1) Diagnostic and Clinical Service Issues; 2) Technology, Assistive Technology and Universal Design
Monday, November 4, 2024
10:15 am - 11:30 am
All posters for the AUCD Conference will be presented throughout Monday and Tuesday in a series of poster symposia that run at the same time as concurrent sessions. During these 75-minute poster symposia, 10-14 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator followed by brief introductions by presenters. Attendees will then be free to move around the room and connect with individual presenters for the remainder of the session. Attendees are welcome to move between symposia rooms and view posters on other topics. Conference posters will be available to view on the website and in the mobile app.
This poster is beneficial for all health service professionals and family members as it describes a process of gathering family perspectives to improve information families receive following newborn screenings. The poster presents findings from focus groups, conducted by Isabella Futchi, a LEND trainee in the discipline of Genetic Counseling, involving families members from the Oklahoma Family Network. This project was done in collaboration with the Oklahoma State Department of Health.
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This presentation is aimed to answer the question: How does clinical bias impact patients, and how significant is this impact? My research has found clinical bias has enormous impacts on patients, including misdiagnosis and problematic interventions.
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Our project aligns with the conference theme because it offers an innovative approach to addressing the access crisis experienced by autistic individuals and their families and gives providers a neurodiversity affirming framework for understanding autism as a construct (as opposed to a medical diagnosis) and feasible tools to better serve autistic individuals and their families.
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The purpose of this presentation is to identify and discuss team approaches to providing coordinated care within a disability network when a client would benefit from two or more services. In rural areas, services for individuals with disabilities and their families are limited and disjointed. A UCEDD may have the resources to provide coordinated care that reduces duplication, increases efficiency, and is effective for the client and family.
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Children with autism and their families face complex system-, provider-, and family-level barriers to timely diagnostic and intervention services. This project evaluated a new program (ECHO Autism LINKS) that integrated primary care provider training with family navigation to bridge the gaps between screening, referral, and service access. The results offer preliminary support for the feasibility, acceptability, and efficacy of the program. The session is relevant to all disciplines.
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This study highlights results of social determinant of health screening and the effectiveness of a community health worker intervention for families of children and adolescents with intellectual and developmental disabilities. We discuss which social needs are heightened for these families, what proportion of families are connected to social services, and progress made on social needs. This is relevant to the UCEDD community, developmental behavioral pediatrics, and social work.
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Explore the transformative role of technology in enhancing independence and social inclusion for disabled adults in Residential Care Settings. This session presents findings from a critical realist disability study, highlighting key conditions for successful technology integration. Relevant to disciplines such as disability studies, assistive technology, social work, healthcare, and public policy, the session advocates for intersectional and systemic approaches to achieving inclusive, supportive environments.
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This presentation highlights the communication behaviors of autistic individuals who present with depression and anxiety. It discusses why diagnosis is difficult and proposes a multidisciplinary approach to assessment. This presentation is designed for educational professionals, speech-language pathologists, psychologists, parents of autistic individuals, and autistic individuals.
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Over 130 AAC users completed the largest survey related to peer supports that gathered data about the tools and techniques they use to be heard and understood. Eighteen options, including a write-in option, ranging from natural (body movements) to aided approaches (tablets or computers) could be selected. Learn about the multiple forms of expression that AAC users identified. This session is relevant to all disciplines and everyone who communicates.
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This study explores the association between frequent mental health distress, healthcare access, and health behaviors of people with disabilities. We found that having poor mental health more than 14 days a month was associated with lower rates of insurance, lower likelihood of having a healthcare provider, and lower likelihood of being able to afford healthcare. This presentation is relevant those in the fields of mental health, physical healthcare, or disability.
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This poster presentation highlights how primary care settings that provide autism diagnostic services can drastically reduce wait times for autism evaluations among underserved families. Through retrospective reviews of electronic medical records, we compared sociodemographic characteristics, evaluation wait times, and diagnostic outcomes of pediatric patients referred to either primary or specialty care for autism evaluations. Relevant disciplines for this session include developmental/behavioral pediatrics, psychology, primary care medicine, and public health.
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Using food as a reward in the context of Applied Behavior Analysis (ABA) therapy for children with autism and feeding disorders can be a complex issue that requires careful consideration. While using preferred foods as rewards can be effective in motivating children with autism in ABA therapy, it is important to balance this approach with careful consideration of nutritional concerns and the risk of reinforcing selective eating habits.
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