diegelman Cinquegrane, Public Affairs Director, AT&T

We believe that creating an inclusive community is about more than screen readers and ramps. It's about bringing together diverse perspectives, identifying needs and working with the disability community to find new and more innovative ways to meet those needs through technology

 
 

7/26/2016

Tuesdays with Liz - Senator Casey

During this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Senator Casey (D-PA) about the ABLE Act and the 26th Anniversary of the Americans with Disabilities Act.

 
 

7/25/2016

Center for Disabilities and Development Host Two Inclusive Family Events (IA UCEDD)

The Center for Disabilities and Development, Iowa's University Center for Excellence on Disabilities hosted two inclusive family events in early June. Both events allowed children of all abilities and their siblings to come together to enjoy the outdoors. Fish Day was a joint effort between CDD, the Department of Natural Resources (DNR) and CAST for Kids Foundation. Families spent the day fishing; the DNR stocked the pond so everyone was able to catch a fish or two. Easter Seals provided adaptive fishing equipment to meet all participants' needs.

 
 

7/22/2016

Diversity & Inclusion Funding and Leadership Opportunities Available from AUCD

AUCD is pleased to announce new opportunities to continue the effort begun with the Diversity and Inclusion Toolkit.

 
 

7/20/2016

The White House Forum on Criminal Justice Reform and Disability

The White House and the Center for American Progress hosted a forum on criminal justice reform and people with disabilities. The conversation included experts in criminal justice reform, disability rights advocates, policymakers, and individuals directly impacted by the criminal justice system.

 
 

7/19/2016

Tuesdays with Liz - Nicole LeBlanc

This week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Nicole Leblanc from Green Mountain Self Advocate about the ABLE act and other policy issues.

 
 

7/18/2016

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Investigator Develops Tool to Assess Implicit Biases Related to Individuals Who Stutter

More than 3 million Americans stutter. Stuttering is characterized by disruptions in the production of speech sounds, usually begins in early childhood, and can persist throughout life. The documented stigmatizing attitudes of others put children who stutter at an increased risk for experiences such as aggression and bullying, and therefore the disorder often has a negative impact on children's development in educational, social, and vocational spheres of life.

 
 

7/13/2016

Bill Kiernan to Receive 2016 NASDDDS Compass Award (MA UCEDD/LEND)

The ICI's executive director, Bill Kiernan, will be the 2016 recipient of the Robert M. Gettings Compass Award from the National Association of State Directors of Developmental Disabilities Services (NASDDDS). The Compass Award honors people working in the private sector who have made impressive contributions to publicly funded state service systems for people with developmental disabilities.

 
 

7/13/2016

ICI Staffers Present, Win Award at APSE Conference (MA UCEDD/LEND)

At APSE's national conference in Cincinnati, ICI had a robust presence. Multiple staff members made presentations, and David Hoff won the Torch Award.

 
 

7/13/2016

Murphy, Fudge Introduce Stronger Together School Diversity Act of 2016

The Stronger Together Diversity Act has been endorsed by the Association of University Centers on Disabilities, National Education Association, American Federation of Teachers, the National Urban League, National Women's Law Center and more.

U.S. Senator Chris Murphy (D-Conn.), member of the U.S. Senate Health, Education, Labor and Pensions (HELP) Committee, and Congresswoman Marcia L. Fudge (Ohio-11), Ranking Member of the Subcommittee on Early Childhood, Elementary and Secondary Education of the U.S. House Committee on Education and the Workforce, on Tuesday introduced the Stronger Together School Diversity Act of 2016 to promote diversity in schools. The bill builds on President Obama's FY 2017 Stronger Together budget proposal, and consists of a voluntary program to support the development and expansion of new and existing community-driven strategies to increase diversity in America's schools.

 
 

7/13/2016

Now Archived UCEDD Grants Management Series: Needs Assessment for UCEDD Core Grant

The UCEDD core grant application must be based on data-driven strategic planning, per 45 CFR 1388.5(c)(2). State- or Territory-wide needs assessments typically inform this strategic planning process and are discussed in the "Problem Statement" section of the UCEDD core grant application. This webinar will present results of a network-wide survey of how needs assessments are implemented, the Florida Center for Inclusive Communities' experience in conducting their needs assessment, and will provide significant opportunity for discussion. See relevant materials on the event page.

 
 
R-L Colleen McLaughlin and Carol Britton

7/12/2016

Colleen McLaughlin, MEd (NJ UCEDD) Honored with the Distinction of Fellow of the American Association on Intellectual and Developmental Disabilities

Colleen McLaughlin, MEd, Community Training and Technical Assistance Manager at The Boggs Center on Developmental Disabilities (NJ UCEDD) was honored with the distinction of Fellow of the American Association on Intellectual and Developmental Disabilities (AAIDD). The ceremony was held at AAIDD's 140th Annual Meeting in Atlanta, Georgia on June 8, 2016.

 
 

7/12/2016

MCHB Expands National Footprint of LEND Training Programs

The Maternal and Child Health Bureau (MCHB) within the Health Resources and Services Administration (HRSA) has announced funding awards for a record 52 Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs. These programs, which are located at universities and hospitals across the country, prepare trainees from a wide variety of professional disciplines to assume leadership roles in the delivery of services to children with autism and other neurodevelopmental disabilities in clinical practice, research, and public policy.

 
 

7/12/2016

Tuesdays with Liz - Carol Wright

This week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Carol Wright, Assistant VP of Mobility & Transportation at Easter Seals, about the new transportation center called National Aging and Disability Transportation Center and its website. In case you missed last week's edition, Liz spoke to Kelly Israel from the Autistic Self Advocacy Network (ASAN) about the proposed FDA rule to ban the use of electric shock devices.

 
 
Pictured are the students Vanessa Sully and Whitney Jones

7/11/2016

Becoming a Leader on the Rosebud Indian Reservation (SD UCEDD/LEND)

Whitney Jones and Vanessa Sully, both Human Services majors at Sinte Gleska University on the Rosebud Indian Reservation in Mission, SD, are Diversity Fellows funded through a National Training Initiative grant to the USD Center for Disabilities.

 
 

7/8/2016

Center Focuses on a Vulnerable Population (MD UCEDD/LEND)

How can pro bono attorneys make a difference in the lives of young patients with neurodevelopmental and other disorders of the brain? For Jennifer Brennan, it was by helping an 11-year-old girl with a major brain injury hospitalized at Kennedy Krieger Institute. Her stepmother, who only spoke Spanish, was at her bedside daily but didn't have legal authority to make critical medical decisions.

 
 

7/8/2016

Dr. Jeffrey Brosco,Mailman Center for Child Development (FL LEND), Appointed to HHS Advisory Committee on Disorders in Newborns and Children

Jeffrey P. Brosco, M.D., Ph.D., a nationally recognized pediatrician and scholar at the Miller School of Medicine, has been appointed to the U.S. Department of Health and Human Services Secretary's Advisory Committee on Heritable Disorders in Newborns and Children.

 
 

7/8/2016

Dr. Lesley Cottrell appointed director of WVU Center for Excellence in Disabilities (WV UCEDD)

Lesley Cottrell, Ph.D., has been appointed director of the West Virginia University Center for Excellence in Disabilities. "WVU is lucky to have dedicated faculty leaders like Lesley Cottrell who work every day to serve the children of West Virginia," said Clay B. Marsh, M.D., vice president and executive dean for health sciences. "We're counting on her to expand the Center's role in helping individuals with disabilities in West Virginia get the services and supports needed to live and participate in their communities."

 
 

7/8/2016

In Memoriam: Richard Roberts, Dies (UT UCEDD)

Dr. Richard N. Roberts, director of the Research and Evaluation Division at the Center for Persons with Disabilities from 1989-2010, passed away June 10, 2016 in Utah. Roberts's career focused on children with special needs and their families. He was the principal investigator of numerous multi-year multi-site projects within the Early Intervention Research Institute, as well as directing many other other state and regional projects. Prior to coming to Utah, Roberts was the director and founder of the Preschool Education Program for Native Hawaiian children in Honolulu.

 
 

7/8/2016

MN UCEDD Co-hosts Education Summit in India

Over 250 education leaders from seven nations attended the first International Summit on Inclusion and Response to Intervention on June 8-10, a milestone gathering organized by the Institute on Community Integration (MN UCEDD) and Avinashilingam University for Women in Coimbatore, India.

 
 

7/8/2016

Partnering for School Safety and Student Success (MD UEDD/LEND)

On June 22 and 23, 2016, Baltimore County Public Schools hosted the 21st annual Safe Schools Conference titled, "Partnering for School Safety and Student Success" in Woodlawn, Maryland. The Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute was an exhibitor for the event and disseminated brochures and fact sheets to hundreds of elementary and secondary Baltimore County teachers and administrators.

 
 

7/8/2016

Power of Partnership: Project HEAL's Spring Fundraising Event (MD UCEDD/LEND)

Project HEAL (Health, Education, Advocacy, and Law), a community-based program of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, celebrated its partnership with real estate agency RE/MAX Preferred and local restaurant Bertha's Mussels at a fundraiser on April 15, 2016.

 
 

7/8/2016

UC UCEDD Diversity Fellow: Building Community Connections

Rhyanne McDade is the diversity fellow for the University of Cincinnati University Center for Excellence in Developmental Disabilities (UC UCEDD). Rhyanne is also a recent graduate, and obtained her doctoral degree in Health Education from the University of Cincinnati in Spring 2016. Dr. McDade�s research interests include the examination of social-cultural and economic influences impacting minority youth involvement in risky behaviors. As a diversity fellow, Dr. McDade is expanding her knowledge base via examination of social-cultural and economic barriers impacting families and individuals with developmental disabilities.

 
 

7/8/2016

University Center for Excellence in Developmental Disabilities Dr. Susan W. Dr. Susan Fox Selected as President and Chief Executive Office at the Westchester Institute for Human Development (WIHD) (NY UCEDD)

The Westchester Institute for Human Development (WIHD) Board of Directors is pleased and excited to announce that Susan Fox, Ph.D., has been selected to serve as the next President and Chief Executive Officer. Dr. Fox succeeds Dr. Ansley Bacon, who retired in February, 2015 after successfully leading WIHD for the past 30 years. Dr. Fox will assume this leadership position on June 20, 2016.

 
 

7/6/2016

Community Living and Participation for People with Intellectual and Developmental Disabilities

Joint Position Statement of AAIDD and AUCD

Community living is a major focus of national policy and related litigation (e.g. the Americans with Disabilities Act in 1990, the Supreme Court Olmstead v. L.C. decision in 1999, Workforce Innovation and Opportunity Act in 2014 and the Home and Community Based Services Final Rule in 2014). Increasingly public policy is promoting and requiring that federal funding be used to support people to live, work, and participate fully in their communities.

 
 

7/5/2016

Tuesdays with Liz- Kelly Israel

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz Weintraub interviews Kelly Israel from the Autistic Self Advocacy Network (ASAN) about the proposed FDA rule to ban the use of electric shock devices. In case you missed last week's edition, Liz spoke to David Frye from the Vermont LGBTQ Disabilities Network about being gay and having a disability.

 
 

7/1/2016

MCDD High School Trainee's Honors & Recognition (MD UCEDD)

Meera Rothman is a rising senior at Dulaney High School in Baltimore, Maryland, and an MCDD trainee for the summer. Meera has volunteered more than 125 hours this summer on two research projects to benefit Kennedy Krieger's Psychiatric Mental Health Program and the Care Coordination Project. Meera also volunteered with Project HEAL, an MCDD community-based program, during the summers of 2013 and 2014, and presented her research at a poster session during the 2014 AUCD conference.

 
 

6/27/2016

"Whose Life is it Anyways?" Person-Centered Practices Family Training: A New Collaborative Project (TX UCEDD)

"Whose Life is it Anyways?" Person-Centered Practices Family Training: A New Collaborative Project In collaboration with the Center on Disability and Development (CDD), the University of Texas Center on Disability Studies (TCDS), the Texas Division of Blind Services (DBS), the Texas School for the Blind and Visually Impaired (TSBVI), Educational Service Center Region 6 (Huntsville) and Region 12 (Waco), and Fungineering, over 25 parents and 19 young advocates with visual impairments participated in the "Whose Life is it Anyways?" Person-Centered Practices Family Training.

 
 

6/27/2016

Munroe-Meyer Institute Teams with State for Autism Coverage Medicaid Guidelines (NE UCEDD/LEND)

Following a 2015 Nebraska Supreme Court ruling that mandated Medicare coverage for children with autism in the state, Nebraska officials seeking information on the types of services that could and should be provided met with a team of professionals from the University of Nebraska Medical Center's Munroe-Meyer Institute.

 
 

6/27/2016

Tuesdays with Liz - David Frye

In recognition of Pride Month, Liz Weintraub, host of this week's edition of interviewed David Frye, who serves as coordinator for the Vermont LGBTQ Disabilities Network in this week's edition of Tuesdays with Liz: Disability Policy for All. They discussed his experiences as an LGBTQ individual with a disability. In case you missed last week's edition, Liz interviewed Jennifer Longdon, is a person with a disability as a result of gun violence. They spoke about her experience following the gun violence and how she became a disability advocate.

 
 

6/27/2016

UCONN UCEDD Hosts Self-Determination Event for Connecticut Practitioners

UCONN UCEDD hosted an all-day training event on Self-Determination and its importance in the education of students with disabilities." Invited presenters were Drs. Michael Weymeyer and Karrie Shogren from the University of Kansas. Over 100 individuals representing school districts across the state of Connecticut, along with advocates, family members, graduate students, and state agencies staff attended the training.

 
 

6/22/2016

AUCD Celebrates the 17th Anniversary of the Olmstead Decision

Urges Congress to Support States in Implementation of Olmstead

AUCD and its self-advocates, family members, and allies, joins with the greater disability community in celebrating the 17th Anniversary of the U.S. Supreme Court Olmstead vs. L.C. decision (1999), a landmark decision that has afforded hundreds of thousands of people with disabilities the opportunity to move from institutions to their own homes and communities. Seventeen years ago today the Supreme Court ruled that, under the Americans with Disabilities Act, people with disabilities cannot be unnecessarily segregated and must receive services in the most integrated setting possible.

 
 

6/21/2016

Tuesdays with Liz - Jennifer Longdon

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz Weintraub interviewed Jennifer Longdon, is a person with a disability as a result of gun violence. They spoke about her experience following the gun violence and how she became a disability advocate. In case you missed last week's edition, Liz interviewed John Sorenson, Project Officer for the Money Follows the Person program and a housing specialist at CMS. They spoke about the challenges being a father with a disability in honor of Father's Day (June 19).

 
 

6/20/2016

Alert: Conference Information

AUCD has learned that some of you have been contacted by phone or email from someone at "Expo Services" claiming to represent AUCD and offering a special discount for registration or hotels. Be advised that AUCD does not have relationships with any outside companies who are authorized to offer you discounts or book your travel or registration. We advise you to not give your personal or financial information to anyone contacting you and claiming to be working on behalf of or in conjunction with AUCD.

 
 

6/20/2016

ICI (MA UCEDD/LEND) Receives New Grant for Transition Leadership

The Office of Special Education Programs has awarded the Institute for Community Inclusion's Education and Transition Team a new grant for $250,000 per year for the next five years. The grant will fund and prepare four cohorts of highly trained Transition Specialists with a focus on Intellectual Disability (ID) and other low incidence disabilities (LID) to address the critical shortage of transition personnel in MA.

 
 

6/20/2016

Southeastern Postsecondary Education Alliance Holds Second Annual Capacity Building Institute

The Center for Leadership in Disability (CLD), at the Georgia State University School of Public Health, hosted its second annual Southeastern Postsecondary Education Alliance (SEPSEA) Capacity Building Institute on April 4th & 5th, 2016.

 
 

6/16/2016

Walmart Foundation Grant to AUCD Expands Nutrition Efforts for People with Disabilities in Four States

The Association of University Centers on Disabilities (AUCD) is pleased to announce that the Walmart Foundation has granted AUCD and four of its member Centers $300,000 to launch the "Nutrition is for Everyone" project. This one-year pilot project will provide nutrition education for an estimated 20,000 people in the disability community across Arkansas, Louisiana, Oklahoma, and Tennessee.

 
 

6/14/2016

Karabo Molyneaux-Molloy Representing AUCD and the US Virgin Islands at Today's White House Women's Summit

"AUCD is excited to have dynamic leaders like Karabo Molyneaux-Molloy and Liz Weintraub in attendance at today's historic summit," said Andrew Imparato, AUCD's Executive Director. "Women with disabilities have a huge stake in every topic that will be discussed today, and the whole community will benefit from their participation."

 
 

6/14/2016

Tuesdays with Liz- John Sorenson

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz Weintraub interviewed John Sorenson (Project Officer for the Money Follows the Person program and a housing specialist at CMS). They spoke about the challenges being a father with a disability in honor of Father's Day (June 19). In case you missed last week's edition, AUCD Policy Analyst Christine Grosso gave a tutorial of the HCBS Advocacy site.

 
 

6/13/2016

Special Report on the Senate Appropriations bill for the Departments of Labor, HHS, Education for FY 2017

pdf File Special Report on the Senate Appropriations bill for the Departments of Labor, HHS, Education for FY 2017 [download]
 
 

6/13/2016

The Center on Disability and Development at Texas A&M University Announces the 2016 PATHS Graduates (TX UCEDD)

The Postsecondary Access and Training in Human Services (PATHS) program at Texas A&M University is honored to announce the 2016 graduates. This year, 21 young men and women successfully graduated from the PATHS certificate program. Family and friends attended the fifth graduating PATHS class. The PATHS certificate program was developed in 2010 by Dr. Cheryl Grenwelge, Director of Transition Service Programs, Associate Professor, Texas A&M AgriLife Extension while working with the Center on Disability and Development (CDD) at Texas A&M University.

 
 

6/11/2016

Comfort Room for Kids (IA UCEDD/LEND)

The Center for Disabilities and Development, Iowa's Center for Excellence on Disabilities is excited to roll out a new and unique experience for our patients and families. The Comfort Room for Kids is scheduled to open in late spring 2016.

 
 

6/8/2016

AUCD's Sara Luterman: 2016 Advocates in Disability Award Winner

The HSC Foundation and Mitsubishi Electric America Foundation announce that Sara Luterman is the 2016 recipient of the Advocates in Disability Award. Luterman, 26, is a staff member at AUCD and a a strong advocate for young people with disabilities. She works to let those voices be heard, particularly by giving people with disabilities a platform to share their stories.

 
 

6/7/2016

Empowering Latina Mothers of Children with ASD: Webinar Archive Available

In concert with April as Autism Awareness and Acceptance month, the Association of University Centers on Disabilities (AUCD) hosted a webinar entitled "Parents Taking Action: Empowering Latina Mothers of Children with Autism Spectrum Disorder (ASD)." Latinos represent the fastest growing population in the US, and Latino children are one of the fastest growing ASD populations. Despite this growth, they are one of the most underserved groups with respect to diagnostic services, health care, and specialty autism services. "There are huge gaps in identifying and supporting Latino children with ASD leading to serious and significant long-term health disparities. I'm thrilled that we were able to share with the network one promising community-based model for addressing those gaps by empowering their family members," said Cathy Pratt, chair of AUCD's Autism Special Interest Group.

 
 

6/7/2016

New Webinar Series Launched to Explore Disability & Employment (NH UCEDD)

The Employment Policy and Measurement Rehabilitation and Research Training Center (EPM-RRTC) would like to announce the launch of the nTIDE Lunch & Learn Webinar Series. Taking place the first Friday of every month, these webinars come on the same day that the Bureau of Labor Statistics releases its monthly Jobs Report. The National Trends in Disability Employment (nTIDE) Report looks into the numbers as they relate to people with disabilities.

 
 

6/7/2016

Tuesdays with Liz- Christine Grosso

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz Weintraub and AUCD Policy Analyst Christine Grosso will give a tutorial of the HCBS Advocacy site. In case you missed last week's edition, Liz interviewed Lydia Brown who spoke about the Women with Autism Project and the Anthology.

 
 

6/6/2016

7th Summer Institute Explores Intersection of Faith and Disability (Maine UCEDD)

Approximately 160 people from seven countries and multiple faith traditions recently attended all or part of the 2016 Summer Institute on Theology and Disability in Holland, MI hosted by Hope College and Western Theological Seminary.Under the leadership of Rev. Bill Gaventa, the vision of the annual Summer Institute is to "expand the depth and breadth of theological inquiry and resources that address and include the contributions of people with disabilities and their families to theological learning and religious practice." In 2013, Gaventa retired as director of Community and Congregational Supports and Associate Professor at the Elizabeth M. Boggs Center on Developmental Disabilities, Rutgers Robert Wood Johnson Medical School.

 
 

5/31/2016

Alaska Safety Planning & Empowerment Network (ASPEN): Bringing Together Domestic/Sexual Violence and Disability Service Agencies (AK UCEDD/LEND)

Research staff from the Center for Human Development have an ongoing role in community needs assessment with the Alaska Safety Planning and Empowerment Network (ASPEN). ASPEN brings together domestic violence/sexual assault (DV/SA), and disability service agencies from around the state, in primarily rural areas.

 
 

5/31/2016

CDD Diversity Leadership Fellow Makes an Impact on a Local Community (TX UCEDD)

Dianey Leal is a Master's Student at Bush School of Government and Public Service, Texas A&M University and AUCD Diversity Leadership Fellow. During her first semester as an AUCD Diversity Leadership Fellow, Dianey complied scholarly papers on seclusion and the effects it has on students with disabilities for publication through the Center on Disability and Development (CDD).

 
 

5/31/2016

Continuing the National Conversations on MTSS/RtI (LA UCEDD)

The Human Development Center UCEDD hosted the second annual two-day institute on RtI/MTSS with sessions focusing on behavior (PBIS), literacy, legal issues, and RtI/MTSS development, implementation, and sustainability.

 
 

5/31/2016

CPD pioneer, Dr. Wilbur "Bill" Thain

Dr. Wilbur "Bill" Thain died following a short illness on April 30, 2016. Thain was a member of the original committee that planned and established the Exceptional Child Center (ECC), which later became the Center for Persons with Disabilities at Utah State University. He was integral to the formation and development of the Center, and he served as its first medical director for 13 years.

 
 

5/31/2016

First Annual USC UCEDD Community Education Conference

The USC UCEDD hosted it's first annual community education conference at The California Endowment in Downtown Los Angeles. This one-of-a-kind conference offered 18 sessions focusing on the needs of transitional age youth (ages 14-25) with co-occurring developmental disabilities and mental health issues. Over 180 participants from across the state of California attended the event.

 
 

5/31/2016

First Annual USC UCEDD Community Education Conference

The USC UCEDD hosted it's first annual community education conference at The California Endowment in Downtown Los Angeles. This one-of-a-kind conference offered 18 sessions focusing on the needs of transitional age youth (ages 14-25) with co-occurring developmental disabilities and mental health issues. Over 180 participants from across the state of California attended the event.

 
 

5/31/2016

ICI (MA UCEDD/LEND) Director Joins Official US Delgation to China

This official US delegation from the Department of State traveled to China to discuss and share ideas and thoughts about disability rights, employment and inclusive education for children and adults with disabilities. The director of the Institute for Community Inclusion, Dr William Kiernan, was honored to join other prominent leaders in the disability field.

 
 

5/31/2016

MN UCEDD Films Receive Awards in NYC

The films "Of the Community" and "ICI: 30 Years of Innovation, Collaboration, and Influence," released by the Institute on Community Integration (ICI), were recognized at the 22nd Annual Communicator Awards in New York City on April 26. "Of the Community" was among the recipients of the 2016 Award of Excellence (Gold Award) in the Video/Film - Social Issues category, and also received the Award of Distinction (Silver Award) in the Film/Video - Documentary category. "ICI: 30 Years of Innovation, Collaboration, and Influence" was among the recipients of the Award of Distinction (Silver Award) in the Film/Video - Education Institutions category.

 
 

5/31/2016

Sonoran UCEDD Trainee Honored as a 2016 Outstanding Senior and Recipient of a Merrill P. Freeman Medal Award

Shivani Misra, Sonoran UCEDD trainee, was one of seven graduating seniors that were honored for their outstanding achievements during the University of Arizona's 152nd Commencement ceremony. The seniors were nominated by faculty and peers for awards, which collectively honor individuals with marked integrity and notable achievements, and who also made positive contributions to their families and communities while studying at the UA.

 
 

5/31/2016

Tuesdays with Liz - Lydia Brown

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz Weintraub interviews Lydia X. Z. Brown who is talking about a new Anthology on Autism and Race.

 
 

5/31/2016

UCLA PEERS Clinic at the International Meeting for Autism Research (IMFAR) Conference 2016 (CA UCEDD)

Dr. Elizabeth Laugeson and members of her research team presented recent study findings on the PEERS� intervention at the International Meeting for Autism Research (IMFAR) in Baltimore, Maryland. Dr. Laugeson is the Director of Training at the Tarjan Center for Excellence in Developmental Disabilities at UCLA, and is the Founder and Director of the UCLA PEERS� Clinic, an outpatient program providing an evidence-based, parent assisted social skills intervention for adolescents and young adults with Autism Spectrum Disorder.

 
 

5/31/2016

Vanderbilt Kennedy Center (TN UCEDD/LEND/IDDRC) Joins Nation's Largest Autism Study

The Vanderbilt Kennedy Center is one of a select group of sites selected to launch SPARK, an online research initiative designed to become the largest autism study ever undertaken in the United States.

 
 

5/27/2016

AUCD Statement: ESSA Rulemaking

AUCD is encouraged that the Department of Education has released proposed rules on accountability, state plans, and the transparency of data.

 
 
Photo by the IUB Newsroom

5/24/2016

Derek Nord Named New Director of Indiana Institute on Disability and Community (IN UCEDD)

Following a national search, Derek Nord has been appointed the new director of the Indiana Institute on Disability and Community at Indiana University. Nord is currently associate director of the Research and Training Center on Community Living, a part of the University of Minnesota's Institute on Community Integration.

 
 

5/24/2016

Tuesdays with Liz - Robyn Powell

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Robyn Powell from the Disabled Parenting Project about people with disabilities who are parents. In case you missed last week's edition, Liz interviewed Laura Fortman, Deputy Administrator of the Wage and Hour Division of the Department of Labor about work protections for individuals with disabilities.

 
 
Photo by John Russell/Vanderbilt University.

5/23/2016

Vanderbilt University Dependents with Intellectual Challenges to Receive Tuition Benefit (UCEDD/LEND TN)

By Jan Read at Vanderbilt News

A Vanderbilt University sociology professor was looking for education options that her daughter, who has autism, could attend after high school, but suitable programs carried prohibitive price tags. Why, she wondered, couldn't she take advantage of Vanderbilt's popular benefit that helps pay college costs for the children of faculty and staff?

 
 

5/20/2016

Training the Next Generation of Leaders in ASD (WA LEND)

by Kate Forster

The CHDD LEND training program provides a hands-on, interdisciplinary curriculum that prepares professionals for leadership roles in the field of autism spectrum disorder and related developmental disabilities. One third of LEND graduates go on to work primarily in the field of autism.

 
 

5/18/2016

US Department of Labor Signs Alliance Agreement to Increase Inclusion of Workers with Disabilities

Association of University Centers on Disabilities latest in collaboration effort

To promote inclusive workplaces that embrace the skills and talents of workers with disabilities, the U.S. Department of Labor's Office of Disability Employment Policy signed an alliance agreement today with the Association of University Centers on Disabilities.

 
 

5/17/2016

HANDS in Autism Model in Practice: Intensive Weeklong Training for School Personnel & Community Providers (IN UCEDD)

An intensive training that focuses on providing hands-on experience and coaching in a simulated community & home environment. While the program includes traditional instructional methods such as lectures and discussion, the emphasis of training is incorporating interactive and hands-on application to foster increased participant knowledge and skill related to the process of making and supporting appropriate programming decisions for individuals with autism spectrum disorder (ASD) and other neurodevelopmental and behavioral disorders.

 
 

5/17/2016

Legal Planning for Young Adults with Disabilities (MD UCEDD)

Professor Angela Vallario and attorney Louise Michaux Gonzales delivered a free seminar to Kennedy Krieger young adult patients, students, and their families about estate planning considerations and decision-making capacity. Project HEAL (Health, Education, Advocacy, and Law) attorneys, 22 law students, and nine attorneys from the legal community completed 12 powers of attorney, 11 advance directives, and four advance directives for mental health with participants. Each participant also competed a needs assessment regarding other civil legal needs.

 
 

5/17/2016

Tuesdays with Liz - Laura Fortman

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Laura Fortman, Deputy Administrator of the Wage and Hour Division of the Department of Labor about work protections for individuals with disabilities. In case you missed last week's edition, Liz interviewed Chris Rodriguez, Senior Public Policy Advisor at the National Disability Institute, about ABLE resources in different states.

 
 

5/12/2016

Mercedes Avila: 2016 Changemaker Local Hero Award Winner from the Child Mind Institute

MCC Chair and VT LEND Co-Director Honored for Work with Disadvantaged Populations

The 2016 Local Hero Award Winner, Dr. Avila is dedicated to serving children and youth at the margins: refugees and immigrants, teens struggling with mental health problems and young adults affected by substance abuse. She has secured funding for programs that address these critical issues, and works to eliminate inequality in access to resources and programming.

 
 

5/12/2016

Position Opening: Virtual Trainee

For the 2016-2017 academic year

This is an exciting opportunity for a current trainee to develop their leadership and communication skills, promote the meaningful exchange of information about issues related to people with disabilities and special health needs, and become more familiar with the broader AUCD network while having a national impact on the disability field.

 
 

5/10/2016

Elaine Eisenbaum Selected Associate Director at Texas Center for Disability Studies (TX UCEDD)

Elaine Eisenbaum, PhD, has been selected as the Assistant Director for the Texas Center for Disability Studies in Austin, TX. Dr. Eisenbaum brings with her experience in teaching, research, and evaluation in the area of disability and inclusion in many forms.

 
 

5/10/2016

Kentucky Peer Support Network Project Fosters Friendship and Inclusion for Students with Disabilities (KY UCEDD)

For students with disabilities, it can sometimes be difficult to engage with their peers, both socially as well as academically. The Kentucky Peer Support Network Project aims to assist in connecting these students with their peers through two initiatives: Peer Support Arrangements and Peer Networks. Both efforts are being piloted in Kentucky schools today, and work in tandem to lay the groundwork for genuine friendships among all students who participate.

 
 

5/10/2016

Tuesdays with Liz - Chris Rodriguez

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Chris Rodriguez, Senior Public Policy Advisor at the National Disability Institute, about ABLE resources in different states. In case you missed last week's edition, Liz interviewed Wendy Parent-Johnson, UCEDD Director at the University of South Dakota Sanford School of Medicine, about transitioning to employment.

 
 
Authors Story Flinn, son of VA LEND trainee Kate Flinn, teacher Beth Beckmann. Not pictured: author Reed Wolfgang.

5/3/2016

April is Autism Awareness Month, But Should It Be Autism Acceptance Month? (VA UCEDD/LEND)

An opinion article authored by the son of a VA LEND trainee.

"Every year on April 2nd, the world celebrates World Autism Awareness Day. In 2008, spearheaded by the state of Qatar, the United Nations General Assembly unanimously declared April 2nd as World Autism Awareness Day "to highlight the need to help improve the quality of life of those with autism so they can lead full and meaningful lives as an integral part of society."

 
 

5/3/2016

Dr. Cheryl Grenwelge Promoted to Associate Professor (TX UCEDD)

Dr. Cheryl Grenwelge wears many "hats" at Texas A&M University. She is dually appointed as an Associate Professor the AgriLife Sciences and the Center on Disability and Development as the Director of Transition Service Programs. Her research interests include transition services, postsecondary education, self-determination, and youth leadership development.

 
 

5/3/2016

Dr. Jennifer Hall-Lande (MN UCEDD) Appointed MN Act Early Ambassador

Dr. Jennifer Hall-Lande of the Institute on Community Integration has been selected as Minnesota's 2016-18 Act Early Ambassador by the National Center on Birth Defects and Developmental Disabilities at the Centers for Disease Control and Prevention, and the Association of University Centers on Disabilities. This marks the start of her second two-year term as the Minnesota point-of-contact for the CDC's nationwide "Learn the Signs. Act Early." program to improve early identification of developmental delays and disabilities, including Autism Spectrum Disorder.

 
 

5/3/2016

LEND Audiology Trainees Learn and Shine at EHDI 2016

On March 13-15, AUCD members joined nearly 1,000 diverse stakeholders in San Diego, CA, at the 15th annual Early Hearing Detection and Intervention (EHDI) Meeting, organized jointly by the American Academy of Pediatrics, the U.S. Health Resources and Services Administration, and the National Center for Hearing Assessment and Management at Utah State University.

 
 

5/3/2016

Making the "Healthy Relationships" Curriculum Accessible for Students with Disabilities Attending Postsecondary Education Programs (TX UCEDD)

Christi Hays, MEd, CHES, is a Health Education doctoral student at Texas A&M University. As an undergraduate at Texas A&M, she was a peer health educator and worked to address the sexual health issues of college students. As a doctoral student, Christi works for iTP3, an OAH funded project to support innovative teen pregnancy prevention programs, and her research focuses on sexual health in under-served populations.

 
 

5/3/2016

The Power of Partnership: Project HEAL, RE/MAX Preferred, & Bertha's Mussels (MD UCEDD)

RE/MAX Preferred and Bertha's Mussels celebrated their partnership with Project HEAL (Heath, Education, Advocacy, and Law). A community-based program of the Maryland Center for Developmental Disabilities, Project HEAL is Maryland's only comprehensive medical-legal partnership. Attorneys provide advocacy and legal services to hundreds of low- and moderate-income Kennedy Krieger patients and their families.

 
 
Travis Hamil

5/3/2016

Travis Hamil, PATHS Program Assistant (TX UCEDD)

Travis credits his time with the Postsecondary Access and Training in Human Services (PATHS) program for helping feel more confident because he learned how to use the city buses to access the community and what to expect as a college student. After spending a year as a direct support professional with a group home, Travis was hired as a Program Assistant with the PATHS Program. He now supports students in the classroom, provides assistive technology training, mentors students in developing their independent living skills, and supports staff with day-to-day activities.

 
 

5/3/2016

Tuesdays with Liz - Wendy Parent Johnson

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Wendy Parent-Johnson, UCEDD Director at the University of South Dakota Sanford School of Medicine, about transitioning to employment. In case you missed last week's edition, Liz interviewed Michael Morris, director of the National Disability Institute, about financial literacy for individuals with disabilities.

 
 

5/2/2016

'Camp Yes And' for Teens on the Autism Spectrum Doubling its Impact in 2016 (IN UCEDD)

At 'Camp Yes And,' teens and teachers learn improv as a way to develop social communication skills and transform teaching and learning. The camp is designed to support verbal teens (ages 13-18) on the autism spectrum, or those with a similar diagnosis, who would benefit from support around building social communication skills.

 
 

5/2/2016

AUCD Welcomes New Staffer Jennifer Tuell

Jennifer Tuell is the Program Assistant at AUCD. She supports administrative actions through different departments and contributions with needs regarding projects. In addition, she works to assist development with AUCD and upholds the values and mission of the organization daily. Jennifer obtained her MA from Gallaudet University in Deaf studies: Language and Human Rights program. Within this experience, she was fortunate to gain skills to develop advocacy and policy approaches for disability rights.

 
 

5/2/2016

MN UCEDD to be Honored by The Arc Minnesota

MN UCEDD to be Honored by The Arc Minnesota The Institute on Community Integration will be honored for its contributions to public policy and community inclusion by The Arc Minnesota at the agency's annual Public Policy Recognition Event on May 25.

 
 

5/2/2016

ThinkWork! Projects Appear in NPR and PBS Series (MA UCEDD/LEND)

Two projects run by the Institute for Community Inclusion's ThinkWork! recently received national media coverage. ThinkWork! is the hub for the ICI's projects that promote integrated employment for individuals with intellectual/developmental disabilities.

 
 

5/1/2016

What's New in the AUCD 2016 Conference Agenda

We're listening to your feedback! The AUCD 2016 Conference agenda looks a little different than previous years - check out some of the changes we've made, and be sure to make your travel plans accordingly so you don't miss exciting events.

 
 

5/1/2016

Wolf Wolfensberger Documentary Available from the RTC (MN UCEDD/LEND & PA-Temple UCEDD)

The Rehabilitation Research and Training Center on Community Living for People with Intellectual Disabilities (RTC/CL) has released a film, "Valuing Lives: Wolf Wolfensberger and the Principle of Normalization." The film explores the principle of normalization, an idea that challenged fundamental assumptions about people with intellectual disabilities. It also features the iconoclastic professor whose intense, multi-day workshops trained thousands of human services professionals in the theory and practice of this idea.

 
 

4/26/2016

Tuesdays with Liz -- Michael Morris

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Michael Morris, director of the National Disability Institute, about financial literacy for individuals with disabilities. In case you missed last week's edition, Liz interviewed Shannon Haworth, AUCD's Public Health Program Manager, about the Interagency Autism Coordinating Committee (IACC) and the role it plays in federal efforts to address autism spectrum disorder (ASD).

 
 

4/25/2016

MN LEND Webcast Will Address Neurobiology of Poverty

The 2016 Minnesota LEND Forum, "The Neurobiology of Poverty - Children Living in Poverty: Neurodevelopmental and Biological Correlates," explores what is known about the life-long effects of growing up in poverty via the perspectives of two leading researchers in the field. Dr. Seth Pollak of the University of Wisconsin-Madison will discuss, "Child Poverty and the Income-Achievement Gap: Insights from Cognitive Neuroscience" and Dr. Megan Gunnar from the University of Minnesota will present, "Poverty, Allostatic Load and the Stress Neuraxis: A Mechanism or a Bridge Too Far?"

 
 
Renetta and David Bridges, new Red Cross volunteers

4/25/2016

Planning for Emergencies in Oklahoma: Investing in Partnerships (OK UCEDD)

Mother Nature can create emergencies for everyone, including people with intellectual/developmental disabilities (IDD). However, few Oklahomans with IDD have emergency plans in place. OKSAN (Oklahoma Self-Advocacy Network), a collaborative project facilitated by the Oklahoma UCEDD, has partnered with the American Red Cross to create an emergency preparedness training and workbook curriculum by Oklahoma self-advocates for Oklahoma self-advocates. Beginning in the spring of 2016, self-advocates will provide training in emergency preparedness for 120 self-advocates in 19 counties in Oklahoma. OKSAN plans to continue their collaboration with the Red Cross, and extend partnerships with police and fire departments across the state.

 
 

4/25/2016

U.S. Access Board Elects Regina Blye as Vice Chair (TX UCEDD)

The U.S Access Board unanimously elected Regina Blye as its Vice Chair. Blye, a Board member from Austin, Texas, is the Executive Director of the Texas State Independent Living Council where she works collaboratively with a Governor-appointed statewide board of directors and staff to build a more visible and informed community. She is a member of the Texas Center for Disability Studies Community Advisory Council, as well as several national and statewide boards such as the SILC Congress, NCIL, APRIL, Traumatic Brain Injury Advisory Council, Access Empowerment, and the Coalition of Texans with Disabilities.

 
 

4/25/2016

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Member Erik Carter Serves as Expert Speaker at Congressional Briefing

Changing post-school pathways of youth and young adults with severe disabilities was the focus of Erik Carter's presentation at a Congressional briefing, March 4, 2016, sponsored by the Friends of the Institute of Education Sciences (FIES). Carter, Ph.D., is professor of Special Education and Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) member.

 
 

4/22/2016

HealthMatters Scale Up initiative

AUCD member UCEDDs in Alaska, Kentucky, Missouri, and Illinois are working on the HealthMatters, Scale Up initiative, working to improve health and health promotion of people with intellectual and developmental disabilities (I/DD).

 
 

4/22/2016

Mark Your Calendars for AUCD 2016!

December 4-7 in Washington, DC

The AUCD 2016 Conference, "Navigating Change: Building our Future Together," highlights both the change that comes at the end of a Presidential term as well as our need to work together to create a future in which children and adults with disabilities are able to participate fully in all aspects of life as valued members of their communities. Join us to engage in powerful, important, and inspiring personal and professional discourse on December 4-7 in Washington, DC.

 
 

4/20/2016

AIR-B Updates April 2016

The first phase of the new grant awarded for the Autism Research Network for Behavioral Health (AIR-B) at UCLA has begun. Partnerships with community agencies have been established at all four sites of AIR-B, Los Angeles, Philadelphia, Rochester and Sacramento. Partners at each site include health and education agencies aimed at serving low income, primarily minority families of children with ASD and other disabilities. For example, in Los Angeles, UCLA researchers have established partnerships with South Central Los Angeles Regional Center (SLARC) and Fiesta Educativa along with a pre-existing partnership with Healthy African American Families (HAAF).

 
 

4/20/2016

AIR-P Network Activities

The Autism Intervention Research Network on Physical Health (AIR-P), led by Karen Kuhlthau, PhD, conducts research on evidence-based interventions to improve the physical health and well-being of children and adolescents with autism spectrum disorders (ASD) and other developmental disabilities, with an emphasis on underserved communities. Two key goals of the AIR-P network are to provide opportunities to develop collaborations and partnerships with clinicians and researchers and to support junior investigators in developing their research efforts to improve medical care of children with autism.

 
 

4/20/2016

BCH DBP Brings Community Advocacy Rounds to National Conference

At Boston Children�s Hospital�s Developmental Behavioral Pediatrics Fellowship, we are completing our second year of Community Advocacy Rounds, and taking it on the road! Community Advocacy Rounds is an educational series created for our trainees, focusing on topics most relevant to children with autism and developmental disabilities who are also among underserved populations. For 10-12 afternoons each year, trainees in our Developmental Behavioral Pediatrics Fellowship, Postdoctoral Psychology Fellowship, and LEND Program come together for team based learning. An equally interdisciplinary team (of social workers, psychologists, an educator, and a developmental pediatrician) leads each session.

 
 

4/20/2016

CAPTAIN: A Model for Implementing Systems Change

The California Autism Professional Training and Information Network (CAPTAIN) is a statewide network created to support the understanding and use of evidence-based practices (EBPs) for individuals affected by Autism Spectrum Disorders (ASD). This multi-agency group was established as a result of California's participation in the CDC�s Act Early Regional Summit in 2009 where standardized training, dissemination and implementation of EBPs in autism was identified as a priority for the state. With subsequent funding from OSEP's National Professional Development Center for Autism Spectrum Disorders (NPDC � ASD) Training and Technical Assistance Grant in 2010-2012, six demonstration sites throughout the state were trained in the 24 (later 27) EBPs verified by NPDC -ASD to be effective for this population.

 
 

4/20/2016

DBP Annual Conference Held in California

The Annual MCHB DBP Faculty and Fellows meeting was co-hosted by Stanford University and University of CA Davis in Palo Alto CA on March 9-11, 2016. The overall goals of the meeting are (1) to allow fellows to present their research projects to other fellows and faculty to get feedback on their projects and (2) to encourage networking among the faculty and fellows.

 
 

4/20/2016

Diversity and Inclusion Toolkit

Recently, AUCD rolled out its Diversity and Inclusion Toolkit. The Toolkit is a website that provides concrete objectives, strategies, and resources to help you realize your goals related to diversity, equity, inclusion, and cultural and linguistic competence. Strategies and resources are aligned with the roles of three specific audiences, one of which, university-based centers, is designed to cater directly to Leadership in Neurodevelopmental and Related Disabilities (LEND) and University Centers for Excellence in Developmental Disabilities Education, Research, and Service (UCEDD) programs.

 
 

4/20/2016

More about the Cause and Treatment of Tactile Problems in Autism: Parts 1 and 2

Louisa Silva, M.D., M.P.H., Principal Investigator

To further our understanding of abnormal touch/pain responses in children with autism, our group undertook to obtain the first skin biopsies ever reported in autism.* Four children between the ages of 8 and 11 participated in our exploratory study. Biopsies were submitted for specialized evaluation of C-tactile fibers - small tactile nerves mediating pleasant touch, pain, and temperature. Remarkably, results in all four children showed 50% loss of small tactile nerves. This was not a large enough group to be able to explain tactile abnormalities in all children with autism. However, with these four children, results provided an explanation for difficulties with gentle touch involved in daily living, abnormal pain thresholds, and social delay on the basis of tactile loss. Results will be published in the Journal of Neurological Disorders next month [1]. A larger case control study has been initiated.

