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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Product

Foundation of the Newborn Screening Translational Research Network and its tools for research.

Center:

FL-Mailman Center for Child Development, UCEDD/LEND

Fiscal Year:

2020

Contact Information:

Jeffrey Brosco
[email protected]
305-243-3371

Product Description:

n the past 20 years, several policy activities were undertaken that shaped today's newborn screening (NBS) programs and their associated NBS research activities: the Newborn Screening Task Force Report; the Child Health Act of 2000, Screening for Heritable Disorders; the American College of Medical Genetics and Genomics' (ACMG's) Newborn Screening Uniform Panel; and the ACMG expert panel to examine the development of a national collaborative study system for rare genetic diseases.

Keyword(s):

Product/Publication Type(s):

Peer-reviewed publications in scholarly journals submitted

Target Audience:

Consumers/Families, Professionals, Policymakers, Students

Alternative Format:

Visual Format or Large Print

To Obtain Copies (URL or Email):

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910