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Poster Symposium 2A

1) Systems-Level Implementation, Demonstration, and Evaluation; 2) Training and Leadership Development; 3) Other Topics

Monday, November 4, 2024

2:15 pm - 3:30 pm

Ballroom Level: Anacostia E

All posters for the AUCD Conference will be presented throughout Monday and Tuesday in a series of poster symposia that run at the same time as concurrent sessions. During these 75-minute poster symposia, 10-14 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator followed by brief introductions by presenters. Attendees will then be free to move around the room and connect with individual presenters for the remainder of the session. Attendees are welcome to move between symposia rooms and view posters on other topics. Conference posters will be available to view on the website and in the mobile app.

Meetings & Sessions

Improving Uptake in Regional Center Services: Using Program Data to Identify Predictors of Under-Utilization

This poster describes research using data from over 20,000 clients with developmental disabilities from a California Regional center to better understand which clients are not using all of the supports and services that were allocated to them during the fiscal year 2021/22.

Presenter(s)

Robin Dodds, PhD

Associate Professor California State University LA

Co Presenter(s)

Soma Roy, PhD, Cal Poly SLO

Contributing Author(s)

Amanda Belden, MS, Cal Poly SLO
Hilary Wu, MA, UCLA
Cameron Hafer, Cal Poly SLO
Christina Toapanta, Cal State LA

Multi-Level Learners' Reflective Inquiry of International Service Learning Using Photovoice

This poster is describing a program of multi-level and interdisciplinary learners (First year level one occupational therapy (OT) students, third year OT capstone students, OT fellow, Physical therapy (PT) resident) along with OT, PT, and nursing faculty, and their reflections during an international service-learning program in Merida, Mexico. We utilized photovoice during this project to understand learners' reflective inquiry and as a way to evaluate the international service-learning curriculum.

Presenter(s)

Erin Cochran, MA, OTR/L

Occupational Therapist Oregon Institute on Development & Disability, UCEDD/LEND

Contributing Author(s)

Bethany Sloane, PT, DPT, PhD, OR - Oregon Institute on Development & Disability, UCEDD/LEND
Alison Pilsner, MPH, BSN, RN, CPH, IBCLC, University of Colorado - Anschutz Medical Campus

The Speaker's Network: Empowering the Lived Experience Through a Presentation Skill Coaching for Self-Advocates in Postsecondary Programs

Discover the innovative ten-week coaching model by Westchester Institute for Human Development and Think College, empowering self-advocates to share their postsecondary experiences. Featuring video testimonials and insights from participants of the Public Speaking course, this session is essential for professionals in disability advocacy, education, healthcare, and social services, highlighting the significance of self-advocate perspectives in leadership and policy development.

Presenter(s)

Mariela Adams, M.S. Org. Development; M.S. Industrial Relations

Program Manager - Self-Advocacy Westchester Institute for Human Development, UCEDD/LEND

Co Presenter(s)

Susanna Miller-Raines, MSW, MA - Institute for Community Inclusion/Boston Childrens Hospital, UCEDD/LEND
Nichole Hastings, BA, NY - Westchester Institute for Human Development, UCEDD/LEND

Empowering the Disability Community from Within: Capitalizing on the Lived Experience to Build an Impactful Community Support Network

Westchester Institute for Human Development's (WIHD) Community Support Network (CSN) provides comprehensive services and training for individuals with disabilities, their families, and professionals. With over 80% of the team personally connected to the disability experience, CSN offers direct consultations, professional training, and self-advocacy mentorship. This session highlights the innovative integration of lived experiences to enhance service delivery across education, healthcare, social work, and community services.

Presenter(s)

Kristy Leader, MS.Ed SAS

Director, Community Support Network and Public Pol Westchester Institute for Human Development, UCEDD/LEND

Co Presenter(s)

Mariela Adams, M.S. Organization Development, NY - Westchester Institute for Human Development, UCEDD/LEND
Eleanor Evangelista, BBA, NY - Westchester Institute for Human Development, UCEDD/LEND
Brendan Klein, NY - Westchester Institute for Human Development, UCEDD/LEND
Debbie Goddard, NY - Westchester Institute for Human Development, UCEDD/LEND
Christina Bueti, M.S. Ed, NY - Westchester Institute for Human Development, UCEDD/LEND
Janine Belfast, NY - Westchester Institute for Human Development, UCEDD/LEND

Promoting System Change Through Analysis of the Oregon-Specific Questions from the National Core Indicators Survey In-Person Survey

This poster describes a study designed to promote the well-being of Oregonians with disabilities by analyzing Oregon custom NCI questions developed in collaboration with ODDS and OHSU UCEDD. It covers service areas like provider types, education, relationships, health, and access. Results will inform planning, policy, and advocacy efforts, and be shared with service recipients, providers, and stakeholders. Recommended for self-advocates, families, LEND Trainees, and disciplines engaging with people with disabilities.