 
 

4/20/2016

OH LEND Students Present Research Outcomes in Joint Poster Symposium

On April 7, the Leadership Education in Neurodevelopmental and related Disabilities (LEND) Program at Cincinnati Children's Hospital Medical Center and the University of Cincinnati (UC) joined with the Ohio State University (OSU) Nisonger Center LEND to host a joint poster symposium for graduating trainees. This 5th annual event offered trainees, faculty, staff and community members - including Jonathan Dever (R), State Representative for the 28th district of the Ohio House of Representatives - the opportunity to explore a wide range of topics impacting Ohioans with disabilities including health insurance coverage, transition to adult healthcare, and community inclusion. Representative Dever cosponsored The Ohio ABLE (Achieving a Better Life Experience) Act in the House of Representatives.

 
 

4/20/2016

Pediatric Audiology Trainees Collaborate with State Division of Public Health to Conduct Statewide Analysis of EHDI Services

LEND trainees from the Carolina Institute for Developmental Disabilities at UNC - Chapel Hill, attended the national EHDI Conference in San Diego, March 13-15, 2016, where they presented a poster entitled: "Regional Analysis of EHDI Outcomes in North Carolina." The EHDI acronym, which stands for Early Hearing Detection and Intervention, represents the systems of care responsible for screening, diagnosis, and intervention for infants with congenital or early onset hearing loss. EHDI programs across the nation have committed themselves to the "1-3-6 goals" of screening infants for hearing loss no later than one month of age with diagnosis no later than three months of age and intervention no later than six months of age. Remarkable progress has been made over the past 20 years since newborn hearing screening has developed into a standard of care but challenges remain, especially with regard to timely diagnosis and intervention.

 
 

4/20/2016

Update from the Division of MCH Workforce Development

In recognition of Autism Awareness Month, the Health Resources and Services Administration's (HRSA) Maternal and Child Health Bureau is pleased to share this new infographic that highlights HRSA's investments to advance the goals of the Autism CARES Act.

 
 

4/20/2016

Updates from the State Public Health Autism Resource Center

AMCHP's the State Public Health Autism Resource Center (SPHARC) has several new activities planned, along with presentations, webinars and technical assistance opportunities designed to aid and assist ASD/DD grantees.

 
 

4/19/2016

AUCD signed onto a Letter to Secretary King urging ESSA Data Implementation

AUCD signed onto a letter to Secretary of Education John King urging the department to issue regulations concerning data reporting requirements in the Every Student Succeeds Act (ESSA) and encourage school leaders to ensure that the information collected is fully accessible. The letter was circulated by The Leadership Conference on Civil and Human Rights.

 
 

4/19/2016

Critical Issues in Intellectual and Developmental Disabilities: Contemporary Research, Practice and Policy

Authors Include AUCD Members & Staff

This timely and important publication provides a concise review of what we know about ten key areas in the field of IDD and what that knowledge means for future developments in public policy, research, and practice. This work concisely illustrates the gaps between the existing evidence and what must still be demonstrated, what practices we know to be effective and contemporary strategies for implementing those practices, and where we are and where we aspire to be in our nation's public policy.

 
 

4/19/2016

Tuesdays with Liz - Shannon Haworth

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz interviews Shannon Haworth, AUCD's Public Health Program Manager, about the Interagency Autism Coordinating Committee (IACC) and the role it plays in federal efforts to address autism spectrum disorder (ASD). In case you missed last week's edition, Liz interviewed Logan Haworth, a fourth grader on the spectrum, about his interests and experiences.

 
 

4/18/2016

Federal Student Loan Discharge Actions

The Department of Education will work with the Social Security Administration to identify federal student loan borrowers with disabilities who may be eligible for a Total and Permanent Disability (TPD) loan discharge.

 
 

4/18/2016

First Certified People Planning Together (PTP) Trainers in Texas! (TX UCEDD)

Shelbi Davenport and Justin Deleon both valedictorians from their prospective PATHS program classes are candidates to become the first People Planning Together (PPT) certified trainers in Texas. The People Planning Together curriculum was developed by The Learning Community for Person Centered Practices, an International organization that provides certification programs in an effort to offer training to people with a broad range of support needs. The Institute on Person Centered Practices which is a collaborative partnership between the Center on Disability and Development at Texas A&M University and the Center on Disability Studies at The University of Texas is providing the Mentor services and supports to training Justin and Shelbi. The Institute is a regional affiliate of The Learning Community that provides training for professionals, educators, managed care organizations, providers of services, family members and people with disabilities. PPT is tailored specifically to support people with disabilities to develop person centered plans.

 
 

4/18/2016

Secretary Burwell Names Dr. Thomas E. Novotny New HHS Autism Coordinator

Dr. Novotny, a graduate of the University of Nebraska Medical Center and of the Johns Hopkins Bloomberg School of Public Health (MPH Epidemiology), is Professor Emeritus of Epidemiology and Biostatistics at San Diego State University and the University of California, San Diego. He is Board Certified in Preventive Medicine, has specialized in health systems development, non-communicable disease control, health diplomacy and served in the National Health Service Corps. He has first-hand knowledge of issues facing vulnerable and underserved individuals through his work and looks forward to continuing his service in his new role.

 
 

4/18/2016

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Member and ResearchMatch Developer Aims to Increase the Number of Participants with IDD in Research Studies

ResearchMatch (www.ResearchMatch.org) is a national online platform promoting the completion of clinical trials by matching individuals willing to participate in research with investigators nationwide. The recruitment tool was created in 2009 by Paul Harris Ph.D., Professor of Biomedical Informatics and Biomedical Engineering; Director, Office of Research Informatics; and member of the Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND).

 
 

4/15/2016

AUCD signed onto a Letter in Support of the Stop Taxing Death and Disability Act of 2016

AUCD signed onto a CCD letter of support for the Stop Taxing Death and Disability Act of 2016. The bill removes a tax penalty imposed on families whose student loans are forgiven due to the death or permanent disability of their child.

 
 

4/15/2016

Health & Disability Digest, April 2016

 
 

4/15/2016

Health & Wellness Initiative Creates Positive Lifestyle Changes (KY UCEDD)

For people with disabilities, maintaining health and wellness is essential to being self-sufficient, achieving or maintaining independence, participating in community life, and preventing the onset of secondary health conditions. Yet research shows that people with disabilities have poorer health than the general population, including drastically higher rates of obesity and related conditions. In Kentucky, those numbers are even more concerning. The health and wellness initiative at the Human Development Institute has been working hard to develop resources to help people with disabilities and their family and friends stay healthy and to take charge in their own lifestyle choices.

 
 

4/15/2016

Sandy Root-Elledge Named Executive Director of the Wyoming Institute for Disabilities (WY UCEDD)

University of Wyoming College of Health Sciences Dean Dr. Joseph Steiner announced Sandy Root-Elledge, a skilled administrator and advocate for persons with disabilities, has been selected as the new Executive Director of WIND, slated to begin her post this month.

 
 

4/14/2016

Bipartisan Bill Ends Tax Penalty on Student Loan Forgiveness for Americans with Permanent Disabilities and Families Suffering from the Death of a Child

"The Stop Taxing Death and Disability Act of 2016 would make an important difference to people with work limiting disabilities who have their student loans discharged. It is common sense that someone who cannot pay back their student loans due to a total and permanent disability cannot afford to pay taxes on the discharge of those loans," said Kim Musheno, Chair of the Consortium for Citizens with Disabilities (CCD). "CCD thanks Senators Coons, King, and Portman for introducing this legislation to ensure that people with disabilities are no longer hurt by the unintended economic consequences of utilizing this important loan discharge provision."

 
 

4/12/2016

Tuesdays with Liz - Logan Haworth

In this week's edition of Tuesdays with Liz: Disability Policy for All, Liz talks with Logan Haworth, a fourth grader on the spectrum, about his interests and experiences. During last week's edition ofTWL, Liz discussed the 2016 Disability Policy Seminar that is happening this week in Washington D.C. from April 11-13.

 
 

4/11/2016

Carrie Coffield, PhD (NJ UCEDD) Honored with Parent-Professional Collaboration Award

Carrie Coffield, PhD, Assistant Professor of Pediatrics at The Boggs Center, Rutgers Robert Wood Johnson Medical School, Malia Corde, Statewide Parent Advocacy Network (SPAN), Deepa Srinivasavaradan, SPAN, and Ericka Dickerson, NJ Department of Children and Families, were honored with the Parent-Professional Collaboration Award by SPAN and the Community of Care Consortium.

 
 

4/11/2016

PATHS Graduate selected as the Ambassador for "Walk With Me" North Texas! (TX UCEDD)

Each year, Easter Seals North Texas chooses ambassadors from each service they provide to represent their program. This year, Darius Young was selected as an Ambassador. In 2015, Darius completed the Postsecondary Access and Training in Human Services (PATHS) program at Texas A&M University located in College Station, Texas. He earned a Direct Support Professional certification, which enables him to assist others with disabilities.

 
 

4/11/2016

People On the Go (MD UCEDD)

People On the Go is Maryland's self-advocacy group of individuals with intellectual and developmental disabilities around the state who advocate for change. People On the Go members have come together for years to ensure that the voices of persons with disabilities influence services, policies, and practices. They are also engaged in a number of training projects at the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute through funding from both the Maryland Developmental Disabilities Council and the Maryland Developmental Disabilities Administration (DDA) at the Department of Health and Mental Hygiene.

 
 

4/11/2016

Study Suggests Correlation between rise of ADHD Diagnosis and Increased Academic Expectations in Young Children (FL UCEDD/LEND)

A new study led by Jeffrey P. Brosco, M.D., Ph.D., professor of clinical pediatrics at the University of Miami Miller School of Medicine, has identified a possible correlation between the prevalence of attention-deficit/hyperactivity disorder (ADHD) and increasing academic demands on young children.

 
 

4/10/2016

ED's Office of Safe and Healthy Students Seek Qualified Reviewers for the FY2016 Carol M. White Physical Education Program (PEP) Grant

The Office of Safe and Healthy Students (OSHS) is seeking qualified peer reviewers to read and evaluate discretionary grant proposals for the FY 2016 Carol M. White Physical Education Program (PEP) Grant competition.

 
 

4/6/2016

Identifying Autism in Young Children

A Collection of Recommended Resources from Autism CARES Grantees

Last year, more than 40 Autism CARES grantees contributed to �Identifying Autism in Young Children,� a collection of useful resources for parents and professionals.g

 
 

4/5/2016

From Where I Sit (NH UCEDD/LEND)

The IOD is excited to announce the launch of our new Tumblr - From Where I Sit. This new blog will provide a first-person voice on various disability-related topics that is informed by current IOD work, but not bound by it. Kathy Bates, who has long been a presence at the IOD, will be authoring the posts. To introduce From Where I Sit and Kathy a little more, here is her first post.

 
 

4/5/2016

Gov. Daugaard to Speak at USD Center for Disabilities Symposium in Sioux Falls (SD UCEDD/LEND)

South Dakota Gov. Dennis Daugaard will speak about his Ability for Hire initiative at the University of South Dakota Center for Disabilities Symposium during the employers' breakfast on April 19 at the Sheraton Sioux Falls & Convention Center.

 
 

4/5/2016

Iowa UCEDD Partners with State Agencies on Recidivism Reduction Initiative

Iowa is one of five states that received a $3 million grant from the U.S. Department of Justice as part of their Second Chance Act Comprehensive Statewide Adult Recidivism Reduction Program. The grant has several areas of focus all centered around the goal of reducing recidivism through systems improvement work.

 
 

4/5/2016

New Resource on Supporting Wellness for Adults with Disabilities (MN UCEDD/LEND)

Wellness is a rapidly growing area of focus for Americans. But for people with intellectual and developmental disabilities, access to wellness activities and programs can be limited. How can we open up participation? Find out in the just-released free publication, Impact: Feature Issue on Supporting Wellness for Adults with Intellectual and Developmental Disabilities.

 
 

4/5/2016

Tuesdays with Liz - Disability Policy Seminar

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, speaks about the upcoming 2016 Disability Policy Seminar, which will be held in Washington D.C. from April 11 to April 13. In case you missed last week's edition, Liz interviewed Steve Sabia about his experience as a Down syndrome self-advocate.

 
 

4/4/2016

Indiana LEND's Dr. Sullivan Receives Teaching Award

Paula Sullivan, PhD, psychologist and faculty at the Indiana LEND program has been named 2016 Trustees' Teaching Award (TTA) recipient for the Indiana University School of Medicine.

 
 

4/4/2016

Invitation to Participate in an Employment Study (VA UCEDD/LEND)

The Rehabilitation Research and Training Center (RRTC) at Virginia Commonwealth University (VCU) is conducting a study of adults with physical disabilities. We want to know about your barriers to employment as well as resources that you need to support your work / career goals. In addition, we are interested in knowing how you find information on employment services and supports.

 
 

4/4/2016

Now Archived: Preparing for the Disability Policy Seminar: What to Know Before You Go

This webinar, presented by Kim Musheno, Director of Public Policy at AUCD, offers students, trainees and early career professionals an orientation to the policy issues and current legislation one can expect to learn more about at the 2016 Disability Policy Seminar. Attendees learned the basics of how to make an appointment to meet with Congressional representatives, and how to deliver a unified message about federally funded programs that benefit people with disabilities. Zipporah Levi-Shackleford, MA (AUCD Board Trainee Representative and Virginia LEND trainee) and Brandon Eddy, MA, CF-SLP (Assistant Virtual Trainee and Oregon LEND trainee) shared their experiences attending the Disability Policy Seminar, as well as provide tips on preparing for and making hill visits.

 
 
Dr. Cathy Pratt, BCBA-D Chair of AUCD's Autism Special Interest Group and Director of the Indiana Resource Center for Autism at the Indiana Institute on Disability and Community, Indiana's University Center for Excellence in Disabilities

4/1/2016

A Special Message from Cathy Pratt, Chair of AUCD's Autism Special Interest Group

 
 

4/1/2016

April 2016: Autism Awareness & Acceptance

During the month of April, AUCD joins people with autism, their families, and those who serve and support them to increase public acceptance and appreciation of the needs of individuals with autism and their families, and recognition of the diverse range of abilities and talents people with autism possess.

 
 

3/31/2016

New CDC Autism Data Highlights Importance of Long-Term Services and Supports, Cultural Competency

by Aaron Bishop, Commissioner, Administration on Disabilities

The Centers for Disease Control and Prevention (CDC) released data from its Autism and Developmental Disabilities Monitoring Network indicating that 1 in 68 school-aged children are on the autism spectrum. In announcing the rate, which is unchanged from 2014, the CDC called attention to the critical role services and supports play in helping people with autism reach their full potential. play in helping people with autism reach their full potential.

 
 

3/30/2016

Munroe-Meyer Institute Researchers Honored (NE UCEDD/LEND)

Munroe-Meyer Institute researchers Anna Dunaevsky, PhD, and Woo-Yang Kim, PhD, were honored at the 2015 University of Nebraska Medical Center Distinguished Scientists Awards ceremony, held on Feb. 11 at the UNMC campus in Omaha. The awards are the highest honors for UNMC researchers.

 
 

3/30/2016

National Trends in Disability Employment (nTIDE) Lunch & Learn Webinar Series

On the first Friday of every month, corresponding with the Bureau of Labor Statistics jobs report, we will be offering a live broadcast via Zoom Webinar to share the results of the latest nTIDE findings. In addition, we will provide news and updates from the field of Disability Employment, as well as host an invited panelist who will discuss current disability related findings and events.

 
 

3/29/2016

Tuesdays with Liz - Steve Sabia

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviewed Steve Sabia about his experience as a Down syndrome self-advocate. In case you missed last's week edition, Liz interviewed David Hoff, Program Director at the Institute for Community Inclusion, University of Massachusetts-Boston, about the Workforce Innovation and Opportunity Act (WIOA) and the state plans that are due in the beginning of April.

 
 

3/25/2016

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Affecting Public Policy

Since January, the Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) has provided preparatory mock legislative visits for trainees and students, facilitated the sharing of personal stories with legislators and policymakers through Tennessee Kindred Stories of Disability, created helpful tools for attending Disability Day on the Hill, and educated state legislators during in-person meetings.

 
 

3/24/2016

Karoly Mirnics, MD, PhD, Named New Director of the Munroe-Meyer Institute (NE UCEDD/LEND)

Following a nationwide search, Karoly Mirnics, MD, PhD, has accepted the position of director of the Munroe-Meyer Institute for Genetics and Rehabilitation, part of the University of Nebraska Medical Center in Omaha, NE.

 
 

3/23/2016

Kara Ayers Appointed New Associate Director of the University of Cincinnati University Center for Excellence in Developmental Disabilities

The University of Cincinnati University Center for Excellence in Developmental Disabilities (UC UCEDD) has named Kara Ayers, PhD as its new Associate Director.

 
 

3/22/2016

The Double Burden: Health Disparities among People of Color Living with Disabilities: The Ohio State University Nisonger Center (OH UCEDD)

The Ohio Disability and Health Program (ODHP) has released an evidence-based policy brief, "The Double Burden: Health Disparities among People of Color Living with Disabilities," which explores the health disparity-amplifying phenomenon experienced by racial and ethnic minorities who have disabilities and discusses the need to collect disability data and/or identifiers, together with racial and ethnic data, to improve the health of all people.

 
 

3/22/2016

Tuesdays with Liz - David Hoff

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews David Hoff, Program Director at the Institute for Community Inclusion, University of Massachusetts-Boston, about the Workforce Innovation and Opportunity Act (WIOA).

 
 

3/18/2016

4 Advocacy Tips for ESSA Implementation

The National Down Syndrome Congress has issued a set of four state advocacy tips for the Every Student Succeeds Act, advising disability advocates on how to extend their reach and be more effective in influencing ESSA implementation.

 
 

3/15/2016

CCD Statement on the Supreme Court Vacancy

The uncertainty and risks associated with a U.S. Supreme Court that is not fully functional will harm people with disabilities and others who rely on the courts to protect their rights.

 
 

3/15/2016

Council of Parent Attorneys and Advocates Names Executive Committee (MD UCEDD)

The Council of Parent Attorneys and Advocates (COPAA) named Maureen van Stone, Associate Director of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, to the Executive Committee for the Board of Directors for 2016-2017.

 
 

3/15/2016

Tuesdays with Liz - Sara Luterman - #sidebysidedd16

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews Sara Luterman, AUCD program assistant, on how to include people with autism in the workforce. In case you missed last's week edition, Liz interviewed Dr. Adriane Griffen, AUCD's Director of Public Health, about the Zika virus and its association with conditions such as microcephaly.

 
 

3/15/2016

UCONN UCEDD "Hands Off" Behavioral Interventions Legislative Forum

The Connecticut General Assembly Committee on Children and Education hosted a legislative forum entitled '"Hands Off" Behavioral Interventions' sponsored by the University of Connecticut Center for Excellence on Developmental Disabilities on January 27, 2016. The forum focused on the prevention and de-escalation strategies for students with complex behavioral challenges by applying the principles of school wide Positive Behavioral Interventions and Supports.

 
 

3/14/2016

Living Well with a Disability Featured by CDC as Intervention to Reduce Health Disparities (MT UCEDD)

Living Well with a Disability, a health promotion program for people with disabilities, was featured by the CDC in the Morbidity and Mortality Weekly Report (MMWR) as an intervention to reduce health disparities experienced by people with disabilities. It was developed nearly 25 years ago by researchers at the University of Montana, Research and Training Center on Disability in Rural Communities (RTC:Rural) and Kansas University Research and Training Center on Independent Living with funding from the Centers for Disease Control and Prevention (CDC) and the National Institute on Disability Independent Living and Rehabilitation Research (NIDILRR). The program focuses on the specific health self-management needs of people with disabilities by addressing and building skills to prevent and reduce secondary conditions.

 
 

3/8/2016

Tuesdays with Liz: Disability Policy for All - Interview with Adriane Griffen

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews Dr. Adriane Griffen, AUCD's Director of Public Health, about the Zika virus and its association with conditions such as microcephaly.

 
 

3/7/2016

Chit Chat with Taylor ( MS UCEDD)

The first Chit Chat Thursday with Taylor is now available. Chit Chat Thursday with Taylor is a monthly video series highlighting self-advocacy activities, services and successes in Mississippi.

 
 

3/7/2016

Chit Chat with Taylor (MS UCEDD)

The first Chit Chat Thursday with Taylor is now available. Chit Chat Thursday with Taylor is a monthly video series highlighting self-advocacy activities, services and successes in Mississippi.

 
 

3/7/2016

Examining Perceptions of Intelligence: Grant Supports New Film by Dan Habib of the UNH Institute on Disability

The Intelligent Lives Project will include a feature-length, internationally distributed documentary which will examine how the segregation of people with intellectual disabilities became the norm, why this segregation is slowly being dismantled, and how some people with intellectual disabilities are blazing a bold new path. Habib is also creating a 30-minute companion film focusing specifically on youth with disabilities transitioning from high school to employment and higher education.

 
 

3/7/2016

Examining Perceptions of Intelligence: Grant Supports New Film by Dan Habib of the UNH Institute on Disability (NH UCEDD/LEND)

The Intelligent Lives Project will include a feature-length, internationally distributed documentary which will examine how the segregation of people with intellectual disabilities became the norm, why this segregation is slowly being dismantled, and how some people with intellectual disabilities are blazing a bold new path. Habib is also creating a 30-minute companion film focusing specifically on youth with disabilities transitioning from high school to employment and higher education.

 
 

3/7/2016

Friendships, Relationships & Intimacy

ationship-building is an important part of life, and people with intellectual and developmental disabilities face additional, external barriers in establishing connections in their community. This article explores the importance of friendships, relationships and intimacy, and shares tips to help support people in relationship-building.

 
 

3/7/2016

John Kramer Publishes Article "Siblinghood Through Disability Studies Perspectives" (MA UCEDD/LEND)

John Kramer, a research associate at the ICI, just published an article in Disability & Society. Kramer's article, which he co-wrote with Ariella Meltzer of the University of New South Wales Australia, is called "Siblinghood through disability studies perspectives: Diversifying discourse and knowledge about siblings with and without disabilities."

 
 

3/7/2016

New Publications from Heike Boeltzig-Brown (MA UCEDD/LEND)

Heike Boeltzig-Brown, a senior research associate and program manager at the ICI, has co-authored an article in Rehabilitation Research, Policy, and Education http://www.springerpub.com/rehabilitation-research-policy-and-education.html.

 
 

3/7/2016

New Publications from Heike Boeltzig-Brown in Rehabilitation Research, Policy, and Education (MA UCEDD/LEND)

Heike Boeltzig-Brown, a senior research associate and program manager at the ICI, has co-authored an article in Rehabilitation Research, Policy, and Education http://www.springerpub.com/rehabilitation-research-policy-and-education.html.

 
 

3/7/2016

UCEDD-CIL Partnerships: Key to Long-Term Services and Supports for People with Disabilities (MD UCEDD)

The Centers for Independent Living (CILs) and University Centers for Excellence in Developmental Disabilities (UCEDDs) are now under the same Administration on Community Living. Together they are working on strategic partnerships to maximizing the capacity for the delivery of long-term services and supports in the community. One such program is Maryland CIL-Ready, a partnership between the Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute and the seven Centers for Independent Living across Maryland. Maryland CIL-Ready assessed and addressed CIL sustainability and capacity development. The partners have developed strategies to address systemic themes such as funding diversification and outcomes measurement, which are key to achieving long-term sustainability.

 
 

3/4/2016

AUCD 2016 T-shirt Now Available!

$12/each; Group order deadline is March 24

Show your pride to be a part of the powerful nationwide network of trainees, family members, and professionals working to build a better future together for people with disabilities.

 
 

3/2/2016

Health & Disability Digest, March 1, 2016

Special Edition
 
 

3/1/2016

Celebrating Inclusion in March for Developmental Disabilities Awareness Month

In an effort to spread awareness about developmental disabilities, AUCD is partnering with NACDD and NDRN on a social media campaign (Side-by-Side) to highlight the many ways in which people with and without developmental disabilities come together to form strong, diverse communities. Together we seek to raise awareness about the inclusion of people with developmental disabilities in all facets of community life, as well as awareness to the barriers that people with disabilities still sometimes face in connecting to community life.

 
 

3/1/2016

Tuesdays with Liz: Disability Policy for All - Interview with Andy Imparato

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews Andy Imparato, AUCD's executive director, about the current vacancy on the U.S. Supreme Court (#SCOTUS) and what implications the situation may have for individuals with disabilities. In case you missed last week's edition, Liz interviewed Aaron Bishop (commissioner of AIDD) and Ken Capone (a member of PCPID and the Public Policy Director of People on the Go MD) on the 2015 report to the President.

 
 

2/26/2016

2016 UCEDD Leadership Institute - Apply Today!

To better support the development of leaders for the UCEDD network, AUCD is partnering with The National Leadership Consortium on Developmental Disabilities (NLCDD) at the University of Delaware, of which AUCD is a Founding Partner, to offer the fifth UCEDD Leadership Development Institute. Applications Due March 18, 2016

 
 

2/25/2016

New CDC Report: Strategies for Reducing Health Disparities

HHS/Centers for Disease Control and prevention (CDC): New report. Strategies for Reducing Health Disparities -Selected CDC-Sponsored Interventions, United States, 2016. This supplement to the CDC Health Disparities and Inequalities Report, published in the Morbidity and Mortality Weekly Report, highlights programs that reduce disparities by race/ethnicity, geography, disability, and/or sexual orientation across a range of different health conditions.

 
 

2/23/2016

Four UCEDDs Receive Nearly $200,000 in Grants from the Special Hope Foundation

Projects will study evidence-based cost and quality of care research for adults with developmental disabilities

The grants will support a variety of programs researching questions of cost and quality in provision of healthcare services to adults with intellectual and developmental disabilities.

 
 

2/23/2016

Regulations Proposed Describing Federal Government's Obligation to Engage in Affirmative Action for People with Disabilities

Public Comments Welcomed Through April 25

The U.S. Equal Employment Opportunity Commission (EEOC) proposed specific actions that federal agencies must take to comply with Section 501 of the Rehabilitation Act, requiring federal agencies to create affirmative action plans for the employment of people with disabilities. Public input is welcomed through April 25 on how the EEOC should revise its regulations to clarify what an affirmative action plan must include in order to be approved.

 
 

2/23/2016

Tuesdays with Liz: Disability Policy for All - Interview with Aaron Bishop and Ken Capone

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews Aaron Bishop, Commissioner, Administration on Disabilities and Ken Capone a member of PCPID and the Public Policy Director of People On the Go of MD on the 2015 report to the President of the US.

 
 

2/19/2016

MN UCEDD Partners with University in India to Organize International Summit on Education

The Institute on Community Integration (MN UCEDD) and Avinashilingam University for Women in Coimbatore, India, are co-sponsoring an international summit titled, Inclusion and Response to Intervention - A Global Perspective, to be held June 8-10, 2016, at Avinashilingam University. The summit is part of an ongoing collaboration between the Institute and the Department of Special Education at Avinashilingam, a collaboration funded by the Obama-Singh 21st Century Knowledge Initiative.

 
 

2/16/2016

Tuesdays with Liz: Disability Policy for All - Interview with Marcie Roth

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews Marcie Roth, Director of the Office of Disability Integration and Coordination at the US Department of Homeland Security/FEMA, on the importance of emergency preparedness for people with disabilities.

 
 

2/11/2016

WIOA Guide and Plan Status (ICI MA UCEDD/LEND)

As states look to release their respective plans for the implementation of the Workforce Innovation and Opportunity Act (WIOA) by the April 1 deadline, the Institute for Community Inclusion is tracking the status of each state's WIOA plan release for public comment.

 
 

2/9/2016

AUCD Welcomes New Assistant Virtual Trainee

Brandon Eddy, MA CCSLP from the Oregon LEND will assist AUCD's Virtual Trainee (VT) to build a virtual network among our network's trainees. The AVT will help plan activities for the trainee network, brainstorm new ideas to get trainees talking and collaborating, and carry out tasks specific to these efforts.

 
 

2/9/2016

CCD Response to the President's FY 2017 Budget Request

CCD is encouraged that the Administration's Budget for FY 2017 maintains investments in many important programs that support the health and well-being of people with disabilities, preserves the structure of Medicaid, and recognizes the need for a balanced approach to deficit reduction while calling for important investments in early childhood, employment for people with disabilities, caregiver supports, veterans services and health care. There are many exciting proposals in the budget that will result in greater independence for people with disabilities, and CCD will work with Congress to restore cuts to vital services and supports and to build on investments for improving the lives of people with disabilities.

 
 

2/9/2016

Tuesdays with Liz: Disability Policy for All - Jay Ruderman

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews Jay Ruderman, the President of the Ruderman Family Foundation, about Jewish Disability Awareness Month and how the principles of the ADA can be applied to religious institutions more effectively.

 
 

2/8/2016

Aging and DD Networks - The Case for Network Crossover (Maine UCEDD)

"The Aging and Developmental Disabilities Networks: Can the Silos Be Dismantled?" in the current special issue of the Maine Policy Review on aging. The authors discuss the service networks for aging and developmental and physical disabilities, which have traditionally functioned in distinctly separate camps.

 
 

2/8/2016

Congressional Internship Program for Individuals with Intellectual Disabilities (CIPIID)

Legislative Branch agencies have developed internship programs in partnership with George Mason University that provide experiences for college students with intellectual disabilities.

 
 

2/8/2016

ICI Staffer Given Work-Changing Assistive Technology (MA UCEDD/LEND)

Mark Hutchinson from the Institute for Community Inclusion research team is using new technology from MIT to do data entry. Mark has cerebral palsy, and has limited control of his arms and hands. Previously, he'd been using a head pointer to type on a standard keyboard-a laborious process. With the new software and slightly modified set-up, he can now enter data simply by looking at his monitor.

 
 

2/8/2016

ICI's Paula Sotnik presented at the International Conference on Child Rights and Sight Organization: Institute for Community Inclusion (MA UCEDD/LEND)

The ICI's Paula Sotnik presented at the International Conference on Child Rights and Sight at Yale University in New Haven, CT, sponsored by Distressed Children & Infants International (DCI). Attended by over 300 people, the conference covered topics including street children, poverty, child labor, kids with disability, child sex trade, international service learning, and women's rights. Sotnik presented on "Inclusive Policies and Practices," focusing on how kids with disability can access education and play equally with their peers using Universal Design (UD) and Universal Design for Learning (UDL). Another strong focus described how UD and UDL strategies could be used to implement the United Nations Convention on the Rights of Persons with Disabilities.

 
 
Mary Kay Rizzolo, CQL President

2/8/2016

Mary Kay Rizzolo Named CQL's New President & CEO

The Council and Quality and Leadership has named Mary Kay Rizzolo as its President and CEO. Prior to her new role at CQL, Mary Kay was the Associate Director of the Institute on Disability and Human Development (IDHD), the University Center for Excellence on Developmental Disabilities for the State of Illinois.

 
 

2/8/2016

OAR Invites Proposals for its Annual Applied Research Competition

Since the inception of the annual Applied Research Competition in 2002, the Organization for Autism Research (OAR) has spent over $3.3 million in support of autism research.

 
 

2/8/2016

Rochester Regional Center for Autism Spectrum Disorder (RRCASD) Offers Free Webinars to Support Individuals with ASD (NY UCEDD)

The work of RRCASD is focused on the development and promotion of region-wide resources to better meet the needs of individuals with autism spectrum disorder (ASD). RRCASD has expertise in providing community education, training, and technical assistance activities. The use of webinars has been a primary medium of reaching individuals on the spectrum, their families and professionals. Last year alone, more than 500 professionals and parents from across NYS participated in educational webinars offered the RRCASD.

 
 

2/8/2016

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Investigator Says 'Sticky Mittens' Offer Clues to Infant Development

Early motor training in infants may result in positive long-term effects in other areas of development, according to a collaborative study by researchers at Vanderbilt University, the University of Pittsburgh, and Seton Hall University.

 
 

2/8/2016

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) TRIAD Experiences a Growth Spurt

The Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) enhanced and widened the reach of its programming in 2015 and shows no sign of slowing in 2016. From partnerships with the TN Department of Education to the design of innovative telemedicine models of service delivery, TRIAD continues to make a profound impact on improving access to autism services in TN.

 
 

2/8/2016

Why Do Some Kids Bully Others? There is No All-purpose Answer (TX UCEDD)

The National Bullying Prevention Center states that one in every four students is bullied during the school year. Jamilia Blake, Associate Professor of School Psychology at Texas A&M University, has studied the causes and effects of bullying at school and its impact on victims. How parents handle bullying situations could have significant effects on children, she says.

 
 

2/6/2016

Dr. Ansley Bacon Recieves Jackson E. Spears Community Service Award (NY UCEDD/LEND)

Former WIHD President and CEO, Dr. Ansley Bacon, was chosen to receive the prestigious Jackson E. Spears Community Service Award for her 30-year contribution to New York Medical College, and for her work done at WIHD.

 
 

2/5/2016

Cincinnati Ballet Works with the Cincinnati LEND Team to offer a Sensory-Friendly Nutcracker Performance

Sometimes people with sensory sensitivities miss out on events like ballets and plays where noises and lights can be overwhelming. The Cincinnati Ballet wanted to change that, and make the magic of The Nutcracker available to everyone. On December 22, 2015, for the first time in its history, the Cincinnati Ballet offered its first sensory-friendly performance of The Nutcracker.

 
 

2/5/2016

Graduate Continues to Serve the Community (TX UCEDD)

My name is Margot Boles and I graduated from Texas A&M University in December with my PhD in Educational Psychology. My experiences at Texas A&M, with the Center on Disability and Development, were priceless. I worked with the PATHS program and it opened my eyes to the needs of individuals with disabilities who are pursuing postsecondary education and careers. I had the opportunity to work with a diverse group of individuals and help create a pathway of independence and success for their futures.

 
 
L-R Sandi Cole and Teresa Grossi

2/5/2016

IU Centers to Receive Indiana Department of Education Funding to Establish Center on Teacher Quality to Improve Outcomes for Students with Disabilities (IN UCEDD)

Indiana University�s Center on Education and Lifelong Learning and Community Living and Careers will receive funding to establish and operate the Indiana Center on Teacher Quality as part of a federally funded $5 million State Personnel Development grant to the Indiana Department of Education.

 
 

2/4/2016

Aggies on the spectrum (TX UCEDD)

Students, staff seek to create new club for Autistic Adults

A new student organization is paving the way for students with autism to have their voices represented on campus.

 
 

2/4/2016

Harlan-Simmons Receives Jacob Piatt Dunn Jr. Award (IN UCEDD/LEND)

The Indiana Historical Society (IHS) recently announced that Jane E. Harlan-Simmons, research associate with the Indiana Institute on Disability and Community's Center on Aging and Community, was selected as the winner of the 2015 Jacob Piatt Dunn Jr. Award for her article The Sweetest Little Boy I Ever Knew: A Handmade History for an Institutional Life.

 
 

2/4/2016

Iowa's Money Follows the Person Program Reaches Milestone (IA UCEDD)

In December 2015, Iowa's Money Follows the Person (MFP) program transitioned its 500th individual from a congregate setting to a new life in the community.

 
 

2/4/2016

Mailman Center's Patient's Big Smile Attracts Big-Hearted Donors (FL UCEDD/LEND)

Wildine Amoithe, a regular patient at the Mailman Center for Child Development, has a genetic condition known as achondroplasia that has kept her from growing more than 30 inches tall. Despite her small stature, however, the 12-year-old sixth-grader has an outsized smile that touched the hearts of some generous Miami-Dade residents who read about her during the recent holiday season in the Miami Herald Wish Book feature.

 
 

2/4/2016

Video Game Research Shows Promise for Autism (WI UCEDD/LEND)

At the age of 9, Xavier Hansen already has it figured out. Someday, he is going to be the boss. �He has great aspirations to make things,� says his mom, Gail. �His goals are to own a movie theater. He wants to be in charge. If he wants something, he�ll find a way to get it.�

 
 

2/2/2016

AUCD Welcomes New Staffer Sarah Peterson

MCH Project Manager

Sarah Peterson, MSW, is a new Project Manager on the MCH team at AUCD, and brings a wealth of experience in disability issues.

 
 

2/2/2016

Tuesdays with Liz: Disability Policy for All - Kruti Acharya, MD

Tuesday's with Liz: Disability Policy for All is back after the 2016 Blizzard! Liz Weintraub, AUCD's advocacy specialist, interviews Kruti Acharya, MD (LEND Director at the Department of Disability and Human Development, University of Illinois) on the importance of including family members and self-advocates in the Leadership Education in Neurodevelopmental and related Disabilities (LEND) programs. In case you missed last week's edition, Liz interviewed Tia Nelis (Self-Advocacy Specialist at the Rehabilitation Research and Training Center on Developmental Disabilities and Health, University of Illinois) on why self-advocates should be part of the LEND programs.

 
 

2/1/2016

APHA Disability Section Career Enhancement Scholarship Opportunities

The Disability Section of the American Public Health Association (APHA) announces up to six $1000 Career Enhancement Scholarship opportunities for 2016. These scholarships can be used by the awardees as desired, including covering expenses for attendance at the Disability Section Scientific Program and Business meeting at the 2016 American Public Health Association Annual meeting in Denver, CO from October 29-November 2, 2016.

 
 

1/26/2016

Tuesdays with Liz - Snow Day

Tuesday with Liz: Disability Policy for All is currently snowed under, but you can always watch previous episodes. What's your favorite?

 
 

1/21/2016

Health & Disability Digest, January 2016

 
 

1/21/2016

Joint Comments on ESSA in Response to the Department of Education

In response to the request issued by the Department of Education, the DD Network submitted the joint comments above concerning recommendations on regulations to implement the Every Student Succeeds Act (ESSA).

 
 

1/19/2016

Tuesdays with Liz: Disability Policy for All - Tia Nelis

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz, interviews Tia Nelis about what is the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Program and the importance of having self-advocates as part of the LEND PROGRAM.

 
 

1/12/2016

Tuesdays with Liz: Disability Policy for All - Maria Town

This week Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz, interviews Maria Town, Associate Director of the White House Office of Public Engagement, about the President's policy agenda for the coming year. In last week's edition of Tuesdays with Liz, Liz celebrated its one year anniversary by reviewing policy accomplishments throughout 2015.

 
 

1/11/2016

NIRS Quarterly Call Archive

 
 

1/11/2016

Position Opening: Assistant Virtual Trainee

Application Deadline: 01/25/16

The 2016 Assistant Virtual Trainee (AVT) will assist the current Virtual Trainee (VT) as she works to build a virtual network among these trainees at AUCD member programs. The AVT will help plan activities for the trainee network, brainstorm new ideas to get trainees talking and collaborating, and carry out tasks specific to these efforts. The AVT will be mentored by the VT, learn more about the AUCD Network and national disability issues, and work on a national stage in a leadership position. The position is expected to take approximately 3 hours per week between now and the end of the academic year. This is a paid position with AUCD.

 
 

1/8/2016

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Videos Document 50 Years of History

The Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) has created two videos documenting the Center�s rich history and promise. With a view to the future as well as to the past, the two videos can be viewed online and shared through social media�Creating Hope, a documentary, and a short video Opening Doors, Transforming Lives.

 
 

1/8/2016

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Offers Online Trainings to Improve Health Care for Adults with IDD

The Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) is now offering two free, short online training series focused on improving health care for adults with intellectual and developmental disabilities. The trainings have been created by the Vanderbilt Kennedy Center (VKC), in partnership with the Tennessee Department of Intellectual and Developmental Disabilities (DIDD) and TennCare.

 
 

1/7/2016

Shelley Dumas named the National Association of Social Workers Texas Public Citizen of the Year (TX UCEDD)

Dr. Shelley Dumas, Director of Community Education at the Texas Center for Disability Studies, was named the National Association of Social Workers (NASW) Texas 2015 Public Citizen of the Year. The Public Citizen of the Year Award honors an outstanding member of the community whose accomplishments exemplify the values and mission of the profession of social work and who has acted with courage to make significant contribution to an area or population of concern to the social work profession such as: at-risk or vulnerable populations, quality of life in communities, or social issues.

 
 

1/7/2016

UMass Boston Honors Local and Global Leaders in Inclusion (MA UCEDD/LEND)

On December 3, the School for Global Inclusion and Social Development at the University of Massachusetts Boston, hosted its second annual Beacon for Global Inclusion Awards, which honors an individual and an organization making notable contributions to the field of inclusion.

 
 

1/6/2016

Center Update: Strong Center for Developmental Disabilities Develops NDEAM Employment Videos Promoting Inclusive Hiring (NY UCEDD)

Strong Center for Developmental Disabilities (SCDD) in partnership with the Golisano Foundation, ACCES-VR, RochesterWorks!, Heritage Christian Services, Lifetime Assistance and the Arc of Monroe developed a series of short employment videos which feature individuals with IDD working in various roles with local employers in Rochester, NY.

 
 

1/6/2016

Empowering Individuals to Influence Accessible Transportation

People with intellectual and developmental disabilities can influence the nature of accessible transportation in their communities. Through model demonstration grants, the Strengthening Inclusive Transportation Partnerships, funded by the US Administration for Community Living (ACL), Easter Seals and its colleagues from the Community Transportation Association of America and the National Association of Area Agencies on Aging (N4A) learned about the strategies that organizations, agencies, and individuals can use to facilitate active participation in transportation planning. Empowering people with disabilities to be decision-makers in transportation planning over time, can lead to improved accessible and coordinated service.

 
 

1/6/2016

FAST Projects Help Training Programs Make Strides toward Greater Diversity and Inclusion, Resulting Resources Now Available Online

In November 2014, AUCD's Interdisciplinary Technical Assistance Center on Autism and Developmental Disabilities (ITAC) encouraged project proposal from LEND and DBP programs that wished to receive targeted assistance and funding support of up to $7,000 to address one of several priority areas of need. After carefully reviewing each proposal, ITAC staff selected five programs to participate in this initial cohort of Focused Assistance to Support Training (FAST) projects. The hope was that these projects would not only lead to measurable improvements for the programs involved, but that their efforts could serve as innovative and resourceful models for others to address similar areas of need.

 
 

1/6/2016

How Can I Help My Child Have A Purposeful Life (TX UCEDD)

The Center on Disability and Development (CDD) at Texas A&M University, Down Syndrome Association of Brazos Valley (DSABV), Families of Autistic Children Engaged Together for Support (FACETS), and the Brazos Center for Independent Living (BVCIL) are hosting a free workshop series for parents of children with exceptionalities. Please attend our workshop series kickoff on January 7th, 2016.

 
 

1/6/2016

The Autism Clinic Awarded Autism Program Grant from the Department of Assistive and Rehabilitative Services (TX UCEDD)

The Autism Clinic, a project of the Center on Disability and Development at Texas A&M University, was opened in the summer of 2010. Dr. Jennifer Ganz from Texas A&M University (TAMU) and Cheryl Allen (CEO of Easter Seals East Texas) worked together to open the clinic.

 
 

1/6/2016

The Einstein College of Medicine NY UCEDD Welcomes New Co-Director

Karen Bonuck, PhD was named Co-Director of the Einstein College of Medicine UCEDD, as of January 1, 2016. Dr. Bonuck conducts research on child health at Einstein, where she is a Professor in the Department of Family and Social Medicine. Her work spans clinical trials of parent-child dyadic interventions in the areas of sleep, feeding, oral health, and maltreatment, as well as epidemiologic analyses.

 
 

1/5/2016

Tuesdays with Liz: Disability Policy for All - 2015 Recap

This week Liz Weintraub, AUCD's advocacy specialist, celebrates the one year anniversary of Tuesdays with Liz: Disability Policy for All and reviews policy accomplishments throughout 2015. In case you missed the last edition, Liz interviewed Denise Marshall of the Council of Parent Attorneys and Advocates (COPAA) about the implications that ESEA reauthorization through the Every Student Succeeds Act (ESSA) will have for students with disabilities and their families.

 
 

1/4/2016

Indiana LEND Family Leader Rylin Rodgers Opens National Symposium on Children with Complex Health Care Needs

Rylin Rodgers, a nationally recognized family leader and the Training Director and with the Riley Child Development Center/Indiana LEND, was the opening keynote speaker at December 2015 Designing Systems That Work for Children with Complex Health Care Needs, a national symposium sponsored by the Lucile Packard Foundation for Children's Health held in Washington, DC. Her inspirational presentation, "Stage Setting: Families of Children with Health Complexity," prepared the symposium participants to keep families first as they explored various aspects of complex health care needs and the systems that serve them.

