AIR-P Presents: Involving Community Partners in Autism Research

Tuesday, August 16, 2022
4:00pm ET - 5:00pm ET
Location: Zoom

Webinar Description

Involving community partners in the design, execution and dissemination of research yields more impactful studies that address the priorities of the communities being studied, and benefits researchers, healthcare providers and target communities.  This presentation will review the principles of Community Based Participatory Research (CBPR), discuss its late arrival to the field of autism research highlighting the ongoing contributions of AASPIRE, and review US government support of patient centered research through PCORI funding.  We will illustrate the benefits of collaborating with community partners by presenting a project in which a team of researchers and a team of autistic community advocates are co-producing  autism research.

Presenters

Lisa Croen, PhD

Lisa Croen, PhD, Gender, Sexuality, and Reproductive Health Node Co-leader. Dr. Croen has been a Research Scientist at the Division of Research, at Kaiser Permanente Northern California (KPNC) since 2000, and is the Director of the KPNC Autism Research Program. She has over 20 years of experience working in collaborative multi-site settings and directing research focused on autism and other neurodevelopmental disorders. She has a particular interest in the health status and healthcare utilization of transition-age autistic youth and adults. She has previous experience evaluating physical and mental health status and health care utilization and costs among autistic children, transition-age youth and adults with and has published extensively in all of these areas.

Maria Massolo, PhD

Maria Massolo, PhD, Gender, Sexuality, and Reproductive Health Node Co-leader. Dr. Massolo, a cultural anthropologist, has collaborated with Dr. Croen at the Autism Research Program for 15 years. Dr. Massolo’s ethnographic training and expertise in qualitative methods led her to direct and implement studies involving interview and focus group participation, serve a liaison with community advisory boards, and mentor students. Her research interests include intersectionality and social determinants of health, as well as health access for vulnerable, marginalized, and diverse populations. Dr. Massolo has published on methods, healthcare delivery, autism in adults, physician knowledge of autism, and healthcare transition from pediatrics to adult care. 

Please Note

• CART captioning will be provided. For additional disability accommodations please email Elizabeth Schnieder at [email protected] two weeks prior to the event with name of event and accommodation preference in your response.
• There is no cost for this webinar.
• CEUs are not offered for this webinar.
• This webinar will be held on the Zoom Platform. You can test your connection with Zoom before joining the meeting here.
• This webinar will be archived available on the AUCD Webinar Library.