Presenter(s)

Rhonda Eppelsheimer, MSW

UCEDD Co-Director OHSU UCEDD

Co Presenter(s)

Larissa Yoshino, MPH, OR - Oregon Institute on Development & Disability, UCEDD/LEND

Contributing Author(s)

Libby Quinn, MSW, OHSU UCEDD
Kira Norton, MPH, OHSU UCEDD, OR - Oregon Institute on Development & Disability, UCEDD/LEND
Lindsay Sauve, MPH, OHSU UCEDD, OR - Oregon Institute on Development & Disability, UCEDD/LEND

Family-Centered Care in Early Childhood: A Goal Concordant Approach

This study investigated the implications of elevating parent goals within early childhood systems (medical, early education, family support services) as drivers to promote young children's health, development, and well-being. Goal concordant care describes clinical care that enables a patient to reach their self-identified goal(s). Findings indicated that regardless of how participants perceived goals, there is a clear benefit to engaging parents in discussion of their goals.

Presenter(s)

Morgan Reiss, LMSW

Help Me Grow National Center at Connecticut Children's

Co Presenter(s)

Skyley Parizek, MPH, Help Me Grow National Center at Connecticut Children's

Contributing Author(s)

Lynn Pullano, Ed.M., All Good Consulting
Melissa Passarelli, M.A., Help Me Grow National Center at Connecticut Children's
Jacquelyn Rose, MPH, Childhood Prosperity Lab at Connecticut Children's
Melissa Miller, MPH, PMP, Help Me Grow National Center at Connecticut Children's
Kimberly Martini-Carvell, M.A., Help Me Grow National Center at Connecticut Children's

The LEND CARES Program: An Experiential Learning Tool for Teaching Leadership Competencies

The LEND CARES (Connection, Advocacy, Resources, Empowerment, and Support) Program is part of the University of Pittsburgh?s LEND curriculum, affiliated with UPMC Children?s Hospital of Pittsburgh. Through an interdisciplinary team of LEND faculty, trainees, and advocates, CARES serves individuals with neurodevelopmental disorders, and their families, to build advocacy skills and empowerment. Utilizing direct case-based practice, trainees develop Maternal Child Health Leadership Competencies. This topic is relevant to all disciplines.

Presenter(s)

Sarah Laughlin, PHD

Assistant Professor, Clinical Psychologist LEND Center of Pittsburgh, LEND

Co Presenter(s)

Victoria Filingeri, DSW, MSW, LCSW, LICSW, UPMC Children's Hospital of Pittsburgh, University of Pittsburgh, PA - LEND Center of Pittsburgh, LEND
Tal Levin-Decanini, PhD DNP RN CPNP-PC, UPMC Children's Hospital of Pittsburgh, PA - LEND Center of Pittsburgh, LEND
Dori Ortman, UPMC Children's Hospital of Pittsburgh, University of Pittsburgh, PA - LEND Center of Pittsburgh, LEND
Jaime Mahramas, University of Pittsburgh, PA - LEND Center of Pittsburgh, LEND

Stronger Together: Replicating Miami's Project SALT at UNMC's Munroe-Meyer Institute UCEDD

Project SALT is a three-day leadership and advocacy intensive program for adults with disabilities. Originating from the Mailman's LEND program, one Nebraska UCEDD advocate brought this to her center. This session covers her journey, challenges faced, and lessons learned, highlighting the collaborative process across centers and states. Relevant disciplines include disability advocacy, leadership training, capacity building, and multi-disciplinary collaboration.