 
 

1/4/2016

Indiana University Professor Receives National Award for Work in Aging (IN UCEDD)

Indiana University Professor Philip B. Stafford was the recipient of the Ageless America Award in a ceremony held in Washington D.C. presented by Partners for Livable Communities.

 
 

1/4/2016

IU's Indiana Resource Center for Autism Director Appointed to Indiana Bicentennial Legacy Project Working Group (IN UCEDD)

Cathy Pratt, director of the Indiana Resource Center for Autism at the Indiana Institute on Disability and Community, has been appointed by Lt. Governor Sue Ellspermann to participate in an Indiana Bicentennial Legacy Project to develop a long-term vision for the future of Indiana around youth and education.

 
 

1/4/2016

The True Meaning of Diversity and Inclusion in the Workplace

A blog post for AUCD by Emily Ladau, author of 'Words I Wheel By'

We live in a society that purports to value hiring diverse candidates in the workplace as the right thing to do. Companies garner praise and gain awards left and right for their commitment to inclusive employment. "Inclusion" and "diversity" are buzzwords used liberally in hiring strategies and frequently tossed around in boardrooms and staff meetings. And yet, according the December nTIDE Jobs Report, the rate of unemployment for people with disabilities in the United States continues to rise. While this certainly points to the need for more businesses to adopt hiring policies that focus on inclusion that actually includes people with disabilities, it also raises an important question: are the companies that have already claimed commitment to inclusion trying to look good, or are they truly doing all they can to make full inclusion a priority?

 
 

1/3/2016

Tuesdays with Liz: Siddarth Nagaraj

This week's edition of Tuesdays with Liz: Disability Policy for All Liz interviews Siddarth Nagaraj, a program specialist at AUCD, about the 21st Century Cures Act.

 
 

1/3/2016

Tuesdays with Liz: Siddarth Nagaraj

This week's edition of Tuesdays with Liz: Disability Policy for All Liz interviews Siddarth Nagaraj, a program specialist at AUCD, about the 21st Century Cures Act.

 
 

1/3/2016

Tuesdays with Liz: Siddarth Nagaraj

This week's edition of Tuesdays with Liz: Disability Policy for All Liz interviews Siddarth Nagaraj, a program specialist at AUCD, about the 21st Century Cures Act.

 
 

1/3/2016

Tuesdays with Liz: Siddarth Nagaraj

This week's edition of Tuesdays with Liz: Disability Policy for All Liz interviews Siddarth Nagaraj, a program specialist at AUCD, about the 21st Century Cures Act.

 
 

12/22/2015

Tuesdays with Liz: Disability Policy for All

This week, Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews Denise Marshall of The Council of Parent Attorneys and Advocates (COPAA) about what implications ESEA reauthorization through the Every Student Succeeds Act (ESSA) will have for students with disabilities and their families. You can watch the video here. In case you missed last week's edition, Liz interviewed Tina Campanella, CEO of the Quality Trust for Individuals with Disabilities, on supported decision making.

 
 

12/21/2015

In Brief Special Report: Final Appropriations for Fiscal Year 2016

Omnibus Appropriations Act
 
 

12/15/2015

LEND Program Quality Improvement (LPQI) Network Description

ITAC has posted a brief description of the LEND Program Quality Improvement (LPQI) Network that can be used in LEND applications.

 
 

12/15/2015

North Carolina Autism State Implementation Grant Collaborates with State Early Interventionists for Autism Training

The North Carolina Autism State Implementation Grant (NC-SIG) trains early interventionists on autism diagnostic assessments and intervention. Targeted efforts have been made with the state's 16 Children's Developmental Services Agencies (CDSAs), which provide early intervention services to families across North Carolina's 100 counties. The NC Division of Public Health's Infant-Toddler Program funds the CDSAs.

 
 

12/15/2015

Systemwide Solutions for Developmental-Behavioral Concerns

"Birth to 5: Watch Me Thrive!" has been promoting universal, broad-band developmental and social-emotional screening in children ages 0 to 5 years across the health care, early childhood education and social service sectors. With the U.S. federal government and AAP combining forces to promote periodic developmental-behavioral screening, the next step is for the U.S. to address its capacity crisis for providing high-quality early intervention and learning services.

 
 

12/15/2015

Tuesdays with Liz: Disability Policy for All

This week, Liz Weintraub, AUCD's advocacy specialist and host of Tuesdays with Liz: Disability Policy for All, interviews Tina Campanella, Chief Executive Officer of the Quality Trust for Individuals with Disabilities, on supported decision making.

 
 

12/15/2015

Updates from the State Public Health Autism Resource Center

AMCHP's State Public Health Autism Resource Center (SPHARC) has several new activities planned, along with presentations, webinars and technical assistance opportunities designed to aid and assist ASD/DD grantees. Below are upcoming events for the 2016 AMCHP Annual conference and new updates and features on the SPHARC website.

 
 

12/10/2015

AUCD Preliminary Summary of Provisions within ESSA Impacting Students with Disabilities

AUCD supported the compromise measure and believes the final bill is stronger than the outdated No Child Left Behind Act (NCLB) and the current waivers that are in effect today in most states. Indeed, using data and new knowledge about how to most effectively teach students with disabilities, the new bill goes farther than the original 2002 NCLB to provide assistance to these students with disabilities to successfully graduate and become college and/or career-ready. The following is a summary of provisions contained in the Every Student Succeeds Act that most directly impact students with disabilities.

 
 

12/10/2015

AUCD Summary of ESSA Major Provisions for Students with Disabilities

The Association of University Centers on Disabilities (AUCD) drafted a preliminary summary outlining how students with disabilities are affected by provisions of the Every Student Succeeds Act, which reauthorizes the Elementary and Secondary Education Act.

 
 

12/8/2015

In Memoriam: Dr. Marvin Fifield

Center for Persons with Disabilities UT UCEDD

It is with sadness and respect that we say goodbye to our friend and colleague, Dr. Marvin Fifield, the pioneering director of the Center for Persons with Disabilities (originally called the Exceptional Child Center). When the building opened in 1973, he was at its helm. And of all the people who have passed through its doors, he is likely the one who made the greatest impact.

 
 

12/8/2015

Tuesdays with Liz: Disability Policy for All

Liz interviews David Morrissey the executive director of United State International Council on Disabilities about USICD's activities, major global disability rights challenges and the International Day of Persons with Disabilities, which took place on December 3.

 
 

12/7/2015

Letter urging congress to make Earned Income Tax Credit (EITC) and Child Tax Credit (CTC) improvements permanent

Senate
 
 

12/7/2015

Letter urging congress to make Earned Income Tax Credit (EITC) and Child Tax Credit (CTC) improvements permanent

House
 
 

12/7/2015

University of Wyoming Designated as ECHO Superhub (WY UCEDD)

The University of Wyoming was designated as one of four ECHO superhubs that will build capacity in education and health care access in the United States and around the world. The superhub is hosted through Wyoming Institute for Disabilities (WIND), Wyoming's University Center for Excellence in Developmental Disabilities.

 
 

12/4/2015

CCD Letter applauding House Passage of ESSA

The Consortium for Citizens with Disabilities (CCD) applauds the House passage of the final bipartisan conference report to reauthorize the Elementary and Secondary Education Act, the "Every Student Succeeds Act" (S. 1177/ESSA) and we thank you for the bipartisan work to agree to a final conference bill. We believe the final bill makes important strides to support all students in having the opportunity to receive a quality education. We urge the Senate to pass the final bill and send it to the President's desk.

pdf File CCD-on-ESSA-following-House-passage-with-signatures.pdf [download]
 
 

12/4/2015

New National Center at MN UCEDD Examines Outcome Measures

The Institute on Community Integration (ICI) (MN UCED) has received a five-year, $4.4 million grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), U.S. Department of Health and Human Services, to launch the Rehabilitation Research and Training Center on Home and Community Based Services Outcome Measurement (RRTC/OM). The center will help improve instruments and procedures used to collect data nationwide on how well HCBS-funded programs do what they're intended to do in supporting quality-of-life outcomes important to people with disabilities.

 
 

12/4/2015

The Institute on Disability Hosts Two International Delegations (NH UCEDD/LEND)

This Fall the IOD hosted two delegations from the International Visitor Leadership Program at the U.S. Department of State. The delegations, one from the Middle East, the other from South Korea, were visiting the United States to learn more about aging and disability-related issues.

 
 

12/3/2015

International Day of Persons with Disabilities: Inclusion in Action

The theme of this year's International Day of Persons with Disabilities is, "Inclusion Matters: Access and Empowerment for People of All Abilities." Improving inclusion has been a major goal for AUCD's UCEDD and LEND programs over the past year, culminating in the Diversity and Inclusion Toolkit. The toolkit is designed to assist our network members in their inclusion and diversity efforts. The importance of this effort cannot be stressed enough. We live in an increasingly connected world.

 
 

12/3/2015

Proclamation: International Day of Persons With Disabilities

On International Day of Persons with Disabilities, we rededicate ourselves to building a fairer and more accessible world and to upholding the fundamental dignity and respect of all people.

 
 

12/2/2015

AUCD Applauds ESSA Passage

The Association of University Centers on Disabilities (AUCD) applauds House passage of the final bipartisan conference report to reauthorize the Elementary and Secondary Education Act, the "Every Student Succeeds Act" (S. 1177/ESSA). We believe the final bill makes important strides to support all students in having the opportunity to receive a quality education. We urge the Senate to pass the final bill and send it to the President's desk.

pdf File 2015 1202 essa letter to congress.pdf [download]
 
 

12/2/2015

AUCD Letter supporting the House passage of ESSA

The Association of University Centers on Disabilities (AUCD) applauds House passage of the final bipartisan conference report to reauthorize the Elementary and Secondary Education Act, the Every Student Succeeds Act (S. 1177/ESSA). We believe the final bill makes important strides to support all students in having the opportunity to receive a quality education. We urge the Senate to pass the final bill and send it to the President s desk.

pdf File AUCD letter re ESSA house passage v2.pdf [download]
 
 

12/2/2015

Melissa Cheplic (NJ UCEDD) Honored with NADD Member of the Year Award

Melissa Cheplic, MPH, NADD-DDS, was honored with the NADD Member of the Year Award in San Francisco, California on November 20, 2015. The award recognizes a NADD member who has supported the NADD mission through various activities and has made notable contributions to NADD, an association committed to individuals with developmental disabilities and mental health needs.

 
 

12/1/2015

AUCD 2015 Awards Presented to Outstanding Individuals

16 awards were presented to network members and friends at the 2015 AUCD Conference. AUCD is incredibly proud to recognize those who have made exceptional contributions to the lives of people with disabilities and their families.

 
 

12/1/2015

AUCD Letter to Ranking Member Scott on ESSA

AUCD wrote a letters to Ranking Member of the House Committee on Education and the Workforce to the Ranking Member Bobby Scott supporting final passage of the Every Student Succeeds Act

pdf File AUCD letter re ESSA house passage.pdf [download]
 
 

12/1/2015

AUCD Welcomes 2015-2016 Board of Directors

The Association of University Centers on Disabilities welcomed the 2015-2016 Board of Directors during the AUCD 2015 Conference November 16-18 in Washington, DC, "Growing Leaders, Driving Change."

 
 

12/1/2015

Deborah Spitalnik, PhD (NJ UCEDD) Presents at the White House Celebration of the 40th Anniversary of the Individuals with Disabilities Education Act

Deborah M. Spitalnik, PhD, Professor of Pediatrics and Executive Director of The Boggs Center, NJ's UCEDD, delivered remarks at the White House in celebration of the 40th Anniversary of the Individuals with Disabilities Education Act (IDEA) on November 17, 2015. The event brought together government officials, the education community, advocates and others to celebrate and reaffirm support for IDEA. Originally signed into law as the Education for All Handicapped Children Act in 1975, IDEA ensures the same educational opportunities are provided to children with and without disabilities.

 
 

12/1/2015

ICI 30th Anniversary Video ( MN UCEDD/LEND)

The University of Minnesota's Institute on Community Integration reflects on 30 years of innovation, collaboration, & influence. Includes interviews with past and present staff, community leaders, and allies in the field of intellectual and developmental disabilities.

 
 

12/1/2015

Letter to Rank Member Bobby Scott on ESSA

A letter from the Co Chairs of the Consortium for Citizen with Disabilities (CCD) Education Taskforce to Ranking Member of the Committee on Education and the Workforce

pdf File CCD on ESSA final passage co-chair.pdf [download]
 
 

12/1/2015

Making a Difference in the Lives of Tribal Members with Disabilities (AR UCEDD)

The Institute for Human Development (IHD), a part of the Northern Arizona University's (NAU) College of Social and Behavioral Sciences, received a five-year, $3.5 million grant from the U.S. Department of Education, Office of Special Education and Rehabilitative Services (OSERS), Rehabilitation Services Administration (RSA) to establish the American Indian Vocational Rehabilitation Training and Technical Assistance Program (AIVRTTAP).

 
 

12/1/2015

The Developmental Disabilities Institute (MI UCEDD) Welcomes New Director

The Developmental Disabilities Institute (DDI) is pleased to announce the appointment of Sharon Milberger, Ph.D., as the director effective Jan. 1, 2016.

 
 

12/1/2015

Tuesdays with Liz: Disability Policy for All

Liz interviewed Janet Lord of the Harvard Project on Disability; in celebration of International of People with Disabilities, which is on December 3. Liz and Janet spoke about the Convention on the Rights of People with Disabilities (CRPD) as well as other international issues. Also, in case you missed last week's edition, Liz interviewed Chairman Tom Wheeler of the Federal Communication Commission (FCC).

 
 

12/1/2015

UCLA PEERS Certified Training Seminars Abroad (Tarjan Center, CA, UCEDD)

Dr. Elizabeth Laugeson, Director of Training at the Tarjan Center for Excellence in Developmental Disabilities at UCLA and Founder and Director of the UCLA PEERS Clinic, has spent much of 2015 traveling around the world training thousands of mental health professionals and educators on how to implement PEERS.

 
 

11/30/2015

"CDD Reads" Program Opens New Doors to Learning and Language Development (IA UCEDD)

Thanks to a new, multi-media reading program housed within the Center for Disabilities and Development (CDD-Iowa UCEDD) Healy Clinic, patients are developing language skills, increasing interactions with family members, and having fun all at the same time. Entitled "CDD Reads," the program represents a collaboration among four Iowa Leadership Education in Neurodevelopmental and Related Disabilities (ILEND) speech-language pathology trainees, a CDD speech-language pathologist, and two CDD-based programs: the Iowa Program for Assistive Technology (IPAT) and Disability Resource Library (DRL).

 
 

11/30/2015

An Inspiring Conference: AACPDM (OR LEND)

By Kate Stribling, PT, DPT, CDRC Pediatric Physical Therapy Resident, Oregon LEND Trainee

The goal of the AACPDM to provide science-based education for health professionals, promote excellence in research, and encourage exceptional services for the benefit of people with and at risk for childhood-onset disabilities, like cerebral palsy. As a LEND trainee, this meeting offered me the opportunity to network, to learn, and to be inspired by leaders in the field of developmental medicine.I

 
 

11/30/2015

AUCD Statement on New ESEA Language

The Association of University Centers on Disabilities (AUCD) is pleased the House-Senate conference committee on the reauthorization of the Elementary and Secondary Education Act (ESEA) has agreed upon final legislative language to replace No Child Left Behind (NCLB).

 
 

11/30/2015

Final ESEA

Every Student Succeeds Act
pdf File FINAL ESEA.pdf [download]
 
 

11/30/2015

HDI's Community Based Work Transition Program gives students with disabilities a more secure future (KY UCEDD)

It is important for all people to be able to enter the workforce and have a quality of life that makes them happy, regardless of any disability. The Human Development Institute's (HDI) Community Based Work Transition Program (CBWTP) assists those with disabilities in joining the workforce as they transition from high school to adult life. HDI's program is different from others of its kind by focusing on students with significant disabilities who require a personalized vocational service in order to obtain and maintain employment.

 
 

11/30/2015

MCHB Welcomes Hae Young Park as Deputy Director, Division of MCH Workforce Development

Hae Young Park has been part of the MCHB family since 2000 when she began her federal career with MCHB's Research Program as a Presidential Management Intern. As part of the MCH Research Program team, Hae Young has been a Project Officer, Team Lead and most recently Acting Director, involved in the development and oversight of MCHB's extramural research programs.With the expansion of MCHB's research programs resulting from new appropriations for autism and other developmental disabilities research in 2008, Hae Young provided leadership in the development of MCHB's autism intervention research programs, including multi-million dollar research networks and investigator-initiated research projects addressing the needs of underserved populations.

 
 

11/30/2015

New National Center at The Institute on Community Integration (ICI) Examines Outcome Measures (MN UCEDD/LEND)

The Institute on Community Integration (ICI) (MN UCEDD) has received a five-year, $4.4 million grant from the National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR), U.S. Department of Health and Human Services, to launch the Rehabilitation Research and Training Center on Home and Community Based Services Outcome Measurement (RRTC/OM). The center will help improve instruments and procedures used to collect data nationwide on how well HCBS-funded programs do what they're intended to do in supporting quality-of-life outcomes important to people with disabilities.

 
 

11/30/2015

Publication by Dr. Ganz is Featured in the journal Augmentative and Alternative Communication (TX UCEDD)

Dr. Ganz has a publication that is currently the featured article for the journal Augmentative and Alternative Communication and to celebrate the 30th anniversary of the journal and Augmentative and Alternative Communication Awareness Month.

 
 

11/30/2015

Rural Institute for Inclusive Communities (MT UCEDD) CAC Featured Prominently at Transition Conference

Thirteen members of the Rural Institute Consumer Advisory Council (CAC) traveled to Great Falls, Montana, in November for the 2015 Montana Youth in Transition Conference. Young adult and parent CAC members presented two workshops ("Puzzle Pieces: Putting Together the Pieces of Adult Life" and "SMART Surfing: Tips for Staying Safe on the Internet"); co-presented with representatives from various agencies at five additional workshops; hosted an information and resource table at the Youth Vendor Fair; recruited CAC members from underrepresented areas of the state; and nominated Emerging Leaders to share their stories of inclusive employment, education, housing, and/or recreation with other Montanans.

 
 

11/30/2015

Taylor Carley Named First Self-Advocacy Coordinator at Institute for Disability Studies (MS UCEDD)

Taylor Carley of Hattiesburg has been named self-advocacy coordinator at The University of Southern Mississippi Institute for Disability Studies (IDS). Carley is the first to hold this newly created position which highlights IDS' commitment to promoting self-advocacy in Mississippi with a focus on youth and young adults. "We are very excited that Taylor Carley is joining our staff as the first young adult self-advocacy coordinator at IDS," said Dr. Rebekah Young, associate director. "We have been fortunate to watch him mature and develop into a leader among his peers through his service as a TRIAD AmeriCorps member and involvement with the STEP Up to Leadership Council. We look forward to working with Taylor to further IDS' mission to enhance the quality of life for Mississippians with disabilities of all ages." Carley began volunteering at IDS in 2012 with the STEP UP to Leadership Council and with the youth-focused programs.

 
 

11/30/2015

The Arc Wants to Hear about Your Experience Applying for Jobs Online

Have you applied for a job online? Have your clients with I/DD recently applied for jobs online? Has your staff assisted individuals with I/DD in applying for jobs online? If so, The Arc wants to hear from you!

 
 

11/30/2015

The Center Welcomes Mary Whirley as the New Program Coordinator for PATHS. Organization: Center on Disability and Development at Texas A&M University (TX UCEDD)

Mary is currently a graduate student in the Educational Psychology department at Texas A&M. She graduated with her Bachelor's from the University of North Texas in Spanish Language and Literature. Prior to her time here at A&M, she worked as a special education teacher for 4 years at a private school in Dallas.

 
 

11/30/2015

UGA to Launch Inclusive, Post-secondary education program in 2017 (GA UCEDD)

Students with intellectual or developmental disabilities will soon be able to enjoy the full UGA experience with the launching of a new inclusive, post-secondary education program, Destination Dawgs, beginning in spring 2017.

 
 

11/27/2015

Art Installation at Capitol Rotunda Features the Voices and Images of People with Disabilities (PA UCEDD)

Through image and audio interviews, Here. Stories from Selinsgrove Center and KenCrest Services invites viewers to meet 19 people with intellectual disabilities who live and work in Pennsylvania. The settings (a State center and a sheltered workshop) may be new to many viewers, but the exhibit offers insight into the lives of the "narrators" by way of 18 volunteer "interviewers" who visited them at the Selinsgrove Center and KenCrest Services in the spring of 2015.

 
 

11/27/2015

Tuesday with Liz: Archived Episodes

Catch up with past episodes of here. Previous features include interviews with Members of Congress, Senior Executive Branch officials, and leaders in the disability field. Be sure to stay up to date on the topics you care about including: education, employment, technology, accessibility and many others.

 
 

11/20/2015

Thanks for a Great AUCD2015 Conference!

We had a great time at #AUCD2015 and hope you did too. There were tons of great ideas shared and new connections made--it was clear that all 800+ people in attendance were passionate about growing leaders and driving change! Thank you from the bottom of our hearts for your participation, expertise, and enthusiasm for the network and all that we collectively do.

 
 

11/19/2015

Tell Us Your Thoughts About #AUCD2015

Conference Survey due 12/04

Let us know your favorite moments, things you'd change, and ideas for future AUCD Conferences by completing our online survey, or through the link in your conference app. Your responses are vital as we begin planning for AUCD2016.

 
 

11/13/2015

In Memoriam: Jamie Kendall

We at AUCD are saddened by the significant loss of Jamie Kendall, Acting Administrator of the Administration on Independent Living at ACL/HHS, who died on Thursday, November 12th. Jamie was an outstanding colleague, an exceptional advocate, a devoted parent, and a generous and kind friend.

 
 

11/13/2015

Prevalence of Autism Statement

The National Center for Health Statistics (NCHS) recent data release shows the prevalence of autism is 1 in 45 among children aged 3-17 years. In 2014, estimates from the Autism and Developmental Disabilities Monitoring (ADDM) Network showed that 1 in 68 children 8 years of age have autism. Together these findings indicate that the number of children who currently have autism, or the prevalence, may be increasing in the United States.

 
 

11/11/2015

Tips for a Successful Meeting with Policymakers

As the 2015 AUCD Annual Conference approaches swiftly, AUCD has compiled a list of tips that attendees can draw up in order to have a successful meeting with Congressional policymakers during visits to Capitol. The conference runs from November 16-18.

 
 

11/10/2015

AUCD 2015 Conference App Available

AUCD has again partnered with Guidebook to bring you the entire conference agenda and more on your mobile device, for free! Download the guide to plan your day with personalized schedules, browse exhibitors, view maps of the hotel and surrounding area, view the attendee list and connect with people before you arrive, access exclusive online content, and much more. The app is compatible with iPhones, iPads, iPod Touches and Android devices. Windows Phone 7, laptop, and Blackberry users can access the same information via our mobile site.

 
 

11/10/2015

Systemwide Solutions for Developmental-Behavioral Concerns

A new article in Pediatrics proposes that every U.S. state needs: 1) a family-friendly, screening and care coordination entity, 2) comprehensive, tiered, and equitable assessments for "at-risk" or referred children, 3) universal access to high-quality early learning or preschool programs, and 4) continuous accountability for the early detection process from birth to 5 years, and this includes an outcome-based metric for kindergarten readiness. Leaders in health, education, and social service sectors must boldly address our nation's capacity crisis in a system-wide manner.

 
 

11/9/2015

CCD recommendations on Transition to Independence

AUCD has been working with several CCD Task Forces to provide comments on a bipartisan bill (S. 1604) introduced by Sens. Chuck Grassley of Iowa, Ron Wyden of Oregon and Bob Casey of Pennsylvania. Attached is a support letter with recommendations to further strengthen the goal of decreasing segregated employment and increasing competitive, integrated employment for people with disabilities.

 
 

11/9/2015

DJ Patil, PhD, to Headline AUCD Conference Plenary

Chief Data Scientist in the White House Office of Science and Technology Policy

In a coffee table conversation, Dr. Charlie Lakin will interview Dr. Patil about the Obama Administration's approach to using data science and big data to influence policy. How can we use data science to inform and drive changes in policy for children and adults with disabilities, and what are the limitations of this kind of an approach?

 
 

11/5/2015

Former CDS Faculty Member Develops DailyPlay App for Newborns (HI UCEDD)

Former CDS Faculty Member, Norma Jean Stodden, has developed an educational app for newborns. Baby's Daily Play App has 365 educational games for parents to play with baby - one for each day of baby's first year! The daily games stimulate baby's intellectual, physical, social, and emotional development!

 
 

11/4/2015

Cultural Adaptation of Legacy for ChildrenTM for Latino Communities: Qualitative Results of the Feasibility Evaluation (OK UCEDD/LEND)

This study examined the cultural adaptations and logistical supports needed for successful implementation with Spanish-speaking mothers. This report summarizes the results of the qualitative feasibility evaluation of the cultural congruency of the Legacy for Children program.

 
 

11/4/2015

WVU CED Announces Interim Director (WV UCEDD)

Dr. Lesley Cottrell, professor and vice chair of research in the WVU Department of Pediatrics, has agreed to serve as the interim director of the WVU CED. Dr. Cottrell is co-director of the West Virginia Prevention Research Center and, from 2004-11, led the research component of WVU�s renowned CARDIAC program, which provided screening and intervention to tens of thousands of West Virginia children at risk for heart disease. She has also served as a member of the WVU Faculty Senate since 2005.

 
 

11/3/2015

Police Get Disabilities Sensitivity Training (VIUCEDD)

About 100 Virgin Islands police cadets and officers received just such training last week, in workshops conducted on St. Thomas and St. Croix by Kimberly Mills, associate director of the Virgin Islands University Center for Excellence in Developmental Disabilities.

 
 

11/2/2015

AUCD2015 Online Registration is Closed

Please register at the door

Online registration for AUCD2015 "Growing Leaders, Driving Change" is now closed. Interested attendees are welcome to register in person at the hotel.

 
 

11/2/2015

Be Safe Workshop (MD UCEDD/LEND)

The Maryland Center for Developmental Disabilities (MCDD) staff and trainees participated in a one-day "Be Safe Workshop" to earn a certificate in the course. The Be Safe movie and companion curriculum is designed to provide lessons, activities, games, and materials to teach teens and young adults with disabilities how to interact safely with law enforcement.

 
 

11/2/2015

CURRICULUM VITAE: Rehabilitation and Research Training Center on Employment Policy and Measurement (NH UCEDD/LEND)

The Institute on Disability at the University of New Hampshire has recently completed five years of reasearch under the Rehabilitation Research and Training Center on Employment Policy and Measurement (EPM-RRTC), grant-funded by NIDILRR.

 
 

11/2/2015

Dr. Susan Fox Appointed to National Boards (NH UCEDD/LEND)

Susan Fox, PhD, Associate Director of the IOD, has been appointed to two prestigious national committees. This summer she served as the Policy Consultant to the Aging, Retirement, and End of Life strand of the National Goals in Research, Practice and Policy working meeting. She has also been appointed by the members of the National Academy for State Health Policy (NASHP) to serve on their Steering Committee on Long Term & Chronic Care.

 
 

11/2/2015

Federal Grant Awarded to UNH to Improve National Disability Employment Data (NH UCEDDD/LEND)

The Institute on Disability (IOD) at the University of New Hampshire has been awarded a 5 year, $4.3 million grant from the U.S. Department of Health & Human Services, National Institute on Disability, Independent Living, and Rehabilitation Research (NIDILRR). This is a five year renewal of the grant, titled the Employment Policy & Measurement Rehabilitation Research and Training Center (EPM-RRTC), which works towards improving knowledge about and access to existing disability data, and generating the knowledge needed to improve future disability data collection and dissemination.

 
 

11/2/2015

Ground-Breaking New Book! Disability and Disaster: Exploration and Exchanges (TX UCEDD)

The Center on Disability and Development at Texas A&M University is honored to announce the release of the scholarly work, Disability and Disaster which includes disaster research to the expanding area of disability studies. This edited collection includes writings by international scholars as well as 19 chapters about individuals with disabilities affected by disaster across five different continents.

 
 

11/2/2015

Hope for Families Experiencing Homelessness in Cincinnati (OH UCEDD/ LEND)

Soon families experiencing homelessness in Cincinnati may be receiving an essential, game-changing resource: childcare. Every family needs good, reliable childcare options to secure and maintain employment, and families experiencing homelessness are no different. However, understanding the high-priority nature of this need required some research. So the LEND team (Leadership Education in Neurodevelopmental and related Disabilities) at Cincinnati Children�s Hospital Medical Center (CCHMC) sat down with caregivers experiencing homelessness to truly understand their perspective and most pressing needs.

 
 

11/2/2015

Iowa UCEDD Collaborating to Make "Employment First" a Reality in Iowa

The Iowa Association of People Supporting Employment First (APSE) held its annual employment summit in Des Moines. Dr. SueAnn Morrow, an Employment Services Specialist with the Center for Disabilities and Development (CDD-Iowa's UCEDD), working with Iowa's Money Follows the Person program which CDD administers, served as a conference coordinator. She reports that over 150 individuals attended the summit, and that it was one of the most successful in her tenure as an Iowa APSE board member.

 
 

11/2/2015

Leading the State: The Institute for Person-Centered Practices (TX UCEDD)

The Institute for Person-Centered Practices (IPCP) is a collaborative partnership between the Center on Disability and Development at Texas A&M University and the Center for Disability Studies at the University of Texas at Austin. Both are University Centers for Excellence in Intellectual and Developmental Disabilities (UCEDDS) and part of a larger network of 67 centers.

 
 

11/2/2015

MDSibs 2015 (MD UCEDD/LEND)

the Maryland Developmental Disabilities Council hosted Maryland's first-ever statewide gathering of siblings of people with developmental disabilities and others interested in sibling issues. The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, along with other state organizations and agencies, helped support the conference.

 
 

11/2/2015

Monthly Assistive Technology Demonstration Days (PA UCEDD)

The Institute on Disabilities at Temple University, Philadelphia, PA is holding free "Assistive Technology Demonstration Days" on the university's main campus once a month through December."Demo Days" is an easy way for people with disabilities to gain practical, "hands on" experience with assistive technology devices.

 
 

11/2/2015

NIH STTR Award To Fund Design, Safety and Usability Testing of Three-Wheeled Mobility and Fitness Device (ME UCEDD)

The R.M. Beaumont Corporation of Brunswick, ME and three University of Maine researchers are collaborating on a $225K National Institutes of Health (NIH) Phase 1 Small Business Technology Transfer (STTR) grant to complete the design, safety and usability testing of AFARITM, a three-wheeled, aesthetically designed, adaptive mobility and fitness device.

 
 

11/2/2015

Northern Marianas Welcomes New UCEDD Director

The Pacific Basin University Center for Excellence for Developmental Disabilities (PBUC-DD) in partnership with the Northern Marianas College has recently hired Mr. Floyd Masga as the UCEDD Director for the Northern Marianas College.

 
 

11/2/2015

Secret Agent Society: Research Study Complete and Additional Training Planned (CHLA USC UCEDD)

A clinical research team conducting a pilot study of the Secret Agent Society at the USC-UCEDD at Children's Hospital Los Angeles has completed their pilot study and has made plans to train additional clinical staff to expand capacity to provide this clinical service to children and families in Southern California. The Secret Agent Society (SAS) is a 9-week social skills group for children with High Functioning Autism from the ages of 8 to 12 years developed by Renae Beaumont Ph.D. of the University of Queensland.

 
 

11/2/2015

Texas Center for Disability Studies Welcomes New Director, Amy Sharp (TX UCEDD)

The Texas Center for Disability Studies at The University of Texas at Austin is pleased to announce the appointment of our new executive director, Amy Sharp, PhD. Dr. Sharp joined our team on Monday, September 21st and has hit the ground running!

 
 

11/2/2015

The 2015 Lightner Witmer Award presented to Center on Disability and Development Affiliated Faculty Member Dr. Nathan Clemens

Each year the Division of School Psychology of American Psychological Association presents the Lightner Witmer Award to a young professional and academic school psychologist who has demonstrated scholarship that merits special recognition. The 2015 Lightner Witmer Award was presented to Nathan Clemens, Ph.D. who is affiliated with the Center on Disability and Development at Texas A&M University.

 
 

11/2/2015

The Center on Disability and Development welcomes Dr. Meagan Sumbera as the new Associate Director (TX UCEDD)

Dr. Sumbera has been with the Center on Disability and Development for over a year as the Project Coordinator for Postsecondary Access and Training in Human Services (PATHS) and Bridge to Career (B2C) in Human Services. She earned her doctorate in Special Education Administration at the University of Texas at Austin.

 
 

11/2/2015

The New England Genetics Collaborative Announces an Innovative Partnership with the Genetic Metabolic Center for Education (NH UCEDD/LEND)

The New England Genetics Collaborative (NEGC), a project housed at the Institute on Disability (IOD) at the University of New Hampshire, is pleased to announce a first-of-its-kind partnership with and the Genetic Metabolic Center for Education (GMCE) to create a consulting and educational platform able to support the diagnosis and treatment of inherited metabolic disorders throughout New England.

 
 

11/2/2015

UCLA PEERS for Young Adults Program Featured on the Front Page of the Los Angeles Times (Tarjan Center, CA, UCEDD)

The UCLA PEERS� for Young Adults program was featured on the front page of the Los Angeles Times. Dr. Elizabeth Laugeson, Director of Training at the Tarjan Center for Excellence in Developmental Disabilities at UCLA, is the Founder and Director of the UCLA PEERS� Clinic, an outpatient program providing an evidence-based, parent-assisted social skills intervention for adolescents and young adults with Autism Spectrum Disorder.

 
 

11/2/2015

UM Rural Institute Receives $2.5 Million Health Promotion Development Grant (MT UCEDD)

Researchers at the University of Montana will develop a state-of-the-art health promotion program to advance the ability of people with disabilities to live independently in their communities through a new five-year, $2.5 million grant from the National Institute on Disability, Independent Living and Rehabilitation Research.

 
 

11/2/2015

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Investigator appointed to Interagency Autism Coordinating Committee

The U.S. Department of Health and Human Services (HHS) announced the appointments of new and returning members to the Interagency Autism Coordinating Committee (IACC), reauthorized under the Autism CARES Act. Julie Lounds Taylor, Ph.D., assistant professor of Pediatrics and Special Education and a Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) investigator, has been appointed as a new IACC member.

 
 

10/28/2015

HHS Announces Appointment of New Membership and New Chair for the Interagency Autism Coordinating Committee

Appointees Include AUCD's Shannon Haworth

Secretary of Health and Human Services Sylvia Burwell appointed this group of individuals to provide her with advice to advance research, strengthen services, and increase opportunities for people on the autism spectrum. The public member appointees include three adults on the autism spectrum, several family members of children and adults on the autism spectrum, clinicians, researchers, and leaders of national autism research, services, and advocacy organizations. Many of the appointed individuals serve dual roles, dedicating their professional careers to helping people on the autism spectrum because of their personal experiences with autism spectrum disorder.

 
 

10/27/2015

AUCD Statement on Bipartisan Budget Act of 2015

AUCD is pleased that members of Congress came together to craft a bipartisan budget compromise that will pave the way for the annual appropriations bills for fiscal year 2016 to be enacted in a way that will promote important investments in our nation's research, education, training and other programs that will positively impact our economy and avoid harmful cuts to people who need them the most.

 
 

10/27/2015

CCD Response to the Bipartisan Budget Act of 2015

We commend the negotiators for reaching a deal that provides relief from sequestration and raises the budget caps for discretionary programs in Fiscal Years 2016 and 2017.

 
 

10/26/2015

Embracing a Culture of Accessibility in the Workplace

A blog post for AUCD by Emily Ladau, author of 'Words I Wheel By'

There's much more to workplace accessibility than installing a ramp or adding handrails to a restroom stall. All too often, employers misunderstand disability, assuming that if they've provided the bare minimum of access for one person, they've provided access for all.

 
 

10/22/2015

New OSERS Guidance on Students with Dyslexia, Dysgraphia, and Dyscalculia

Guidance clarifies that there is nothing in IDEA to prohibit the use of "dyslexia," "dyscalculia," or "dysgraphia" in an evaluation, determining eligibility for special education, or in developing an IEP.

 
 

10/22/2015

The National Disability Mentoring Coalition has Named 25 Outstanding Leaders as the First Inductees into the Susan M. Daniels Disability Mentoring Hall of Fame

Inductees include AUCD's Andy Imparato

To celebrate the 25th anniversary of the Americans with Disabilities Act (ADA), the National Disability Mentoring Coalition has named 25 outstanding leaders as the first inductees into the Susan M. Daniels Disability Mentoring Hall of Fame. The initial class of inductees to the Hall of Fame were announced on October 1st, 2015 and can be found in the link attached including a few of our network members and our very own Andy Imparato. Congratulations Inductees!

 
 

10/21/2015

AUCD2015 Driving Change Sessions

Add One Free to Your Conference Registration

New in 2015, these exciting sessions provide an interactive learning and sharing environment centered around the five key priorities of the AUCD Strategic Map. Participate in one of these five sessions to hear from and share ideas with leaders from around the network on successes and best practices in the areas of visibility and reach; policy, practice, and research; network engagement and leadership development; funding; and diversity, inclusion, and equity.

 
 

10/19/2015

AUCD Testimony to the Advisory Committee on Increasing Competitive Integrated Employment

 
 

10/19/2015

Research to Policy Advocacy Leadership Training Grant (VA UCEDD/LEND)

The Department of Special Education and Disability Policy at Virginia Commonwealth University has been awarded a five year Leadership Grant that will provide funding for 10 doctoral students who are interested in becoming University Faculty in special education with experience in disability policy.

 
 

10/14/2015

Dr. Karrie Shogren Appointed Co-Director of the Kansas University Center on Developmental Disabilities (KY UCEDD)

Karrie A. Shogren, Ph.D. has been appointed Co-Director of the Kansas University Center on Developmental Disabilities, the Kansas UCEDD.

 
 

10/12/2015

AUCD Joins The National Disability Mentoring Coalition to Improve Outcomes for Individuals with Disabilities

AUCD is pleased to be a part of the National Disability Mentoring Coalition (NDMC), an organization which increases the awareness, quality and impact of mentoring for individuals with disabilities across the nation. Member organizations work to increase mentoring opportunities and improve outcomes for youth and adults with disabilities. Tanisha Clarke, MPH, represents AUCD on the Coalition.

 
 

10/6/2015

AUCD Conference Hotel Sold Out

Hotel rooms in AUCD's discounted block at the Washington Renaissance Hotel are sold out! The conference hotel page has information and links on additional hotels nearby for you to explore for your stay at the Conference.

 
 

10/2/2015

ACL Awards Grants for UCEDD Diversity Fellowships

This week AIDD, a part of ACL, awarded National Training Initiative grants to 14 University Centers for Excellence in Developmental Disabilities (UCEDDs) to support a one-year diversity fellowship at each UCEDD.

 
 

10/2/2015

Andy Imparato Welcomes the GU Certificate in Early Intervention 2015-2016 Cohort (DC UCEDD)

The 2015-2016 cohort of the GU Certificate in Early Intervention program was welcomed by Andy Imparao, Executive Director of the AUCD. Andy met with the students during lunch providing them with a "birds-eye" view of disability policy. The event was part of the two-day orientation to the GU Certificate in Early Intervention program. Participants of the program include all members of the interdisciplinary team of early intervention service providers. This year's cohort includes a physician from the United Arab Emirates, an early childhood teacher from Mexico, and the Director of an early intervention program in Lebanon in addition to early intervention practitioners from the DC area.

 
 

10/2/2015

HDI's Family Mentorship Program Kicks into High Gear (KY UCEDD/LEND)

Human Development Institute (HDI) has led a family mentorship program that matches university students with families including a child or adolescent with a significant disability in order to give the students a chance to interact with these families outside of a clinical or academic setting and learn first-hand from the family's experience. As a University Center for Excellence in Developmental Disabilities, HDI's family mentorship program prepares students for their future work as professionals and clinicians working with individuals with developmental disabilities.

 
 

10/2/2015

Mary Lee Fay Named New NASDDDS Executive Director

The Board of Directors of the National Association of State Directors of Developmental Disabilities Services has named Mary Lee Fay to replace Nancy Thaler as the Association�s Executive Director. Mary Lee has been working with NASDDDS since 2012 as the Director of National Core Indicators and Coordinator of the Supporting Families Community of Practice. Nancy Thaler left the organization on July 1st to become the Deputy Secretary of the Office of Developmental Programs in Pennsylvania.

 
 

10/2/2015

MN UCEDD Partners with Russian University to Improve Education of Students with Disabilities

The Institute on Community Integration (ICI), University of Minnesota, is partnering with Krasnoyarsk State Pedagogical University (KSPU) in Siberia to improve the inclusion of Russian students with significant cognitive disabilities in elementary and secondary schools. Through the Global Signature Grants Program of the University of Minnesota's College of Education and Human Development (CEHD), and the Eurasia Foundation�s U.S.�Russia University Partnership Program, the Institute's Brian Abery and Ren�ta Tich� have recently received additional funds to help grow an existing collaboration between ICI and KSPU that resulted in establishment of the International Institute on Progress Monitoring (IIPM) in Fall 2014. The new funding will go toward supporting ongoing academic and cultural exchange of ideas, research, priorities, and policies between the two countries, and help sustain IIPM long-term.

 
 

10/2/2015

Rural Institute for Inclusive Communities (MT UCEDD) Announces Inaugural Award Recipient of the Community Investment Fund

To promote community inclusion and provide leadership and advocacy opportunities for Consumer Advisory Council (CAC) members, the University of Montana Rural Institute for Inclusive Communities (RIIC) established a Community Investment Fund (CIF) and invited CAC members to administer the fund. For 2015, $2000 was made available through the CIF for innovative projects or programs to help people with disabilities live, learn, work and play in their communities alongside people without disabilities.

 
 

10/2/2015

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Member Leads Affordable Housing Partnership

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) member Jaco Hamman, Ph.D., associate professor of Religion, Psychology, and Culture at Vanderbilt Divinity School, is leading the development of an affordable housing model that brings together Vanderbilt Divinity School students with young adults with intellectual and developmental disabilities. It is believed to be the first of its kind in Tennessee. Located in the Chestnut Hill area, Divinity Friendship House at Vanderbilt provides low-cost housing to eight students and three individuals who are all on the autism spectrum.*

 
 

10/2/2015

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) welcomes 2015 Society of Music Perception and Cognition Conference

The Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) welcomed musicians and scientists to the 2015 biennial meeting of the Society of Music Perception and Cognition (SMPC) Conference and the Vanderbilt Music and Mind Kickoff. Music researchers from around the globe flew into Nashville Aug. 1-5 to attend the biennial conference.

 
 

10/2/2015

VIUCEDD Welcomes New Associate Director

In May 2015, Dr. Karen Harris Brown joined the VIUCEDD staff as Associate Director for research, evaluation, and grant development. While she is the newest member of the VIUCEDD team, Dr. Brown is no stranger to the Virgin Islands. She is a native Virgin Islander who recently returned home after 29 years of living on the U.S. mainland. When the opportunity arose, Dr. Brown jumped at the chance of returning to the place that was instrumental in shaping her into who she is today. She is a proud Chicken Hawk (C.A.H.S. class of 1986) and former member of the Rising Stars Youth Steel Orchestra. She is a first generation college student who participated in the University Bound program (formerly Upward Bound) at the University of the Virgin Islands (formerly College of the Virgin Islands). She is grateful for these experiences and what others did to sow into her life. Now, it is her goal to �pay it forward� by positively impacting the lives of all she comes in contact with. She hopes to accomplish

 
 

10/2/2015

Young Adults with Autism Show Improved Social Function Following UCLA Skills Program (CA UCEDD)

Gains from 'PEERS' training persist 16 weeks later

Researchers at the Semel Institute for Neuroscience and Human Behavior at UCLA have found that a social skills program for high-functioning young adults with autism spectrum disorder significantly improved the participants' ability to engage with their peers.

