AUCD 2024 Conference

November 3-6 | Washington, D.C.

Poster Symposium 5B

1) Advocacy; 2) Parent/Family Involvement, Support, and Respite; 3) Self-Determination and Self-Advocacy

Tuesday, November 5, 2024

2:15 pm - 3:30 pm

Ballroom Level: Anacostia F

All posters for the AUCD Conference will be presented throughout Monday and Tuesday in a series of poster symposia that run at the same time as concurrent sessions. During these 75-minute poster symposia, 10-14 posters on a similar theme will be grouped together in a room. Posters will be displayed on large boards and have a table underneath for accompanying materials. The session will be introduced by a moderator followed by brief introductions by presenters. Attendees will then be free to move around the room and connect with individual presenters for the remainder of the session. Attendees are welcome to move between symposia rooms and view posters on other topics. Conference posters will be available to view on the website and in the mobile app.

Meetings & Sessions

Autistic Autobiographies: Profiles of Authors

Autobiographies written by autistic authors are a valuable resource for understanding their perspectives and experiences. However, there have been no studies about what characterizes the authors of these books. This study seeks to describe the demographics and advocacy activities of a set of autistic authors. Results showed that the authors in general tended to be female, were highly educated, and participated in a broad set of advocacy activities.

Presenter(s)

Patricia Towle, PhD

Westchester Institute for Human Development, UCEDD/LEND

Co Presenter(s)

Nicole Turygin, NY - Westchester Institute for Human Development, UCEDD/LEND

The WILL to Overcome: The Will Johnson Story

This poster will summarize how I, an individual with an Intellectual Disability, am actively pursuing my dreams. With the support of my family and state agencies (i.e. LRS and PAYCheck), I learned skills that helped me become independent and hold a full-time job. As I share my story, I will guide participants along the stops I have made in my post-secondary journey.

Presenter(s)

Will Johnson,

Louisiana State University Human Development Center - New Orleans, UCEDD/LEND

Assessing the Food Security Status of South Dakota Families Who Have Children with Disabilities

This poster reports the preliminary results of a pilot study that aimed to assess the prevalence of food insecurity among South Dakota families among families who have disabilities, and what factors are associated with food insecurity in this population. This would be especially relevant to Family and Nutrition disciplines.

Presenter(s)

Erica DeClark,

Center for Disabilities, UCEDD/LEND

Co Presenter(s)

Valerie Husby, SD - Center for Disabilities, UCEDD/LEND

Contributing Author(s)

Lisa Sanderson, SD - Center for Disabilities, UCEDD/LEND
Graham E. Bastian, PhD, RDN, LN, SD - Center for Disabilities, UCEDD/LEND

Mindful Walking for Older South Asian Family Caregivers of People with Cognitive Disabilities: A Pilot Study

This poster shares the pilot study of a mindful walking intervention being conducted with older South Asian family caregivers of people with Cognitive Disabilities. The 12-week intervention combines the physical activity (PA) of walking and the cognitive training through mindfulness. We are assessing the feasibility and acceptability of the intervention, and explore its preliminary efficacy in reducing psychological stress, improving cognitive function, increasing PA, and increasing self-efficacy.

Presenter(s)

Sumithra Murthy, Ph.D.

Visiting Clinical Assistant Professor Institute on Disability & Human Development, UCEDD/LEND

Contributing Author(s)

Katie Arnold, Ph.D., IL - Institute on Disability & Human Development, UCEDD/LEND
Kelly Hsieh, Ph.D., IL - Institute on Disability & Human Development, UCEDD/LEND
Mark Dixon, Ph.D, IL - Institute on Disability & Human Development, UCEDD/LEND
Zhihui Yi, M.S., IL - Institute on Disability & Human Development, UCEDD/LEND
Rooshey Hasnain, Ph.D, IL - Institute on Disability & Human Development, UCEDD/LEND
Piyush Mishra, M.Tech, IL - Institute on Disability & Human Development, UCEDD/LEND
Himani Garg, MPH, IL - Institute on Disability & Human Development, UCEDD/LEND
Andrea Celestine, BOT, P-OTD candidate, IL - Institute on Disability & Human Development, UCEDD/LEND

PODER Familiar: A Culturally Tailored Health Intervention for Latino Families of Children with IDD

This poster describes PODER Familiar, a two-site (Texas and Illinois) culturally tailored health intervention aimed to promote the health and well-being of Latina family caregivers and their children with IDD. Using the peer mentors model to deliver the intervention, we evaluated the intervention using a mixed-methods design and will be presenting the feasibility, acceptability, and preliminary outcomes of the family caregiver and child with IDD.

