AUCD 2024 Conference

November 3-6 | Washington, D.C.

Concurrent Sessions Group 4

Tuesday, November 5, 2024

10:15 am - 11:30 am

Meeting Level

Concurrent sessions are 75-minute small group discussions or panel presentations.

Meetings & Sessions

Advancing Inclusive Research: A Learning Series to Empower Researchers with Lived Experience

This presentation will highlight a new Inclusive Research Learning Series co-designed by researchers with and without lived experience. Attendees will engage in a mock session to experience what the learning series was like for Emerging Researchers with lived experience who participated in the pilot. Researchers and self-advocates can take part in discussions about inclusive research, supports for involvement in research, and the process and outcomes of the learning series.

Presenter(s)

Rebecca Townsend, MME

UCEDD Trainee Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Co Presenter(s)

Ryan Henley, AGS, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND
Karrie Shogren, Ph.D., KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Contributing Author(s)

Brad Linnenkamp, KS - Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Cancelled: Expanding Ableism and Inclusion Curriculum within Medical Resident Clinical Rotation in Developmental Behavioral Pediatrics

Participants will have the opportunity to explore a multi-modal curriculum focused on inclusion and ableism developed for senior medical resident trainees, including family and community partnership, experiential learning, reflection, discussion, case-based, and didactic curriculum components. This session will examine a unique approach that promotes a more inclusive healthcare environment.

Presenter(s)

Adriana Verwey, MD MPH

UCEDD Associate Director Strong Center for Developmental Disabilities, UCEDD/LEND

Co Presenter(s)

Jeiri Flores, MS, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Carrie Baker, MS, NY - Strong Center for Developmental Disabilities, UCEDD/LEND

Contributing Author(s)

Kunali Gurditta, MD, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Abigail Kroening, MD, NY - Strong Center for Developmental Disabilities, UCEDD/LEND

Deconstructing Binaries in the Understanding of Autism

Explore the limitations of binary labels like "high-functioning" and "low-functioning" in understanding autism. Russell, an autistic motivational speaker, and Kris, an autistic and trans nonbinary person who is a recent Harvard grad, will use neurodiversity and disability studies, along with feminist theory, to challenge these binaries. Relevant to psychology, education, social work, and disability studies, this session includes personal narratives and practical strategies for fostering inclusive, accurate perceptions of autism.

Presenter(s)

Russell Lehmann, Self-Educated :)

Mr. Tarjan Center UCLA, UCEDD

Co Presenter(s)

Kris King, Harvard 2024

Exposing Invisible Walls: Understanding Transition for Students with Disabilities and Undocumented Immigration Status

The intersection of immigration status and disability is incredibly underexplored and not well understood by practitioners in our field. This session intends to bring this systemic issue to the forefront, provide information around the critical considerations around residency status, and suggest implications for future research and current practices.

Presenter(s)

Robert Kimmel, Ed.D

Dr. The Boggs Center on Developmental Disabilities, UCEDD/LEND

Co Presenter(s)

Valentina Arango-Correa, Ed.M, NJ - The Boggs Center on Developmental Disabilities, UCEDD/LEND

Improving Accessibility of Health Education Efforts: An Adapted SNAP-Ed Program for Individuals with Intellectual and Developmental Disabilities

This presentation reviews the process of adapting and evaluating a SNAP-Ed curriculum to increase accessibility for individuals with intellectual and developmental disabilities. We will discuss the current state of health education efforts for individuals with intellectual and developmental disabilities. We will also discuss ways to include individuals with intellectual and developmental disabilities in future health education efforts. This presentation may be particularly relevant to individuals in health professions.

Presenter(s)

Rachel Byers, Master of Public Health

Institute for Disability Research, Policy & Practice, UCEDD/LEND

Co Presenter(s)

Audrey Juhasz, Ph.D., UT - Institute for Disability Research, Policy & Practice, UCEDD/LEND

Contributing Author(s)

Kristi Strongo, MPH, Utah State University

Stronger Together: Exploring the Intersection of Research and Lived Experience to Improve Health Equity for People with IDD

People with IDD experience life-threatening and life-limiting health disparities. Contributing factors include a lack of confidence by healthcare providers to serve people with disabilities, and misconceptions about the quality of life experienced by people with disabilities. This panel brings together people with lived experience of IDD and healthcare professionals who are working to change the way healthcare for people with disabilities is taught, delivered, and paid for.

Presenter(s)

Craig Escude, MD,FAAFP, FAADM

President, IntellectAbility IntellectAbility

Co Presenter(s)

Thomas Mangrum, Self Advocate, Project ACTION! Self-Advocacy Group
Mai Pham, MD and parent with lived experience, Institute for Exceptional Care (IEC)

Addressing Social Challenges Facing Adults with Autism, Intellectual or Developmental Disabilities; Housing, Healthcare, and Employment

Adults with autism and/or intellectual and developmental disabilities (A/I/DD) are vulnerable to housing insecurities. They are also more likely to report poorer health outcomes due to social vulnerabilities like limited educational achievement, unemployment or underemployment, and low income. This session explores the housing needs and preferences of adults with A/I/DD and recommendations to meet those needs through results from our case study and employment initiative.