 
 

10/1/2015

Executive Summary from the Committee Interim Report

from the Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities

The primary focus of the work of the Committee, and the formation of preliminary recommendations, is to increase opportunities for competitive integrated employment for individuals with I/DD or other significant disabilities.

pdf File Executive Summary 2015 ACICIED Final.pdf [download]
 
 

10/1/2015

Strong Center for Developmental Disabilities Health Disparities Initiative: Geo-mapping and Networking to Improve Health Services for Individuals with IDD (NY UCEDD/LEND)

The Health Disparities Initiative at Strong Center for Developmental Disabilities focuses on providing training for healthcare professionals, providing and improving health services to individuals with IDD, and conducting research that provides insights about health system delivery and the needs of individuals with IDD. The Initiative is currently developing two exciting new projects that will provide more information about service providers, gaps and barriers to servicing individuals with IDD in Western NY.

 
 

9/30/2015

Action Steps for Consumers and Advocates Regarding the DOL Home Care Rule

Action Steps for Consumers and Advocates Regarding the DOL Home Care Rule: How to Prevent Service Cuts and Protect Consumer-Directed Programs.

 
 

9/30/2015

AUCD Welcomes Siddarth Nagaraj as Public Policy Fellow

As the Disability Policy Fellow, Siddarth works with AUCD to promote policy objectives, research proposed legislation, provide association members with news updates, and take part in meetings with Congressional offices.

 
 

9/30/2015

Home Care Rule Advocacy Fact Sheet

To help consumers and advocates take action, we created a guide, Action Steps for Consumers and Advocates Regarding the New Home Care Rule: How to Prevent Service Cuts and Protect Consumer-Directed Programs. Below is an overview of the advocacy steps that consumers and advocates should take in their states, which are described in more detail in the guide.

 
 

9/29/2015

Just Released! NIRS Online Learning Modules

The Online Learning Modules replace the in-person orientation to NIRS for new Data Coordinators. The goal is for new Data Coordinators to be able to learn to use NIRS and understand reporting requirements by going through all the Modules. The Modules can be used by all Programs that enter data in NIRS: UCEDD, LEND, LEAH, PPC and DBP Programs.

 
 

9/25/2015

AUCD2015 Plenary: Growing Leaders, Driving Change

Leadership is at the center of driving change. Hear from panelists who will discuss their own leadership paths and what they have learned along the way, both about what it means to be a leader and how they have driven change.

 
 

9/24/2015

Evidence-based letter to ESEA in support of Evidence and Innovation Research grant program

Knowledge Alliance coalition and AUCD along with 150 other organizations sent a letter to The Honorable John Kline Chairman - Committee on Education and the Workforce, Honorable Robert C. "Bobby" Scott Ranking Member -Committee on Education and the Workforce, Honorable Lamar Alexander Chairman - Committee on Health, Education, Labor and Pensions (HELP), and Honorable Patty Murray Ranking Member - HELP Committee expressing our strong support for the Education Innovation and Research (EIR) program that is included in the Every Child Achieves Act, the Senate's Elementary and Secondary Education Act (ESEA) reauthorization bill.

 
 

9/23/2015

Network Trainees Selected to Participate in a National Leadership Group

The Maternal & Child Health Bureau's (MCHB) Division of MCH Workforce Development (DMCHWD) welcomed the following ten (10) current and former trainees to serve on the inaugural 2015-2016 Trainee Ambassador Group.

 
 

9/16/2015

Family Stability Bill Summary

The purpose of this bill is to give states and tribes the flexibility to make modest front-end investments in family services and kinship placement in order to reduce costly and traumatic stays in foster care.

 
 

9/15/2015

Inclusion in Early Childhood Programs: A Policy Statement from ED and HHS

UCEDD members from KS and MO attend release of new ED and HHS policy statement highlighting the importance of ensuring all young children with disabilities have access to inclusive, high-quality early childhood programs.

 
 

9/14/2015

AUCD Welcomes Ashley Mason as Events Intern

Ashley Mason is currently serving as the Meeting Intern for the upcoming AUCD Conference in November 2015. She also assists with other association meetings and events as well as various operational duties, including cross-departmental needs and web services.

 
 

9/14/2015

Emergency Preparedness for People with Access and Functional Needs, Including Disabilities (UCONN UCEDD)

The UCONN Center for Excellence in Developmental Disabilities has developed a curriculum on emergency preparedness through a grant from the Connecticut Council on Developmental Disabilities. The goal of the project was to assist municipalities in creating/updating their town's emergency preparedness plan so that needs of citizens with developmental disabilities are addressed and to assist people with developmental disabilities in creating their own emergency plans.

 
 

9/14/2015

The RIOT selects Tuesdays with Liz: Disability Policy for All as their Top Video Pick of the Year!

Making and posting videos is getting easier all the time with new technology. Advocates are using videos to share information about important advocacy topics. The RIOT selects Tuesdays with Liz as their Top Video Pick of the Year!

 
 

9/11/2015

Iowa LEND Trainee Creates Hotel Accessibility Guide

As the August date approached for the Wellstone Patient and Family Conference on the Dystroglycanopathies (a form of muscular dystrophy), the Neuromuscular Clinical Research Team at University of Iowa Hospitals and Clinics (UIHC) recognized a need for additional information on hotel accessibility options in the Iowa City area. Katie Laubscher, a physical therapist with the Neuromuscular Clinical Research Team and at the Center for Disabilities and Development (CDD-Iowa's UCEDD), enlisted the assistance of Shari Huber, a former ILEND trainee and physical therapy student, to research the topic. Huber conducted a comprehensive review over a nine-week period, creating a sustainable product with far-reaching benefits.

 
 

9/11/2015

Support Tax Relief for Our Grandparents

The Grandparents Tax Credit of 2015 will provide tax relief for our grandparents with the many costs associated with child-rearing. Specifically, it will aim to alleviate many of the financial burdens placed upon the grandparent for the out-of-pocket expenses that are incurred when taking care of their children�s child.

 
 

9/10/2015

Plain Language Summaries for Publications from the IL UCEDD/LEND

Kate Caldwell and Carli Friedman, University of Illinois at Chicago

Accessible plain language summaries of publications provide individuals with something they can print out that is easy to understand, and which they can use in advocating and talking to policymakers. Carli Friedman and Kate Caldwell of the University of Illinois at Chicago share the importance of plain language summaries and describe how to create this accessibility tool.

 
 

9/8/2015

Six Programs That Engage People with Disabilities, Family Members, and Community Professionals Awarded Supplementary Project Funds Through AUCD

AUCD is providing supplemental funding and targeted assistance to six training programs to engage people with disabilities, family members, and community professionals in innovative ways.

 
 

9/3/2015

Center for Community Inclusion and Disability Studies (ME UCEDD) Welcomes New Director

Alan B. Cobo-Lewis, Ph.D., has been named as the director of the University of Maine Center for Community Inclusion and Disability Studies. He becomes the Maine UCEDD's second director in 23 years, succeeding founding director, Lu Zeph, who retired in June 2015.

 
 

9/2/2015

AUCD Conference Scholarships Available

For Emerging Leaders and Network Trainees; Deadlines 09-18 & 10-02

AUCD places great importance on having a diverse group of participants at the AUCD Conference. We seek to make the conference and all information presented as accessible as possible to as many people as possible, and recognize that cost can often be a barrier to attending. AUCD features significantly reduced registration for students, individuals with disabilities, and family members of individuals with disabilities. As funding allows, we also offer a limited number of travel scholarships; learn about the opportunities available this year and see if you qualify to apply.

 
 

9/2/2015

People with Disabilities Also Need to Prepare for Emergencies (UC OH UCEDD)

UC UCEDD, as part of the Ohio Disability and Health Program, in partnership with the American Red Cross, offers Disaster & Preparedness Training for People with Disabilities & Their Caregivers, a daylong training session to explore individual needs, regional resources, and emergency preparedness. So far more than 200 people have received this potentially life-saving training.

 
 

9/1/2015

AAP Policy on Telemedicine and Workforce Shortages

The AAP Committee on Pediatric Workforce developed a policy statement regarding the workforce implications of telemedicine. The statement, "The Use of Telemedicine to Address Access and Physician Workforce Shortages," published in Pediatrics this month, reviews issues including pediatric patient access, barriers, incentives, research, funding and payment. It can be used as a tool to advocate on behalf of telehealth technologies in the pediatric health care arena.

 
 

9/1/2015

ADA 25th Anniversary

By Nicloe LeBlanc, Green Mountain Self Advocates

As we celebrate the 25th Anniversary of the Americans with Disabilities Act, I would like to share some thoughts on what the ADA means to me as a person with autism. I want to say first off that I feel very lucky and privileged to have grown up with the ADA. I was only 5 years old when the ADA passed in 1990 and I was attending the Easter Seals preschool program in Manchester, New Hampshire. Being part of the ADA generation has allowed people like myself to access the supports and accommodations needed to be successful in this world.

 
 

9/1/2015

Doctoral Student Receives Fellowship to Measure Impact of Center for START Services at the Institute on Disability (NH UCEDD/LEND)

Luke Kalb, a Ph.D. student from Johns Hopkins University�s Bloomberg School of Public Health, recently received the National Institute of Health�s Ruth L. Kirschstein National Research Service Award (NRSA) Individual Predoctoral Fellowship. He will be using the award to measure the impact of Center for START Services� crisis prevention and intervention services on the lives of people with intellectual and developmental disabilities (IDD) and behavioral health needs.

 
 

9/1/2015

Mailman Center for Child Development Director Receives American Cancer Society's St. George National Award (FL UCEDD/LEND)

For his longtime devotion to improving the lives of children with cancer and his work to advance science, health policy and education, F. Daniel Armstrong, Ph.D., Director of the Mailman Center, a longtime researcher with the Sylvester Comprehensive Cancer Center, and professor and Executive Vice Chair of Pediatrics at the University of Miami Miller School of Medicine, was recently honored with the American Cancer Society's 2015 St. George National Award.

 
 

9/1/2015

National Award Goes to Institute Staff Members (MN UCEDD/LEND)

Derek Nord and Kelly Nye-Lengerman of the Institute's Research and Training Center on Community Living were part of a Minnesota team from the Employment First Coalition who received APSE�s Public Policy Advocate of the Year Award during the 2015 APSE National Conference in Philadelphia, June 23-25.

 
 

9/1/2015

RISE-UP (SD UCEDD)

The University of South Dakota (USD) Sanford School of Medicine's Center for Disabilities is partnered with a select and distinguished group of institutions from across the country aiming to solve a vexing, vital and ongoing problem facing health care: the pressing need to reduce health disparities, inequalities and gain greater health care equity among all Americans. That is the objective and mission of a program formally called Maternal and Child Health Careers: Research Initiatives for Student Enhancement Undergraduate Program (MCHC/RISE-UP), more commonlycalled the RISE-UP program.

 
 

9/1/2015

Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) Hosts Positive Development and Parent Stress Reduction Conference

The Vanderbilt Kennedy Center (TN UCEDD, LEND, IDDRC) held its first Parent Stress Intervention Program (PSIP) Conference this summer. Instructors delved into each of the two intervention manuals created by Vanderbilt Kennedy Center researchers to teach parents of children with disabilities how to manage stress. The PSIP manuals "Positive Adult Development (PAD) and Mindfulness-Based Stress Reduction (MBSR)" were developed as part of an intervention research study for stress reduction in parents of children with intellectual and developmental disabilities at the Vanderbilt Kennedy Center. Adapted by principal investigator and VKC director Elisabeth Dykens, Ph.D., and a group of dedicated parent mentors, the curricula is intended to provide tools for learning and practicing these techniques, and for teaching them to parent groups.

 
 

8/31/2015

Angela Martin, LMSW from Wayne State University's Developmental Disabilities Institute Works with Disability Rights International in Ukraine (MI UCEDD)

In July 2015 Angela Martin, LMSW from the Developmental Disabilities Institute at Wayne State University was invited by Disability Rights International (DRI) to travel to Ukraine and prepare individuals with disabilities, family members, and service providers to advocate for community-based, person-centered supports. DRI is working to organize individuals with disabilities and family members following its three-year long examination of the inhumane conditions that children with disabilities experience in Ukraine's orphanages.

 
 

8/31/2015

Comment on the USPSTF draft recommendation statement on screening for ASD in young children

 
 

8/31/2015

Six OHSU UCEDD Interns Explore Careers in Health Care and Disability

This August, the OHSU UCEDD in Portland, OR graduated six interns from our Summer Internship Program. The program, which has been graduating interns every summer for more than a decade, offers a unique career exploration opportunity for high-school or early college students with a demonstrated interest in careers in the disability field. Many of the students experience a disability or have close family members who experience disability. The internship provides hands-on work experience opportunities and also allows students to explore the vast world of health care careers in a clinical setting.

 
 

8/27/2015

2015 Autism CARES Meeting Materials Now Available

Presentation slides, discussion group notes, and resources for grantees from the 2015 Autism CARES Meeting are now available for download and printing at the ITAC website.

 
 

8/24/2015

AUCD signed onto a CCD letter to Secretary Arne Duncan

thanking him for issuing the final Rule to end the use of the Alternate Assessment on Modified Academic Achievement Standards (AA-MAS)
pdf File CCD-Thank-You-Sec-Duncan-Final.pdf [download]
 
 
Children in the Classroom, Courtesy Department of Education on Flickr

8/24/2015

Statement on Final Rule to Improve the Academic Achievement of Students with Disabilities

AUCD applauds the Department of Education for eliminating the use of the Alternate Assessment based on Modified Academic Achievement Standards (AA-MAS), or the so-called "2% Rule," opening the door to many more students graduating from high school prepared for college and careers.

 
 

8/19/2015

Difficulties of Disability Disclosure

By Emily Ladau

My wheelchair likes to make a grand entrance when I go into a room. It's there, it's large, and it's up to me to show that I'm in charge. Having a visible mobility aid means that when I go to a job interview, I simply can't avoid indirect disclosure about being disabled. My body takes care of disclosing for me, loud and clear.

 
 

8/18/2015

National Disability Organization States that Climate Change is a Public Health Issue; Urges Congress to Support EPA Carbon Pollution Rule

The EPA recently released a final Rule that, when fully implemented, will cut carbon pollution from power plants by 32% (below 2005 levels) by 2030. AUCD supports this Rule that will help prevent serious, long-term health consequences for the over 53 million Americans living with disabilities, including increased illnesses; secondary disabilities; and death due to respiratory illness, heat-related stress, insect-borne diseases and increase environmental disasters.

 
 

8/17/2015

StateData: The National Report on Employment Services and Outcomes, 2014 (UCEDD MA)

The National Report on Employment Services and Outcomes, 2014. StateData is a product of the Access to Integrated Employment project at the ICI. Funded by the Administration on Intellectual and Developmental Disabilities, the project has described employment and day services and outcomes for individuals with intellectual and developmental disabilities (IDD) for over 25 years. The report provides longitudinal national- and state-level statistics that address the status of employment and economic self-sufficiency for individuals with IDD across the United States. We are proud of this long-standing and reliable data set.

 
 

8/14/2015

AUCD2015 Registration Is Open

Deadline: October 30

Registration is currently open for the AUCD Conference! We welcome network members, partners from outside the network, experts from across the disability field, individuals with disabilities, family members, and students to learn and grow together during this exciting event. Whether you're a newcomer to the field or a seasoned professional, the AUCD Conference provides countless opportunities to share with and learn from colleagues across the network and beyond.

 
 

8/13/2015

National Disability Organization States that Climate Change is a Public Health Issue; Urges Congress to Support EPA Carbon Pollution Rule

 
 

8/13/2015

Stories from Kenya

Christine Grosso, Policy Analyst for Association of University Centers on Disabilities (AUCD), will be traveling to Nairobi, Kenya with the Global Autism Project, an organization which provides sustainable, evidence-based services and training to autism centers in under-resourced countries.

 
 

8/12/2015

New Study Reveals Significant Disparities in Status for New Yorkers with Disabilities (CID NY and NH UCEDD)

ADA at 25: Many Bridges to Cross shows that while people with disabilities celebrate the 25th anniversary of the ADA, we continue to fare worse than people without disabilities in 8 measures of well-being.

 
 

8/11/2015

2015 Conference Proposal Notifications

There's been another amazing response to the 2015 Call for Proposals. The level of work and breadth of topics has been fascinating to read. Teams from the network reviewed all 300+ proposals and AUCD has sent notifications to all who submitted. Be sure to check your email; if you cannot find your notification, please email Crystal to get it re-sent.

 
 

8/10/2015

Founding Director of the Center for Disabilities Studies, Bob Stodden, Retires (HI UCEDD)

One of the University of Hawai'i's longest-serving leaders, Dr. Robert Stodden, called an end to over three decades at the helm of the Center on Disability Studies (CDS) on December 31, 2014. Dr. Stodden, founder of the CDS, lead the center as it became a top-rated research and technical assistance unit with over 100 faculty and staff, and netting a whopping $17 million revenue a year in grants. As a University Center for Excellence in Developmental Disabilities, the CDS rose to local and regional prominence through Stodden's unique leadership style and sweeping vision of inclusion that was unstoppable for decades. His decision to retire brought to a close a remarkable career of continuous service to the University and to the disability and education sectors at large.

 
 

8/10/2015

FY 16 Training Materials

 
 

8/10/2015

NACDD Releases New On-line Publication on Self-Advocacy "The Art of Impact" Written by and for Individuals with Disabilities

The National Association of Councils on Developmental Disabilities (NACDD) during its Annual Conference near Reno, NV today released a new on-line publication on self-advocacy written by and for individuals with developmental disabilities. The publication, "The Art of Impact: A Handbook for Living a Self-Determined Life" was written by Dr. Scott Michael Robertson in conjunction with the Self-Advocate Leadership Circle of the NACDD. The publication is filled with resources, information and tips for successful advocacy.

 
 

8/10/2015

Think College Documentary Gets First TV Broadcast (UCEDD/LEND MA)

Rethinking College, a documentary about college students with intellectual and developmental disabilities, had a screening on WXXI-TV Thursday July 23 at 8:30 PM Eastern. WXXI is the Rochester, NY PBS station, and the screening is a partnership of the station and the Golisano Foundation. This was the first television broadcast of Rethinking College.

 
 

8/5/2015

Iowa UCEDD Hosts International Delegation on Accessibility

On July 24, the Center for Disabilities and Development (CDD-Iowa's UCEDD) hosted a gathering with guests representing seven nations participating in an exchange entitled "Access for All: Enhancing the Lives of People with Disabilities." Members of the international delegation visited Washington, D.C.; San Francisco, Berkeley, and Sacramento, CA; Iowa City, IA; and Minneapolis, MN under the auspices of the Department of State's International Visitor Leadership Program (IVLP). The Council of International Visitors to Iowa Cities (CIVIC), a community-based, nonprofit organization which fosters international cooperation by promoting the exchange of ideas and working toward mutual understanding, hosted the visitors during their stay in Iowa City and initiated the meeting with CDD. All members of the delegation, which included individuals with disabilities and family members, were experts in disciplines ranging from psychology to education.

 
 

8/5/2015

Riley Child Development Center LEND Collaborates with Interpreters to Promote Family and Clinical Outcomes (IN LEND)

Due to the increasing number of children and families that present to the Riley Child Development Center with limited English proficiency, a workgroup was developed in order to assess how we could better meet the needs of these families. As there are limited resources across the state that provide services in diverse languages, we believed that developing a closer partnership with the on-staff interpreters in the hospital was the second best way to optimize our interactions with and meet the needs of these families. While conducting standardized testing in a language other than English is less than ideal and breaks the standardizations process, this is our best avenue for better understanding a child's development in order to make appropriate referrals and connect families with resources in their communities.

 
 

8/4/2015

Developmental Disabilities Receives Special Olympics Healthy Communities Partner of Excellence Award (NY UCEDD)

Special Olympics summer games opened at State University of New York at Brockport on Friday, June 5, 2015. Over two thousand athletes from across NYS were represented. During the event, Strong Center for Developmental Disabilities, the UCEDD at the University of Rochester, was a recipient of the Special Olympics Healthy Communities Partner of Excellence Award.

 
 

8/4/2015

Vanderbilt Kennedy Center's (TN UCEDD, IDDRC, LEND) TRIAD Program Announces Grant and New Leadership

The Vanderbilt Kennedy Center's (TN UCEDD, IDDRC, LEND) Treatment and Research Institute for Autism Spectrum Disorders (TRIAD) has been awarded a five-year, $10 million training grant from the Tennessee Department of Education (TDOE) to continue a 16-year partnership providing education and training opportunities for school personnel throughout the state.

 
 

8/4/2015

Wayne State University's Elizabeth Janks was Prepared for Just About Anything as she traveled to Tel Aviv, Israel to Present on Emergency Preparedness Planning at the 6th International Conference on Disabilities (MI UCEDD)

Every four years Beit Issie Shapiro hosts an International Conference on Disabilities that brings together a wide range of professionals to learn and collaborate on the various research methods and practices going on in the field of disabilities around the world. Included in the list of presenters for this years' international conference in Tel Aviv, is Elizabeth Janks, LMSW from the Developmental Disabilities Institute (DDI) at Wayne State University in Detroit, Michigan. Janks' presentation focuses on Emergency Planning for people with disabilities and their support systems.

 
 

8/3/2015

AUCD is Seeking a Director of Finance and Grant Administration

AUCD is currently seeking a Director of Finance and Grant Administration to oversee all financial aspects of the Association and is responsible for the flow of financial information to the Executive Director, Board of Directors and, where necessary, external parties such as grantors, investors or financial institutions. This position will provide direction and leadership on a wide range of finance and grant/contract management activities in support of the Association and network's strategic priorities and mission. The office is located in downtown Silver Spring, MD, one block from the red line Silver Spring Metro station.

 
 

8/3/2015

AUCD signed on to a letter from the ACLU to the Department of Education

in response to the proposed revision of the Civil Rights Data Collection (CRDC)
pdf File ACLU Comments for 2015-2016 Mandatory Civil Rights Data Collection.pdf [download]
 
 

8/3/2015

Dr. Tamar Heller Named UIC Distinguished Professor (IL UCEDD)

The Institute on Disability and Human Development (Illinois UCEDD) director and professor Tamar Heller has been named a University of Illinois at Chicago (UIC) Distinguished Professor.

 
 

8/3/2015

MCDD High School Trainee Selected for the Distinguished Theresian Scholars Program(MD UCEDD)

The Maryland Center for Developmental Disabilities at Kennedy Krieger Institute hosted Sarah Aviles, a rising senior from the Institute of Notre Dame (IND) of Maryland, as a high school trainee. During her freshman year, IND selected Sarah to be a candidate for the distinguished Theresian Scholars program due to her outstanding academic and personal achievement.

 
 

8/3/2015

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Summer Programs Allow for Fun and Discovery

Summer programming at the Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) presents unique opportunities for investigators to design innovative research, for students and professionals to engage in model trainings, and for children and adults with disabilities to learn new skills and to make new friends. This year, the three summer programs drew 63 campers and students and 23 counselors and peers to the Vanderbilt campus.

 
 

7/31/2015

AUCD sent a letter to Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities

Support of the interim recommendations on Increasing Competitive Integrated Employment
pdf File AUCD support letter of interim report [download]
 
 

7/31/2015

HHS, ED, and Too Small to Fail Release the Talk, Read, Sing Together Every day! Toolkit

The U.S. Departments of Health and Human Services and Education, in partnership with Too Small to Fail, are providing these critical resources to families, caregivers, and early learning providers. Last week, we proudly released "Talk, Read, Sing Together Every Day", a free suite of resources that can help enrich children's early language experiences by providing tips for talking, reading, and singing with young children every day beginning from birth and extending into the early years.

 
 

7/30/2015

Prevalence of Disability and Disability Type Among Adults - United States, 2013

New Report from CDC-NCBDDD

NCBDDD's new report describes the percentage of adults living with disabilities in each state and select functional disability types, and presents estimates of disability by select demographic groups. Health officials and other stakeholders invested in the health and well-being of people with disabilities can use this information to better understand and address the needs of this population in the United States.

 
 

7/29/2015

AUCD signed on to a Letter to Representatives Gregg Harper and Kathy Castor thanking them for Supporting the (RAISE) Family Caregivers Act (HR 3099)

pdf File House RAISE Family Caregivers Act Sign-on Letter Final.pdf [download]
 
 

7/29/2015

AUCD signed onto a Letter Thanking Senators Susan Collins and Tammy Baldwin for Supporting the (RAISE) Family Caregivers Act (S.1719)

pdf File Senate RAISE Family Caregivers Act Sign-on Letter Final.pdf [download]
 
 

7/29/2015

AUCD Welcomes Alysa Vos (LoneStar LEND) as the 2015-16 Virtual Trainee

Alysa Vos is a Board Certified Behavior Analyst and director of an organization that serves individuals with neurodevelopmental differences in Houston, TX. Alysa became a LoneStar LEND trainee in 2014 where she has worked towards building and sustaining interdisciplinary communication and collaboration and advocacy for persons with neurodevelopmental differences and special healthcare needs. As the Virtual Trainee, Alysa seeks to continue to strengthen the community of trainees within the network, and facilitate the engagement of trainees through information sharing, networking, social media, and other platforms.

 
 

7/23/2015

Social Security Disability Insurance

A Lifeline for American Workers and Families
pdf File ssdi national report 7-17-2015.pdf [download]
 
 

7/23/2015

Social Security Disability Insurance

A Lifeline for American Workers and Families

This report lays out the basic facts about SSDI and its importance for working families.

pdf File ssdi national report 7-17-2015.pdf [download]
 
 

7/21/2015

AUCD Welcomes Christine Grosso as Public Policy Analyst

Christine Grosso is a Public Policy Analyst at the Association of University Centers on Disabilities (AUCD) where she works on federal policy and legislative issues that affect people with developmental disabilities and their families.Prior to joining the AUCD team, in June of 2015 she completed a Leadership Education in Neurodevelopmental & related Disabilities (LEND) fellowship at Oregon Health and Science University (OHSU) in Health Administration.

 
 
Dr. Ellen Davis and Christina Carrano, Au.D. candidate and LEND fellow, at the 2015 UW LEND Leadership Presentations.

7/20/2015

Interdisciplinary Professional Training in Developmental Disabilities: An Update (WA LEND)

by Kate Forster, CHDD, University of Washington

When a family first receives news confirming that their child has a developmental disability, they enter a world where the challenges can seem insurmountable. While raising any child is hard, raising a child with a developmental disability brings a host of new challenges and complications. A diagnosis such as autism spectrum disorder (ASD), for example, affects every aspect of a family's life-from education, childcare, and transportation, to areas that may not be immediately apparent, such as nutrition and parental self-care. "Developmental disabilities, because of their complex nature, require an interdisciplinary approach," said Ellen Davis, MD, MPH, clinical professor of pediatrics, and director of the UW LEND program at the Center on Human Development and Disability (CHDD). "This is why professional training programs that take an interdisciplinary approach to diagnosis of developmental disabilities, such as that offered by LEND, are so valuable."

 
 

7/17/2015

Department of Education Released an a Fact Sheet on the Changes WIOA makes to the Rehab Act

pdf File wioa-changes-to-rehab-act (1).pdf [download]
 
 

7/16/2015

AUCD joined the Civil Rights Community (LCCR) opposing final passage of the Every Child Achieves Act (S.1177)

pdf File FinalPassageLetter071615.pdf [download]
 
 

7/16/2015

AUCD joined with CCD to oppose the final version of the Every Child Achieves Act S.1177

pdf File 2 CCD Response to Final Passage of ECAA Letter.pdf [download]
 
 

7/14/2015

AUCD joined the Civil Rights Community in Support of the Murphy-Booker-Warren-Coons-Durbin Accountability Amendment

#2241 to the Every Child Achieves Act, S.1177
pdf File SupportAccountability071415.pdf [download]
 
 

7/13/2015

AUCD joined 160 National Organizations to support critical provisiosn of the Earned Income Tax Credit (EITC) and refundable Child Tax Credit (CTC)

pdf File 160 NatlOrgsEITCandCTC - HOUSE - FINAL.pdf [download]
 
 

7/13/2015

AUCD signed onto a Letter to the Senate to support critical provisions of the Earned Income Tax Credit (EITC) and refundable Child Tax Credit (CTC)

pdf File 160 NatlOrgsEITCandCTC - SENATE - FINAL.pdf [download]
 
 

7/13/2015

Autism CARES Meeting Materials Available via Free App

Paper Materials Will Not Be Provided

Materials for this meeting are available exclusively through the free 2015 Autism CARES meeting app - printed copies will generally not be provided at the meeting. Download the free Guidebook app today on your Apple or Android mobile device to access the agenda, view poster presentations, read speaker bios, and connect with attendees via social media all from your phone or tablet.

 
 

7/13/2015

Community Based Literacy Options for Adults with IDD (OH UCEDD/LEND)

Dr. Tom Fish and his colleagues at The Ohio State University Nisonger Center recently received funding to further develop the Jot It Down writing club program. Jot It Down is a community-based writing club that grew out of our experience developing and disseminating the nationally recognized Next Chapter Book Club. Jot It Down (JID) focuses on creativity and self-expression, as opposed to traditional writing instruction.

 
 

7/13/2015

Early Childhood Leadership Institute (CT UCEDD)

The University of Connecticut Center on Excellence in Developmental Disabilities sponsored a Leadership Institute in May of 2015 as part of the Early Childhood Personnel Center (ECPC). The purpose of the institute was to bring together states who have been participating in ECPC activities on workforce development. The participating states are receiving technical assistance on the integration of the Part C and Part B/619 programs into their states early childhood planning activities.

 
 

7/13/2015

Transition Fair: Passport to a Healthy Future (OR LEND)

On Saturday, May 30th the Institute on Development and Disability (IDD) sponsored the 2nd annual Transition Fair: Passport to a Healthy Future at the Collaborative Life Sciences Building on the South Waterfront. With roughly 150 participants, 30 vendors, and seven guest speakers, this year's Transition Fair was a huge success.

 
 

7/12/2015

AUCD signed onto a Letter supproting the Home and Community Based Settings (HCBS) rule

issued by the Centers for Medicare & Medicaid Services (CMS) in January 2014.
pdf File HCBS Rule National Letter - FINAL.pdf [download]
 
 

7/10/2015

AUCD sent a letter to HELP Committee Staff Members

advocating for transparent annual testing of all students, dis aggregated by race, income and disability
pdf File AUCD letter re participation rate.pdf [download]
 
 

7/10/2015

National Disability Institute: IRS Issues Proposed ABLE Act Regulations

pdf File ABLE Reg Highlights Ltrhd(2).pdf [download]
 
 

7/9/2015

AUCD letter a letter to members of Congress opposing Amendment No. 29 to The 21st Century Cures Act (HR 6)

pdf File AUCD letter re Cures Amendment.pdf [download]
 
 

7/9/2015

AUCD letter to Congress Urging a "No" Vote on Amendment No. 29 to the 21st Century Cures Act (H.R. 6)

pdf File AUCD letter re Cures Amendment (2).pdf [download]
 
 

7/8/2015

AUCD joined 250 other organizations supporting the 21st Century Cure Act

pdf File NHC 21CC Sign on Letter 6 18.pdf [download]
 
 

7/8/2015

CCD Letter on Scott Substitute to Student Success Act

pdf File CCD Letter on Scott Substitute to Student Success Act.pdf [download]
 
 

7/8/2015

CCD Letter to the House of Representatives on Student Success Act

pdf File CCD Letter to House of Representatives on Student Success Act.pdf [download]
 
 

7/8/2015

National Survey Demonstrates That People with Disabilities are Striving to Work and Overcoming Barriers (NH UCEDD/LEND)

Americans with disabilities are striving to work and overcoming barriers to employment. This is a key finding of the 2015 Kessler Foundation National Employment and Disability Survey, the first nationally representative survey on the workplace experiences of Americans with disabilities, presented by experts today on Capitol Hill. The survey of 3,013 people with disabilities, aged 18 to 64, was commissioned by Kessler Foundation and conducted by the University of New Hampshire.

 
 

7/8/2015

Vermont and New Hampshire UCEDDs to Work Together

Vermont's UCEDD, the Center on Disability and Community Inclusion (CDCI) at the University of Vermont has received a $3.5 million grant from the U.S Department of Education to test the RENEW intervention. CDCI will collaborate with the University of New Hampshire's Institute on Disability (IOD) to conduct the trial. The primary goal of the grant is to test whether students who receive RENEW have better outcomes than students receiving typical services. Suter and co-principal investigator Dr. JoAnne Malloy of IOD's RENEW Project, and clinical assistant professor at the University of New Hampshire, will test for differences in student engagement, self-determination, social support, as well as academic and behavioral functioning.

 
 

7/7/2015

A letter from the Leadership Members of the New Democrat Coalition and Education Task Force Co-Chairs

expressing the need for changes to the Senate re-authorization of ESEA
pdf File New Dem ESEA Senate Letter.pdf [download]
 
 

7/2/2015

AUCD signed on to a letter in support of HR 1919 the Steven Gleason Act

pdf File Final Gleason Act support letter July.pdf [download]
 
 

7/2/2015

Disability.Blog: The ADA and Claiming Disability

by Andy Imparato, Executive Director, AUCD

This month, as we reflect on 25 years of implementation of the Americans with Disabilities Act (ADA), it is easy to focus on the letter of the law and miss the larger message of this historic legislation. For me, the greatest value of the ADA has been its role in framing disability as a natural part of the human experience and branding discrimination against children and adults with disabilities as something that is unlawful, unnatural and unnecessary.

 
 

7/1/2015

Press Release: American Airlines Helps Launch America's First Disability Rights Museum on Wheels

Today, the US Business Leadership Network (USBLN) officially announced American Airlines has come on board as a Tour Partner of America's Disability Rights Museum on Wheels (DRMW), the country's first disability rights mobile museum.

 
 

6/30/2015

AUCD Welcomes Danny Ricci as Projects Intern

Danny Ricci serves as a summer 2015 projects intern at the Association of University Centers on Disabilities. Danny assists with various tasks throughout the office as necessary, but is especially interested in the area of how public policy created through executive and legislative means affects disability rights.

 
 

6/29/2015

Are You Looking for a Behavioral Health Master's Program Focusing on Developmental Disabilities? (FL UCEDD)

This ONLINE degree through the University of South Florida prepares professionals to understand, apply, and evaluate systems, policy, and evidence-based practices for children and adolescents with developmental disabilities and mental health needs.

 
 

6/29/2015

Disability Issues Prominently Featured at University of Iowa Culturally Responsive Health Care Conference (IA UCEDD)

Staff from the Center for Disabilities and Development (CDD-Iowa's UCEDD) recently facilitated the inclusion of two disability-focused presentations at the interdisciplinary "Culturally Responsive Health Care in Iowa" conference held in Iowa City on June 5. The conference, which attracted nearly 200 health practitioners, educators, and students, was jointly sponsored by the University of Iowa's Health Sciences Colleges, University of Iowa Health Care, the University of Iowa College of Public Health, and the Center for Disabilities and Development.

 
 

6/29/2015

Former LEND trainees participate in discussion panel (NY LEND)

New York Medical College student-created organization CONFIDDE (Collegiate Organization for Further Intellectual and Developmental Disability Education) hosted a panel discussion to discuss topics of self-advocacy, healthcare accessibility and communication with people with intellectual and developmental disabilities (I/DD). The panel included professionals from the healthcare field, family members and a self-advocate. Of the 5 panelists, 4 were former WIHD LEND Trainees.

 
 

6/29/2015

Harolyn Belcher Appointed to Leadership Position in LEND Program

Harolyn Belcher, MD, MHS, was recently appointed associate director of the Leadership Education in Neurodevelopmental Disabilities (LEND) program at Kennedy Krieger Institute in Baltimore, MD. Dr. Belcher is a neurodevelopmental pediatrician and research scientist at Kennedy Krieger Institute. She has been the director of research at the Kennedy Krieger Institute Family Center since 2003.

 
 

6/29/2015

Institute and Staff Member Honored (PA UCEDD)

Institute and Staff Member Honored The Institute on Disabilities at Temple University in Pennsylvania was awarded a commendation in early June by the Pennsylvania Department of Labor and Industry, Office of Vocational Rehabilitation, Bureau of Blindness and Visual Services and the Advisory Committee for the Blind of Pennsylvania as an "Outstanding Employer of an Employee with a Visual Impairment."

 
 

6/29/2015

Maine UCEDD Honors Retiring Director Lu Zeph and Four 2015 Daring to Dream Award Recipients

On June 18, 2015, the University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD) hosted a celebration to honor retiring Director, Lu Zeph, and four recipients of the Center�s 2015 Daring to Dream Awards. A photo album from the celebration is available on the Maine UCEDD�s Facebook page.

 
 

6/29/2015

MCDD Law Trainee Public Service Law Fellowship (MD UCEDD)

Hilary Tebeleff, a law trainee at the Maryland Center for Developmental Disabilities, earned the 2015 Walter Sondheim Jr. Maryland Public Service Law Fellowship. Hilary is a rising third-year law student at the University of Maryland Francis King Carey School of Law, who dedicated more than 510 hours of service to Project HEAL (Health, Education, Advocacy, and Law) during three semesters of law school.

 
 

6/29/2015

Online Graduate Certificate Program: Positive Behavior Support (FL UCEDD)

The University of South Florida (USF) offers a fully online Graduate Certificate in Positive Behavior Support. This certificate program offers an evidence-based approach to resolving challenging, and supporting prosocial, behavior in children and youth within schools and early education settings. The certificate will benefit students by equipping them with necessary skills to provide systemic applications of PBS.

 
 

6/29/2015

The ECP June Guest Blogger is Julia Nelson

AUCD is happy to announce the Early Career Professionals' June guest blogger - Julia Nelson. She is a recent LEND graduate from the University of Arizona, and shares her message of proactive unemployment prevention for students with disabilities. Please take a moment to read "One Simple Goal."

 
 

6/29/2015

WIHD NY LEND Trainees graduate

The WIHD LEND Training Program conducted its Graduation on May 7, 2015. The 19 Trainees in the Class of 2015 were joined by faculty, mentors, LEND alumni, family and friends in marking their accomplishments during a poster session, the graduation ceremony and a celebratory luncheon. Congratulations on a fantastic year!

 
 

6/26/2015

Director of Indiana Institute on Disability and Community Announces Retirement (IN UCEDD)

David Mank, director of the Indiana Institute on Disability and Community, a federally designated Center for Excellence in Developmental Disabilities, has announced his retirement. Mank has been director of the center since 1996.

 
 

6/26/2015

The DD Act Partners: The Association of University Centers on Disabilities (AUCD), National Association of Councils on Developmental Disabilities (NACDD), and the National Disability Rights Network (NDRN)

wrote a letter to express dissatisfaction with the cuts to DD programs in FY 2016 Appropriations Bill
pdf File DD Act program cuts letter to Senate - final.pdf [download]
 
 

6/26/2015

UNH Institute on Disability's RENEW Program begins a 4 year evaluation Process with Grant (NH UCEDD/LEND)

The Institute on Disability (IOD)at the University of New Hampshire is part of a research team led by the University of Vermont that has received a four-year, $3.5 million grant from the Institute of Education Science's National Center for Education Research to conduct a multisite randomized control trial of the RENEW intervention. The Rehabilitation for Empowerment, Natural Supports, Education, and Work (RENEW) model, developed by IOD staff in 1996, is a promising individualized intervention for high school students with significant mental health challenges.

 
 

6/25/2015

AUCD Diversity and Inclusion Blueprint

This one-year initiative is funded by AIDD to enhance diversity and cultural competence of faculty, staff and students; cultivate partnerships; respond to increasingly diverse communities across the country; and develop strategies for continuing efforts.

 
 
Photo by David Sachs / SEIU

6/25/2015

AUCD's Statement on the US Supreme Court Decision in the King v. Burwell Case

Today The US Supreme Court released a decision in the King v. Burwell case, which challenged a portion of the Patient Protection and Affordable Care Act (ACA).

 
 

6/24/2015

Announcing the MCH Navigator's 5-Minute MCH

Beginning in July 2015, the MCH Navigator will conduct a monthly series that explores each of the 12 MCH Leadership Competencies, provides learning opportunities and implementation strategies, and culminates in an interactive learning session with an expert from the field. The series will consist of an easy-to-follow format designed to increase your knowledge and skills through 5-minute intensive learning sessions emailed to you each week and available through the Navigator's web portal.

 
 

6/24/2015

Avonte's Law of 2015 Summary

pdf File AUCD Summary Avonte's Law.pdf [download]
 
 

6/19/2015

AUCD submitted Comments on Proposed Rule, Amendments to Regulations Under the ADA

pdf File Prevention-Wellness Rule 06-19-15.pdf [download]
 
 

6/19/2015

Members of CCD submitted comments to the EEOC

on Proposed rule, Amendments to Regulations under the ADA
pdf File CCD comments on EEOC NPRM re wellness programs ADA.pdf [download]
 
 

6/18/2015

AUCD joined 250 other organizations in a letter in support of the 21st Century Cures Act (HR 6)

pdf File NHC 21CC Sign on Letter 6 18.pdf [download]
 
 

6/18/2015

AUCD signed onto a letter to the Senate Finance Committee

responding to the Committee's request for input on policy initiatives to facilitate the delivery of high-quality care for people with Medicare living with multiple chronic conditions.
pdf File FINAL SF Chronic Care Consumer SignOn.pdf [download]
 
 

6/18/2015

In Anticipation of the Senate Mark-Up of Every Child Achieves Act (ECAA) (S.1177) AUCD signed onto a Letter

with the Civil Rights Community at-large Expressing a desire for a Strong Education Bill
pdf File FullSenateLetterFINAL061715.pdf [download]
 
 

6/18/2015

IU Policy Brief Examines Superintendents' Perceptions of Indiana's Teacher Evaluation (IN UCEDD)

School superintendents in Indiana remain generally positive but have important reservations about recent changes to teacher evaluation, according to a policy brief by the Center on Education and Lifelong Learning at Indiana University Bloomington.

 
 

6/12/2015

AUCD Welcomes Easton Gragg as Policy Intern

Easton Gragg is currently serving as a policy intern for AUCD this summer, but during the fall and spring he studies economics and statistics at Wake Forest University.

 
 

6/11/2015

Community Consultation Program at Strong Center for Developmental Disabilities: New Teleconsultation Pilot to Improve Access to Underserved Populations in NYS (NY UCEDD/LEND)

The Community Consultation Program (CCP) at the Strong Center for Developmental Disabilities offers evidence-based technical assistance and training, as well as continuing education and staff development programs, throughout New York State. The program supports school teams and other professionals who work with children that have a variety of educational and/or behavioral challenges including: Autism Spectrum Disorder (ASD), Behavioral and Emotional Challenges, Deafness/Blindness, Intellectual and Developmental Disabilities, Medical Fragility, and Sensory Impairment.

 
 

6/10/2015

Quick Start Guide to Educating Policy Makers

Members of the AUCD Network have a Congressional mandate to educate policy makers. This guide (free to download) describes the processes involved in legislation and provides suggestions for maximizing the effectiveness of your interactions with policymakers.

 
 

6/8/2015

AUCD joined more than 50 Civil Rights organizations to oppose H.R. 2577

The Transportation, Housing and Urban Development, and Related Agencies Appropriations Act for FY 2016

This amendment to the Transportation, Housing and Urban Development Appropriations Bill would would prohibit HUD from enforcing its disparate impact rule.

pdf File 150605 Coalition Letter Opposing Garrett DI Amendment to H.R. 2577.pdf [download]
 
 

6/8/2015

AUCD Welcomes Tiffany Putt as Projects Intern

Tiffany is a graduate student at Gallaudet University where she is pursuing in dual Master's degree program in Public Administration and International Development. Tiffany got accepted to American Association of People with Disabilities (AAPD) internship, which guided her to work with AUCD to serve as a self-advocate and to serve as an advocate for the disability community.