Presenter(s)

Amy Pei-Lung Yu, MSW

Doctoral Candidate Texas Center for Disability Studies, UCEDD/LEND

Co Presenter(s)

Sandy Magaña, PhD, The University of Texas at Austin Steve Hicks School of Social Work, TX - Texas Center for Disability Studies, UCEDD/LEND
Yolanda Suarez-Balcazar, PhD, University of Illinois Chicago, IL - Institute on Disability & Human Development, UCEDD/LEND
Stephany Brown, MSW, TX - Texas Center for Disability Studies, UCEDD/LEND

Contributing Author(s)

Weiwen Zeng, PhD, The University of Texas at Arlington School of Social Work
Mansha Mirza, MSSW, PhD, The University of Texas at Arlington School of Social Work
Nazanin Heydarian, PhD, The University of Texas at Arlington School of Social Work
Vanessa L. Errisuriz, PhD, Santa Clara University
Deborah Parra-Medina, MPH, PhD, University of Colorado
Minyu Zhang, PhD, TX - Texas Center for Disability Studies, UCEDD/LEND
Pei-Chiang Lee, MSW, TX - Texas Center for Disability Studies, UCEDD/LEND
Jasmine P. Brown-Hollie, PhD, OTR/L, IL - Institute on Disability & Human Development, UCEDD/LEND
Eduardo Yespica Mendoza, MSW, TX - Texas Center for Disability Studies, UCEDD/LEND
Sandra B. Vanegas, PhD, TX - Texas Center for Disability Studies, UCEDD/LEND

Choosing the Right Interventions for ASD and Beyond: A Resource for Providers and Parents

The poster lays out a resource that can be used by providers and parents when they are making the difficult decision of determining appropriate interventions to try with their children with disabilities. This presentation will provide resources as well as demonstrate the usefulness of posting said resources on the Rhode Island Medical Home Portal in order to make it available to more people across the state.

Presenter(s)

Gabrielle Joseph, MS Sped

Rhode Island, LEND

The Importance of Alternatives to Guardianship for People with Disabilities: Exploring Options Through a Self-Determined Lens

This poster reviews the landscape of guardianship, particularly in New York State. It informs the viewer of the unintended consequences of guardianship for people with disabilities and offers less restrictive alternatives, focusing on Supported Decision-Making, a promising and recently introduced legal option in New York State. The evidence-based information included in the poster highlights data from a recent survey on guardianship and alternatives disseminated to stakeholders statewide.

Presenter(s)

Carrie Baker, MS

Strong Center for Developmental Disabilities, UCEDD/LEND

Co Presenter(s)

Jeiri Flores, MS, NY - Strong Center for Developmental Disabilities, UCEDD/LEND

The Role of Parent Activation in Autistic Youths' Self-Determination

Identifying ways to support self-determination in autistic transition-aged youth is critical, as self-determination skills are associated with better post-school outcomes and higher quality of life. The present study found that parent activation related to higher self-determination skills for youth with lower support needs and families with higher quality parent-child relationships. Change in parent activation across a year also related to change in self-determination for youth with higher support needs.

Presenter(s)

Carly Moser, Ph.D.

Co Presenter(s)

Julie Lounds Taylor, PhD, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC

Contributing Author(s)

Meghan Burke, PhD, TN - Vanderbilt Kennedy Center for Research on Human Development - IDDRC
Leann Smith DaWalt, PhD, WI - Waisman Center - IDDRC

Emerging Leaders in Advocacy: LEND Capitol Day in Texas

In April 2024, ACT LEND (Austin), LoneStar LEND (Houston), and Help Me Grow trainees (El Paso) held Advocacy Day at the Texas State Capitol. Goals included engaging as constituents, exploring advocacy topics, crafting policy one-pagers, learning from experts, and educating legislative staff. Advocacy Day provides the opportunity for interdisciplinary emerging leaders to learn about policy and advocacy. This experience is fundamental in developing advocacy and leadership skills for LEND trainees.