Presenter(s)

Toyosi Adesoye, JD/ MPA

Associate Director of Applied Research First Place AZ Global Leadership Institute

Co Presenter(s)

Maureen Casey, MPA, First Place Global Leadership Institute
Toyosi Adesoye, JD, MPA, First Place Global Leadership Institute
Natasha Grant Holmberg, MNLM, CESP, First Place Global Leadership Institute

Contributing Author(s)

Denise Resnik, First Place Global Leadership Institute

Numbers and Narratives: The Power of Storytelling in Disability Advocacy

This session will explore how data-driven information coupled with personal stories can engage the audience. We will discuss techniques for crafting compelling narratives by integrating facts and real-life stories. This session emphasizes authenticity, connection, and strategic storytelling to amplify advocacy efforts and create impactful messages for change. This presentation will benefit anyone seeking to enhance their effectiveness in sharing data and stories.

Presenter(s)

Wanda Felty,

Assistant Director Center for Learning and Leadership, UCEDD/LEND

Co Presenter(s)

Miranda Hooper, OK - Center for Learning and Leadership, UCEDD/LEND

Stronger Together: Partnering to Create Better Resources for Transition to Adult Healthcare and Achieving Financial Literacy for Youth with Disabilities

This session describes how two UCEDDS collaborated with additional partners to develop two online transition modules for youth with IDD, family members and educators, and how one of those UCEDDs also collaborated with national and state partners to develop transition toolkits for youth. Our process, the modules, resources, and tools will be discussed and will be of interest to youth with IDD, family members, and educators.

Presenter(s)

Jane St. John, BA

Senior Research Assistant University of Missouri, UCEDD/LEND

Co Presenter(s)

Michelle Reynolds, PhD, MO - University of Missouri, UCEDD/LEND
Ilka Riddle, PhD, OH - University of Cincinnati UCE, UCEDD/LEND
Amy Clawson, BA, OH - University of Cincinnati UCE, UCEDD/LEND

Indigenous Initiatives Across the AUCD Network

This interactive panel discussion will provide an overview of promising practices and examples of collaboration for reaching Indigenous communities. Representatives from UCEDDs/LENDs in several states including South Dakota, Arizona, and New York will provide information on unique initiatives on "Indigenized" approaches for Indian Country. Participants will also be provided opportunities for sharing, networking, and developing collaborations.

Presenter(s)

Jim Warne, MS

Community Education Director Center for Disabilities, UCEDD/LEND

Co Presenter(s)

Eric Kurtz, PhD, SD - Center for Disabilities, UCEDD/LEND
Jacy Farkas, MS, AZ - Sonoran UCEDD
Whitney Jones, BS, SD - Center for Disabilities, UCEDD/LEND
Agnes Attakai, MPA, AZ - Sonoran UCEDD
Simone Gonyea, MS, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Christina Mule, PhD, NY - Strong Center for Developmental Disabilities, UCEDD/LEND

Accessible Trainings with Local Voices

This discussion looks at a series of trainings designed for and developed with self-advocates as a jumping off point to discuss how others are approaching content development in their communities. We will focus on methods we used to ensure accessibility for the widest possible audience. We will also look at specific design choices that were made to take nationally relevant content and focus it on Idaho specific populations.

Presenter(s)

sukha worob, MFA, M.Ed

Senior Instructional Designer Center on Disabilities and Human Development, UCEDD

Contributing Author(s)

Jen Magelky-Seiler, MPA, ID - Center on Disabilities and Human Development, UCEDD

Universal Design: Creating an Inclusive Learning Environment for All

Universal Design removes barriers to learning, focusing on each person's strengths and learning style, promoting inclusive learning environments where everyone thrives, including people with intellectual/developmental disabilities (IDD). RCM of Washington will share how Universal Design is implemented when developing inclusive programs for people with and without IDD in Washington, DC, exploring its use in classroom settings, agency onboarding processes, continuing education opportunities and organizational training programs.

Presenter(s)

Erica Thomas, MS

Education and Outreach Manager Georgetown University Center for Child & Human Development, UCEDD/LEND

Co Presenter(s)

Susan Brooks
Breeanna Reyes

Helping Healthcare Trainees and Professionals Thrive - The Important Role of Hospital Ethics Committees as Educators

The availability of specialized healthcare services is critically important for individuals with intellectual, developmental, and other disabilities. In recent years, provider burnout and compassion fatigue contributed to provider turnover, with increased numbers of providers leaving the field thus restricting access to services. This panel will discuss strategies to empower healthcare providers and advocates. The goals are to ensure that training and work environments are conducive to supporting everyone's needs.

Presenter(s)

Melanie Pinkett-Davis, Ph.D., MSW

AVP, Clinical Services Kennedy Krieger Institute, UCEDD/LEND

Co Presenter(s)

Maureen Van Stone, MS, MD - Kennedy Krieger Institute, UCEDD/LEND

Contributing Author(s)

Constance Smith-Hicks, MD, Ph.D., MD - Kennedy Krieger Institute, UCEDD/LEND

AUCD Film Event: You. Sleep. Stay. A new documentary film by David Grabias

YOU. SLEEP. STAY. is the story of Fred, a deaf, non-speaking, intellectually and developmentally disabled senior citizen who's lived in a State institution for over 70 years. Exploring Fred's experience of time, community, and language, this observational documentary is a story of home and family, of brothers and responsibility, and of the role filmmakers play in participating in reality—not just reflecting it. Learn more at bit.ly/YouSleepStay

Presenter(s)

Lisa Sonneborn,

Director Institute on Disabilities, UCEDD

Co Presenter(s)

David Grabias, Award winning Producer/Director