 
 

6/8/2015

Tri Caucus Dear-Colleague letter to Chairman Alexander and Ranking Member Murray of the HELP Committee

Outlining Four Major Areas of Concern in the Every Child Achieves Act

The Congressional Asian Pacific American, Black , and Hispanic Caucuses also known as the Congressional Tri-Caucus- prepared a Dear-Colleague letter to Senate Committee Chairman Alexander (R-TN) and Ranking Member Murray (D-WA) outlining four major areas of concern that need to be addressed in the bill to reauthorize the Elementary and Secondary Education Act (Every Child Achieves Act of 2015).

pdf File FINAL Tri-Caucus ESEA Letter - territories added (3).pdf [download]
 
 

6/8/2015

University of Iowa Ramps Up Accessibility Efforts - Brings People with Disabilities into the Loop (IA UCEDD)

The University of Iowa (UI) continues to make strides in becoming a model campus for accessibility and universal design. In the past year alone, dozens of improvements, including remodeling projects, stair removal, installation of hearing loops, and development of a wayfinding app to assist individuals who are blind or visually impaired, have been completed. Leading the way in this effort is Brian Manternach, UI Facilities Management Accessibility Coordinator. Manternach credits his association with the Center for Disabilities and Development (CDD), Iowa's UCEDD, for heightening his consciousness concerning the needs of individuals with disabilities and for assistance with moving accessibility initiatives forward.

 
 

6/4/2015

AUCD signed onto a Letter as a Part of a Coalition Advocating for a ban on Aversive Conditioning Devices

To the Commissioner of the Food and Drug Administration
pdf File 2015-06-04 Letter to FDA re JRC (2).pdf [download]
 
 

5/29/2015

AUCD Comment on National Coverage Determination 50.1 Speech-Generating Devices

pdf File Comments of the Association of University Centers on Disabilities (2).pdf [download]
 
 

5/29/2015

AUCD signed onto a letter as a part of the Independence Through Enhancement of Medicare and Medicaid Coalition (ITEM)

on National Coverage Determination 50.1 Speech-Generating Devices
pdf File ITEM Coalition Comments Regarding Draft NCD on SGDs (D0604361).pdf [download]
 
 

5/29/2015

MCDD Law Trainee Receives the The Joseph Bernstein Prize (MD UCEDD/LEND)

Jaclyn A. Machometa, a Maryland Center for Developmental Disabilities law trainee, received the The Joseph Bernstein Prize from the University of Maryland Francis King Carey School of Law in Baltimore on May 14, 2015. Jaclyn received the distinguished award for being adjudged by the facutlity advisor of the University of Maryland Journal of Race, Religion, Gender, and Class to have submitted the most significant piece of legal writing for publication.

 
 

5/28/2015

CCD co-Chair letter thanking Senator Casey for removing his support an amendment to raise the 1% cap

pdf File CCD thank you to Sen Casey.pdf [download]
 
 

5/28/2015

CCD co-Chair letter thanking Senator Isakson for removing his support an amendment to raise the 1% cap

pdf File CCD thank you to Sen Isakson.pdf [download]
 
 

5/28/2015

CCD co-Chair letter thanking Senator Murphy thanking him for introducing the Every Child Counts Act (S.516)

pdf File CCD thank you to Sen Murphy.pdf [download]
 
 

5/22/2015

Philip Smith, PhD (NJ UCEDD) Honored as Educator of the Year

Community Access Unlimited honored Philip Smith, PhD, as Educator of the Year at its annual Awards Night Celebration on April 8, 2015. The award recognized Dr. Smith�s hard work and dedication in providing training that helps ensure the staff of Community Access Unlimited can reach their full potential when supporting individuals with disabilities.

 
 

5/22/2015

Stories from Young Adults with Disabilities about Spirituality and Their Transition to Independence (OR UCEDD)

The Interfaith Disabilities Network of Oregon (IDNO) sponsored its second annual conference on spirituality and disability, Beyond the Ramp: Treat Me as a Member, Not a Mission. Held in a Portland-based university setting, approximately 60 people including members of the clergy, lay leaders, people with disabilities and their families attended this event.

 
 

5/22/2015

There is still time to apply! Call for Applications - 2015-2016 Virtual Trainee

Applications Due May 29, 2015

The AUCD Virtual Trainee will use leadership skills to build relationships and communications among trainees throughout the nationwide AUCD network of UCEDDs and LENDs.

 
 

5/21/2015

AUCD2015: Calling Awards Nominations

Deadline: September 11, 2015

Who do you know that deserves recognition? Nominate an outstanding individual, group, or program today for an AUCD award.

 
 

5/20/2015

IOD Program Participants Work to Pass Groundbreaking Legislation (NH UCEDD/LEND)

On Thursday, May 7, 2015 Governor Maggie Hassan signed into law SB-47, which repealed statutes allowing employers to pay individuals with disabilities less than the state minimum wage because of their disability status. New Hampshire is the first state in the country to pass this legislation.

 
 

5/18/2015

Mobile App in Delaware Empowers Young Adults with Special Healthcare Needs (DE UCEDD)

Healthy Transitions is a new mobile application designed by the University of Delaware's Center for Disabilities Studies to help young adults with special healthcare needs build skills needed to gain independence and manage their own healthcare. The app features videos that explain how to handle real life scenarios and an interactive game to reinforce the ideas presented in the videos. The videos are categorized into four sections; healthcare, insurance, healthy lifestyles and relationships.

 
 

5/18/2015

Vermont LEND has a New Name!

The Vermont LEND is proud to announce that on May 1, 2015, they have officially changed their program's name from Vermont Interdisciplinary Leadership Education for Health Professionals (VT-ILEHP) to Vermont Leadership Education in Neurodevelopmental Disabilities (VT LEND).

 
 

5/14/2015

Act Early Northeast Regional Developmental Screening, Referral and Response Conference

The Act Early Ambassadors from the Northeast States have news to share on the Northeast Regional Developmental Screening, Referral and Response Conference scheduled on May 21 and May 22 in Hartford, CT. The conference will provide a unique opportunity to exchange national and state information on early identification, developmental screening, referral and response strategies and time for state teams to enhance state autism plans. Each state invited up to fourteen stakeholders committed to early identification, developmental screening, and referral and response activities. Breakout sessions are woven in to the agenda to allow time for state teams to gather and identify two to four strategies and outcomes to enhance their state autism plan.

 
 

5/11/2015

LCCHR letter to Chairman Alexander and Ranking Member Murray

pdf File Civil Rights Coalition Letter Every Child Achieves (2).pdf [download]
 
 
Students in the first graduating cohort of TOPS toss their caps in the air in celebration after a commencement ceremony on May 8. Credit: Amanda Etchison / Campus Editor

5/11/2015

Ohio State's TOPS Program Celebrates its first Commencement (OH UCEDD/LEND)

A soft recording of "Pomp and Circumstance" played as the doors to the Ross Heart Hospital auditorium swung open to reveal a line of seven beaming soon-to-be-graduates. Wearing traditional black robes and scarlet and gray tassels, the students - the first graduating cohort from the Transition Options in Postsecondary Settings program - walked single file to their seats at the front of the room, sat down and eagerly awaited for their moment to walk across the stage and receive their certificates at a commencement ceremony held on Friday.

 
 

5/11/2015

Shared Civil Rights Principles for the Re authorization of ESEA

pdf File CivilRightsPrinciples040715.pdf [download]
 
 

5/11/2015

The Four Major Concerns Shared by the Civil Rights Community about the re authorization of ESEA

pdf File FourBigConcernsDoc041215.pdf [download]
 
 

5/7/2015

Become an AUCD Conference Partner Today!

AUCD Members Receive Discounted Rates Until August 1

Over 700 community leaders, researchers, policy makers, practitioners, professionals, advocates, and students will join forces in November in their commitment to change the world for people with disabilities and their families. Packed with workshops, meetings, receptions, and plenaries, the AUCD conference is designed to promote innovative thinking that will catapult disability policy, research, and advocacy initiatives to the next level.

Sponsors of the conference will have direct access to AUCD's $660 million national network of directors, researchers, practitioners, and advanced-level Fellows representing university based programs from every state and territory. Best of all, you'll join an increasingly dynamic conversation focused on the support, inclusion, and well-being of people with disabilities, and demonstrate your organization's commitment to this population.

 
 

5/7/2015

New York State Partnerships in Employment (NYS PIE): Helping to advance Employment First Policy in NY (NY UCEDD/LEND)

Strong Center for Developmental Disabilities (SCDD) at the University of Rochester Medical Center, currently directs the New York State Partnerships in Employment Project (NYS PIE). NYS PIE is a Project of National Significance funded by AIDD to promote systems alignment in support of competitive, integrated employment for youth and young adults with intellectual and developmental disabilities. One deliverable of this effort is to coordinate with state agencies and relevant stakeholder groups to advance the development of an Employment First Policy for New York.

 
 

5/5/2015

2,000 Participants Learn About Disabilities Through The Boggs Center's (NJ UCEDD) Disability Trivia Prize Wheel Booth at Rutgers Day

On April 25, 2015, The Boggs Center participated in Rutgers Day, an annual, family-oriented open house held on the Douglass/Cook, College Avenue, and Busch Campuses to highlight the University's schools, centers, institutes, and programs as well as the valuable contributions Rutgers makes to those in New Jersey and beyond. This year's event was attended by a record 91,000 people on all three campuses.

 
 

5/5/2015

Military Flag Dedicated to Kennedy Krieger (MD UCEDD/LEND)

On December 11, 2014, the Department of Neuropsychology hosted a special guest at its annual holiday party-Captain Michael Yates, US Army. Dr. Yates is a former neuropsychology doctoral trainee who recently returned from a tour of duty in Afghanistan with the 2nd Brigade Combat Team 101st Airborne Division. During his service as an Army psychologist in the Laghman Province of Eastern Afghanistan, Dr. Yates arranged for an American flag to be flown in honor of Kennedy Krieger Institute on June 20, 2014, at the Forward Operating Base Gamberi, in recognition of all who have served in support of Operation Enduring Freedom.

 
 

5/5/2015

NCD Applauds Maria Town's Appointment as Associate Director to the Office of Public

The National Council on Disability (NCD), an independent federal agency that advises the President, Congress and other federal agencies on disability policy, applauds the appointment of Maria Town to the post of Associate Director in the Office of Public Engagement at the White House. In this position, Town will manage the Office of Public Engagement's disability and Federal agency portfolios. Maria's position will be permanent and is not a "detail" or temporary placement. Prior to her appointment in the Executive Branch, Town was a Policy Advisor at U.S. Department of Labor Office of Disability Employment Policy (ODEP). While at ODEP, Maria's led or coordinated numerous efforts to improve employment outcomes for youth and young adults with disabilities. She has particular expertise in areas of youth development

 
 
Deborah Spitalnik and Andrew Solomon

5/5/2015

The Boggs Center (NJ UCEDD) Celebrates 250th Session of the Developmental Disabilities Lecture Series

The Boggs Center held its 250th Developmental Disabilities Lecture Series (DDLS) on Friday, April 17th. This milestone event featured presentations from two speakers: New York Times best-selling author Andrew Solomon, PhD, and The Boggs Center's founding Executive Director Deborah Spitalnik, PhD. Dr. Spitalnik began the session with "The Context for Our Empathy," a presentation tracing the structure of disability policy, trends in supports and services, and the cumulative impact on the lives of people with developmental disabilities, their families, and those who work on their behalf. Dr. Solomon shared his experiences writing Far From the Tree: Parents, Children, and the Search for Identity, an examination of the means by which families accommodate and embrace their children with physical, mental, and social disabilities.

 
 

5/1/2015

South Carolina LEND and Georgia LEND Collaborate at Regional Conference

The South Carolina annual regional Developmental-Behavioral Pediatrics Update Conference, Nurturing Developing Minds, provided another opportunity for SC LEND and Georgia LEND to collaborate in February, 2015.

 
 
(L-R) Vivian Jackson, Bonnie Brandt, Tawara Goode, and Mariles Benavente

4/29/2015

Addressing Disparities through Cultural & Linguistic Competence (GU UCEDD)

Guam CEDDERS staff provided technical support during the "Addressing Disparities through Organizational Cultural and Linguistic Competence Conference" and work sessions conducted by Tawara Goode and Vivian Jackson from January 26-28, 2015.

 
 

4/29/2015

Angela Tomlin, PhD, IN LEND Director receives "Inspirational Woman" Award

At the end of March, women faculty, staff and student leaders were recognized and celebrated at the Annual Women's Leadership Awards Reception sponsored by the Office for Women and the Office of Student Involvement. The awards highlight the campus celebration of Women's History Month, which this year featured the theme, "Weaving the Stories of Women's Lives."

 
 

4/29/2015

Ohio's LEND Trainees Showcase Their Research at the UC UCEDD-Nisonger Poster Symposium

In the entire state of Ohio, there are 39 trainees enrolled in the LEND program. The program culminates with an annual poster symposium featuring the trainees' research projects. This year, Cincinnati Children's Hospital Medical Center had the honor of hosting the event.

 
 

4/29/2015

Southeastern Postsecondary Education Alliance Holds Capacity Building Institute at Georgia State University (GA UCEDD/LEND)

The Center for Leadership in Disability (CLD) at the Georgia State University (GSU) School of Public Health hosted the inaugural Southeastern Postsecondary Education Alliance Capacity Building Institute on April 16 & 17, 2015. The event welcomed college & university personnel, students, and professionals to the GSU campus. There were 23 colleges & universities represented from eight Southeastern states.

 
 

4/28/2015

Living and Working Well with a Disability (MT UCEDD)

Living and Working Well with a Disability are peer-led, evidence-based health promotion programs for people with disabilities that have been shown to reduce the incidence and severity of secondary conditions and improve overall quality of life.

 
 

4/28/2015

Testimony by Rachel Gandell, on Behalf of the Friends of NICHD

Subcommittee on Labor, Health and Human Services, Education and Related Agencies

Testimony submitted to the Labor, Health and Human Services, Education, and Related Agencies Appropriations Subcommittee by Rachel Gandell the Chair of the Friends of the Eunice Kennedy Shriver National Institute of Child Health and Human Development (NICHD).

pdf File FNICHD Testimony FY16.pdf [download]
 
 

4/28/2015

The Transition Alliance of SC: Building Capacity Statewide by Scaling Up Local Interagency Teams (SC UCEDD)

South Carolina's UCEDD, the Center for Disability Resources (CDR) at the University of South Carolina's School of Medicine, is spearheading a statewide initiative to improve secondary transition programming and practices for students with intellectual or developmental disabilities. The CDR is partnering in this effort with other state stakeholders via the Transition Alliance of South Carolina (TASC), the statewide interagency transition team. Utilizing funding and support from TASC partners, project staff housed at the Center for Disability Resources has initiated the development of an infrastructure to support local interagency transition teams as they increase their capacity to collaboratively and effectively serve young adults with ID/DD who are transitioning from high school to adult-life.

 
 
Dr. Antosh speaks at the Congressional Autism Caucus Briefing on April 23, 2015

4/24/2015

Rhode Island UCEDD Director Dr. Anthony Antosh Speaks at Congressional Autism Caucus Briefing

On Thursday, April 23rd, 2015, Congressmen Chris Smith (R-NJ) and Mike Doyle (D-PA), Co-Chairs of the Coalition for Autism Research and Education, hosted a congressional Hill briefing on "Autism and the Aging Out Crisis." The briefing was held to shine a spotlight on the need for increased federal support for improved transition services for the youth and young adults with autism and their families.

 
 
Va-LEND Trainees

4/22/2015

Va-LEND Trainee Poster Presentations

On Wednesday, March 25, 2015 Virginia Leadership Education in Neurodevelopmental Disabilities (LEND) held its annual Research Poster Fair at the Kontos Medical Science Building at Virginia Commonwealth University, Medical Campus. Fourteen LEND trainees representing Occupational Therapy, Speech Language Pathology, Physical Therapy, Genetics, Nursing, Education, Social Work and Family disciplines presented posters based on original research or a literature review on a selected topic related to childhood disabilities.

 
 

4/21/2015

Autism NOW Employer Toolkit

Autism NOW created a toolkit and designed it for employers to hire, train, and retain employees with an ASD as well as other disabilities.

 
 

4/20/2015

2015 DBP Annual Meeting Overview

The annual meeting of the MCHB-funded Leadership Education in Developmental Behavioral Pediatrics (DBP) Training Programs was hosted by the Children's Hospital of Philadelphia DBP program on March 18-20, 2015. Approximately 35 faculty and 40 fellows from the 10 funded DBP training programs were in attendance at the meeting.

 
 

4/16/2015

Statement from U.S. Secretary of Education Arne Duncan on Senate HELP Committee's Markup of the No Child Left Behind Act

 
 

4/13/2015

It Takes a Village to Raise the Bar on Early Autism Identification and Referral

The Utah Regional LEND program is tackling the problem of low identification rates for autism in children under 3 years. Within our five-state LEND, one state, Utah, has been part of the CDC/ADDM autism prevalence studies for several years. Although Utah's prevalence rate is always one of the highest, only 33% of children with autism are identified in medical or educational records before age 3. To change this statistic, URLEND trainees worked across organizational and agency boundaries to create a statewide Network for Early Autism Response.

 
 

4/13/2015

Letter to Chairman Alexander and Ranking Member Murray of the Senate HELP Committee

from CCD expressing concerns with the current reauthorization of ESEA

The Consortium for Citizens with Disabilities (CCD) sent a letter to the Chairman and Ranking Member Murray of the Senate Health, Education, Labor and Pensions Committee. The letter expresses CCD's desire to have meaningful access to rigorous standards for all students and fully include students with disabilities in our local education system.

pdf File CCD Letter ECAA FINAL4 10 2015.pdf [download]
 
 
Dr. David Wacker & Dr. Alyssa Suess (former ILEND trainee) discussing telehealth case

4/13/2015

University of Iowa Telehealth Project Brings Behavioral Treatment for Autism to Rural Areas

The intent of this project is to evaluate the effectiveness and efficiency of conducting behavioral treatment for autism through telehealth to reach underserved areas of a rural state. The study is testing whether functional analysis and functional communication training, conducted through telehealth, are effective in reducing disruptive behavior and increasing positive social behaviors in young children with autism spectrum disorders.

 
 

4/11/2015

Problem-solving Skills Training for Mothers of Children Recently Diagnosed with Autism Spectrum Disorder: A pilot feasibility study

The objective of this study was to see whether mothers of children recently diagnosed with autism spectrum disorder would be receptive to receiving problem-solving skills training (feasibility trial).

 
 

4/10/2015

10 Reasons why an Alternate Assessment Should be Capped at 1% for All Students

Consortium for Citizens with Disabilities info graphic on the effect of the 1% cap on alternate assessment.

pdf File 1 percent rationale final 040815.pdf [download]
 
 

4/10/2015

Developmental Disabilities and Transition

Got Transition has updated an extensive set of resources related to health care transition, including a section on Developmental Disabilities and transition.

 
 
Image: Accessing Healthcare: The Experience of Individuals with Autism Spectrum Disorders in Maine (report cover)

4/10/2015

ME UCEDD, NH LEND Faculty and Trainees, and Maine DD Council Collaborate on Research Report on Healthcare Access for Individuals with ASD in Maine

The University of Maine Center for Community Inclusion and Disability Studies, Maine's University Center for Excellence in Developmental Disabilities (UCEDD) and also a NH LEND program partner; recently collaborated with the Maine Developmental Disabilities Council on a research report, Accessing Healthcare: The Experience of Individuals with Autism Spectrum Disorders in Maine (2014).

 
 

4/10/2015

The art of camouflage: Understanding the social behaviors of girls with ASD

 
 

4/9/2015

Andy Pohl, PhD Selected for the Inaugural Morgridge Institute for Research Postdoctoral Fellows Program (WI UCEDD/LEND)

Andy Pohl, PhD, is one of three scientists selected for the inaugural Morgridge Institute for Research Postdoctoral Fellows program designed to prepare promising young scientists for a changing research landscape. Pohl's UW research mentor is Albee Messing, VMD, PhD, Waisman Center interim director.

 
 

4/9/2015

Don't Undo the Nation's Education Progress

Opinion

Opinion piece by Thomas J. Donohue president and chief executive of the U.S. Chamber of Commerce and Wade Henderson the president and chief executive of the Leadership Conference on Civil and Human Rights.

 
 

4/8/2015

Dr. Theodore Kastner to Assume Leadership Role at the Kennedy Center at Albert Einstein College of Medicine and Montefiore Medical Center (NY UCEDD)

Albert Einstein College of Medicine of Yeshiva University and Montefiore Health System have named Theodore A. Kastner, M.D., co-director of the Kennedy Center, whose mission is to improve the quality of life of people with intellectual and developmental disabilities and their families, and director of its primary clinical arm, the Children's Evaluation and Rehabilitation Center (CERC). Dr. Kastner assumed the new post on April 6.

 
 

4/8/2015

Unmet Need for Therapy Services Among Children with Autism Spectrum Disorder

This HRSA R40 Secondary Data Analysis Study examined population-based differences in need for and access to therapy services in children with ASD as compared to CSHCN across two cross-sectional waves of the National Survey for Children with Special Health Care Needs (NS-CSHCN; Centers for Disease Control & Prevention, National Center for Health Statistics).

 
 

4/7/2015

New Report Outlines Opportunities, Challenges for LEND and DBP Programs

As the next five-year funding cycle for the Leadership Education in Neurodevelopmental and Related Disabilities (LEND) programs approaches, AUCD took the opportunity to pause and engage in strategic thinking about future directions for the LEND and Developmental Behavioral Pediatrics (DBP) training programs.

 
 

4/6/2015

Massachusetts: Considering Culture in Autism Screening

During the 2015 AMCHP Annual Conference, Massachusetts state team leads presented a skills-based training session on its Considering Culture in Autism Screening curriculum. This interactive, case-based training session focused on about culturally competent screening, evaluation, and referral to intervention services for children with autism spectrum disorder (ASD)/developmental disabilities (DD).

 
 

4/6/2015

Now Archived: What to Know Before You Go: Preparing for the Disability Policy Seminar 2015

This webinar, presented by Kim Musheno, Director of Public Policy at AUCD, offers students, trainees and early career professionals an orientation to the policy issues and current legislation one can expect to learn more about at the 2015 Disability Policy Seminar. Attendees will learn the basics of how to make an appointment to meet with Congressional representatives, and how to deliver a unified message about federally funded programs that benefit people with disabilities.

 
 

4/6/2015

OHSU Autism Webinar Series

Please join the OHSU Institute on Development & Disability as we help celebrate Autism Awareness Month with a month-long Wednesday webinar series!

 
 

4/6/2015

The Autism Society National Autism Awareness Month 2015 toolkit is here!

The Autism Society is providing you with this toolkit to complement your National Autism Awareness Month programming and hope you will share it with your partners, collaborators, supporters and constituents. The digital guide contains a wealth of promotional resources and collateral to enhance your National Autism Awareness Month campaign.

 
 
Naomi Camper, Director of JPMorgan Chase's Office of Nonprofit Engagement

4/3/2015

JP Morgan Chase & Co.: Supporting Leaders, Driving Change in the Disability Community

AUCD is honored to partner with JPMorgan Chase & Co., a leading global financial services firm and a true partner to the disability community. As our 2015 Corporate Leadership Sponsor, JPMorgan Chase will support both the AUCD Trainee Policy Summit and Reception on April 12th, and our November 2015 Annual Conference: Growing Leaders, Driving Change. This premier sponsorship is part of JPMorgan Chase's ongoing commitment to advancing economic and social opportunities for people with disabilities and other at-risk populations.

 
 

4/2/2015

AUCD2015: Growing Leaders, Driving Change

The 2015 AUCD Conference will examine how we develop strong leaders, support them in their work, and collaborate across the network and with partners in the field to reach our mutual goals.

 
 

4/2/2015

AUCD2015: Submit a Proposal Today

Deadline: June 5

AUCD is currently accepting proposals for our 2015 conference. This call for papers includes submissions for concurrent interactive presentations, concurrent panel presentations, single presentations, and posters. Proposals are welcomed on a multitude of topics on all things disability, including but certainly not limited to advocacy, behavior supports, disability studies, employment, health and wellness, leadership development, self-determination, technology, and much more.

 
 

4/2/2015

March was Developmental Disabilities Awareness Month: Watch our Videos

To increase awareness of the contributions of people with developmental disabilities during the month of March, AUCD asked individuals with developmental disabilities "What issues or experiences do you feel comfortable sharing about you as a person with a developmental disability?" This is what they had to say...

 
 

4/1/2015

2015 AUTISM CARES Grantee Meeting July 16 -17 2015

Implementing Evidence-Based Practices in Real World Settings

On July 16-17, 2015, ITAC in collaboration with SPHARC and HRSA-MCHB will host the 2015 Autism CARES Grantee Meeting: Implementing Evidence-Based Practices in Real World Settings�

 
 

4/1/2015

April is for #AutismAwareness and #AutismAcceptance

During the month of April, AUCD joins people with autism, their families, and those who serve and support them to increase public acceptance and appreciation of the needs of individuals with autism and their families, and recognition of the diverse range of abilities and talents people with autism possess.

 
 

4/1/2015

April: Autism Awareness and Acceptance

During the month of April, AUCD joins people with autism, their families, and those who serve and support them to increase public acceptance and appreciation of the needs of individuals with autism and their families, and recognition of the diverse range of abilities and talents people with autism possess.

 
 

4/1/2015

MCH Navigator Self-Assessment: NOW ONLINE!

A Tool to Link MCH Trainings to Personal and Organizational Goals

The Division of MCH Workforce Development is excited to announce the launch of the MCH Navigator's NEW online self-assessment tool!

 
 

4/1/2015

MCH Navigator: Webinar Series

Patient and Family Centered Care Coordination: Integrating Care for Children and Youth Across Multiple Systems

This three-part webinar series will provide an overview of the care coordination framework, function, and benefits for children and families across multiple care systems.

 
 

4/1/2015

Updates from the State Public Health Autism Resource Center

AMCHP's mission is to support state maternal and child health programs by providing national leadership on issues affecting woman and children. In support of this mission, the State Public Health Autism Resource Center (SPHARC) has several new activities planned, along with presentations, webinars and technical assistance opportunities designed to aid and assist ASD/DD grantees.

 
 

3/31/2015

ACL Blogpost: Toward a More Inclusive Definition of Diversity in the Disability Community

By Aaron Bishop, Commissioner, Administration on Intellectual and Developmental Disabilities

As Developmental Disabilities Awareness Month draws to a close, it is important that we take time to reflect on the values embodied within the Developmental Disabilities Assistance and Bill of Rights Act of 2000.

 
 

3/31/2015

April Trainee Focus: Policy, Poster Sessions, and Autism Awareness and Acceptance

April's AUCD trainee focus is on policy, and we look forward to seeing over 150 trainees in DC for the Disability Policy Seminar. Remember, advocacy doesn't just happen in DC, so tell us about any visits you make or letters you write to your representatives while they're in their home offices!

 
 

3/30/2015

Dan Habib Releases "Keeping Families Together" Highlighting the Work of START in Arkansas (NH UCEDD)

Dan Habib, Filmmaker at the Institute on Disability, recently released a short documentary film called Keeping Families Together. Habib's film tells the stories of two families whose lives have been transformed with help from ArkSTART and its partner organizations.

 
 

3/30/2015

First Connections: Training and Technical Assistance to Support Community Agencies in Underserved Communities to Conduct Developmental Screening and Linkage for Young Children (CA UCEDD/LEND)

The University of Southern California UCEDD was awarded a Training and Technical Assistance 3 year grant, funded by First 5 Los Angeles, to work with six community based agencies to develop replicable and sustainable models for standardizing screening for autism and other developmental disabilities for young children in underserved communities, linking families with early intervention services, and educating parents about developmental milestones and the early intervention service system. The six community based agencies include three Federally Qualified Health Centers serving children with Medicaid, one Family Resource Center, and two social service agencies for young children.

 
 

3/30/2015

JFK Partners Celebrates 50 Years (CO UCEDD/LEND)

Join us for a Symposium and Dinner on April 17, 2015 to include a keynote on the Past, Present, and Future of Early Intervention: A View through the Autism Spectrum Disorders Lens by Sally J. Rogers, PhD, MIND Institute, a Grand Rounds presentation on Looking Back, Moving Forward: Celebrating the 50th Anniversary of the UC-SOM JFK Partners Program by Patrick J. Kennedy, Parent Leadership by Sue Swenson, and Reflections on 50 Years of Progress by Andrew Imparato.

 
 

3/30/2015

Learn about Postsecondary Opportunities for Students with Intellectual Disabilities in Think College's Annual Report

The Think College National Coordinating Center's Annual Report for Transition and Postsecondary Education Programs for Students with Intellectual Disabilities is now available on the Think College website. This report represents the most comprehensive knowledge base related to postsecondary education access and outcomes for people with intellectual disabilities.

 
 

3/30/2015

Network Members nominated to the FCC's Disability Advisory Committee

By this Public Notice, the Federal Communications Commission (FCC or Commission) held the first meeting and appointment of members to, the Disability Advisory Committee (DAC or Committee). The DAC will provide advice and recommendations to the Commission on a wide array of disability matters within the jurisdiction of the Commission and facilitate the participation of people with disabilities in proceedings before the Commission. The DAC is being organized under, and operated in accordance with, the provisions of the Federal Advisory Committee Act (FACA).

 
 

3/30/2015

Press Release: "Tuesdays with Liz" featuring Taryn Williams, Associate Director of White House Office of Public Engagement

Liz interviews Taryn Williams, Associate Director in the Office of Public Engagement. Taryn Williams serves as the White House's liaison to the disability community. The interview covers a variety of topics including the Curb Cuts to the Middle Class initiative, access to post-secondary education, and the upcoming anniversary of the Americans with Disabilities Act.

pdf File Press Release Tuesdays with Liz T Williams FINAL.pdf [download]
 
 

3/30/2015

WVU Center for Excellence in Disabilities Partners with Marshall University to Enhance Brain Injury Support Groups (WV UCEDD)

The West Virginia University Center for Excellence in Disabilities (CED) has partnered with faculty from Marshall University College of Health Professions to offer local support groups for those with traumatic brain injuries. The Brain Injury Group (BIG) was created to provide support, education and information about services for individuals with brain injuries and the people associated with them.

 
 

3/26/2015

Shared Civil Rights Principles for the Reauthorization of the Elementary and Secondary Education Act

These are the shared civil rights principles for the reauthorization these principles are supported by the civil rights community at large.

pdf File CivilRightsPrinciples032715.pdf [download]
 
 

3/23/2015

2015 UCEDD Leadership Institute - Deadline Extended!

June 14-19, 2015 in Newark, DE at the University of Delaware

After another successful year, the UCEDD Leadership Institute will be back in 2015! Please consider recommending your staff for the 2015 class of future UCEDD leaders representing the full diversity of the country.

 
 

3/23/2015

CCD Urges Congress to Reject the House Budget

The Consortium for Citizens with Disabilities (CCD), a national coalition of more than 100 organizations representing the needs of people with disabilities, opposes the budget resolution proposed by House Budget Committee Chairman Tom Price, M.D. (R-GA) because it calls for deep cuts to Medicaid, deep spending cuts for non-defense discretionary programs that support the health and well-being of people with disabilities, and would lead to tens of millions of Americans losing their health insurance or becoming underinsured.

 
 

3/19/2015

AUCD Welcomes Steve Brown, PhD as the New Diversity and Inclusion Fellow

Steven E. Brown is a Diversity and Inclusion Fellow with the Association of University Centers on Disabilities (AUCD). He joins other faculty members from around the country in creating a blueprint for cultural and linguistic competence within the nationwide AUCD network.

 
 

3/18/2015

American Institutes for Research: Closing the Pay Gap for Workers with Disabilities - Video Available

AUCD's Michael Gamel-McCormick a featured panelist at this event on employment with Rep. Chris Van Hollen

New analysis by the American Institutes for Research finds that those with disabilities earn 64 cents to every dollar their colleagues make, a disparity on par with the gender pay gap. Considering that equal pay is vital to keeping those with disabilities financially independent and out of poverty, our panelists explored the key facts and the ways that policy can help equalize income. Speakers also discussed what recent changes to the Workforce Innovation and Opportunity Act mean for workers with disabilities.

 
 

3/17/2015

Daline Derival Tells All About her Public Health Career (VT LEND)

Daline Derival, M.P.H., completed UVM's Post-Baccalaureate Premedical program in 2014. She is Program Evaluator and Public Health Core Faculty member for the VT-LEND program, whichprovides graduate-level interdisciplinary training, services, and care to improve the health of infants, children, and adolescents with disabilities.

 
 

3/16/2015

March Trainee Liaison Focus is Alumni

Every month Trainee Liaisons have a different focus area to help engage their centers and the network of trainees. March is dedicated to getting in touch with our trainee alumni.

 
 
From left: JoAnne Malloy, Clinical Assistant Professor, Institute on Disability/University of New Hampshire; Michaela Joj, Research Assistant; Jonathon Drake, RENEW Master Trainer; Pia Pode Milwertz, Project Coordinator

3/15/2015

North Carolina START Central Becomes First Certified START Program (IOD NH UCEDD/LEND)

The Center for START Services at the University of New Hampshire's Institute on Disability (IOD) is pleased to announce that North Carolina (NC) START Central is the first Certified START Program in the United States. START is a national initiative that works to strengthen efficiencies and service outcomes for individuals with intellectual and developmental disabilities (IDD) and behavioral health needs in the community.

 
 

3/12/2015

Sachin Dev Pavithran Elected Chair of the U.S. Access Board (UT UCEDD)

The U.S. Access Board unanimously elected Sachin Dev Pavithran as its new Chair on March 11. Pavithran of Logan, Utah is Program Director of the Utah Assistive Technology Program at Utah State University's Center for Persons with Disabilities. He was named to the Access Board by President Barack Obama in 2012.

 
 

3/11/2015

Commonwealth Fund post on the early experiences of Accountable Care Organizations (ACOs)

Commonwealth Fund highlights the early experiences of ACOs in Colorado, Minnesota, and Oregon to show that the model is beginning to save money and improve quality through better care coordination.

 
 

3/11/2015

In Memoriam: James Michael Gleason

Eunice Kennedy Shriver Center MA UCEDD/LEND

James Michael Gleason passed away peacefully at his home with his loving wife, Deborah and beloved daughter, Anne, by his side. Born in New Britian, CT, he was the son of the late Marie (Harper) and John Gleason and was the husband of 35 years to Deborah Jean (Kukla) Gleason of Holliston. Jim attended Boston University where he received his BS and MS degrees in Physical Therapy. He was an Associate Director at the Eunice Kennedy Shriver Center for Developmental Disabilities. Jim was an integral part of the LEND Program as well as a key member of the health promotion research team at Shriver, where he participated in many projects as an expert on physical activity for people with disabilities.

 
 

3/11/2015

The Effects of the Medicaid Expansion on State Budgets: An Early Look in Select States

Website  from http://kff.org

This brief looks beyond the estimates and examines the early budget effects of expansion in three states: Connecticut, New Mexico, and Washington State. The study was conducted during the Fall of 2014; budgets had been enacted for state fiscal year 2015, the first full state fiscal year with the Medicaid expansion in effect. Budget officials were also in the process of closing the books on SFY 2014, the latter half of which included the first 6 months of the Medicaid expansion in each of these states.

 
 

3/6/2015

Affordable Care Act 101: What You Need to Know (Webcast)

Website  from http://kff.org

On Friday, March 6, the Kaiser Family Foundation and the Alliance for Health Reform presented a briefing to review the Affordable Care Act (ACA). Speakers answered and discussed critical ACA questions, such as: What are the key provisions of the ACA? How did the ACA extend coverage to the uninsured? How does the ACA impact private and public insurance coverage, marketplaces and employer-sponsored coverage? What is the role for states? What are the requirements on employers and individuals? How was Medicaid changed by the ACA and then the Supreme Court? How is the Children�s Health Insurance Program (CHIP) affected?

 
 
Elizabeth Vasquez leads the Strategic Thinking Discussion at the 2015 LEND/DBP Directors Meeting

3/6/2015

Strategic Thinking Report: LEND and DBP Programs

This report outlines the results of January 2015 conversations among program directors and maternal and child health stakeholders that sought to better understand the emerging environment in which MCH training programs are operating, as well as the opportunities and challenges that lie ahead. Five thematic directions are highlighted in this report.

 
 
The 2015 AUCD t-shirt will be available to order from Custom Ink beginning March 4th

3/4/2015

AUCD Trainee T-Shirt: Order Yours Today!

Orders must be placed by 11:59pm March 23.

Show your AUCD pride by purchasing the 2015 trainee-designed t-shirt! It's perfect for the Disability Policy Seminar and local Center events. Many thanks to the 20+ people who submitted designs, and congratulations to Angela from Westchester, NY and Brandon from Iowa for contributing to the winning design.

 
 
Tyler Reimschisel, M.D.

3/4/2015

Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) LEND Training Program Receives Supplemental Funding to Address Trainee Diversity

The Vanderbilt Kennedy Center (TN UCEDD, IDDRC, LEND) Leadership Education in Neurodevelopmental and Related Disabilities (LEND) Training Program will focus efforts on increasing racial and ethnic diversity among its pool of long-term trainees thanks to a grant from AUCD's Interdisciplinary Technical Assistance Center on Autism and Developmental Disabilities. The supplemental funding will allow the program to forge deeper partnerships with historically black colleges and universities, to build awareness of the LEND program among underrepresented minority students who have been accepted to professional schools, and to foster greater interest in the field of neurodevelopmental disabilities among undergraduate minority students.

 
 

3/3/2015

Behavioral Health Online Master's Program - Focusing on DD (FCIC FL UCEDD)

The University of South Florida, College of Behavioral and Community Sciences is pleased to announce our inaugural semester this Spring of a NEW FULLY ONLINE Master of Science degree in Child and Adolescent Behavioral Health focusing on Developmental Disabilities.

 
 

3/3/2015

Employment for People with Disabilities in Poverty: A Need for National Attention (RTC MN UCEDD)

This new brief in the Policy Research Brief series is the second on poverty and disability. Its purpose is to provide an in-depth national and state understanding about poverty and disability by investigating how people with disabilities in poverty fare in the labor force and employment, compared to those without disabilities.

 
 

3/3/2015

New Resource from the Maine UCEDD and Speaking Up for Us: Planning Accessible Meetings and Conferences: A Suggested Checklist and Guide

The University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD) and Speaking Up for Us, Maine�s Self-Advocacy Network; have collaborated on a new free resource, Planning Accessible Meetings and Conferences: A Suggested Checklist and Guide. The checklist is a 15-page accessible PDF and is designed to help any person, group, or organization plan a meeting or conference that is inclusive and welcoming for everyone. It offers helpful suggestions in many areas of event planning, including choosing a location, using respectful language for registration questions about accommodations, and tips on refreshments and meals. Its purpose is to provide practical recommendations that promote meaningful participation for everyone. The checklist may be completed electronically or printed and filled out by hand.

 
 
 From left: JoAnne Malloy, Clinical Assistant Professor, Institute on Disability/University of New Hampshire; Michaela Joj, Research Assistant; Jonathon Drake, RENEW Master Trainer; Pia Pode Milwertz, Project Coordinator

3/3/2015

RENEW Program Travels to Denmark (IOD NH UCEDD/LEND)

In December 2014 Institute on Disability (IOD) staff members Dr. JoAnne Malloy and Jonathon Drake travelled to Denmark to train 25 Danish Mental Health and Vocational Education Practitioners to implement the Rehabilitation for Empowerment, Natural Supports, Education, and Work (RENEW) program in their practice.

 
 

3/3/2015

The ECP March Guest Blogger is Zach Goble

AUCD is happy to announce the Early Career Professionals March guest blogger - Zach Goble. He is a former University of Kentucky UCEDD trainee, former Cincinnati Children's Hospital Medical Center LEND trainee and a School Psychologist.

 
 

3/3/2015

The National Collaborative on Faith and Disability Webinar Series Offers Supports for Promoting Inclusion in Faith Communities

The National Collaborative on Faith and Disability, a network of 14 UCEDDs, will offer the latest installment in its free monthly webinar series on Monday, March 30 at 1:00pm (CDT). Panelists will highlight congregational strategies for reaching out to agencies and working with them to identify and honor spiritual supports and enable inclusion and ongoing participation.

 
 

3/2/2015

AUCD signed on to a Letter to Congressional Leaders Supporting Extended funding for Maternal, Infant and Early Childhood Home Visiting Program

AUCD signed onto a Letter as a member of the National Child Abuse Coalition to support funding for the Maternal, Infant and Early Childhood Home Visiting Program.

pdf File Updated Home-Visiting-Letter 022415 (2).pdf [download]
 
 

3/2/2015

Project SEARCH Mississippi (UCEDD MS)

Project SEARCH is an eight-month training program that consists of daily employment preparatory skills training, community development, mentoring services and work internships. The project targets young adults 18 - 30 years old and includes peer mentoring by students at the University of Southern Mississippi. The training program allows participants to work on employability and functional skills

 
 

2/26/2015

Kaiser Policy Insight/ Issue Brief on King v. Burwell

Website  from http://kff.org

Kaiser Health News released a Issue Brief exampling the policy implications and legal arguments in U.S. Supreme Court's King v. Burwell Case.

 
 
Panel included (left to right) Sue Ostertag, PT, DPT, NCS, Mariana Wingood, PT, CEEAA, Jen Nash, PT, NCS and Mindy Renfro, PT, PhD, GCS.

2/25/2015

APTA and Older Adults with DD (MT UCEDD)

Last month, Mindy Renfro, PT, PhD, GCS of Montana's Rural Institute MonTECH programs, presented information at the annual Combined Sections Meeting of the American Physical Therapy Association in Indianapolis, IN.

 
 

2/25/2015

AUCD letter Supporting Ranking Member Robert Scott's Substitute Bill to H.R. 5

AUCD supports Ranking Member Robert Scott's substitute to H.R.5. This substitute bill includes many provisions that continue high expectations for students with disabilities.

pdf File AUCD letter to Rep Scott re substitute bill (2).pdf [download]
 
 

2/25/2015

AUCD signed on to a letter to support funding for The Maternal, Infant and Early Childhood Home Visiting Program (MIECHV)

AUCD along with the National Child Abuse Coalition asking leading members of Congress to fund the Maternal, Infant and Early Childhood Home Visiting Program (MIECHV). Funding is set to expire in March 2015, and the program is a wise investment that states have embraced as a sensible approach to health, education, and fiscal challenges.

pdf File Updated Home-Visiting-Letter 022415.pdf [download]
 
 

2/25/2015

AUCD Strategic Map 2015-2016

AUCD is pleased to present our 2015-2016 Strategic Map. This map outlines five key priority areas and corresponding sub-goals for our organization and network over the next two years, and serves as a guide for our collective work and mission.

 
 

2/25/2015

CCD Letter to House of Representatives urging Members to not support HR 5 as currently written.

The Consortium for Citizens with Disabilities wrote a letter to the House of Representative opposing the current version of The Student Success Act (H.R.5). AUCD signed onto this letter which includes six baseline principles to ensure students have meaningful access to rigorous standards for all students and fully inclusion for students with disabilities in every local school.

 
 

2/25/2015

CCD Social Security Task Force Statement for the Record

House Ways and Means Social Security Subcommittee

Consortium for Citizens with Disabilities Statement for the Record for the House of Representatives Ways and Means Subcommittee on Social Security Hearing on "Maintaining the Disability Insurance Trust Fund's Solvency"

 
 

2/25/2015

OHSU Announces Grant Recipients (OR UCEDD)

The Oregon Health & Science University (OHSU) University Center for Excellence in Developmental Disabilities (UCEDD) is pleased to announce the latest recipients of the OHSU UCEDD Community Engagement Grant Program. The OHSU UCEDD, in collaboration with their advisory board, the Community Partners Council, is committed to activating organizations across the State to engage people with disabilities in their communities. To further these goals, the CPC annually solicits applications to fund projects with this focus.

 
 

2/25/2015

Vermont's Life History Project Continues to Grow (VT UCEDD)

The Life Histories Project at the Center on Disability and Community Inclusion, Vermont's UCEDD, has been busy this last year collecting new stories from Vermonters with developmental and intellectual disabilities.

 
 

2/25/2015

Welcome, Sarah Boundy!

AUCD welcomes Sarah Boundy to our team! Sarah is an intern from the Lab School of Washington, working to support all AUCD departments as she fulfills her junior year internship requirement. She will be with us through May of 2015.

 
 

2/25/2015

White House Statement Opposing HR 5

The White House released a statement strongly opposing H.R.5, the Student Success Act, in the current form approved by the House Committee on Education and the Workforce.

 
 

2/24/2015

House ESEA Reauthorization Bill Moving This Week! TAKE ACTION!

The full House of Representatives is preparing to consider Student Success Act (H.R. 5), a bill to reauthorize ESEA on Thursday and Friday of this week! While the bill retains some important provisions, such as annual testing in grades 3-8 and once in high school, the bill does not go far enough to support students with disabilities to successfully graduate and go on to postsecondary and employment opportunities.