Presenter(s)

Melanie Davis,

Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND

Co Presenter(s)

Jairo Arana, FL - Mailman Center for Child Development, UCEDD/LEND
Rochelle Baer, FL - Mailman Center for Child Development, UCEDD/LEND

Physical Therapy and Disability Representation Roundtable: Discussion on Increasing Recruitment and Retention of Individuals with Disabilities

This session focuses on discussing strategies to recruit and retain individuals with disabilities into the physical therapy profession. Presenters will guide participants through the unique opportunities and challenges of students and professionals with disabilities. Speakers will moderate discussions on strategies to support the trajectory of physical therapy students with disabilities through real examples of student's matriculation. Discussions will facilitate attendees critical thinking about maximizing equity for clinicians with disabilities.

Presenter(s)

Winston Kennedy, PT, DPT, MPH, PhD

Assistant Professor Northeastern University

Co Presenter(s)

Amanda Michel, Simmons University

Contributing Author(s)

Stacey McGuire, PT, DPT, PhD, Simmons University

Faith Community Learning Collaborative: An Inclusive Faith Support Ambassador Program for Faith Leaders

Many people with disabilities and their families feel excluded from faith-based spaces. Fear of judgement and lack of accommodations often result in their absence, furthering social isolation and the need to build the capacities of faith leaders to meet their needs. The consequence of denying people with disabilities and their families equal opportunity to participate in their faith community activities can lead to great distress in their health and well-being.

Presenter(s)

Mirian Ofonedu, PhD., MSW, LCSW-C

Training Director Kennedy Krieger Institute, UCEDD/LEND

Co Presenter(s)

Diogo Fortes, BA, Johns Hopkins University Bloomberg School of Public Health
Mirian Ofonedu, PhD, MD - Kennedy Krieger Institute, UCEDD/LEND

Unveiling Injustice: The Historical and Current Day Impact of Forced Sterilization on People with Disabilities in the United States

Explore the historical and contemporary implications of forced sterilization in the US, focusing on its impact on disability rights. Highlighting legal precedents and current statistics, this presentation aims to raise awareness about ongoing eugenic practices affecting marginalized communities, particularly Black disabled girls. Through historical analysis and societal reflection, participants will engage in critical dialogue to advocate for justice and equity in healthcare and social policy.

Presenter(s)

Leah Smith, MPA

Associate Director University of Cincinnati UCE, UCEDD/LEND

Disability Innovation Fund (DIF): Alaska's Pathways to Partnerships

From exploration in the aviation and emergency management fields to providing students with disabilities the opportunity to explore culturally relevant subsistence employment goals, Alaska's Pathways to Partnerships is providing a variety of unique opportunities for transition-age Alaskans with disabilities to explore their career goals. This innovative statewide network of programs is a study in systems-level design, implementation, and change with a Disability Innovation Fund (DIF) award.

Presenter(s)

Karen Heath, MS

Director Center for Human Development, UCEDD/LEND

Co Presenter(s)

Marley Elconin, MA, AK - Center for Human Development, UCEDD/LEND

Engaging Fathers and Father Figures in Disability Programs and Systems

This poster summarizes work for a new curriculum for LEND trainees about engaging fathers in families and disability programs and systems. We center the voices of fathers and father figures who are often left out, including parents with IDD, fathers who have experienced incarceration, parents in fathering roles form the LGBTQ+ community, and fathers from minoritized racial and ethnic groups who are immigrants who are parents of disabled children.

Presenter(s)

Pamala Trivedi, PhD

LEND Director/UCEDD Associate Director Georgetown University Center for Child & Human Development, UCEDD/LEND

Co Presenter(s)

Wiwit Grandison, BA, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND
Fari Ghamina Tumpe, High School, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND
Jonathan Uy, BA, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND
Ricardo Thornton, High School equivalent, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND
Jalyn Marks, MA, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND

Contributing Author(s)

Reese Hebrank, MSW, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND
Kyle Delaney, BA, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND

Creating Comprehensive Sexual Education & Healthy Relationships Curriculum for All People with IDD

This poster explores the gaps in sex education curriculum options for people with intellectual and developmental disabilities (IDD), especially people with high support needs or nonverbal. We define what comprehensive sex education is and what additional needs people with IDD require to access this information. In addition, we describe the importance of sex education and how the lack of access to education harms the disability community.

Presenter(s)

Monica Sanjur, MA

GU LEND Trainee Graduate Georgetown University Center for Child & Human Development, UCEDD/LEND

Co Presenter(s)

Molly Whalen, MA, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND