Data Coordinator Quarterly Call (5/22/2025)
Thursday, May 22, 2025
4:00 PM EST - 5:30 PM EST
This webinar will provide a review of updates to NIRS for the new program reporting year, updates supporting federal reporting requirements, and address recommendations from federal funders and database users to help improve your database experience. These updates will be followed by Q&A and open floor discussion and will be recorded and archived. UCEDD and LEND Data Coordinators are strongly recommended to participate.
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Data Coordinator Quarterly Call (2/27/2025)
Thursday, February 27, 2025
4:00 PM EST - 5:30 PM EST
This webinar will provide a review of updates to NIRS for the new program reporting year, updates supporting federal reporting requirements, and address recommendations from federal funders and database users to help improve your database experience. These updates will be followed by Q&A and open floor discussion and will be recorded and archived. UCEDD and LEND Data Coordinators are strongly recommended to participate.
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Tuesday, December 17, 2024
4:00pm ET - 5:00pm ET
This webinar will provide an overview of the barriers to identifying, diagnosing, and caring for autistic females. We know that girls are diagnosed with autism with a lower frequency and later than boys; but why? This talk will cover the specific challenges faced by females on the autism spectrum, across the lifespan. Particular emphasis will include recent research conducted with the SPARK cohort, where intrinsic and extrinsic factors are considered, as well as the impact of co-occurring conditions on the autistic female. Clinical relevance and next steps to better serving females on the autism spectrum will be discussed.
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Friday, December 06, 2024
8:30 AM - 4:00 PM
The conference will examine the transition process from a lifespan perspective.
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AIR-P Research Day at AUCD 2024 Conference: Translating Research to Community Impact
Sunday, November 03, 2024 - Wednesday, November 06, 2024
The Autism Intervention Research Network on Physical Health (AIR-P) will be hosting its 8th semi-annual Research Day. This in-person event will be held as part of the AUCD 2024 conference, November 3-6, 2024, in Washington, DC. This is an opportunity to present research on the physical health and overall well-being of autistic individuals. The theme for this event is ‘Translation of Research to Community Impact’. This in-person event is open to all registered attendees of the AUCD 2024 conference.
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2024 Data Coordinator Annual Meeting
Sunday, November 03, 2024
12:00 PM EST - 4:00 PM EST
This webinar will provide a review of updates to NIRS for the new program reporting year, updates supporting federal reporting requirements, and address recommendations from federal funders and database users to help improve your database experience. These updates will be followed by Q&A and open floor discussion and will be recorded and archived. UCEDD and LEND Data Coordinators are strongly recommended to participate.
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Research Projects on Autism and Aging
Thursday, October 24, 2024
1:00PM - 2:00PM ET
Please join the Aging Special Interest Group in a quarterly webinar on Research Projects on Autism and Aging. This webinar will feature Dr. Lauren Bishop, Principal Investigator for the Aging and Health Equity in Autism and Developmental Disabilities (AHEADD) Team at the University of Wisconsin - Madison, and Dr. Dean Hartley, Senior Director of Genetic Discovery & Translational Science at Autism Speaks. They will discuss their research projects and outcomes of their research with the Special Interest Group, moderated by Dr. Sumithra Murthy, Chair of the Aging SIG.
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Tuesday, October 15, 2024
4:00pm ET - 5:00pm ET
There are few specialists that serve adults with Neurodevelopmental Disabilities (NDD), and most adults with NDD receive care from providers without specialty training in NDD. Care for this population is highly variable, and patient and caregiver priorities in this age group are not well known. We aimed to explore individual and caregiver values around adult neurodevelopmental care.
In this qualitative study, we conducted 22 semi-structured virtual interviews from September 2021 to February 2022 with randomly selected adults with NDD and/or their caregivers. The need for adult neurodevelopmental care is growing as more individuals with NDD are living into adulthood. Better understanding of patient and caregiver values can help shape this emerging field to meet the needs of this unique, often overlooked and underserved, population.
25th Annual Chronic Illness & Disability Conference: Transition from Pediatric to Adult-based Care
Thursday, October 10, 2024 - Friday, October 11, 2024
7:15 AM - 5:00 PM ET
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Basics of Social Security: Benefits & Policy Webinar
Thursday, September 26, 2024
2:00 PM ET - 3:30 PM ET
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