 
 

2/24/2015

National Center for Learning Disabilities-- Re authorization of ESEA Fact Sheet

The National Center for Learning Disabilities (NCLD) released a fact sheet on alternate academic achievement standards (AA-ASS) ti inform the public about the consequences of low expectations for students with disabilities.

 
 

2/24/2015

Press Release: "Tuesdays with Liz" featuring Taryn Mackenzie Williams, Associate Director of White House Office of Public Engagement

Liz interviews Taryn Williams, Associate Director in the Office of Public Engagement. Taryn Williams serves as the White House's liaison to the disability community. The interview covers a variety of topics including the Curb Cuts to the Middle Class initiative, access to post-secondary education, and the upcoming anniversary of the Americans with Disabilities Act.

pdf File Press Release Tuesdays with Liz T Williams FINAL.pdf [download]
 
 

2/23/2015

AUCD signed on to a letter to the Chairman Sessions and Ranking Member Slaughter of the Rule Committee

This letter outlined the task force's support and opposition to certain amendments to HR 5

The undersigned organizations of the Consortium for Citizens with Disabilities (CCD) Education Taskforce write to voice our significant concerns regarding potential amendments to The Student Success Act (H.R. 5) which would strip the bill's current requirement for states to develop and implement annual, statewide standardized assessments in reading and math.

pdf File CCD to Rules on annual assessment.pdf [download]
 
 

2/23/2015

CCD Education Task Force letter to Ranking Member of Education and the Workforce Committee Rep Scott

AUCD signed on to this letter supporting this House Substitute to HR 5

The Education Task Force of the Consortium for Citizens with Disabilities (CCD) thanks Ranking Member Scott for his substitute bill to HR 5

pdf File CCD on Scott sub.pdf [download]
 
 

2/22/2015

Data on Current Marketplace Enrollment

Website  from http://kff.org

Data in this table represent cumulative Marketplace enrollment through February 22, 2015 for states using the healthcare.gov platform to perform eligibility determinations and enroll consumers into coverage for 2015 (states using the Federally-facilitated Marketplace and states with a Partnership or Federally-supported State-based Marketplace). Data for State-based Marketplaces are through February 21, 2015, with the exception of California, which reported data through February 22, 2015.

 
 

2/13/2015

"Winterize" to Prevent Falls: UM Faculty Highlights Guidelines for the Elderly

Beautiful, cold, dangerous. All of these words describe winter weather in Montana. For older Montanans, falls are a major cause of winter-related injuries and some deaths. Dr. Mindy Renfro, a UM physical therapist and the Montana Adaptive Equipment Program Coordinator at the UM Rural Institute for Inclusive Communities, wants to make this winter is safe, warm and wonderful for all Montanans.

 
 

2/13/2015

Cost- Sharing Subsidies in Federal Marketplace Plans

Website  from http://kff.org

This report analyzes cost sharing in 2015 ACA Marketplace Plans in 37 States.

 
 

2/12/2015

High School Students Learn About Health Care Careers from Iowa LEND Trainees

STEM (Science, Technology, Engineering and Math) Education programs are for students in grades K-12 and according to STEM Connector data, females are about 25% less likely to be interested in STEM fields than males. University of Iowa Health Care (UIHC) staff and Iowa LEND Trainees are trying to change that!

 
 

2/11/2015

CMS Guidance and Autism Spectrum Disorders

Earlier this year, the Centers for Medicaid and Medicare Services (CMS) released a guidance document related to services for those on the autism spectrum. Now it is left to individual states to grapple with what that means for each state. This webinar will feature presenters from AUCD, Easter Seals. NHeLP, and the Autism Society, and provide perspective on how one state (Connecticut) has responded to the guidance. Our goal is to provide some direction and ideas for those states still grappling with the implementation of the guidance

 
 

2/11/2015

REAL-START Risk Evaluation of Autism in Latinos (Screening Tools and Referral Training)

The Oregon Health and Science University, Oregon Pediatric Society and Oregon Pediatric Improvement Partnership have partnered to launch a new research project called REAL START (Risk Evaluation of Autism in Latinos -Screening Tools and Referral Training). The goal of this project is to help primary care practices that serve many Latino patients to implement developmental screening in a sustainable and culturally-appropriate way.

 
 

2/11/2015

Report Analyzing Cost Sharing in 2015 ACA Marketplace Plans in 37 States

Website  from http://kff.org

The slides below show the average cost-sharing amounts for standard silver plans and for the cost-sharing variants for each category of enrollee cost sharing. As expected, what we see is a general pattern of declining average cost-sharing amounts in each service category as the actuarial value of the variants increases.

 
 

2/11/2015

Supporting Social Service Delivery through Medicaid Accountable Care Organizations: Early State Efforts

The brief outlines key themes and considerations from these early adopters to help additional states support collaboration between ACO and social service providers.

 
 

2/11/2015

Supporting Social Service Delivery through Medicaid Accountable Care Organizations: Early State Efforts

This brief, made possible through support from The Commonwealth Fund, highlights the initial efforts of seven states -- Colorado, Maine, Minnesota, New York, Oregon, Vermont, and Washington -- that participated in CHCS' Medicaid ACO Learning Collaborative.

 
 

2/10/2015

Health Infographic on ACA Insurance Marketplaces 2014-2015

Website  from http://kff.org

This Visualizing Health Policy infographic illustrates the change in monthly premiums by county, and select cities, from 2014 to 2015 for a 40-year-old person covered by the second-lowest-cost silver benchmark plan in the Affordable Care Act's insurance marketplaces. Premium changes were greatest in Summit County, Colo. (45% decrease) and southeastern Alaska (34% increase), before tax credits. After accounting for tax credits, premiums for a 40-year-old person with an annual income of $30,000 would remain flat in most of the country, as long as the enrollee changed from the 2014 benchmark plan to the plan designated as the benchmark for 2015.

 
 

2/9/2015

Dr. Dan (Dalun) Zhang has been selected as Director of the Center on Disability and Development (CDD) at Texas A&M University

Dr. Dan (Dalun) Zhang has been selected as Director of the Center on Disability and Development (CDD) at Texas A&M University, a University Center for Excellence in Developmental Disabilities (UCEDD). Since 1996, Dr. Zhang has dedicated his career to enriching the lives of individuals with disabilities via research, service, and doctoral instruction and mentorship.

 
 

2/3/2015

Andrew Imparato Visit Kicks Off the Vanderbilt Kennedy Center's (TN-UCEDD, LEND) 50th Anniversary Festivities

The Vanderbilt Kennedy Center (VKC) is celebrating its 50th anniversary in 2015 and kicked off the festivities with a highly anticipated lecture by Andrew Imparato, J.D., executive director of the Association of University Centers on Disabilities (AUCD). Imparato delivered the Vanderbilt Kennedy Center's Martin Luther King, Jr., Commemorative lecture titled "The Future of Disability Policy," and spent two days with a packed schedule of conversations with VKC leadership, faculty, staff, and community partners.

 
 

2/3/2015

AUCD's "Tuesdays with Liz" Webcast Features Interview with House Democratic Leader of the ABLE Act

On Tuesday, February 3rd, 2015, AUCD policy advocate Liz Weintraub interviewed Congressman Chris Van Hollen (Maryland) for AUCD's weekly video policy newsletter Tuesdays with Liz: Disability Policy for All. This YouTube series provides cutting-edge policy news in a fun, accessible way to engage policy experts, constituents, students, and people with disabilities alike. This episode features Congressman Van Hollen, the lead House Democratic sponsor of the Achieving a Better Life Experience (ABLE) Act, which President Obama signed into law in December 2014.

 
 

2/3/2015

The Leadership Conference on Civil and Human Rights letter in opposing of HR 5

The Leadership Conference on Civil and Human Rights wrote a opposing HR 5, the Student Success Act, which they believe undermines important federal protection for our nation's students, particularly children of color; children living in poverty; children with disabilities; homeless, foster, and migrant children; children in the juvenile justice system; children still learning English; and Native children.

pdf File 2015 02 03 HR 5 Opposition Letter.pdf [download]
 
 

2/2/2015

AUCD Selects Five Training Programs to Address Diversity and Inclusion of Family Members

ITAC has selected five Leadership Education in Neurodevelopmental and Related Disabilities (LEND) training programs to receive up to $7,000 each in supplemental funding to address priority technical assistance needs. Three projects will address trainee diversity, while the remaining two focus on the support and inclusion of family trainees and faculty.

 
 

2/2/2015

CCD Education Task Force letter to Chairman of HELP Committee Lamar Alexander, on the Every Child Ready for College or Career Act of 2015 (ECRCCA)

A letter to Chairman Lamar Alexander of the Health, Education, Labor and Pension committee providing feedback on the Every Child Ready for College or Career Act of 2015 (ECRCCA). This letter from the Education Task Force of the Consortium for Citizens with Disabilities (CCD) provides feedback on positive provisions and outlines recommendations to certain provisions that concerned the task force.

pdf File CCD Ed TF letter on Alexander bill (2).pdf [download]
 
 

2/2/2015

Cultural Adaptation of Legacy for ChildrenTM for Latino Communities: Mixed Methods Evaluation (OK UCEDD LEND)

Legacy for ChildrenTM is an evidence-based program developed by the Centers for Disease Control & Prevention (CDC) focused on promoting positive parenting for children in families with low-income. The Legacy for ChildrenTM develops a positive social community of mothers that is designed to strengthen the parent-child relationship and support mothers to promote their children's health and socio-emotional development more effectively. Results from randomized clinical trials are positive, showing lower behavior problems, socio-emotional problems, and hyperactive behavior symptoms in children of mothers who participated in the Legacy for ChildrenTM program than those in the control group (Kaminski et al., 2013).

 
 

2/2/2015

Improving Lives of Youth with IDD in the Foster Care System: The Child Well-Being Program (SCDD NY UCEDD)

Many people are often surprised to learn that there are a significant number of children and youth within the foster care system that have an intellectual or developmental disability (IDD). Nationally, estimates of children impacted by IDD range from 28% to more than 50%, with similarly high percentages in New York. Huge gaps in services and support exist for this group. Due to the level of complexity and need these children have, they tend to have difficulty accessing services specific to their individual challenges and remain in the foster care system for a longer period of time. In response to these known challenges, Strong Center for Developmental Disabilities (SCDD) developed a new program to meet the needs of these youth.

 
 

2/2/2015

Maine UCEDD and DD Council Publish Research Report - Accessing Healthcare: The Experience of Individuals with Autism Spectrum Disorders in Maine

The University of Maine Center for Community Inclusion and Disability Studies (ME UCEDD) and the Maine Developmental Disabilities Council have published a research report, Accessing Healthcare: The Experience of Individuals with ASD in Maine, that reveals promising positive trends, as well as areas of concern, in healthcare access for children and adults with autism spectrum disorders in Maine.

 
 

2/2/2015

President's Budget FY16: Expanding Opportunities for People with Disabilities

President Obama has just released his Fiscal Year 2016 Budget Request to the Congress. The budget includes many funding requests to expand opportunities for people with disabilities, including throughout the AUCD Network.

 
 

2/1/2015

Meeting Materials Available from Winter LEND, DBP, and MCH Joint Meetings

The Winter LEND, DBP, and MCH Joint Interdisciplinary Meetings brought together grantees from around the country to exchange information and best practices; to identify and address specific interdisciplinary and disciplinary training needs; and to foster increased cross-program coordination and collaboration.

 
 

1/30/2015

AUCD Letter to Chairman Alexander re: Every Child Ready for College or Career Act of 2015 (ECRCCA)

AUCD responded to the call to provide comment on the Every Child Ready for College or Career Act of 2015 (ECRCCA), amending the Elementary and Secondary Education Act (ESEA).

 
 

1/30/2015

Five States Awarded Disability and Health Program Value Opportunity through AUCD-CDC Partnership

AUCD is partnering with CDC's National Center on Birth Defects and Developmental Disabilities to subcontract with 5 states to access Medicaid data and perform analyses to enhance understanding of the impact and value of state-based Disability and Health Grantee efforts.

 
 

1/30/2015

UM Audiologist Receives Prestigious prestigious Frank R. Kleffner Lifetime Clinical Career Award (Mailman FL UCEDD/LEND)

Robert C. Fifer, Ph.D., associate professor and Director of Audiology and Speech-Language Pathology at the Mailman Center for Child Development, was recently honored with the American Speech-Language-Hearing Foundation�s prestigious Frank R. Kleffner Lifetime Clinical Career Award.

 
 

1/29/2015

Survey Examines Adults Who Remained Uninsured at the End of 2014

Website  from http://kff.org

This survey of 10,502 non-elderly adults was fielded between September 2 and December 15, 2014 with the goal of understanding why some people continue to lack coverage.

 
 

1/29/2015

Testimony of Jennifer Mathis, Bazelon Center for Mental Health Law

on behalf of the Consortium for Citizens with Disabilities (CCD) Before the Senate Committee on Health, Education, Labor and Pensions

Jennifer Mathis, the director of programs, at the Bazelon Center for Mental Health Law delivered testimony on behalf of the Consortium for Citizens with Disabilities (CCD) before the Senate Committee on Health, Education, Labor and Pensions on 'Employer Wellness Programs: Better Health Outcomes and Lower Costs'

pdf File Testimony of Mathis wellness programs HELP 1 29 15.pdf [download]
 
 

1/28/2015

Marketplace Enrollment as a Share of the Potential Marketplace Population

Website  from http://kff.org

Data in this table represent cumulative Marketplace enrollment through January 16, 2015 for states using the healthcare.gov platform to perform eligibility determinations and enroll consumers into coverage for 2015 (states using the Federally-facilitated Marketplace and states with a Partnership or Federally-supported State-based Marketplace). Data for State-based Marketplaces are through January 17, 2015, with the exception of California, which is reporting data through January 18, 2015.

 
 

1/28/2015

State Decisions on Health Insurance Marketplace and the Medicaid Expansion

Website  from http://kff.org

At this time there are 14 State-based Marketplaces; 3 Federally-supported Marketplaces; 7 State-partnership Marketplaces; 27 Federally-facilitated Marketplaces. So far 29 states (including the District of Columbia) have adopted the Medicaid Expansion, 7 states are discussing adopting Medicaid Expansion and 15 states are not adopting at this time.

 
 

1/28/2015

Status of State Action on the Medicaid Expansion Decision

Website  from http://kff.org

States' decisions about adopting the Medicaid expansion as of January 27, 2015.

 
 

1/27/2015

CCD Report: House Rules for the 114th Congress Put Social Security, SSDI At Risk

The Consortium for Citizens with Disabilities (CCD) prepared a 1 page fact sheet about the House Rules provision on Social Security.

pdf File CCD House Rules 114th Fact Sheet 01-27-15.pdf [download]
 
 

1/27/2015

Social Security Advisory Board (SSAB) Announces Final Report of the 2014 Disability Policy Panel

The Social Security Advisory Board has published the 2014 Disability Policy Panel's report on continuing disability reviews (CDR)- the process used by SSA to evaluate the continuing eligibility of disability beneficiaries.

 
 

1/26/2015

David Mank (IN UCEDD) Elected to Lead the National Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities

David Mank, director of Indiana University's Indiana Institute on Disability and Community, has been appointed by U.S. Secretary of Labor Thomas E. Perez to serve on, and elected by the membership to lead, a new Advisory Committee on Increasing Competitive Integrated Employment for Individuals with Disabilities, a key provision of the Workforce Innovation and Opportunity Act.

 
 

1/26/2015

Letter from CCD to Senator Lamar Alexander opposing the Every Child Ready for College and Career Act of 2013 (ECRCCA)

The Education Task Force of the Consortium for Citizens with Disabilities wrote a letter on June 10, 2013 opposing the Every Child Ready for College and Career Act of 2013 (ECRCCA).

pdf File CCD ltr Alexander 2013.pdf [download]
 
 

1/26/2015

National Center for Learning Disabilities-- Assessment & Accountability: Students with Disabilities & The AA-AAS

NCLD believe in for high standards for all students with disabilities. The overwhelming majority of students with disabilities can take the general assessment with accommodations. Therefore, administration of the alternate assessment based on alternate academic achievement standards (AA-AAS) needs to be appropriately limited to students with the most significant cognitive disabilities in order to prevent misuse and overuse.

 
 

1/26/2015

Nisonger Center, UCEDD, hosts regional Williams Syndrome Weekend

The Nisonger Center Williams Syndrome Program hosted a Williams Syndrome Weekend on November 8-9 in Columbus, Ohio, attracting families from Ohio and adjoining states. The purpose of Williams Syndrome event is to bring families together to socialize and learn from each other. Close to 100 people gathered at Nisonger Center at the Ohio State University, where children participated in arts & crafts, music, games, and potluck dinner and adults visited and talked with OSU clinical and research staff.

 
 

1/26/2015

Project HEAL Project HEAL (MD UCEDD/LEND) Recognizes an Outstanding Law Firm Partner

Project HEAL (Health, Education, Advocacy, and Law), a community-based program of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, recognizes Ballard Spahr, LLP, a law firm partner, for their exceptional generosity and support in 2014.

 
 

1/26/2015

Shared Civil Rights Principles for the Re authorization of the Elementary and Secondary Education Act

Shared statement of civil rights principles for the re-authorization of the Elementary and Secondary Education Act (ESEA)

pdf File 2015-01-13 ESEA Principles Accessible FINAL.pdf [download]
 
 

1/26/2015

The Chicagoland Entrepreneurship Education for People with Disabilities (CEED) Project

Sarah Parker Harris of the Illinois UCEDD at the University of Illinois at Chicago and her team recently received a grant award for The Chicagoland Entrepreneurship Education for People with Disabilities (CEED) project from the Coleman Foundation! The CEED project will bridge entrepreneurship with disability by developing and providing a comprehensive entrepreneurship education and training program for people with disabilities and service providers working in Disability Community Agencies and Small Business Development Centers in Illinois.

 
 

1/25/2015

The Advocacy Institue's A Look back at Alternate Assessment on Modified Academic Achievement Standards

The Advocacy Institute analyzes the Alternate Assessment on Modified Academic Standards.

 
 

1/21/2015

Minnesota Act Early Team Actively Targets Culturally Diverse Communities

The Minnesota Act Early team has actively targeted these disparities in their community through outreach to culturally diverse communities. One of the primary goals has been to build both awareness and capacity within local diverse communities. The project reaches out to diverse communities to educate about screening and build expertise within communities around healthy development, the importance of regular developmental screening, early warning signs of ASD/NDDs, and early intervention.

 
 

1/21/2015

Vanderbilt Kennedy Center Celebrates 50 Years in 2015

This year, the Vanderbilt Kennedy Center celebrates 50 years of transforming the lives of people with disabilities through discovery, service and training. The yearlong celebration will commence with a lecture by Andrew Imparato, Executive Director of AUCD, on Wednesday, Jan. 21, at 4 p.m. Where he will deliver the Kennedy Center's Martin Luther King Jr. Commemorative Lecture titled 'The Future of Disability Policy."

 
 

1/20/2015

CCD Education Taskforce Letter to Chairman Alexander re: Re-authorization of ESEA

A letter written on behalf of the Education Task Force of the Consortium for Citizens with Disabilities to Chairman Alexander.

pdf File CCD Ed TF Ltr Pre-Hearing 1 2015.pdf [download]
 
 

1/20/2015

Letter to Chairman Lamar Alexander re: Re-authorization of Elementary and Secondary Education Act (ESEA)

Letter to Chairman Alexander regarding the reauthorization of ESEA.

pdf File letter to Chairman Alexander re discussion draft-1-20-15.pdf [download]
 
 

1/20/2015

Letter to Chairman Lamar Alexander re: Re-authorization of Elementary and Secondary Education Act (ESEA)

Letter to Chairman Alexander regarding the reauthorization of ESEA.

pdf File letter to Chairman Alexander re discussion draft-1-20-15.pdf [download]
 
 

1/16/2015

The Path to a People-Centered Health System: Next Generation Consumer Health Advocacy

A new report from Community Catalyst about transforming our health care system to better meet the needs of the consumer.

 
 

1/15/2015

AUCD Welcomes Zipporah Levi-Shakleford (VA LEND) as the 2015 Assistant Virtual Trainee

Zipporah Levi-Shackleford is AUCD's first Assistant Virtual Trainee. Together with Virtual Trainee Laurel Geist, she will help to strengthen a virtual network and group identity among AUCD trainees. Zipporah is a family trainee at the VA LEND, owner of a disability consulting business, and the mother of four children, three of whom have special needs.

 
 

1/15/2015

January is Social Media Month for Trainee Liaisons

Trainee Liaisons will be exploring how social media can benefit their program. Programs may use Facebook, Twitter, LinkedIn, Instagram, or other social media platforms. Each TL will be asked to meet two easy goals for January

 
 

1/15/2015

Two Reports Focus on Arizona Children Who Lost CHIP Coverage and Lessons Learned for the Future

Fourteen thousand children in Arizona lost their health insurance at the end of January 2014 when the state ended its KidsCare program for low-income children, becoming the only state in the country without an active Children's Health Insurance Program (CHIP). Two new reports released by the Georgetown University Center for Children and Families today focus on how those cuts to children's coverage impacted Arizona families and what lessons can be learned from Arizona's experience for the upcoming national debate on the future of CHIP.

 
 

1/9/2015

Integrated Appeals Processes for Medicare-Medicaid Enrollees: Lessons from States

This brief, made possible through support from The Commonwealth Fund and The SCAN Foundation, explores opportunities for states to develop an integrated appeals process, whether through a Dual Eligible Special Needs Plan (D-SNP) or a financial alignment demonstration.

 
 

1/9/2015

New Partnership with Maryland Centers for Independent Living Launches

The MCDD launched a new project in partnership with the Maryland Department of Disabilities to assist community agencies in expanding their business capacity, including provision of Options Counseling, a planning service available to individuals in need of long-term support services in the community. The service is currently offered throughout Maryland at local Aging and Disability Resource Centers (ADRC) known as Maryland Access Point. To expand reach, staff at the state's seven Centers for Independent Living (CILs) are becoming certified in Options Counseling.

 
 

1/6/2015

CBPP Report: Raising ACA Employer Mandate Threshold to 40 Hours Would Lead to Fewer Hours for Workers

The Center on Budget and Policy Priorities paper provides data shows that raising the law's threshold from 30 hours a week to 40 would make a shift toward part-time employment much more likely.

 
 

1/6/2015

Check Out Our New Look: AUCD Disability Policy In Brief

The popular "In Brief" brings the latest in disability policy to your email or social media feed every Monday. We've redesigned and reprogrammed In Brief, making it easier to find, read, share, and subscribe. View the first issue of 2015, covering the start of the 114th Congress and litigation on the Department of Labor's Home Care Rule.

 
 

1/6/2015

Curb Cuts to the Middle Class Initiave

an Obama Administration effort to increase equal employment opportunities and financial independence for individuals with disabilities, with a particular emphasis on individuals with significant disabilities
pdf File Curb Cuts White House document.pdf [download]
 
 

1/6/2015

Introducing "Tuesdays with Liz: Disability Policy for All"

"Tuesdays with Liz: Disability Policy for All" is a brief weekly video spot produced by AUCD featuring policy staffer Liz Weintraub discussing current disability policy issues. These videos are a compliment to AUCD's popular written publication of "AUCD Disability Policy News In Brief" and are designed to make oftentimes complex policy issues more easy for everyone to understand.

 
 

1/6/2015

Letter requesting General Accounting Office (GAO) report on transition services for youth with ASD

pdf File 20141118GAO.pdf [download]
 
 

1/1/2015

Connecticut UCEDD Advocates Campaign for Closure of State Institutions

The Connecticut Council on Developmental Disabilities (DDC), in partnership with the ARC Connecticut and the University of Connecticut Center for Excellence in Developmental Disabilities (CT UCEDD) launched a long overdue campaign: 2020: Close the DDS (CT Department of Developmental Services) Institutions.

 
 

12/31/2014

New Hippotherapy Program Benefits Iowa Children with Disabilities (IA UCEDD)

Katie Jo Risma, a physical therapist at the Center for Disabilities and Development (CDD-Iowa's UCEDD) recently completed her first year of providing hippotherapy, serving seven Iowa children with physical disabilities ages 3-13 over the course of three six-week sessions. Hippotherapy is a technique which utilizes the dynamic movement of a horse to assist patients in reaching their therapy goals. It is a billable service under both public and private insurance.

 
 

12/29/2014

The Institute on Disability's Center for START Services and NH LEND Program Announce a New Partnership

The Institute on Disability (IOD) at the University of New Hampshire is pleased to announce a unique graduate-level interdisciplinary partnership between the Center for START Services and the NH Leadership Education in Neurodevelopmental and Related Disabilities Program (NH LEND). "This relationship allows future leaders to develop a broader understanding of what is needed to promote positive health and mental health practices. We're honored to be part of this important partnership," says Dr. Joan Beasley, Director of the Center for START Services, a program within the IOD. NH LEND program is an intensive, nine-month graduate-level training program focusing on neurodevelopmental disabilities in children and youth. The Center for START Services' New Hampshire program provides technical support and frameworks to help better meet the mental health needs of individual with intellectual/developmental disabilities.

 
 

12/22/2014

Coalition comments on Notice of Benefit and Payment Parameters for 2016

pdf File CCD Health Task Force Final Comments on NBPP 2016.pdf [download]
 
 

12/19/2014

National Resource Center for Supported Decision-Making (NRC-SDM)

The National Resource Center for Supported Decision-Making (NRC-SDM) builds on and extends the work of Quality Trust's Jenny Hatch Justice Project by bringing together vast and varied partners to ensure that input is obtained from all relevant stakeholder groups including older adults, people with intellectual and developmental disabilities (I/DD), family members, advocates, professionals and providers. The NRC-SDM partners bring nationally recognized expertise and leadership on SDM, representing the interests of and receiving input from thousands of older adults and people with I/DD.

 
 

12/18/2014

Free Videos and Vignettes Available Online for Recognition & Response: RTI for Pre-K

Watch this video and observe how the teachers use handheld devices to gather assessment information on children's language and literacy skills. The Recognition & Response project is a program of the FPG Child Development Institute of the University of North Carolina at Chapel Hill.

 
 
Sara Wolff speaks in support of the ABLE Act (credit: ICSNY.org)

12/17/2014

Congress Passes ABLE Act

Bill Promotes Economic Self-Sufficiency for People with Disabilities

"The bipartisan votes for the ABLE Act, coupled with similar votes for the Workforce Innovation and Opportunity Act, are a good reminder that Republicans and Democrats in Congress want to see improvements in policy and practice that will result in more Americans realizing the vision of the Americans with Disabilities Act and become full participants in the lives of their communities," said Andrew J. Imparato, AUCD Executive Director.

 
 

12/16/2014

Advancing Delivery and Payment Reform in Managed Care Provider Networks: Tools for Purchasers

CHCS developed the following set of resources to help state purchasers design and implement effective VBP strategies within managed care. The resources, which draw from interviews and past work with state and federal VBP experts across the country.

 
 

12/15/2014

Department of Justice and HHS Office for Civil Rights Letter on FLSA and Olmstead

The US Department of Justice Civil Rights Division and Department of Health and Human Services Office for Civil Rights released this joint dear colleague letter regarding the Olmstead obligations of state implementing the Fair Labor Standards Act as it relates to home care workers.

pdf File 2014-12-15 FLSA Dear Colleague Letter.pdf [download]
 
 

12/12/2014

Multiple Sclerosis Fact Sheet

This fact sheet is intended to help Navigators identify what issues are unique to consumers with Multiple Sclerosis so that they can assist them as they make decisions related to their healthcare coverage

 
 

12/12/2014

NDNRC Fact Sheet- Intellectual Disability

This fact sheet is intended to help Navigators identify what issues are unique to consumers with Intellectual Disability so that they can assist them as they make decision related to their healthcare coverage.

 
 

12/12/2014

NDNRC Fact Sheet- Autism Spectrum Disorder

This fact sheet is intended to help Navigators identify what issues are unique to consumers with autism spectrum disorder so that they can assist them as they make decision related to their healthcare coverage.

 
 

12/12/2014

NDNRC Fact Sheet- Veterans

This fact sheet is intended to provide Navigators, Assisters and Certified Application Counselors with information about veterans and their eligibility for healthcare through the Department of Veterans Affairs.

 
 

12/10/2014

Division of Human Development and Disability's New Director, Dr. Georgina Peacock

Georgina Peacock, MD, MPH, FAAP has been appointed as the Director of the Division of Human Development and Disability. Dr. Peacock has served as the Acting Director for the past four months, but she assumed the role permanently on Monday, December 15, 2014.

 
 

12/9/2014

Maria Isabel Frangenberg is AUCD's Early Career Professionals' December Guest Blogger

AUCD is happy to announce the Early Career Professionals' December guest blogger - Maria Isabel Frangenberg. She is a Diversity and Inclusion Fellow with the Association of University Centers on Developmental Disabilities (AUCD).

 
 

12/9/2014

The State Innovation Models (SIMS) Program: An Overview

Website  from http://kff.org

The ACA-established Center for Medicare and Medicaid Innovation (Innovation Center) within the Centers for Medicare and Medicaid Services (CMS) is testing an array of alternative payment and service delivery models through numerous demonstration and pilot programs designed to lower costs for Medicare, Medicaid, and the Children�s Health Insurance Program (CHIP) while maintaining or improving the quality of care for beneficiaries. This fact sheet provides an overview of one of these programs � the State Innovation Models (SIM) initiative.

 
 

12/5/2014

#AUCD2014 Sponsors - Thank you!

Thanks to the sponsors at the AUCD 2014 Conference, our theme "AUCD Unleashed: The Power of Engagement" was truly realized.

 
 

12/5/2014

BBC Article: Care for people with learning disabilities 'failing', report says

Article in the BBC News UK reporting on a major government report with recommendations on the status of people with intellectual disabilities (or "learning disabilities" as they use the term) in the UK. The report - Winterbourne View - Time for Change - offers 10 recommendations for the NHS, local government, regulators and the government.

 
 

12/5/2014

Designing Appeals Procedures the Dual-Eligible Demonstrations

The core concept in the dual eligible financial alignment demonstration is integration � integration of payment streams, integration of services and, importantly, integration of appeals processes so that beneficiaries will have a system that protects both Medicare and Medicaid rights, ensures due process, and is easy to understand and navigate.

 
 

12/5/2014

Letter to CMS Providing Comments on Speech Generating Devices

On December 5, 2014, AUCD provided Laurence Wilson, the Director of the Chronic Care Policy Group of the Centers for Medicare and Medicaid Services in the United States Department of Health and Human Services comment on Speech Generating Devices. AUCD's special interest group on assistive technology worked in coalition with other researchers, health professionals, service providers, and individuals with disabilities and their families to provide the following comments with respect to the National Coverage Decision (NCD).

pdf File Letter to CMS Providing Comments on Speech Generating Devices [download]
 
 

12/5/2014

The Uninsured: A Primer - Key Facts About Health Insurance and the Uninsured in America

Website  from http://kff.org

The Uninsured: A Primer is structured in two parts. The first presents basic information about health coverage and the uninsured population leading up to and after the implementation of the Affordable Care Act, who the uninsured are and why they do not have health coverage. The second presents information on the impact lack of insurance can have on health outcomes and personal finances, and provides an understanding of the difference health insurance makes in people�s lives.

 
 

12/5/2014

The Uninsured: A Primer - Key Facts About Health Insurance and the Uninsured in America

Website  from http://kff.org

The Uninsured: A Primer is structured in two parts. The first presents basic information about health coverage and the uninsured population leading up to and after the implementation of the Affordable Care Act, who the uninsured are and why they do not have health coverage. The second presents information on the impact lack of insurance can have on health outcomes and personal finances, and provides an understanding of the difference health insurance makes in people�s lives.

 
 

12/4/2014

ABLE Act Passes the House of Representatives

AUCD applauds the House of Representatives for passing the Achieving a Better Life Experience (ABLE) Act on a strong bipartisan vote of 404-17. This bill will allow individuals and families to lead more independent lives by allowing them to put aside money for disability-related expenses and to help them prepare for future financial needs. AUCD looks forward to Senate passage of the bill, which is expected soon.

 
 

12/4/2014

Medicaid Managed Care Market Tracker

Website  from http://kff.org

Medicaid Managed Care Market Tracker provides state-level, MCO-level, and parent firm-level information related directly, or by extension, to comprehensive risk-based MCOs in Medicaid. It also provides data on parent firm participation in other insurance markets, which shed light on braoder market dynamics.

 
 

12/4/2014

New Inclusive Higher Education Assessment Tool from Think College!

The tool is based on the Think College Standards for Inclusive Higher Education. There are eight standard areas, illustrated by the graphic to the left, with a total of 88 benchmarks. The online survey gives program staff the opportunity to reflect on current level of implementation for each benchmark. At the completion of the survey, a comprehensive report that details current level of implementation in each standard area is provided, along with resources to assist in increasing implementation in each area.

 
 

12/3/2014

International Day of People with Disabilities, 3 December 2014

Theme: Sustainable Development: The Promise of Technology

The observance of this year's International Day of People with Disabilities (IDPD) provides an opportunity to further raise awareness of disability as a cross-cutting development issue. The theme of this year's commemoration, "Sustainable Development: The promise of technology" is timely, as it marks the conclusion of the period of the Millennium Development Goals (MDGS) in 2015 and the launching of the new development framework of sustainable development goals (SDGs).

 
 

12/2/2014

Call for Session Proposals: Multiple Perspectives on Access, Inclusion, and Disability Annual Conference

Celebrate Our Progress And Write Our Future History 15th Annual Conference | April 13 - 14, 2015

This year's conference will celebrate the progress we have made and the journey still ahead. What have we learned? Where are we going? What are the important questions for the next 25 years?

 
 

12/2/2014

Dr. Jacqueline Stone Graduates from Leadership Maryland (MD UCEDD/LEND)

Dr. Jacqueline Stone, the Director of Information Dissemination for the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, will graduate from the Leadership Maryland program on Tuesday, December 2, 2014.

 
 

12/2/2014

Indiana University Center Receives Pfizer Foundation Grant to Support 'Age-friendly' Communities (IN UCEDD)

Grantmakers In Aging, a national association of funders, and the Pfizer Foundation have announced a third year of funding for the Community AGEnda Initiative to help American communities � including Bloomington and other communities in Indiana -- become great places to grow up and grow old.

 
 

12/2/2014

Key Findings on Medicaid Managed Care: Highlights from the Medicaid Managed Care Market Tracker

Website  from http://kff.org

The charts that follow highlight 10 key findings on the Medicaid MCO market based entirely on analysis of data included in the Tracker. The charts provide a partial profile of the market. They also serve to illustrate the kinds of topics and questions the Tracker can be used to explore.

 
 

12/2/2014

Project HEAL (MD UCEDD/LEND) is Featured in the Baltimore Sun

Project HEAL (Health, Education, Advocacy, and Law), a community-based program of the Maryland Center for Developmental Disabilities at Kennedy Krieger Institute, was featured in the Sunday edition of The Baltimore Sun. Kennedy Krieger patients and families across the state of Maryland.

 
 

12/2/2014

Truth and Reconciliation Project conducted by the National Center for Cultural Competence

With the goals of righting past wrongs and building trust between researchers and racially and ethnically diverse communities, Georgetown University Medical Center (GUMC) has developed a novel pilot study consisting of a series of community forums called "Truth and Reconciliation."

 
 

12/1/2014

Coalition Letter Asks President to Protect SSDI in FY 2016 Budget

This letter asks that President Obama include in his proposed budget for fiscal year 2016 a temporary reallocation of the payroll tax to shore up the trust fund for Social Security Disability Insurance.

pdf File SSSC WH Reallocation Letter with Organizations FINAL (1).pdf [download]
 
 

12/1/2014

Contacting Hard to Locate Medicare and Medicaid Members

Health plans serving individuals eligible for both Medicare and Medicaid must be able to locate members before beginning to meet their often significant health care and social service needs. However, individuals with complex needs are often difficult to contact due to incorrect or missing information and unstable housing. This technical assistance brief provides tips on finding hard-to-locate members from seven organizations participating in PRIDE, a project to advance health plan strategies to provide high-quality, cost effective care for high-need populations eligible for Medicare and Medicaid.

 
 

12/1/2014

The New Jersey Action Blueprint for Transition to Adult Health Care (NJ UCEDD)

The Boggs Center is pleased to announce the publication and availability of The New Jersey Action Blueprint for Transition to Adult Health Care. The Action Blueprint is the culmination of the ideas and work of the stakeholder group, The New Jersey Developmental Disabilities Transition to Adult Health Care Forum. Convened by The Boggs Center on Developmental Disabilities (NJ UCEDD) with funding from The Special Hope Foundation, this stakeholder Forum addressed pressing issues in health care transition, and focused on shifting the predominant paradigm in health care transition from pediatrics being 'ready' to send patients to preparing the adult health care system to 'receive' emerging adult patients.

 
 
Richmond 2015 Teacher of the Year Catherine M. Marchetti with Superintendent Dr. Dana Bedden (left)

12/1/2014

Virginia LEND Trainee Wins Teacher of the Year Award

Catherine Marchetti, a Virginia LEND trainee and early childhood exceptional education teacher received the Richmond Teacher of the Year Award.

 
 

11/26/2014

AUCD2014 Transcripts Available

Transcripts from AUCD's three 2014 Conference plenary sessions are now available! Read and remember the information provided and insightful thoughts shared by speakers such as Shankar Vedantam, Emily Ladau, Judy Woodruff, Melody Musgrove, Kathy Greenlee, Portia Wu, Senator Tom Harkin, and more! (Videos yet to come.)

 
 

11/26/2014

Two New UCEDD "Promising Practice Briefs" Focus on Diversity

Promising Practice Briefs highlight projects of excellence and offer a model from which UCEDDs can glean inspiration for new activities to augment their work. A promising UCEDD practice may be a research or evaluation project, policy analysis, data assessment, outreach initiative, or awareness effort. It may provide a direct service or a supported opportunity to people with a developmental disability, indirect support to family and community caregivers, or interdisciplinary training for students, fellows, professionals, and policymakers. It may involve leadership development, community work, or clinical practice.

 
 

11/25/2014

10 new "SWIFT in 60" Mini-films Showing Inclusive Educational Practices (IOD NH UCEDD)

IOD Filmmaker Dan Habib just completed 10 mini-films for the SWIFT Center that show what inclusive school transformation looks like in five trailblazing schools across the country.

 
 

11/25/2014

Ensuring Consumers' Access to Care

Network adequacy state insurance survey findings and recommendations for regulatory reforms in a changing insurance market

 
 

11/24/2014

2014 White House Conference on Aging

The White House and the US Department of Health and Human Services have launched The 2015 White House Conference on Aging Website, part of a year-long effort to celebrate and support the health and well-being of older Americans. The 2015 Conference on Aging and related activities will coincide with the 50th anniversary of Medicare, Medicaid, and the Older Americans Act, and the 80th anniversary of Social Security. Interested individuals can sign up at the website to receive weekly updates on Conference activities.

 
 

11/24/2014

AUCD 2014 Awards Presented to Outstanding Individuals

18 awards were presented to network members and friends at the 2014 AUCD Conference. AUCD is incredibly proud to recognize those who have made exceptional contributions to the lives of people with disabilities and their families.

 
 

11/24/2014

Position Opening: Assistant Virtual Trainee

AUCD is recruiting for a new position: Assistant Virtual Trainee. With AUCD member programs in every US state and territory as well as internationally, our trainees exist all across the world, and more support is needed! The Assistant Virtual Trainee will assist the current Virtual Trainee to continue to build a virtual network among these trainees at AUCD member programs. The Assistant Virtual Trainee will also be mentored by the Virtual Trainee to help them learn more about the AUCD Network, national issues, and trainee network. Deadline: December 19

 
 

11/21/2014

AMCHP Scan on State Developmental & ASD Screening Activities (plus Title V State Performance Measures fact sheet)

AMCHP recently released an environmental scan report and companion fact sheet that captures the wide range of developmental screening activities occurring across the country.

 
 

11/20/2014

#AUCD2014: Please take a moment to complete the 2014 conference survey

Thank you all for an amazing and energizing AUCD 2014 Conference! If you haven't already, please take a moment to complete the 2014 conference survey and tell us what you loved, what you could do without, and how we can continue to improve and build on this year's conference.

 
 

11/20/2014

2015-2016 White House Fellows Program

Join us as we celebrate the 50th anniversary of the White House Fellowship Program by helping us recruit the next class of White House Fellows! This anniversary serves as an opportunity to reflect on the accomplishments of former White House Fellows and as a reminder of what each new class of White House Fellows can hope to achieve.

 
 

11/20/2014

NCD Releases Annual Progress Report on National Disability Policy

The National Council on Disability (NCD) has released the 2014 edition of National Disability Policy: A Progress Report. The 2014 Progress Report focuses on seven key areas: the Convention on the Rights of People with Disabilities (CRPD), employment access and inclusion, subminimum wage, education outcomes, Medicaid managed care, mental health care, and data trends in disability policy. The report provides policy recommendations in each area with the goal of promoting a more inclusive environment.

 
 

11/20/2014

The National Senior Citizens Law Center Guide to Notices

This Guide is designed for advocates and individuals who provide assistance to seniors and persons with disabilities in need of Medicaid long-term services and supports. The focus of the Guide is on notice and appeal rights in states delivering these services through managed care

 
 
Photo by Ann Hermes CSM Staff

11/19/2014

Possibility Unbound: 25 Years of Progress for Those with Disability - CSMonitor.com

Indiana UCEDD and AUCD headquarters quoted

Thanks to the Americans with Disabilities act - which turns 25 next year - and a demanding and aging baby boom generation, the nation has fewer limits for those with physical impairments.

 
 

11/13/2014

National Disability Navigator Year 2 Approach

The National Disability Navigator Resource Collaborative (NDNRC) was established to assist the development of cross-disability competence in the Affordable Care Act. In year 2 the NDNRC is funding eleven Community Outreach Collaborative. The COCs have two primary tasks: 1) build cross-disability collaborations with other disability organizations; and 2) have the cross-disability collaboration work as a dissemination and outreach resource with their local and/or state navigators and assisters.

pdf File NDNRC Flyer 11 14 Year 2.pdf [download]
 
 

11/11/2014

Requirements for Inclusion of Essential Community Providers

Website  from http://kff.org

The information includes information on state Health Insurance Marketplaces, Medicaid and health reform, Medicare and health reform, federal grants and loans, health insurance market reforms, and other relevant indicators.

 
 

11/11/2014

Requirements for Inclusion of Essential Community Providers

Website  from http://kff.org

The information includes information on state Health Insurance Marketplaces, Medicaid and health reform, Medicare and health reform, federal grants and loans, health insurance market reforms, and other relevant indicators.

 
 

11/10/2014

Health Policy Brief: The Family Glitch

Health Affairs policy brief on the "family glitch", an eligibility issue that could lock out some low-to-moderate-income families from, receiving financial assistance to purchase health coverage through the new health insurance Marketplaces.

 
 

11/7/2014

State Insurance Marketplace Types, 2015

Website  from http://kff.org

This data collection reflects Medicaid benefits covered in each state, limitations applied to those benefits, cost-sharing charges, and the reimbursement methodologies used for those benefits in effect at six specific points in time, the most recent being October 1, 2012.

 
 

11/6/2014

Explanation of the 2015 Open Enrollment Period

Website  from http://kff.org

This brief provides an overview of what consumers can expect during the second Open Enrollment period and the tax filing season that follows.

 
 

11/6/2014

New Youth Transition Resource for Families (ICI MA UCEDD)

The Partnerships in Employment project just released a guide to supporting people with intellectual and developmental disabilities (IDD) in their communities. The guide is aimed at family members of people with IDD. Written by the ICI's Jean Winsor, the guide touches on topics such as common goals for people with IDD around employment and community participation. It will help families and individuals better understand the different types of day and employment services available. Partnerships in Employment is run by the ICI in partnership with the National Association of State Directors of Developmental Disabilities Services and funded by the Administration on Intellectual and Developmental Disabilities. The project provides technical assistance to eight states: Alaska, California, Iowa, Mississippi, Missouri, New York, Tennessee, and Wisconsin. The purpose is to change state systems to improve transition, post-secondary, and employment outcomes for youth and young adults with IDD.

