Monday, November 4, 2024
2:15 pm - 3:30 pm
Concurrent sessions are 75-minute small group discussions or panel presentations.
This session will delve deeper into the various ways that LEND/UCEDD directors and faculty, researchers (IDDRC), and other practitioners and professionals can and should collaborate with the LEND Family Discipline Network (LFDN) to assure that the family discipline is fully integrated throughout curriculum, interdisciplinary teams, clinical experiences, and more.
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Discover the "Roots and Wings: Empowering Black Families of Children with Developmental Disabilities" training modules from the UC Davis UCEDD and LEND. This session features a three-part video manual on the Sankofa Framework, aimed at guiding UCEDDs and LENDs in the AUCD Network to create inclusive, empowering communities. Learn strategies to center Black voices and reshape traditional engagement methods, enhancing support systems for families of Black disabled children.
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This panel examines the question "what constitutes a heathy relationship?" The trauma-informed discussion will cover how to support healthy relationships for individuals with disabilities, acknowledging the complexity of the question above. Because so many people with disabilities are mistreated by their partners, we will discuss the cycle of abuse, victim's rights, wellness, recreation, and safety. This session is relevant to professionals in social work, healthcare, psychology, and disability studies.
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This panel describes three projects across two university's UCEDD and LEND programs: (1) SCOUT teams (UC Davis MIND Institute CEDD), (2) the Neurodiversity and Autism course (UCLA), and (3) the UC Leadership Academy (UCLA Tarjan Center UCEDD and UC-LEND). Each project highlights collaboration with individuals with intellectual/developmental disabilities (IWIDD) to create educational and training curriculum. Panelists will discuss recommendations for other programs aiming to collaborate with IWIDD during curriculum development.
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There is a crisis in higher education involving financial, ideological, and procedural issues. This session will explore how inclusive postsecondary education (IPSE) can drive positive disruption. Participants will engage in group work to answer key questions about supporting students with intellectual disabilities and developing innovative education models. Themes and action items will be identified and synthesized for post-conference distribution.
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Family Specialists from the three New York State (NYS) UCEDDs will describe their process to engage with families in NYS, the findings of these conversations and recommendations to enact positive change in the Children and Youth with Special Health Care Needs (CYSHCN) Program, and more broadly in NYS systems of care. The presentation will detail the importance of collaboration with family specialists and families of CYSHCN in providing directional guidance.
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Person-centered transformation is critical to policy, practice and systems-change to ensure the services and supports are driven by the person to achieve their good life, defined by them. Hear how four UCEDDs bring together diverse advocates and others using the Charting the LifeCourse framework and tools to elevate the voice of the person (and their families) at all levels of change within the United States and around the world.
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Explore effective strategies for leveraging collaboration among diverse stakeholders to meet the mental health needs of individuals with intellectual and developmental disabilities (IDD). This session will illustrate how LEND/UCEDD programs can expand mental health resources and networks within the AUCD community, highlighting actionable steps and successful projects. Relevant to disability studies, mental health, public health, and social work, this session underscores the importance of collaboration in creating inclusive environments.
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Presenters will review their collaborative research efforts to identify and address dental care barriers for Virginians with intellectual and developmental disabilities. They will summarize the barriers and recommendations they identified. They will discuss efforts underway to address the findings, including an interagency workgroup, provider training and recruitment, and mobile dental program. NCI-IDD survey question development, implementation, and recommendations for future practice will also be shared to support ongoing monitoring.
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This panel addresses an interdisciplinary collaboration among LEND Trainees and mentors providing real-time advocacy and supports for family/self-advocates navigating educational and disability service delivery systems and in the process obtain community level data. The discussion will include capstone projects that contributed to the expansion of our Family Support Project LEND Brooklyn initiative. This panel will be of interest to family/self-advocates and clinicians providing service-delivery level care.
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There is often a gap between research and practice that has a direct impact on opportunities for individuals as they transition to post-secondary life. This session highlights research and systems thinking to illustrate how transition does not end when students graduate, get a job, or move to post-secondary education. We ask, "what is next" when thinking about supporting individuals to have enviable lives.
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Get involved in building more inclusive communities for people with disabilities and their families. In this session, you will learn about the work of AUCD's Home and Community-Based Services Special Interest Group (SIG) and their priorities around stakeholder engagement, quality, and knowledge translation. You will also hear updates on the CMS' Access Rule, identify work being done across the Network, and you can share work that you are involved.
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Inclusive community living for people with disabilities is limited by a shortage and often short tenure of direct support professionals (DSPs). DSP positions are considered entry-level, but DSPs need training to provide quality support. No certification is needed to become a DSP, but some organizations and states are exploring voluntary workforce credentialing programs to equip workers and increase compensation with certification. We present data from three New York initiatives.
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In this session, we present to you the highlights of AUCD's 2025 – 2028 Strategic Plan. We will use this opportunity to discuss and share out our experiences during this journey. Pulling 'back the curtain' we provide a behind-the-scenes perspective into the overall process that went into assembling the Plan.
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