Presenter(s)

Catherine "Kate" Harwood, MSSW

Doctoral Student Center on Disability and Development, UCEDD

Co Presenter(s)

Kristen Padilla, PH.D., LSSP, NCSP, BCBA, LBA, TX - Texas Center for Disability Studies, UCEDD/LEND

Contributing Author(s)

Leslie Jackson, MSW, TX - Texas Center for Disability Studies, UCEDD/LEND

Leveraging Artificial Intelligence in Supporting Disabled Parents

AI Empowering Disabled Parents: Opportunities and Risks This poster examines AI's role in supporting parents with disabilities, showcasing assistive technologies, learning tools, and communication aids. We'll explore AI's potential to enhance parental autonomy and family connections, while also addressing possible risks and ethical concerns. Relevant to disability studies, psychology, family advocates, social work, and disability advocacy, this poster will explore the future of inclusive parenting technologies.

Presenter(s)

Kara Ayres, PhD

Associate Director University of Cincinnati UCE, UCEDD/LEND

It Is Never Failure to Thrive But the Need of an Accessory of Exigency to Launch

It takes a comprehensive support system to empower an individual living with a disability to transition into their best self-sufficient and self-independent version of themselves in which they are confident in cultivating their full potential.

Presenter(s)

Rebekah Gletner,

Program Manager Center for Excellence in Disabilities, UCEDD/LEND

Creating Inclusive Campuses: The Impact of Disability Student Advocacy Clubs

Explore the benefits of disability student advocacy clubs on college campuses, focusing on enhancing inclusion, support, and awareness. Relevant to educators, disability services, student affairs, and advocacy groups, this session will discuss research findings and practical strategies for fostering inclusive environments through student-led advocacy.

Presenter(s)

Amanda Patrick,

Hawaii Center on Disability Studies UCEDD/JABSOM LEND Program

Co Presenter(s)

Kiriko Takahashi, HI - Hawaii Center on Disability Studies UCEDD/JABSOM LEND Program

Advocacy is Everywhere!

Advocacy, in its myriad forms, serves as a powerful catalyst for social change, personal empowerment, and community development. At its core, advocacy involves speaking up for oneself or others to influence policies, practices, and perceptions that affect human lives. This poster will highlight the importance of advocacy and identify its various forms.

Presenter(s)

Jeiri Flores, Master's in Human Development

Advocacy Specialist Strong Center for Developmental Disabilities, UCEDD/LEND

Co Presenter(s)

Carrie Baker, MS, Strong Center for Developmental Disabilities, NY - Strong Center for Developmental Disabilities, UCEDD/LEND

An Inclusive Applications-Based Cooking and Nutrition Program for Minoritized Families of Children with Disabilities in a Food Apartheid

The National Children's Center, Early Learning Center nutrition team, Georgetown University students, a GU family physician consultant collaborated to implement a cooking and nutrition education program. This initiative utilizes the communal nature of food and emphasizes inclusive, nutritious meals tailored for diverse communities. Emphasizing a neurodiverse lens, this multimodal approach empowers families to reflect on their traditions and legacies while learning how to create their own nutritious dishes at home.

Presenter(s)

Kim Bullock, MD

Director of Community Health Division Georgetown University Center for Child & Human Development, UCEDD/LEND

Co Presenter(s)

Capri Fowler, National Children's Center Early Learning Center
Brian Schlitt, Tufts University School of Medicine
Kevin Zhang, Georgetown University
Aiai Price-Smith, Georgetown University

Contributing Author(s)

Sarah Bdeir, Wayne State University School of Medicine
Karen Gonzalez, Georgetown University School of Medicine
Fritze Mayer, Georgetown University

Universal Design LEND: Core Competencies in Self-Advocacy

The LEND Self-Advocacy Discipline competencies are challenging for self-advocates to read and comprehend, making it difficult for them to understand the expectations of working with LEND. I aim to develop a universal design model to assist self-advocates in understanding their supportive roles and the expectations of a LEND trainee.

Presenter(s)

Jessica Molloy, Special Education

LEND Training Director The Maine LEND Program

Adapting to Crisis: Experiences of Individuals with Intellectual and Developmental Disabilities During the COVID-19 Pandemic in D.C.

This session explores the experiences of individuals with IDD during the COVID-19 pandemic, focusing on healthcare access, social support, and adaptations to technology. It highlights barriers faced by this population and provides recommendations to improve emergency preparedness and healthcare delivery. Relevant disciplines include public health, family medicine, disability studies, and healthcare policy. Participants will gain insights into improving services for individuals with IDD in future public health crises.

Presenter(s)

Nesreen Shahrour, BS

Georgetown University Center for Child & Human Development, UCEDD/LEND

Contributing Author(s)

Kim Bullock, MD, DC - Georgetown University Center for Child & Human Development, UCEDD/LEND