 
 

11/4/2014

NPR's Shankar Vedantam to Speak at AUCD2014

Shankar Vedantam is a science correspondent for NPR. The focus of his reporting is on human behavior and the social sciences, and how research in those fields can get listeners to think about the news in unusual and interesting ways. Before joining NPR in 2011, Vedantam spent 10 years as a reporter at The Washington Post. From 2007 to 2009, he was also a columnist, and wrote the Department of Human Behavior column for the Post. Vedantam writes an occasional column for Slate called "Hidden Brain."

 
 

11/4/2014

Training Volunteers to Help Children in Malawi

Amy Hewitt, MN UCEDD/LEND, travels to work with families and volunteers

Dr. Amy Hewitt from the Institute on Community Integration UCEDD and LEND at the University of Minnesota recently completed a visit to Africa where she participated in a collaborative training project with Mikala Mukongolwa of the Baulini Project and Dr. Jason Paltzer, Director of the Kingdom Workers Lutheran Health Alliance. The team made stops in Lusaka, Zambia, and Blantyre, Malawi, working with volunteers and families.

 
 

11/3/2014

Georgetown University Center Releases an Online Resource Navigator

on Private Health Insurance Coverage & the Health Insurance Marketplace

Georgetown released an online navigator which is a valuable resource that provides a comprehensive list of answers to common questions faced by navigators and all enrollment specialists.

 
 

11/3/2014

Georgetown University Center Releases an Online Resource Navigator

on Private Health Insurance Coverage & the Health Insurance Marketplace

Georgetown released an online navigator which is a valuable resource that provides a comprehensive list of answers to common questions faced by navigators and all enrollment specialists.

 
 

10/31/2014

MN UCEDD Collaborates with Educators in India to Improve Elementary Education

Four faculty and students from Avinashilingam University for Women in Coimbatore, India, hvae spent the week at the Institute on Community Integration (MN UCEDD) working with ICI staff on strategies for helping students of all abilities and backgrounds in India reach a level of education that will make them competitive in the job market and everyday life.

 
 

10/31/2014

News and Updates from the Health Insurance Marketplace

News/ updated content and webinar alerts and announcements from the Health Insurance Marketplace

 
 

10/31/2014

TRIAD Service AmeriCorps program returns to Mississippi UCEDD

by Kerri Inmon, Social Work Intern

The Training Resources and Information for the Advancement of Disability (TRIAD) Service AmeriCorps Program embodies Dr. King's statement through inclusive service. TRIAD Service AmeriCorps consists of members both with and without disabilities who serve local communities through the provision of education and resources.

 
 

10/31/2014

Vanderbilt Kennedy Center (TN UCEDD) Researchers Find Face Memory Predicts Social Engagement in Children With and Without Autism

Vanderbilt Kennedy Center (TN UCEDD) Researchers Find Face Memory Predicts Social Engagement in Children With and Without Autism Vanderbilt Kennedy Center (TN UCEDD) Researchers have found that face memory strongly predicts social engagement in both children with and without autism spectrum disorder (ASD). Blythe Corbett, Ph.D., lead author of the report published in the Journal of Neurodevelopmental Disorders (2014, 6:35), led the study of 34 children with ASD and 32 typically developing children, all boys ages 8 to 12 years.

 
 

10/30/2014

Issue Brief from the Commonwealth Fund on the Essential Health Benefits Issue

The Commonwealth Fund details how state have approached the Essential Health Benefits issue and how there is a great variation from state to state.

 
 

10/29/2014

AUCD2014 Has Gone Mobile!

Check out the 2014 AUCD App Guide for a detailed overview of how to download the app and how to access everything in it. See you in 4 days! Schedule, Maps, Twitter and ore on your mobile device - completely free.

 
 

10/27/2014

Defense Department Working to Hire More People with Disabilities

The U.S. Department of Defense (DoD) is taking steps to become a model employer of people with disabilities. Its new director of disability programs, Randy Cooper, is leading a department-wide effort to hire more people with disabilities, including troops wounded in Iraq and Afghanistan.

 
 

10/22/2014

Schedule Congressional Appointments Today!

We hope that while you are in DC for the #AUCD2014 Conference you will schedule time to meet with your Members of Congress. We want your Senators and Representatives to hear directly from you about your work and why it is important to people with disabilities in your state and nationwide. We also need to build new congressional champions on disability issues. You will need to call your Members to schedule the meetings before you arrive. If you haven�t already done so, we suggest that you do this as soon as possible but at least a week in advance. Making appointments and meeting with your Members is easy! Just follow our simple steps...

 
 

10/21/2014

CCD Open Enrollment Flyer

Consortium for Citizens with Disabilities released a flyer containing information about the open enrollment period starting in November

pdf File open enrollment flyer final (2).pdf [download]
 
 

10/20/2014

AUCD Announces 2014 Trainee Scholarship Recipients

AUCD is proud to sponsor 20 trainees with scholarships to the AUCD 2014 Conference. The trainees selected come from 17 centers, and represent both LENDs and UCEDDs in over 10 disciplines.

 
 

10/16/2014

AUCD Announces 2014 Emerging Leader Scholarship Recipients

The Emerging Leader Scholarship Fund was established to support emerging leaders in the AUCD Network with an emphasis on self-advocates, family members and early career professionals. Recipients receive a travel scholarship and registration funds for the AUCD Conference in Washington, DC, where they gain valuable opportunities in networking, mentorship, and professional growth.

 
 

10/16/2014

AUCD Welcomes New Staff

AUCD is pleased to welcome several new and talented staff to our Central Office! We are excited about the expertise they bring and the contributions we are confident they'll make in working for the network and people with disabilities.

 
 

10/15/2014

NCDAE and WebAIM Position Statement on the inclusion of TEACH Act Language in the Higher Education Act

the National Center on Disability and Access to Education and WebAIM joined together to release a position statement on whether or not TEACH Act language should appear in the Higher Education Act.

 
 

10/14/2014

AUCD 2014: Which concurrent session will you be attending?

You will have a hard time choosing which concurrent session to attend because they are all pretty fantastic. AUCD2014 features nearly 50 concurrents in over 25 hot topics including advocacy, clinical service, postsecondary education, employment, self-determination, and leadership!

 
 

10/14/2014

Dr. Bryant-Claxton Named Executive Director of the Institute for Disabilities Studies (IDS) (MS UCEDD)

Dr. Beth Bryant-Claxton brings a wealth of experience as a clinical psychologist and administrator into her new role as executive director of The University of Southern Mississippi Institute for Disability Studies. Dr. Bryant-Claxton joined the Institute for Disabilities Studies (IDS), Mississippi's University Center for Excellence in Research, Education and Service (UCEDD), on Oct. 6.

 
 

10/14/2014

Dr. Joann Yuen Appointed Director of the University of Hawaii Center on Disability Studies

Dr. JoAnn Yuen will begin her role as director on January 1, 2015. She has been with the Center on Disability Studies (CDS) at the University of Hawaii since 1999 and has served as associate director since 2013. Yuen is the former chair of the COE Faculty Senate.

 
 

10/14/2014

Expanding Medicaid Report

Website  from http://kff.org

Without the Expansion and Resulting Infusion of Federal Funds, Non-Expansion States Expect Much Smaller Enrollment Increases and Spending Growth.

 
 

10/14/2014

White House Honors Disability Employment Champions of Change

Ten people from across the country were honored as Disability Employment Champions of Change at the White House on October 14, 2014 for their efforts to expand employment opportunities for people with disabilities.

 
 

10/8/2014

Medicaid Expansion in Arkansas

Website  from http://kff.org

Fact Sheet on Arkansas' Section 1115 demonstration of the implementation of the Affordable Care Act's (ACA's) Medicaid expansion.

 
 

10/8/2014

Medicaid Expansion in Iowa

Website  from http://kff.org

Fact Sheet on Iowa's approved Section 1115 waivers, to implement the Affordable Care Acts (ACAs) Medicaid expansion.

 
 
Logo for I'm In To Hire Day

10/7/2014

Join the Conversation: I'm In To Hire Day

I'm In To Hire: Social Media Champion Toolkit

I'M IN TO HIRE is purposed to promote the business benefits for hiring people living with intellectual and developmental disabilities* (IDD) and motivate employers across the globe to create a more inclusive workplace. Show your support by resharing any post from @ImInToHire. Thank you for supporting our campaign and weighing in on social media.

pdf File Social Media Champion Toolkit [download]
 
 

10/6/2014

AUCD 2014: New Plenary Speakers Confirmed

AUCD is pleased to welcome several amazing plenary speakers to our 2014 Conference! Don't miss out on these engaging speakers, register today!

 
 
picture of Shannon Haworth

10/1/2014

AUCD Welcomes Shannon Haworth as the new senior specialist for the LEND team at AUCD

Shannon Haworth most recently worked for the Partnership for People with Disabilities as the Project Manager for the Virginia state autism implementation grant. She is a former Virginia LEND (Leadership Education in Neurodevelopmental Disabilities) trainee.

 
 

9/26/2014

Got Coverage? Next Steps in Using Your Health Insurance

Join the webinar: "Got Coverage? Next Steps in Using Your Health Insurance." Many people now have health insurance but may not know how to use it. This webinar and conference call will discuss how to read your insurance card, how to find a doctor, what you need to know in making an appointment and what to do in case you have a health emergency. Key terms will be discussed as well as recommended health screenings. Please send your questions to ACA101@hhs.gov prior to October 8 at 10 am ET.

 
 

9/26/2014

How to Become a Certified Application Counselor (CAC) and Champion for Coverage

Join the webinar to learn "How to Become a Certified Application Counselor (CAC) and Champion for Coverage." Certified Application Counselors (CACs) are volunteers who enroll people in the Health Insurance Marketplace. CAC organizations train CACs and plan enrollment events. Champions for Coverage educate people in their community about the health care law and receive invitations to conference calls and webinars. Please join us on September 29 at 1 pm ET to learn more about CACs, CAC organizations and Champions for Coverage. Please email ACA101@hhs.gov by September 29 at 10 am ET with any questions.

 
 

9/26/2014

Special Enrollment Periods and Resources for the Uninsured

The health care law has created special enrollment periods for those who experience special circumstances such as graduating from college and losing health insurance, getting married and needing coverage for a spouse, losing employer insurance or turning 26 and losing coverage on a parent�s health plan. Join this webinar to learn more about special enrollment periods and how to enroll in the Health Insurance Marketplace. Join the webinar on "Special Enrollment Periods and Resources for the Uninsured." For those who are uninsured and don�t qualify for the special enrollment period, learn what resources are available and when and how to enroll in the Health Insurance Marketplace. Please email ACA101@hhs.gov by September 30 at 10 am ET with any questions.

 
 

9/26/2014

Understanding the Health Coverage Needs of People with Disabilities

Earlier this month, the National Disability Navigator Resource Collaborative presented a webinar on Understanding the Health Coverage Needs of People with Disabilities to the California Coverage & Health Initiatives. The video of this presentation, as well as other presentations can be found here.

 
 

9/25/2014

Administration Says Hospitals Will Save $5.7B From Unpaid Bills Due To Health Law

Hospitals are projected to save $5.7 billion this year as previously uninsured patients gain coverage through the 2010 health care law, the Department of Health and Human Services said Wednesday.

 
 

9/25/2014

AUCD 2014 Hotel Room Block is Full!

AUCD's block of hotel rooms at the Renaissance is full and they are not able to give us more rooms at our negotiated group rate. Please go to the Hotel link to see a list of hotels within walking distance to the Renaissance that might have space.

 
 
Register Now!

9/25/2014

AUCD 2014: Dont Miss Out on Early Bird Registration

Register by October 10th and be entered to win a free conference main registration fee! Two winners will be randomly drawn and notified on October 11th. Reserve your space today for the highly anticipated AUCD Conference.

 
 

9/25/2014

HHS announces nearly $212 million in grants to prevent chronic diseases

Health and Human Services Secretary Sylvia M. Burwell today announced nearly $212 million in grant awards to all 50 states and the District of Columbia to support programs aimed at preventing chronic diseases such as heart disease, stroke and diabetes. Funded in part by the Affordable Care Act, the awards will strengthen state and local programs aimed at fighting these chronic diseases, which are the leading causes of death and disability in the United States, and help lower our nation's health care costs.

 
 

9/25/2014

Insurance Brokers Key To Kentucky's Obamacare Success

This story highlights that despite the pushback from small insurers, the ACA can create a successful situation for all stakeholders, as seen in the small town of London, KY.

 
 

9/24/2014

Connecting Consumers to Coverage: Lessons Learned from Assisters for Successful Outreach and Enrollment

Website  from http://kff.org

In-person enrollment assisters played an important role in connecting consumers with health coverage during the Affordable Care Act�s first open enrollment period. Based on findings from focus groups with assisters in four cities�Miami, FL; Houston, TX; Raleigh, NC; and Cleveland, OH�this brief identifies key strategies that contributed to their success and priorities and challenges as they look ahead to the next open enrollment period.

 
 

9/24/2014

Examining Private Exchanges in the Employer-Sponsored Insurance Market

Website  from http://kff.org

The launch of the Affordable Care Act has focused attention on the idea of a health insurance exchange, or marketplace. Separate from the ACA, private exchanges have also started to emerge as an option for employers providing coverage to their workers. This report identifies the different types of private exchanges as well as projects the potential size of the private exchange market, which has the potential to reshape the employer-sponsored health insurance landscape, in the coming years.

 
 

9/24/2014

Information for Veterans Regarding Department of Veterans Affairs Healthcare

From the National Disability Navigator Resource Collaborative

This fact sheet is intended to provide Navigators, Assisters and Certified Application Counselors with information about veterans and their eligibility for healthcare through the Department of Veterans Affairs.

 
 
trainees

9/23/2014

2014 Trainee Travel Scholarships

Application Deadline: October 3

AUCD is pleased to announce the availability of 16 travel scholarships of up to $500 each AND 4 volunteer scholarships of up to $500 each to support AUCD Trainees in attending the 2014 AUCD Conference.

 
 
Jessica Finkel

9/23/2014

AUCD Welcomes Jessica Finkel as Program Assistant

Jessica Finkel is formerly with the Osteogenesis Imperfecta Foundation in program and development work. She is currently working on her Master's degree in Public Policy with a concentration in Nonprofit Management and Leadership at the University of Maryland, College Park.

 
 
Leon Barnett

9/23/2014

AUCD Welcomes Leon Barnett as Program Specialist for the OSEP Promise TA Center

Leon Barnett previously served at George Mason University as a teacher and counselor for The Mason Life Program (a post-secondary program for young adults with intellectual and developmental disabilities) as well as a special education teacher in Baltimore City, Maryland. He received his Master's degree in Leadership for School, Family, and Community Collaboration from The Johns Hopkins University.

 
 

9/23/2014

Judge OKs ending 30-year-old mental health suit

A Maricopa County judge on Monday signed off on an agreement that increases housing, employment and other services for the seriously mentally ill.

 
 

9/22/2014

Deal Reached On Tax-Free Disability Savings Accounts

Federal lawmakers say they've reached a deal to move forward on legislation that would establish a new way for people with disabilities to save money without jeopardizing their government benefits. Members of the U.S. Senate said Friday that they have an agreement that will allow the Achieving a Better Life Experience, or ABLE, Act to proceed.

 
 

9/22/2014

Finance Senators Commit to Path Forward on Able Act

Members of the United States Senate Committee on Finance today outlined a path forward on the Achieving a Better Life Experience (ABLE) Act, issuing this statement.

 
 

9/22/2014

For Autistic Adults, Coverage Options Are Scarce

It is getting easier for parents of young children with autism to get insurers to cover a pricey treatment called applied behavioral analysis. Once kids turn 21, however, it is a different ballgame entirely.

 
 

9/22/2014

New Medicaid Enrollees Pleased With Coverage, But Note They Still Face Obstacles

Focus-group research finds that people who received Medicaid coverage under the health law's expansion are generally happy but find roadblocks to getting care, The Washington Post reports.

 
 

9/22/2014

Senator Harkin Introduces Bills to Promote Access to Housing, Transportation, and Exercise and Fitness Services

Last week, Senator Tom Harkin (D-IA) introduced three bills as part of his �Access for All� agenda to help people with disabilities achieve economic independence and reach the middle class.

 
 

9/19/2014

Special Issue of Medical Care Highlights Health Disparities at the Intersection of Disability, Race and Ethnicity

Introductory article by the supplement guest editors, Willi Horner-Johnson, PhD, of Oregon Health & Science University, Portland; Glenn T. Fujiura, PhD, of the University of Illinois at Chicago; and Tawara D. Goode, MA, of Georgetown University.

It's well established that Americans with disabilities and those in underserved racial/ethnic groups face significant disparities in access to health care. Now, researchers are beginning to examine the unique patterns of health care inequalities experienced by racially and ethnically diverse patients with disabilities, according to a special October supplement to Medical Care. The journal is published by Lippincott Williams & Wilkins, a part of Wolters Kluwer Health.

 
 
Full Committee Hearing - Fulfilling the Promise: Overcoming Persistent Barriers to Economic Self-Sufficiency for People with Disabilities

9/18/2014

AUCD Statement on today's Senate Hearing on Overcoming Barriers to Economic Self-Sufficiency for People with Disabilities

WASHINGTON, DC (September 18, 2014) - The Association of University Centers on Disabilities (AUCD) applauds Chairman Tom Harkin (D-IA), Ranking Member Lamar Alexander (R-TN), and other Senate HELP Committee Members for holding a hearing today on overcoming persistent barriers to economic self-sufficiency for people with disabilities.

pdf File Senate hearing on economic barriers to Economic Self-Sufficiency for People with Disabilities [download]
 
 

9/18/2014

States' Customized Efforts To Expand Medicaid Could Complicate Reform

Some conservative states have won concessions from the administration in exchange for moving forward on expansion, and other states are carefully weighing those choices, as highlighted in this article.

 
 

9/18/2014

Virginia Lawmakers Expected To Return To Debate Over Medicaid Expansion

The topic of VA Medicaid expansion will come up during a special session of the Virginia House of Delegates, which is dominated by Republican lawmakers who are on record opposing the approach. A poll released Wednesday, however, found the majority of Virginians support the expansion.

 
 

9/17/2014

An Overview of Medicaid Incentives for the Prevention of Chronic Diseases (MIPCD) Grants

Website  from http://kff.org

Given the high prevalence of chronic diseases and conditions in the United States, and the role that health risk behaviors play in contributing to chronic disease, policymakers have increasingly focused on the benefits of investing in preventive care and engaging Americans in their health behaviors. Several state Medicaid programs have implemented incentives for beneficiaries who demonstrate healthy choices, which are meant to empower individuals to change their lifestyle habits to achieve better health.

 
 

9/17/2014

How Will the Uninsured in Pennsylvania Fare Under the Affordable Care Act?

Website  from http://kff.org

The 2010 Affordable Care Act (ACA) has the potential to extend coverage to many of the 47 million nonelderly uninsured people nationwide, including the 1.4 million uninsured Pennsylvanians. The ACA establishes coverage provisions across the income spectrum, with the expansion of Medicaid eligibility for adults serving as the vehicle for covering low-income individuals and premium tax credits to help people purchase insurance directly through new Health Insurance Marketplaces serving as the vehicle for covering people with moderate incomes. With the June 2012 Supreme Court ruling, the Medicaid expansion became optional for states, and as of August 2014, Pennsylvania was planning to implement the expansion in 2015.1 As a result, almost all nonelderly uninsured, most of whom are adults, will become eligible for coverage under the ACA coverage expansions. As the coverage expansions are implemented and coverage changes are assessed, it is important to understand the potential impact of the law in the state.

 
 

9/17/2014

The Federal Courts' Role in Implementing the Affordable Care Act

Website  from http://kff.org

Since the Affordable Care Act�s (ACA) passage, a number of lawsuits have been filed challenging various provisions of the law. The Supreme Court has decided cases about the constitutionality of the ACA�s individual mandate and Medicaid expansion as well as the applicability of the contraceptive coverage requirement to closely held for-profit corporations with religious objections. In addition, several cases challenging the availability of premium subsidies in the Federally-Facilitated Marketplace (FFM) are currently progressing through the federal courts. All of this litigation has altered, or has the potential to alter, the way in which the ACA is implemented and consequently could affect the achievement of the law�s policy goals. This issue brief examines the federal courts� role to date in interpreting and affecting implementation of the ACA, with a focus on the provisions that seek to expand access to affordable coverage.

 
 

9/16/2014

Health Law Tempers New State Coverage Mandates

For decades, states have set rules for health coverage through mandates, laws that require insurers to cover specific types of medical care or services. The health law contains provisions aimed at curbing this piecemeal approach to coverage. States, however, continue to pass new mandates, but with a twist: Now they are adding language to sidestep the health law, making it tougher than ever for consumers to know whether they are covered or not. This can affect coverage for people with disabilities based on their state and what each state decides to cover.

 
 

9/15/2014

Budget Referees Make It Harder To Evaluate Obamacare Costs

The Congressional Budget Office will no longer evaluate the fiscal implications of some parts of the Affordable Care Act, partly because of all the changes made during implementation. KHN's Mary Agnes Carey and The Fiscal Times' Eric Pianin discuss.

 
 

9/15/2014

California To Broaden Autism Coverage For Kids Through Medicaid

A new initiative seeks to help low-income families with children with diabilities. Starting Monday, Sept. 15, thousands of children from low-income families who are on the autism spectrum will be eligible for behavioral therapy under Medi-Cal, the state's health plan for the poor.

 
 

9/12/2014

AUCD Welcomes Farrah Ahamad as Public Policy Intern

Farrah Ahamad is the Public Policy Intern at AUCD. In 2014, she graduated from the George Washington University's Elliott School of International Affairs with a Masters of Arts degree in International Development Studies, focusing on Public Private Partnerships and Civil Society. In the long term, Farrah plans to take all she has learned and apply it to the systems in her home country of Trinidad and Tobago, including policies propelled and supported by AUCD.

 
 

9/12/2014

AUCD Welcomes Paul Gottlich as Meetings Intern

Paul Gottlich serves as the intern for this November's AUCD UNLEASED Annual Conference. He received a Bachelor's degree in Middle East Foreign Policy and International Business/Marketing from The Johns Hopkins University where he focused on US-Turkish relations and marketing/event planning for start-up companies.

 
 

9/11/2014

President's Committee for People with Intellectual Disabilities Holds 2014 Meeting

Committee now has record number of people with disabilities and many AUCD network members

The President's Committee for People with Intellectual Disabilities held their 2014 meeting September 3-5. The committee how has significantly more members with intellectual disabilities and strong representation from the AUCD network.

 
 

9/8/2014

Side-by-Side Comparison of House and Senate WIA Re-authorization Bills and WIAO

A side-by-side comparison of occupational training provisions in House and Senate WIA Re-authorization Bills and Workforce Innovation and Opportunity Act prepared by the National Skills Coalition.

 
 

9/8/2014

Virginia's Proposed Medicaid 1115 Waiver

Center for Health Care Strategies calls it a "Step Forward for People with Mental Illness"

Virginia Governor Terry McAuliffe has announced that Virginia's Medicaid agency will initiate an 1115 demonstration wavier request to create a benefit package for people with serious mental illness to have access to both behavioral and primary health services.

 
 

9/5/2014

Happy Preparedness Month!

Celebrate by ensuring you and your family are prepared for an emergency. CDC has focused on children's preparedness for the past week. Learn some of the ways children's needs are unique in an emergency and how your family can prepare.

 
 

9/4/2014

AUCD Conference Proposal Notifications

Everyone who submitted a proposal to present at AUCD 2014 Conference has been sent a notification. If you have not received yours, please contact Laura Martin (lmartin@aucd.org) immediately. Any modifications to the proposals are due 09/26.

 
 

9/4/2014

Midwest LEND Consortiums Collaborative Quality Improvement Planning Project

Eighteen LEND faculty from Iowa, Kansas, Missouri, Nebraska, and South Dakota met in Kansas City on July 16-17 for an "Effective Adult Learning" workshop, facilitated by Alexis Petri, EdD, the Director of Interdisciplinary Training at the University of Missouri-Kansas City Institute for Human Development. The first day of the workshop focused on the characteristics of the adult learner, including adult learning theories, motivation, barriers to participation and the implications for teaching adults in college classroom and professional development settings.

 
 

9/2/2014

The Top 5 States Most Likely to Expand Medicaid Next

Governing magazine explores which states will implement the ACA's Medicaid expansion next.

 
 

8/31/2014

CMCS Informational Bulletin: Clarification of Medicaid Coverage of Services to Children with Autism

This informational bulletin from the Center for Medicaid and CHIP Services, clarifies that services for children with autism should be covered under the Early and Periodic Screening, Diagnostic and Treatment services (EPSDT).

 
 
Laurel Geist

8/30/2014

AUCD Welcomes Laurel Geist (Nisonger LEND) as the 2014-15 Virtual Trainee

Laurel's goal as Virtual Trainee is to create a community among students from AUCD's many programs through common interests, similar career paths, and shared experiences using social media. She has a number of exciting efforts already underway and AUCD is excited for this year's trainees to form a supportive and interactive network. Trainees and Directors are encouraged to contact Laurel to find out more!

 
 

8/29/2014

NY Times Article Op-ED: The Truth About Down Syndrome

Co-Authored by Jamie Edgin, Assistant Professor of Psychology at the University of Arizona (AZ UCEDD)

New York Times Op-Ed - The Truth About Down Syndrome. It's associated with more happiness than you might think.

 
 

8/27/2014

Comprehensive Evaluation of the Child With Intellectual Disability or Global Developmental Delays

Global developmental delay and intellectual disability are relatively common pediatric conditions. This report describes the recommended clinical genetics diagnostic approach. The report is based on a review of published reports, most consisting of medium to large case series of diagnostic tests used, and the proportion of those that led to a diagnosis in such patients.

 
 

8/25/2014

Capacity of Local Health Departments to Track, Administer, and Promote Seasonal Influenza Vaccinations for Pregnant Women, Children with Special Healthcare Needs, and Adults with Disabilities

This research brief highlights the extent to which local health departments (LHDs) provide and have the capacity to track, administer, and promote influenza (flu) vaccination for pregnant women, children with special health care needs, and adults with disabilities

 
 

8/24/2014

UPDATED: CMS Releases Final Rule on Home and Community Based Services

On January 10 the Centers for Medicare and Medicaid Services issued a regulation that greatly strengthens access to community-based services in the Medicaid program. On March 20, CMS released a toolkit of materials for states and stakeholders.

 
 

8/20/2014

A Tribute to Senator James M. Jeffords, A True Public Servant

Jim Jeffords was a man of the people---a gentle, soft-spoken man, always seeking to do the right thing. He was a man of integrity, wit, and wisdom---with a twinkle in his eye. He was a humble man, always willing to take the first step to accomplish the goal---though often shunning the limelight and giving credit to others. His primary purpose was to serve the greater good. Often, when he met with constituents visiting his Senate office, as he was running out of the office for a floor vote or committee meeting...he would wave his hand in the air in a grand gesture and state "I am off to do good"...with a broad smile on his face. The truth is, he really meant it.

 
 

8/11/2014

AUCD Welcomes Ben Jackson as Disability Policy Leadership Fellow

W. Ben Jackson III is currently serving as the AUCD Disability Policy Fellow for 2014-2015. He graduated from The Dickinson School of Law at The Pennsylvania State University in May of 2104. Prior to joining the AUCD he worked with Project HEAL (Health, Education, Advocacy and Law) at the Kennedy Krieger Institute as a law clerk. As a law clerk with Project HEAL he was responsible for researching and drafting memorandums on special education law. He directly advocated for clients by drafting complaints for the Maryland State Department of Education for alleged violations of the Individuals with Disabilities Education Act (2004). He also worked to ensure his clients had appropriate accommodations and placements by advocating during Individualized Education Program meetings.

 
 

8/11/2014

Autism CARES Act Summary

The Autism Collaboration, Accountability, Research, Education, and Support Act of 2014 or the Autism CARES Act (H.R. 4631; S. 2449) will reauthorize the Combating Autism Reauthorization Act of 2011 for five years.

 
 

8/11/2014

Maternal and Child Health Library History Collection Updated

The Maternal and Child Health Library at Georgetown University has updated its History Collection with new items to increase access to important historical resources. We appreciate your sharing this information among your membership, staff, and grantees.

 
 

8/9/2014

President Signs Autism CARES Act into Law

President Obama signed the Autism CARES Act into law on August 8. AUCD's Director of Public Policy wrote this blog post about the law.

 
 

8/7/2014

FY 15 Training Materials

 
 

8/6/2014

UC (OH UCEDD), Partners Awarded Funding to Address Health Care Gaps

The University of Cincinnati (UC) College of Nursing, along with the UC College of Medicine and partners at Cincinnati Children's Hospital Medical Center and UC's University Center for Excellence in Developmental Disabilities, has received almost $1 million to develop programs to grow in number and better prepare practitioners to meet the primary care and mental health care needs of the Ohio Medicaid population.

 
 

8/2/2014

A Better Bottom Line: Employing People with Disabilities

Governor Markell's initiative as Chair of the National Governors Association

During his tenure as chair of the National Governors Association, Governor Jack Markell decided to focus his chairmanship on increasing employment for people with disabilities. The "A Better Bottom Line: Employing People with Disabilities" website went live on 08-02-13.

 
 

8/2/2014

CCD Letter on HCBS Regulation Implementation

The Consortium for Citizens with Disabilities Long-Term Services and Supports Task Force sent this letter to Cindy Mann, Deputy Administrator of CMS and head of the Medicaid program, sharing their ideas, concerns, and recommendations regarding the HCBS rule.

pdf File CCD Letter to CMS on HCBS Regulation.pdf [download]
 
 

8/1/2014

Employment Opportunity: Director of Development and Communications, Association of University Centers on Disabilities (AUCD), Silver Spring, MD

AUCD, a leading national disability organization, is currently seeking a dynamic individual to serve as Director of Development and Communications. AUCD has seen tremendous growth in the last 15 years and this position will help to build and strengthen existing capacity, visibility and impact by leading the overall development efforts of the association as well as assisting in the coordination of communications strategies and activities.

 
 

7/31/2014

Autism CARES Act Passes Senate

Late on July 31, the Senate passed the Autism CARES Act by unanimous consent. The bill now goes to the President for signature.

 
 

7/30/2014

Six by '15: Community Living

At least six states will elect to implement the Community First Choice Option so that their Medicaid recipients with disabilities have access to long-term services and supports in the community

The Affordable Care Act included a new Medicaid option for states called Community First Choice. States that take up the option can provide home and community-based services without a waiver or waiting list and receive increased federal financial support for the services. As of the end of 2013, only California and Oregon had been approved to implement the option by the Centers for Medicare and Medicaid Services (CMS). By the end of 2015, the Six by '15 Campaign would like to see four more states join them in implementing the Community First Choice Option and addressing the institutional bias in their Medicaid programs.

 
 

7/30/2014

Six by '15: Early Childhood

At least six states increase by 15 percent the proportion of children ages 0-3 who receive recommended developmental screening

An estimated 17% of children in the US have a developmental or behavioral disability like intellectual disability or autism, but less than half of children with these disabilities are identified before starting school . Early identification connects children with disabilities to services so they can start school ready to learn. We hope that by the end of 2015, six states will have increased their current rate of developmental screening for children birth to three by 15 percent and at least six states commit to improving cross-system information exchange that supports access to services for children identified by screening.

 
 

7/30/2014

Six by '15: Education

At least six additional states have at least 60 percent of their students with disabilities graduating with a regular high school diploma

A high school diploma is required to perform even the most basic jobs in the modern economy. In the 2010-2011 school year, 22 states graduated over 60% of their students with disabilities with a regular diploma. Some graduated as low as 23%. We would like to see at least six more states reach the goal of graduating 60% or more of their students with disabilities with regular diplomas by the end of 2015.

 
 

7/30/2014

Six by '15: Employment

Six million working age adults with disabilities will be part of the American workforce

In March of 2014, 4.67 million people with disabilities participated in the labor force. That means less than 20% of people with disabilities are working or looking for work, compared to 68% of people without disabilities. The Six by '15 Campaign would like to see that number reach 6 million by the end of 2015.

 
 

7/30/2014

Six by '15: Transition

At least six states commit to supporting successful and outcome-based programs and strategies for high school transition services and closing the labor force participation gaps for youth and young adults with disabilities

Work experiences have been proven to improve outcomes for youth with disabilities transitioning out of high school. From 2004 to 2006, an average of 8% of youth with disabilities applied for vocational rehabilitation services. Of those who applied, only 56% actually received services. The Six by '15 Campaign wants at least six states to commit to supporting internships, scholarships, and other evidence-based services to help youth with disabilities transitioning from high school to higher education and employment.

 
 

7/28/2014

Celebrating the 24th Anniversary of the Americans with Disabilities Act

July 26 marked the 24th anniversary of the Americans with Disabilities Act. Celebrations will occur across the country, especially as the community gears up for the 25th anniversary next year. The Six by "15 campaign is certainly looking forward to these years' celebrations and the exciting work we have to do in the coming year to achieve our goals.

 
 

7/28/2014

The Health and Well-Being of Children, NSCH 2011-2012 Chartbook

Published by MCHB, the Health and Well-Being of Children: A Portrait of States and the Nation 2011-2012 (June 2014) reports that overall 73.2% of young children (aged 6 months-5 years) met all of the survey's criteria for flourishing.

 
 

7/28/2014

When the Caregivers Need Healing (TN UCEDD/LEND) Featured in the New York Times

All parents endure stress, but studies show that parents of children with developmental disabilities, like autism, experience depression and anxiety far more often. Struggling to obtain crucial support services, the financial strain of paying for various therapies, the relentless worry over everything from wandering to the future - all of it can be overwhelming.

 
 

7/21/2014

Disability Disclosure in/and Higher Education: Call for Papers

Co-editors: Kerschbaum, Jones, Eisenman, Univ of Delaware

This collection thus seeks to explore the richness of disability disclosure. Building on and extending the work of the "Disability Disclosure in/and Higher Education" conference, this work will explore questions about disability disclosures in all corners of higher education, from a variety of theoretical, methodological, conceptual, and (multi)(inter)disciplinary perspectives. By providing wide-ranging explorations of disability disclosure, this collection will highlight how disability in higher education is not an issue relevant only to those who have disabilities, but one which has far-reaching consequences across higher education. Deadline for Submissions: October 15, 2014

 
 

7/21/2014

Introducing Melody Imoh: New AUCD Program Assistant

AUCD warmly welcomes Melody Imoh to our staff as a Program Assistant! Melody brings a wealth of experience and will provide programmatic and operations support across all of AUCD's programs and departments.

 
 

7/21/2014

SD Center for Disabilities Announces Eric Kurtz, PhD as New LEND Director

Kurtz has previously served as the Center's Clinical Operations director, Autism Spectrum Disorders Program director, Discipline Head for Autism and Related Disorders with LEND, and is assistant professor of pediatrics. He has several years of clinical experience providing specialized psychological services in clinical, school, and forensic settings. He succeeds Dr. Joanne Van Osdel, who retired in July.

 
 

7/21/2014

UCEDDs Take Part in a Thank You Video for Senator Harkin for his Dedication of People with Disabilities

On July 16, 2014, the Association of Assistive Technology Act Programs (ATAP) presented this " Thank You to Senator Harkin! " video in recognition of the Senator's work on the developing and sustaining this national network. More than a dozen UCEDDs are lead entities on the implementation of the AT Act in their state.

 
 

7/17/2014

ASAN Unveils Toolkit for Advocates on Health Care and the Transition to Adulthood

ASAN has prepared a comprehensive toolkit to empower people with disabilities, their families, and other disability advocates to help youth with disabilities manage their own health care as they transition to adulthood.

 
 

7/17/2014

Federal Funding for Students with Disabilities: The Evolution of Federal Special Education Finance in the U.S.

In Federal Funding for Students with Disabilities: The Evolution of Federal Special Education Finance in the U.S., New America provides a history of special education financing in the U.S., and highlights the latest shift in the mission of the IDEA funding formula: a change from providing dollars directly based on the number of special education students, to ensuring the federal government provides sufficient resources for those students without encouraging the over-identification of children as requiring special education--mainly by cutting out financial incentives to do so

 
 

7/17/2014

Impact Findings from the Head Start CARES Demonstration

A new report, Impact Findings from the Head Start CARES Demonstration (July 2014) finds that all three enhancements had positive impacts on teacher practice and on children's social-emotional outcomes during the preschool year, although in varying degrees and not necessarily in the expected ways. The report was published by the Office of Planning, Research and Evaluation (OPRE), Administration for Children and Families, U.S. Department of Health and Human Services.

 
 

7/16/2014

HHS Changes how ACA Applies to Territories

After many reports of uneven application and disruption of health insurance markets, HHS has reduced the number of ACA provisions that apply to the territories.

 
 
Photo via LinkedIn

7/15/2014

AUCD Welcomes White House Disability Liaison Taryn Williams

"[Taryn] is brilliant, passionate, and outcome-oriented. I cannot imagine a better person to help the White House engage with the disability community as they pursue President Obama's robust agenda," said Andy Imparato, AUCD's Executive Director.

 
 

7/15/2014

CCD Comments on EEOC 501 ANPRM

AUCD signed on to these comments to the Equal Employment Opportunity Commission Advanced Notice of Proposed Rulemaking regarding Section 501 of the Rehabilitation Act, which requires the federal government to be a "model employer" of people with disabilities.

 
 

7/14/2014

AUCD Strategic Map 2014

Comments Welcome Through September 2

The AUCD Strategic Map is intended as a high level view of the vision, focus, and priorities of our organization and network over the next 2-3 years. This map can serve as a guide for our collective work and mission. Your feedback is welcomed through September 2, 2014.

 
 

7/14/2014

CMS Announces new Medicaid Innovation Accelerator Program

The Medicaid Innovation Accelerator Program (IAP) is a new technical assistance program launched by the Centers for Medicare & Medicaid Services (CMS). The goal of IAP is to improve health and health care for Medicaid beneficiaries by supporting states' efforts to accelerate new payment and service delivery reforms.

 
 
Photo: Eunice Kennedy Shriver, c1960. Courtesy Special Olympics

7/10/2014

Celebrating Eunice Kennedy Shriver

Born: July 10, 1921

Eunice Kennedy Shriver strove to create a world where all people are included and supported, and played a key role in the creation of our network of LENDs, UCEDDs, and IDDRCs. On the anniversary of her birthday, take a moment to remember her and ask what you can do to be a leader in improving the lives of people with disabilities.

 
 

7/10/2014

Employment Opportunity: Program Manager, Association of University Centers on Disabilities (AUCD), Silver Spring, MD

AUCD is currently seeking a dynamic individual to serve as a Program Manager working under the supervision of the Director, Maternal and Child Health (MCH) Technical Assistance. The individual filling this position will manage technical assistance activities of AUCD's cooperative agreement with the Maternal Child Health Bureau (MCHB).

 
 

7/10/2014

Workforce Innovation and Opportunity Act Passes House 415-6

Bill will help the next generation of young people with disabilities take their rightful place in the competitive workforce

"Yesterday evening's vote of 415-6 is a testament to the strong bipartisan support for this important bill that modernizes the vocational rehabilitation system and strengthens the Administration for Community Living by moving independent living and disability research programs there," said Andrew Imparato, AUCD Executive Director.

 
 

7/9/2014

Person-Centered Planning and Self-Direction: HHS Issues New Guidance on Implementing Section 2402(a) of the ACA

As a first step in implementing Section 2402(a), the Secretary issued this HHS-wide guidance on person-centered planning and self-direction.

 
 

7/9/2014

Rethinking College: 25 Minute Film Available Online

Rethinking College is a 25 minute film produced by Think College that explores the growing movement to include students with intellectual disabilities in higher education. Through the perspectives of parents, educators, advocates, policy leaders, and most importantly, students, this film illustrates how colleges and universities can provide a setting for all students to grow, learn and build toward better futures.

 
 

7/8/2014

Clarification of Medicaid Coverage of Services to Children with Autism

A CMS Informational Bulletin

Today The Centers for Medicare & Medicaid Services (CMS) released an informational bulletin with respect to services available under the Medicaid program to children with autism spectrum disorder (ASD).

 
 

7/7/2014

Maryland Adopts Community First Choice Option

Maryland becomes the third state in the nation to adopt and implement innovative Community First Choice in Medicaid.

pdf File Maryland CFCO.pdf [download]
 
 

7/7/2014

MCHB's Division of MCH Workforce Development Highlights Diversity and Health Equity

For the month of July, MCHB's DMCHWD website highlights diversity and health equity resources from across the portfolio of training programs. Resources from MCHB, the National Center on Cultural Competence, the MCH Navigator, and individual training programs are included, along with articles from trainees of diverse backgrounds reflecting on how their training experience shaped their work and future.

 
 

7/3/2014

Genetic Link to Autism Found: CHD8 Mutation

In a collaboration involving 13 institutions around the world, researchers have broken new ground in understanding what causes autism. This is the first time researchers have shown a definitive cause of autism to a genetic mutation. Previously identified genetic events like Fragile X, which account for a greater number of autism cases, are associated with other impairments, such as intellectual disability, more than autism.

 
 

6/30/2014

Deborah M. Spitalnik, PhD, (NJ UCDEDD) Presents at AADMD Annual Conference

On behalf of The Boggs Center as New Jersey's federally designated University Center for Excellence in Developmental Disabilities Education, Research, and Service and the national Association of University Centers on Disabilities, Deborah M. Spitalnik, PhD, Professor of Pediatrics and Executive Director, provided a welcome to the Public Policy Panel of the National Task Group on Intellectual Disabilities and Dementia Practices Plenary at the American Academy of Developmental Medicine and Dentistry's Annual Education Conference.

 
 
Image courtesy IOD at Temple

6/29/2014

Institute on Disabilities at Temple Awarded an 'Exhibits and Public Interpretation Grant' from the Pew Center for Arts & Heritage

In 2012, with support from the Pew Center for Arts and Heritage, the Institute began the development of A Fierce Kind of Love, a play inspired by Pennsylvania's Intellectual Disability Rights Movement.

 
 

6/25/2014

DD Network Writes to CMS on HCBS Rule Implementation

The DD Network partners - AUCD, NACDD, and NDRN - wrote to Cindy Mann, Director of the Center for Medicaid and CHIP Services, regarding the new home and community-based services (HCBS) settings rule.

pdf File DD Network Letter HCBS Rule.pdf [download]
 
 

6/25/2014

Dr. Charles Drum (IOD NH UCEDD) Is Keynote Presenter at Pacific Rim International Conference on Disability and Diversity

Dr. Charles E. Drum, Director of the Institute on Disability at the University of New Hampshire, gave the opening keynote presentation at the 30th Annual Pacific Rim International Conference on Disability and Diversity.

 
 

6/25/2014

Maryland Center for Developmental Disabilities Hosts an Education Policy and Management Trainee

The Maryland Center for Developmental Disabilities (MCDD) at Kennedy Krieger Institute in Baltimore, Maryland is pleased to host an education policy and management trainee this summer.

 
 

6/25/2014

New Disability Studies Texts Co-Edited by CDHD (ID UCEDD) Associate Director

Matthew Wappett, Associate Director at the Center on Disabilities and Human Development and Katrina Arndt, Associate Professor, St. John Fisher College School of Education have edited two new books that re-examine the foundations of disability studies as a field of scholarly inquiry and introduce emerging new scholars who are building upon those strong roots.

 
 

6/25/2014

The NH Disability and Public Health Project (DPH) Introduces Obesity Prevention Blogs (IOD NH UCDEDD)

The Institute on Disability at the University of New Hampshire's Disability and Public Health Project (DPH) has launched a series of interactive campaign targeting youth with disabilities and their families. The campaign includes a series of interactive blogs that are regularly updated with new highlights and information.

 
 

6/25/2014

UNH (NH UCEDD) Partnering on National Technical Assistance Center for Inclusive Education

The National Center on Inclusive Education (NCIE) at the University of New Hampshire Institute on Disability's partnership with the Schoolwide Integrated Framework for Transformation (SWIFT) Center, a national technical assistance center for inclusive education, continues to be strong.

 
 

6/24/2014

House Passes Autism CARES Act Today

"AUCD is so pleased to see that Congress has worked in a bipartisan, bicameral way to reach consensus on a bill to reauthorize a law that is so important to so many people with ASD and other DD and their families," stated Kim Musheno, AUCD's Director of Public Policy. "We hope the Senate will take quick action as well."

