|

AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

Learn More
|

AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

Learn More
|

AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

Learn More
|

AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

Learn More

Donate

Product

OODH: Quality of life assessment

Center:

OR-Oregon Institute on Development & Disability, UCEDD/LEND

Fiscal Year:

2015

Contact Information:

Elena Andresen
[email protected]
503-494-2275

Product Description:

The purpose of this chapter is to provide an overview of quality of life (QoL) assessment. We trace QoLs intellectual roots. The second part focuses on the mostly similar standards for QoL methods and measurement advocated by several groups, including the Scientific Advisory Committee for the Medical Outcomes Trust, the COSMIN Initiative, PROMIS, the Food and Drug Administrations Patient-Reported Outcome Guidelines for Industry, and concludes with special considerations for older adults like cognitive impairment and dementia, the end of life, and the use of proxy-respondents. The third section focuses on the two main families of generic QoL and HRQoL measures, those of the WHO and the Medical Outcomes Trust and QualityMetrics partnership. We present a preference (utility) measure. In the final section we present 3 QoL measures specifically constructed for the special circumstances of older adults.

Keyword(s):

quality of life, aging, assessment

Product/Publication Type(s):

Book Chapter

Target Audience:

Professionals

Alternative Format:

To Obtain Copies (URL or Email):

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910