What do Adults with Autism and Other Neurodevelopmental Disorders Value in Adult Neurodevelopmental Care?

Tuesday, October 15, 2024

Webinar Description

There are few specialists that serve adults with Neurodevelopmental Disabilities (NDD), and most adults with NDD receive care from providers without specialty training in NDD. Care for this population is highly variable, and patient and caregiver priorities in this age group are not well known. We aimed to explore individual and caregiver values around adult neurodevelopmental care. 

In this qualitative study, we conducted 22 semi-structured virtual interviews from September 2021 to February 2022 with randomly selected adults with NDD and/or their caregivers. The need for adult neurodevelopmental care is growing as more individuals with NDD are living into adulthood. Better understanding of patient and caregiver values can help shape this emerging field to meet the needs of this unique, often overlooked and underserved, population.

Topics will include

  • Insights into Caregiver and Patient Priorities: Exploring what truly matters in neurodevelopmental care for adults.
  • Challenges and Opportunities in Adult NDD Care: Understanding the specific needs to tailor better health services.
  • Future Directions in Neurodevelopmental Services: Shaping an emerging field to better serve this unique population.

Please Note

  • CART captioning will be provided. For additional disability accommodations please email [email protected] two weeks prior to the event with name of event and accommodation preference in your response.
  • There is no cost for this webinar.
  • CEUs are not offered for this webinar.
  • This webinar will be held on the Zoom Platform. You can test your connection with Zoom before joining the meeting here.
  • This webinar will be archived available on the AUCD Events Page.
AIR-P Autism intervention Research Network on Physical Health

Speakers

Jessica Sanders, MD

Jessica Sanders, MD

University of Colorado

Assistant Professor


Jessica Sanders, MD is a neurodevelopmental specialist working in Developmental Pediatrics and Neurology at the University of Colorado in Denver. She has a particular interest in improving the transition from pediatric to adult care for patients with complex neurodevelopmental disorders as well as caring for individuals with developmental disabilities as they age. She dedicates time to clinical, research, and advocacy endeavors to improve access to and quality of specialized care for this vulnerable, aging population.