 
 

6/24/2014

Iowa LEND Trainees Receive 2014 Alfred Healy Leadership Award in Developmental Disabilities

The Center for Disabilities and Development (CDD), a part of the University of Iowa Children's Hospital, is proud to announce that Kelly Schieltz, Ph.D. and Rachel Nash, MPH are the 2014 recipients of The Alfred Healy Leadership Award in Developmental Disabilities. The Healy Award nurtures in recipients a life-long commitment to leadership in developmental disabilities that will carry on Dr. Healy's legacy for future generations.

 
 

6/24/2014

The Mailman Center Audiology Trainees Present Their Poster "Preparing Professionals for Working with Children who are Multiply Involved"

The Mailman Center audiology trainees were fortunate enough to present their poster "Preparing Professionals for Working with Children who are Multiply Involved" at the annual Early Hearing Detection and Intervention Conference in Jacksonville in April. This poster provided information for professors, clinical preceptors, trainees, and current professionals to improve the quality of training in their respective programs.

 
 

6/20/2014

15 Years After Olmstead - Our Committment to Community Living

From The White House Blog

All indications are that we are heading in the right direction. We are working to address many of the most imposing barriers facing those who want to live on their own: finding affordable, accessible housing and improving access to quality support and services tailored to each person's goals.

 
 

6/20/2014

Grant Puts Faith to Work for People with Disabilities

The Vanderbilt Kennedy Center will serve as the lead site for a $500,000 grant focused on building capacity of faith communities, such as churches, mosques, synagogues and other religious organizations, to support employment for members with disabilities.

 
 

6/20/2014

White House Announces New Posts to the President's Committee for People with Intellectual Disabilities

AUCD congratulates new members Susan Axelrod, James Brett, Dan Habib, Stacey Milber, Susana Ramirez, Ricardo Thornton, Sr., and Betty Williams.

 
 

6/19/2014

NPR & Pro Publica Feature Stories on Restraint & Seclusion

NPR and its public-interest investigative journalism affiliate, ProPublica, are running stories about the widespread use of restraint and seclusion, including the lack of state laws, the data, the need to pass the Keeping All Students Safe Act and the tremendous work of Senator Harkin and Congressman Miller.

 
 

6/17/2014

Introducing AUCD's 2014 Summer Interns

AUCD is proud to welcome two summer interns to our team: Kasem Ahmed and Bertram Nicholls. Kasem is working with the AUCD Legislative team and Bertram is supporting all of our office teams. We are excited to have them both join us and contribute their skills and talents to the office and network.

 
 

6/16/2014

Center on Disability and Development announces the 2014 PATHS Graduates

The Postsecondary Access and Training in Human Services (PATHS) program at Texas A&M University is honored to announce the 2014 graduates. This year, 21 young men and women successfully graduated from the PATHS certificate program. The PATHS program is an inclusive certificate program to prepare students with and without disabilities for a career as a Direct Support Professional (DSP) who will work with the elderly or people with disabilities in the community.

 
 

6/12/2014

CCD Statement on Autism CARES Act

On June 9, 2014 Senators Menendez and Enzi introduced the Autism CARES Act, a bill to reauthorize the Combating Autism Act. The Consortium for Citizens with Disabilities released this statement of support.

pdf File CCD Statement Autism CARES.pdf [download]
 
 

6/11/2014

Disability Groups Thank Appropriations subcommittee for education funding

Transition Programs for Students with Intellectual Disabilities

The Consortium for Citizens with Disabilities, Collaboration to Promote Self-Determination, and Community College Consortium on Autism and Intellectual Disabilities thank Senators Harkin and Moran for including TPSID funding in the FY15 Labor-HHS-Education appropriations bill.

pdf File TPSID FY15 Approp Letter.pdf [download]
 
 

6/11/2014

Royal P. Walker, Jr., JD, Retires from University of Southern Mississippi's Institute for Disability Studies

Royal P. Walker Jr. retired on May 30, 2014, as Executive Director of the USM Institute for Disability Studies and will soon begin a four-year term on the National Council on Disability. AUCD is grateful to Royal for his leadership as a Director and former Board President and wish him well in his future endeavours!

 
 

6/10/2014

Bond v. United States Decision Ruled Irrelevant to Ratifying Disability Treaty (CRPD)

AUCD Urges Congress to put the Disability Treaty up for Vote and Future Ratification

The Supreme Court's unanimous decision, the Chief Justice's opinion, and Bond all affirm that Bond is not an impediment to the ratification of the Disability Treaty. AUCD urges Senate to ratify the CRPD quickly and we look forward to working with them to accomplish this goal.

 
 

5/30/2014

President Obama Announces Key Administration Posts to the President's Committee for People with Intellectual Disabilities

Many intended appointees have AUCD network ties

President Obama recently announced his intent to appoint several individuals to key Administration posts on the President's Committee for People with Intellectual Disabilities. Julie Petty will be appointed as the Committee Chair, and several individuals with network ties are expected to also be appointed. AUCD is proud that so many of the appointees have network ties and congratulates them all!

 
 

5/29/2014

Dan Habib TEDx talk: Disabling Segregation (IOD NH UCEDD)

You might be surprised by the most compelling reason filmmaker Dan Habib makes for inclusive education in his TEDx AmoskeagMillyard talk (Hint: it's not about his son, Samuel!).

 
 

5/29/2014

Family Perspectives on a Successful Transition to Adulthood for Individuals With Disabilities

An article by researchers affiliated with Vanderbilt University examines an online survey of parents of individuals with IDD on their definition of a successful transition to adulthood. Rather than focusing only on developmental tasks of adulthood, responses reflected a more varied and dynamic view of success in adulthood. (full text access available at no cost with member subscription to IDD)

 
 

5/29/2014

The Postschool Outcomes of Students With Mild Intellectual Disability: Does it get Better With Time?

An article by researchers affiliated with Vanderbilt University examines an online survey of parents of individuals with IDD on their definition of a successful transition to adulthood. Rather than focusing only on developmental tasks of adulthood, responses reflected a more varied and dynamic view of success in adulthood. (full text access available at no cost with member subscription to IDD)

 
 

5/28/2014

Effective Communication for People with Disabilities Before, During, and After Emergencies Evaluated in New NCD Report

A new report by the National Council on Disability (NCD), an independent federal agency, examines the accessibility of communication before, during, and after emergencies for people with sensory disabilities (deaf, hard of hearing, blind, low-vision, deaf-blind, and speech disabilities) as well as people with intellectual, developmental, and/or psychiatric disabilities.

 
 

5/28/2014

House Committee to Take Action on Autism Bill

AUCD urges the Committee to Pass the Combating Autism Reauthorization Act

Since its enactment, the Combating Autism Act has impacted millions of individuals with autism and other developmental disabilities and their families. Congress must reauthorize the Combating Autism Act before September 30, when most of its provisions will expire.

 
 
Senator Harkin. Photo By Tom Williams/CQ Roll Call | Tom Williams via Getty Images, from Huffington Post

5/23/2014

In the News: 'Sweeping New Bill Seeks to Help Students with Disabilities, but it May Not Go Far Enough'

Website  from http://huff.to

The overhaul, Imparato said, would require sheltered workshops to ask any new participants whether they've seen a vocational rehabilitation counselor. If they haven't, they would be referred to one. That counselor would work with them to help find a job in the competitive workforce "and make a determination that they've made a reasonable effort at competitive integrated employment before winding up in a sheltered workshop," Imparato said. The bill is "trying to prevent young people from being tracked."

 
 
Documentary Release and Contacts

5/22/2014

Documentary 'Questions of Discrimination' Examines Screening for Mental Health Disabilities

The documentary "Questions of Discrimination" portrays national and state disability advocates discussing the impact questions of "character and fitness" which screen for mental health disabilities have on applicants and diversity in the legal profession. AUCD's Andy Imparato is featured in this documentary.

 
 

5/22/2014

Impact: Feature Issue on Stories of Advocacy, Stories of Change from People with Disabilities, Their Families, and Allies (1988-2013)

The just-released 25th anniversary issue of the publication Impact from the Institute on Community Integration brings together powerful personal stories from individuals with disabilities, their families, and allies to provide a snapshot of how the disability rights movement has touched individual lives over the past 25 years.

 
 

5/21/2014

Rural Institute (MT UCEDD) Researchers present update to Interagency Committee on Disability Statistics

The University of Montana Rural Institute on Disabilities presented an update on their recent research activities to a subcommittee of the Federal Interagency Committee on Disability Statistics on May 7, 2014. Lillie Greiman, M.A., and Catherine Ipsen, Ph.D., presented "Using National Data to Describe the Context of Rural Disability and Inform Policy and Practice."

 
 

5/20/2014

MCH Trainee Stories

Read the stories of Lisa Mays, a University of Minnesota School of Public Health, MCH Nutrition Trainee and MPH Coordinated Masters Program student; Jason Champagne, a University of Minnesota MPH Candidate in Public Health Nutrition; and Julie Arndt, Carrie Dent, and Mikaela Robertson, Graduate students in the Coordinated Masters Program in Public Health Nutrition, University of Minnesota, Minneapolis.

 
 

5/20/2014

MCH-Nutrition Training Program: Grantee Information

Currently six centers of excellence are funded to provide leadership education and training for graduate-level trainees and fellows and to deliver continuing education (CE) for the MCH nutrition workforce. These centers focus on clinical and public health nutrition to improve the health of infants, children, adolescents, children with special health care needs, mothers, and their families.

 
 

5/20/2014

The Meaning of Brown vs. Board of Education for Children with Disabilities

Tony Antosh, Director of the Sherlock Center in Rhode Island, and AUCD's Executive Director Andy Imparato collaborated on this guest post for the American Constitution Society about the meaning of 'Brown v. Board of Education' for children with disabilities.

 
 

5/19/2014

Health Care Reform: What's in it for Children who are Deaf or Hard of Hearing?

This fact sheet provides an overview of some of the provisions of the Affordable Care Act (ACA) that help improve access to coverage and care for children who are deaf or hard of hearing (D/HH).

 
 

5/16/2014

Center for Development and Disability (NM) Welcomes Marcia Moriarta, PsyD, as New Executive Director

The CDD is part of the Department of Pediatrics in the UNM Health Sciences Center and provides a wide array of services, training and resources to support people with disabilities and their families from throughout New Mexico. Dr. Moriarta will replace Cate McClain, MD, the CDD's long-time Director who will be retiring July 1, 2014.

 
 

5/16/2014

Coping and Psychological Health of Aging Parents of Adult Children With Developmental Disabilities

 
 

5/16/2014

Dental Services: A Nationwide Study of Medicaid Home and Community-Based Services (HCBS) Waiver Service Allocation

 
 

5/16/2014

Waisman Center (WI) Welcomes William E. MacLean, Jr., PhD, as Associate Director

Dr. MacLean is currently a professor of psychology at the University of Wyoming and executive director of the Wyoming Institute for Disabilities, also a UCEDD. He will replace Dan Bier, MPA, MSW, CAE, who is retiring in July after 15 years as UCEDD associate director.

 
 

5/15/2014

TRICARE: Senators Murray, Blunt, Gillibrand, Rubio Bill Guarantees Health Coverage for Military Children With Developmental Disabilities

AUCD applauds Senators Murray, Blunt, Gillibrand, and Rubio for introducing legislation to provide behavioral health services for individual with developmental disabilities, including those on the autism spectrum.

The Caring for Military Children with Developmental Disabilities Act of 2014 requires TRICARE, the Department of Defense and retiree health program for members of the uniformed services and their families, to provide coverage for behavioral health treatments, including applied behavior analysis (ABA).

 
 

5/14/2014

New Act Early Ambassadors Selected

30 new Act Early Ambassadors have been selected from a group of highly qualified applicants to represent twenty-nine states. Ambassadors will serve as a state, territory or organizational point-of-contact for CDC's national "Learn the Signs. Act Early." (LTSAE) program; support the work of Act Early Teams and other state or national initiatives to improve early identification of developmental delay and disability; and promote adoption and integration of LTSAE resources, including materials to support developmental monitoring.

 
 

5/13/2014

AUCD Communications Survey

AUCD and some of our federal funders are interested in learning more about your communications capacity and needs in the coming year. Your feedback will help us set priorities related to the communications goal in our strategic plan. Please complete this brief survey (one per Center) by May 30th to better inform us how we can help you disseminate information and build a groundswell around some of our common interests.

 
 

5/12/2014

Combating Autism Reauthorization Act of 2014 Introduced in the House

Bill includes five year continued authorization for funding LEND and DBP training programs

On Friday, May 9, Representatives Chris Smith (R-NJ) and Mike Doyle (D-PA) introduced a bill to reauthorize the Combating Autism Act for five years. The bill, HR 4631, has 35 bipartisan cosponsors.

 
 

5/12/2014

HCBS Advocacy Site Launched

This site - created by the National DD Network partners - will help states and advocates from learn, post, and share information and resources to improve implementation of the HCBS settings rule and improve community services for people with disabilities and older people across the nation.

 
 
ICI's Shelia Fesko and Karen Flippo with a Saudia Arabian Ministry Representative

5/10/2014

Increasing Disability Employment in Saudi Arabia

ICI (MA) Provides Training and Consultation

The Kingdom of Saudi Arabia's Ministry of Labor is leading an effort to employ 100,000 people with disabilities. The Ministry contracted with the Institute for Community Inclusion, UMass Boston, to provide training to 50 newly hired individuals who will be providing job development and career counseling to people with disabilities.

 
 

5/6/2014

AUCD Congratulates CDC: 'Vital Signs' Emphasizes Importance of Physical Activity for People with Disabilities

With growing public health concern of disability, the impact of obesity and nutrition, good health is still a frontier for many Americans. "Today's Vital Signs from CDC shines the light on the need to include people with disabilities in health promotion efforts like obesity prevention and physical activity," says Andrew Imparato, AUCD's Executive Director.

 
 

5/2/2014

'Baby Motor Milestones: Birth to 2 Years' Video

Now available from Albert Einstein College of Medicine (NY LEND/UCEDD)

Pediatrician Lisa Shulman shows the motor milestones expected in typically developing babies, from head control to walking and what pediatricians look for during a well-baby visit. She also explains the specific types of motor control a baby must master before the next milestone can be achieved.

 
 

5/2/2014

Documenting the Implementation of Cultural and Linguistic Competence: A Guide for Maternal and Child Health Bureau Funded Training Programs

The National Center for Cultural Competence is pleased to announce a new product to support MCHB-funded training programs document efforts in advancing and sustaining cultural and linguistic competence. Documenting the Implementation of Cultural and Linguistic Competence: A Guide for Maternal and Child Health Bureau Funded Training Programs is designed to provide suggested approaches that can be used for grant proposals, progress reports, and site visits to document these efforts or to document progress over time.

 
 

4/30/2014

AUCD Now Accepting Applications for 2014-2015 Virtual Trainee

Applications due May 30th

The AUCD Virtual Trainee will use leadership skills to build relationships and communications among trainees throughout the nationwide AUCD network of UCEDDs and LENDs.

 
 

4/29/2014

CCD Urges Restored Funding for Special Education Research and Educator Preparation

The Consortium for Citizens with Disabilities urges Congress to restore funding for special education research and educator preparation through the National Center for Research in Special Education (NCSER), IDEA Part D, and the Teacher Quality Partnership Grants under Title II of the Higher Education Act.

pdf File FY15 personel prep approps.pdf [download]
 
 

4/29/2014

Hagner, Kurtz, May, and Cloutier (NH and ME UCEDDs) Publish Person-Centered Transition Planning Research

Youth with ASD often face obstacles to participation in person-centered planning, including high levels of anxiety, and difficulties with social interaction and communication. This study explores strategies and supports used to help transition-aged youth with ASD participate more actively in their person-centered transition planning meetings. Implications for the use of this planning process by rehabilitation counselors involved in transition are discussed.

 
 

4/29/2014

IHD (Az UCEDD) Receives Leadership Award from Northern Arizona University's Commission on Disability Access and Design

The Commission on Disability Access and Design has selected Institute for Human Development as a recipient of this year's Leadership Award for outstanding commitment to the disability community at Northern Arizona University.

 
 

4/28/2014

FDA Advisors Recommend Ban on Electronic Stimulus Devices for People with Disabilities

AUCD's Kim Musheno provided testimony on behalf of network members

On April 25, AUCD participated in an open public hearing of an FDA advisory committee reviewing evidence of the risks and benefits associated with using Electronic Stimulus Devices for behavior modification. Daniel Armstrong, Ph.D., of the Miami Mailman Center (UCEDD/LEND) participated on the advisory panel, and Kim Musheno, AUCD's Director of Public Policy, delivered AUCD's statement urging the panel to recommend banning the devices and read testimony prepared by AUCD Policy Committee Member Mark Smith of the Nebraska UCEDD/LEND.

 
 

4/25/2014

FDA Summary of Neurological Devices Panel Meeting

The Food and Drug Administration provided this official summary of the Neurological Devices Panel Meeting convened on April 24, 2014 to discuss the use of aversive conditioning devices that use electric shock. AUCD testified at this hearing opposing the use of electric shock and other aversives.

pdf File Summary Neurological Devices Panel 4.24.14.pdf [download]
 
 

4/24/2014

AUCD Testimony at FDA Neurological Devices Panel

AUCD Director of Public Policy Kim Musheno testified at the Food and Drug Administration's Neurological Devices Panel Meeting, expressing AUCD's opposition to the use of electric shock devices and other aversive techniques.

 
 

4/22/2014

Andy Imparato, AUCD Executive Director, Speaks at Delaware Town Hall on How New HCBS Rule Would Change Options for People with Disabilities

More than a hundred people gathered at the Embassy Suites in Newark Monday morning to discuss a new federal rule that could dramatically change options in housing, employment and other basics for people with disabilities. "This is an issue that has divided the [disability] community," Imparato said. "But there is a consensus that everyone should have the opportunity for a competitive work environment at the start of their working lives."

 
 

4/21/2014

2013 IACC Summary of Advances in Autism Spectrum Disorder Research Now Available

The Interagency Autism Coordinating Committee (IACC) and the Office of Autism Research Coordination are pleased to announce the release of the 2013 IACC Summary of Advances in Autism Spectrum Disorder Research in conjunction with the celebration of National Autism Awareness Month. The 2013 IACC Summary of Advances is a collection of brief summaries of studies selected by the IACC as the twenty most significant biomedical and services research advances in the field of autism spectrum disorder (ASD) research in 2013.

 
 

4/17/2014

Request for Information (RFI): Impact of DSM-5 Changes to Diagnostic Criteria for Autism Spectrum Disorders (ASD) on Research and Services

NIH released a Request for Information (RFI) to seek input from the scientific community, health professionals, self-advocates, family members, and other community stakeholders on the biomedical and services research implications of recent changes to the Diagnostic and Statistical Manual of Mental Disorders, Fifth Edition (DSM-5) diagnostic criteria for Autism Spectrum Disorders (ASD).

 
 

4/16/2014

LEND Directors Meeting Materials Available

This meeting was held in Washington, DC, in conjunction with the Disability Policy Seminar. Significant time was spent on discussing the following topics: training opportunities in transition, trainee long-term follow up surveys, increased participation of self-advocacy trainees, trainee diversity efforts, examining LEND programs, the new MCH Workforce Development Center, LEND leadership training, AUCD Network Strategic Planning, the need to reauthorize the Combating Autism Act, and regional group work.

 
 

4/16/2014

UCEDD Directors Retreat and TA Institute Meeting Materials Available

This meeting provided an opportunity for UCEDD leaders to network, meet with their federal project officers, and learn of new initiatives, national trends, and other information vital to the administration of the UCEDD programs.

 
 

4/15/2014

Division of MCH Workforce Development New Resources Related to Autism and Other Developmental Disabilities

The Division of MCH Workforce Development is excited to share new resources related to this month's focus - Autism and Other Developmental Disabilities.

 
 

4/15/2014

LEND Directors Meeting: April 2014

The Spring 2014 LEND Directors meeting was held in Washington, DC, in conjunction with the Disability Policy Seminar. Select meeting materials are now posted.

 
 
Iowa LEND Trainees

4/15/2014

LEND Trainees Attend 2014 Disability Policy Seminar

As a current LEND trainee in the field of public health, I was impressed with the collaboration between the multiple sponsor organizations. It is rare to see so many groups with differing missions come together to work towards a common goal and bring a united front when working on key policy issues.

 
 

4/15/2014

New Resources Focus on Autism Spectrum Disorder

The MCH Library at Georgetown University released a new knowledge path and set of resource briefs directing readers to a selection of resources about ASD screening, diagnosis, treatment, care, and impact on family life.

 
 

4/15/2014

Royal Walker, JD, Appointed to the National Council on Disability

President Obama has appointed Royal Walker, JD - Executive Director of the Mississippi University Center for Excellence in Developmental Disabilities (UCEDD), the Institute for Disability Studies at the University of Southern Mississippi - to the National Council on Disability. Royal is a past AUCD President and has served on the board of directors of the American Task Force for the Homeless, the Governor's Interagency Coordinating Council for Children with Special Needs, the Mississippi Council on Developmental Disabilities, and the Mississippi March of Dimes. AUCD congratulates Royal Walker on the appointment.

 
 
Six By '15 Campaign Logo

4/15/2014

Senator Harkin Introduces 'Six By '15 Campaign'

During an evening reception at the Disability Policy Seminar, Senator Harkin officially announced the start of the "6 By '15" campaign - an national effort to work on six national goals by the end of 2015, the year that marks the 25th anniversary of the Americans with Disabilities Act (ADA) and 40th anniversary of the Individuals with Disabilities Education Act (IDEA).

 
 

4/14/2014

AUCD Unleashed: The Power of Engagement

The 2014 AUCD Conference theme reflects our goal of achieving an elevated level of engagement with our respective and collective communities, networks, and well beyond in order to better inform, enhance, and enrich the work we all do to improve the lives of people with disabilities and their families. Ink your calendars, and make travel plans accordingly to participate in this engaging event that will serve in keeping our work relevant and our vision strong.

 
 

4/13/2014

Action Sports Star TJ Lavin Stars in New PSA on Disability

"We All Should Have the Same Opportunity to Achieve the American Dream." Also featured: AUCD's Liz Weintraub

"Recognize the disability. Respect the ability, but imagine the possibility."

 
 
Pictured: Amy S. Goldman, co-executive director of the Institute, is pictured (third person from the right) at the G3ict Accessibility Week in New Delhi, India in February, with other distinguished attendees.

4/11/2014

Amy S. Goldman, Co-executive Director of the Institute on Disabilities at Temple University Travels to New Delhi for UNESCO Session

In February, Amy S. Goldman, co-executive director of the Institute on Disabilities at Temple University, College of Education, participated in the G3ict Accessibility Week in New Delhi, India. "G3ict" is the acronym for "The Global Initiative for Inclusive Information and Communications Technology - Promoting the Rights of Persons with Disabilities in the Digital Age."

 
 

4/10/2014

'Week of the Young Child' in Guam: Discussing Needs and Services Available in Guam from the CEDDERS

Senator Aline A. Yamashita and Vera Blaz from the Guam CEDDERS and others recorded an interview (121 minutes) for GMH's 'Heroes of Healthcare,' discussing the needs of and services available for young children in Guam, during the 'Week of the Young Child.'

 
 

4/10/2014

Now Available! A Comprehensive Approach to Transition

A workbook-style document for individuals with disabilities as they think about what they need for a successful transition

Geared for individuals with disabilities, this paper was produced by members of the Association of University Centers on Disabilities (AUCD) because they want to help people work together to support the self-determined transition of youth to adulthood and community life.

 
 

4/8/2014

Senator Harkin Announces New 6x15 Campaign

Six organizations commit to six goals by the end of 2015

At the Disability Policy Seminar on Monday night, Senator Harkin announced a new campaign led by six national disability organizations to achieve six national goals by the end of 2015, marking major anniversaries of the ADA and IDEA.

 
 

4/7/2014

DSM-5 Resources

The Fifth Edition of the Diagnostic and Statistical Manual of Mental Disorders (DSM-5) was released in May 2013, bringing with it several revisions to the criteria for the diagnosis and classification of mental disorders. One important change was for Autism Spectrum Disorder (ASD) classifications. AUCD's resource page on the DSM-5 and ASD includes select resources that network members have found to be helpful in understanding the changes to the criteria.

 
 

4/7/2014

Former Trainee Tia Nelis (IL LEND) Published on MCH Training Blog

"By being a part of LEND, self-advocates have a chance to experience leadership in a new way. We learn about the medical part of disability, which you would not get a chance to learn from any other leadership training, and to see how other health professionals interact with people with disabilities."

 
 

4/4/2014

Birth to 5: Watch Me Thrive!

The U.S. Departments of Education and of Health and Human Services (HHS) have launched Birth to 5: Watch Me Thrive! to encourage developmental and behavioral screening for children to support the families and providers who care for them.

 
 

4/2/2014

CCD Statement in Response to the Release of House Budget Chairman Paul Ryan's FY2015 Budget Proposal

Ryan Budget Dangerous for People with Disabilities: CCD urges Congress to Reject the Ryan Budget

The Consortium for Citizens with Disabilities (CCD), a national coalition of 113 organizations representing the needs of people with disabilities, believes that the budget resolution proposed by House Budget Committee Chairman Paul Ryan (R-WI) is dangerous for people with disabilities as it calls for deep cuts to Medicaid, deep spending cuts for non-defense discretionary programs that support the health and well being of people with disabilities, and would lead to tens of millions of Americans losing their health insurance or becoming underinsured.

 
 

4/2/2014

IACC Issues Statement Regarding Implications of Changes in the Diagnostic Criteria for ASD

On World Autism Awareness Day, IACC issued a statement regarding the implications of changes in the diagnostic criteria for ASD that were made in the most recent update of the DSM. Of particular interest are the scientific, practice, and policy implications as DSM-5 is implemented in real-world settings, especially with respect to allocation of services.

 
 

4/1/2014

APHA Disability Section Call for 2014 Awards Nominations - Deadline Extended

The deadline for APHA Disability Section Awards nominations have been extended to 12pm ET Monday, April 7. There is still time to nominate someone who has made a significant contribution through scholarship, teaching, practice and/or advocacy to advance the health and quality of life of people with disabilities or an especially dedicated student. Now is the time to nominate a colleague for one of the 2014 APHA Disability Section Awards!

 
 

4/1/2014

AUCD Celebrates April as Autism Awareness Month

On December 18, 2007, the UN General Assembly designated April 2 as World Autism Awareness Day, which was first observed in 2008. This UN resolution is one of only three official disease-specific United Nations Days that brings world attention to autism spectrum disorder, a developmental disorder that affects as many as 1 in 68 children, according to new estimates from the CDC.

 
 

3/31/2014

CCD Letter Supporting Success and Opportunity Through Quality Charter Schools Act

The Consortium for Citizens with Disabilities wrote to Chairman and Ranking Member of the House Education & the Workforce Committee to express support for a bill that would increase equity in access for students with disabilities in charter schools.

pdf File CCD Charter school Letter March2014.pdf [download]
 
 

3/27/2014

New Prevalence Data Finds 1 in 68 Children Have Autism Spectrum Disorders

Numbers represent a 30% increase from previous estimates

This new estimate is based on the CDC's evaluation of health and educational records of all 8-year-old children in communities from 11 states: Alabama, Arizona, Arkansas, Colorado, Georgia, Maryland, Missouri, New Jersey, North Carolina, Utah, and Wisconsin.

 
 

3/24/2014

Think College Insight Brief Describes Statewide Strategic Planning Grants

In an effort to support the continued growth in postsecondary options across the country, Think College funded Statewide Strategic Planning grants to 18 UCEDDs in 18 states from 2010 to 2012. These $15,000 grants were funded by the Administration on Intellectual and Developmental Disabilities, U.S. Department of Health and Human Services.

 
 

3/23/2014

Wish the Affordable Care Act a Happy Fourth Birthday!

Help Spread the Word: Open Enrollment Ends March 31

The ACA turned four years old this week! Join AUCD in celebrating this anniversary by helping to make sure all Americans know about their health insurance options. Spread the word that open enrollment ends March 3.

 
 

3/19/2014

Comparison of Medicare Advantage, Qualified Health Plans, and Medicaid Managed Care Organizations

Website  from http://kff.org

This issue brief examines the similarities and differences in consumer protections in three major sources of insurance coverage delivered through private plans: Medicare Advantage (MA), Qualified Health Plans (QHPs) offered through the Marketplaces, and Medicaid Managed Care Organizations (MCOs). These three insurance markets, to different extents, are overseen by the same agency within the federal government, the Centers for Medicare and Medicaid Services (CMS).

 
 
Sachin Pavithran

3/19/2014

Utah's Sachin Pavithran Elected Vice-Chair of the US Access Board

The U.S. Access Board elected Sachin Dev Pavithran to a one-year term as its new vice-chair on March 12. Pavithran, director of the Utah Assistive Technology Program at Utah State University's Center for Persons with Disabilities, was appointed to the Board in late 2012 by President Barack Obama.

 
 

3/14/2014

Aaron Bishop Named AIDD Commissioner

Former network trainee now an integral leader of national disability initiatives

Aaron has almost 20 years of experience working with and for individuals with disabilities in both the direct practice and public policy sectors. AIDD provides financial and leadership support to organizations in every state and territory in the United States to ensure that individuals with intellectual and developmental disabilities and their families can fully participate in and contribute to all aspects of community life.

 
 

3/7/2014

AUCD Network Comments on CMS Proposed Part D Rule

AUCD strongly encourages CMS to rescind the proposed rule and maintain all six protected classes of medications under the Medicare Part D program.

pdf File AUCD PartD Comments Final.pdf [download]
 
 

3/5/2014

CCD Response to the President's FY2015 Budget Request

The Consortium for Citizens with Disabilities (CCD) is encouraged that the Administration's Budget for FY 2015 maintains investments in many important programs that support the health and wellbeing of people with disabilities, restores some of the devastating sequestration cuts, preserves the structure of Medicaid, and recognizes the need for a balanced approach to deficit reduction while calling for important investments in early childhood, employment for people with disabilities, veterans services and health care.

 
 

2/28/2014

Vanderbilt Kennedy Center and UT Boling Center Announce Availability of IDD Healthcare E-Toolkit

Now available online at www.iddtoolkit.org, the 'Health Care For Adults With Intellectual And Developmental Disabilities: A Toolkit for Primary Care Providers' (IDD Toolkit) offers health care providers best-practice tools and a wealth of information regarding specific medical and behavioral concerns of adults with IDD, including resources for patients and families.

 
 

2/27/2014

4 UCEDDs and LENDs Receive Grants from the Special Hope Foundation Catalytic Community Outreach Model: Comprehensive Health Care for Adults IDD Grants

The Special Hope Foundation, in collaboration with AADMD, is pleased to announce that four universities within the UCEDD/LEND network were selected to each receive $50,000 of funding through the Special Hope Foundation's grant program. These grants will support the organizations within their projects that promote comprehensive health care for adults with developmental disabilities by raising awareness at the healthcare student level and by supporting their communities. The organizations receiving grants include: Center for Human Development at University of Alaska Anchorage, JFK Partners at University of Colorado, Sonoran UCEDD at University of Arizona, and University of Rochester UCEDD. The Foundation requested proposals throughout the UCEDD/LEND network and carefully reviewed and considered each application.

 
 

2/27/2014

Jackson Roush, PhD Named the Director of CIDD NC LEND

The Carolina Institute for Developmental Disabilities (CIDD) is pleased to announce that Jackson Roush, PhD has been named the Director of the NC LEND.

 
 

2/20/2014

Improving Maternal and Child Health Across the Life Course: Where Do We Go from Here?

Michael C. Lu, MCH Journal, February 2014

In this editorial for the MCH Journal, Dr. Lu offers three further suggestions for how to advance life course research, practice, and policy in MCH. In research, we need to move beyond discovery to intervention research. In practice, we need to move from isolated to collective impact. In policy, we need to move beyond paying for remediation to investing in capacity formation.

 
 

2/20/2014

Webinar: Friends of NCBDDD & ACA Implementation: National Disability Navigator Resource Collaborative

Webinar Date: March 6, 2014

The Friends of the National Center on Birth Defects and Developmental Disabilities (NCBDDD) present this webinar on the National Disability Navigator Resource Collaborative (NDNRC) which provides disability information and support to navigators and other enrollment specialists as they assist consumers with enrollment through the Affordable Care Act insurance marketplaces.

 
 
(L) Paul W. Ferguson, President, UMaine; Lu Zeph, UCEDD Director and UMaine Associate Provost and Dean of Lifelong Learning; Claire Sullivan, UMaine Assoc. Dean for Community Engagement

2/17/2014

Maine UCEDD Receives APLU Exemplary Program Award for Community Engagement

The University of Maine Center for Community Inclusion and Disability Studies has received a 2013 Exemplary Program Award from the Association of Public and Land-Grant Universities (APLU) in recognition of 20 years of commitment to community engagement. APLU is a research, policy, and advocacy organization representing 219 public research universities, land-grant institutions, state university systems, and related organizations.

 
 

2/14/2014

Just for Fun: #healthpolicyvalentines

 
 

2/14/2014

Maureen van Stone (MD UCEDD) to Receive Whittier Law School 2014 Distinguished Alumni Service Award

Maureen van Stone, the Associate Director of the Maryland Center for Developmental Disabilites at Kennedy Krieger Institute, will be honored by the Dean of Whittier Law School at the Alumni Awards & Reunion Reception on April 5, 2014, in Long Beach, California. Ms. van Stone will receive the "2014 Distinguished Alumni Service Award" for her advocacy on behalf of children with disabilities throughout Maryland.

 
 

2/13/2014

Questions and Answers on the Latest ACA Delay

On Monday the Obama administration announced another delay in rolling out the Affordable Care Act, weakening the requirement to offer coverage next year for large employers and postponing it for smaller ones. Kaiser Health News explains what it means.

 
 

2/12/2014

Executive Order Increases Federal Contractor Minimum Wage, Includes People with Disabilities

AUCD applauds the President for increasing wages for hardworking Americans, and especially for including people with disabilities in his Executive Order.

 
 

2/12/2014

Harkin Legislation Will Limit Harmful Practices toward Students with Disabilities

Senator Harkin Draws Attention to Problem of Restraint and Seclusion in Schools and Introduces Bill to Limit Use

Today, Senator Harkin unveiled a new report on the harmful use of restraint & seclusion in schools and introduced legislation to limit these practices.

 
 

2/12/2014

Major Step Forward in Improving Safety of Children in Schools with Legislation to Restrict the Use of Restraints and Seclusion

AUCD applauds Senator Tom Harkin who announced that he will introduce legislation today to reduce the use of restraints and seclusion in schools. Currently, no federal guidelines exist regarding the use of restraints and seclusion. Evidence shows a disproportionate use of these techniques on students with disabilities, violating their right to nondiscrimination in accessing education.

 
 

2/12/2014

Opportunity For All: Rewarding Hard Work

Executive Order Raises the Minimum Wage to $10.10 for Federal Contract Workers. President calls on Congress to finish the job by passing the Harkin-Miller bill.

The President is set to sign an Executive Order today raising the minimum wage, which includes a provision that all individuals working under service or concessions contracts with the federal government, including those with disabilities, will be covered by the same $10.10 per hour minimum wage protections.

 
 

2/12/2014

UM Rural Institute (MT UCEDD) Awarded Grant from OSERS

Innovative studies on issues in rural America are underway at the University of Montana Rural Institute, thanks to a five-year grant of $4.38 million through the Office of Special Education and Rehabilitative Services.

 
 
Jody Pirtle, CTIIS Chair, at the 2013 CTIIS meeting.

2/11/2014

New Name, New Leadership, (Re)Newed Focus! Council on Technology and Innovation in Interdisciplinary Services (CTIIS)

The Council on Interdisciplinary Services (CIS) has recently changed its name to the Council on Technology and Innovation in Interdisciplinary Services (CTIIS). What is exciting about the name change is a more targeted emphasis on technology and innovation in interdisciplinary services.

 
 

2/11/2014

Robert E. Cooke, a Creator of Head Start, Dies at 93

Dr. Cooke was a professor of pediatrics and the pediatrician in chief at Johns Hopkins Hospital in Baltimore in the late 1950s when he began an association with Eunice Kennedy Shriver, the sister of John F. Kennedy, then a senator from Massachusetts, and her husband, R. Sargent Shriver, whose interest in children with intellectual disabilities dovetailed with his own.

 
 

2/10/2014

HHS Releases Report to Congress on Combating Autism Act

This report to Congress, required by the Combating Autism Reauthorization Act of 2011, provides programmatic and budget information from lead agencies and updates on autism prevalence, diagnosis, screening, and average age for intervention.

 
 

2/7/2014

AUCD Thanks Senator Harkin for Introducing Keeping All Students Safe Act

AUCD applauds Senator Harkin for his leadership in protecting the safety of children in schools.

pdf File AUCD Letter to Harkin Keeping Students Safe.pdf [download]
 
 

1/31/2014

Achieving Healthy Weight for People with Disabilities

New Issue Briefs Available from the CDC-NCBDDD

There are five new issue briefs that describe what people and organizations can do to help combat obesity among people with disabilities and assist them in achieving healthy weight and an improved quality of life. CDC's Division of Human Development and Disability at the NCBDDD released the briefs, each targeted at specific audiences including: communities, health departments, employers, schools and healthcare professionals.

 
 

1/31/2014

Maryland's Chief Judge Appoints Chief of Staff (MD UCEDD)

Victoria Z. Sulerzyski, an attorney who specialized in estate planning and special needs trusts for the Baltimore-based law firm of Ober|Kaler, has been selected as Chief of Staff by Maryland Court of Appeals Chief Judge Mary Ellen Barbera. Ms. Sulerzyski is on the Board of Trustees for Kennedy Krieger Institute and PACT: Helping Children with Special Needs. She is also a member of the Maryland Center for Developmental Disabilities Citizens Advisory Council and the former pro bono coordinator for Project HEAL, a community-based program of the Maryland Center for Developmental Disabilities.

 
 

1/31/2014

The PEERS Curriculum for School-Based Professionals (USE CA UCEDD)

The PEERS School-Based Training is designed exclusively for educators, mental health specialists, and school-based professionals who are interested in learning and/or implementing the PEERS intervention and research in the school setting. This is a unique training designed to provide professionals with the tools to implement the intervention outlined in the new PEERS Curriculum for School-Based Professionals (Laugeson, 2013), which brings UCLA's highly acclaimed and widely popular PEERS intervention into the school setting.

 
 

1/29/2014

ACA Dates that Matter

Confusion about Affordable Care Act (ACA) deadlines is rampant. That's because there are lots of them and they keep changing. The fact is that some of them matter a lot more than others. David Blumenthal explains the most important dates in this Health Affairs blog post.

 
 

1/29/2014

AUCD Supports President's State of the Union Agenda of Equality and Opportunity for All Americans

AUCD strongly supports the agenda of equality and opportunity that the President laid out in the State of the Union address last night. While the President did not mention people with disabilities specifically, his agenda includes policies that the disability community has long championed and we believe that when he says everyone he means everyone.

 
 

1/28/2014

AUCD Comments on MCH's proposal to transform the Title V Block Grant

In response to a recent proposal around transforming the Maternal and Child Health block grant, the following comments were submitted to Dr. Michael Lu of MCHB on behalf of AUCD.

 
 

1/28/2014

Early Childhood Personnel Center at the UCONN UCEDD Releases Personnel Standards for Every State

The Early Childhood Personnel Center serves as a national resource on personnel standards, competencies, and recommended practices, and assists States in aligning personnel standards to national professional organization standards for personnel who serve children with disabilities and their families. In January 2014 ECPC released a searchable data base of all personnel standards for professional disciplines serving infants and young children (age birth to five) and their families.

 
 

1/28/2014

The Science of Health and Wellness for Adults with Intellectual and Developmental Disabilities (MT UCEDD)

University of Montana Rural Institute researchers are helping to set a national agenda on health and disability. Dr. Kathleen Humphries, a nutrition researcher at the Rural Institute and the UM School of Public and Community Health Sciences, is among national leaders identifying what we know and what we need to know to reduce health disparities for people with intellectual and developmental disabilities.

 
 

1/22/2014

Former Rep. Tony Coehlo and Governor Tom Ridge Pen Open Letter to Senator Corker on Disability Treaty

After Senator Corker announced that he would not support the Disability Treaty, Tony Coehlo and Tom Ridge published this open letter in The Hill urging him to return to negotiations.

 
 

1/17/2014

Changes to OMB Circulars Addressing Administrative Rules and Cost Principles

In December 2013, OMB published final regulations that reform Federal grant-making with the intention of decreasing administrative burden for grantees and reducing waste, fraud and abuse. These new regulations combine the multiple Federal regulations that currently govern the way grants are administered into a single uniform policy guide; this changes the OMB Circulars as you know them. The cross-agency Council on Financial Assistance Reform (COFAR) worked closely with OMB on developing these rules, and will work with stakeholders to facilitate implementation.

 
 
Video includes input from AUCD network members.

1/16/2014

Video on Early Childhood Intervention: The Power of Family

The Open Society Foundations has published a new video entitled Early Childhood Intervention: The Power of Family (December 2013). This 7:35 minute video features leaders in the field of early childhood development from around the world discussing the benefits of early childhood intervention and the key importance of families to the early intervention process - with input from AUCD network members.

 
 

1/15/2014

Kaiser Health News Highlights Habilitation Benefits in ACA

Article includes input from AUCD network members and staff

In their "Insuring Your Health" series, Kaiser Health News discusses the importance habilitative benefits - now available because of the Affordable Care Act - with input from AUCD network members and staff.

 
 

1/13/2014

AUCD Applauds Stronger Medicaid Rules on Community Living

SILVER SPRING, MD (January 13, 2014) The Association of University Centers on Disabilities (AUCD) applauds the U.S. Department of Health and Human Services Centers for Medicare and Medicaid Services (CMS) for the regulation released Friday that strengthens the Medicaid home and community-based services available to people with disabilities.

 
 

1/13/2014

US Access Board Releases Recommendations on Diagnostic Equipment Accessibility

The Access Board has released their final report on accessibility standards of diagnostic equipment. The Affordable Care Act required the Access Board to work with the Food and Drug Administration to create new standards for the accessibility of diagnostic equipment like exam tables and mammography equipment.

 
 

1/12/2014

Mental Health First Aid Certification Training Reaches Major Milestone in Iowa (IA UCEDD)

As of November 2013, a team of seven instructors from the University of Iowa have certified over 2,000 individuals in Mental Health First Aid, an evidence-based education program that helps the public identify, understand, and respond to signs of mental illnesses and substance use disorders. The training introduces participants to risk factors and warning signs of mental health problems, builds understanding of their impact, and teaches participants a 5-step action plan of how to engage and support individuals who may experience a mental health crisis. The model of providing comprehensive consumer and family driven services in a 10-county region proved highly successful and cost-effective in meeting the needs of children with serious emotional disturbances. Though Federal funding ended in September of 2012, the model was sustained through funding from the Iowa legislature and the establishment of billable services.

 
 
CEDC Chair Amy Sharp (TX) leads discussion at the AUCD 2013 Conference

1/10/2014

A New Year - A New Name! Community Education and Dissemination Council

The National Community Education Directors' Council has changed its name to the Community Education and Dissemination Council (CEDC). The name change illustrates the Council is for any network member associated with community education and/or dissemination activities, recognizes dissemination as a core part of Council focus, and shortens the acronym and name.

 
 

1/9/2014

AUCD supports Senator Harkin in Protecting Unemployment and Disability Insurance

Negotiations over the extension of unemployment have considered using Social Security Disability Insurance as a "pay-for", limiting the ability of people who who receive SSDI to also receive unemployment insurance payments. AUCD strongly opposes any amendment that restricts SSDI payments to qualified beneficiaries also receiving unemployment insurance.

pdf File AUCD UI Letter Harkin.pdf [download]
 
 

1/9/2014

New Insurance Policies Must Cover Mental Illness

Mental health coverage offered through the individual market also was notoriously skimpy or nonexistent. Now, anyone who buys a plan through the new online marketplaces will find mental health services covered as one of 10 "essential health benefits" and no lifetime limits on services that will be reimbursed.

 
 

1/8/2014

From CMS: Sign up by January 15 and get Health Coverage on February 1

Since October 1 last year, more than 6 million people have enrolled in new coverage under the health care law. They've signed up either for private insurance through the Health Insurance Marketplace or for the Medicaid program. There's still time for you to