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AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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Product

Participation of individuals with developmental disabilities and families on advisory boards and committees.

Center:

IL-Institute on Disability & Human Development, UCEDD/LEND

Fiscal Year:

2010

Contact Information:

Product Description:

A participatory action research approach was adopted to explore supports that enhance participation of individuals with developmental disabilities and family members on advisory committees. Focus groups and open-ended surveys were conducted with staff from University Centers for Excellence in Developmental Disabilities and members of their Consumer Advisory Committees. Five themes emerged: (a) individualized supports, (b) financial supports, (c) coordination and communication, (d) leadership development, and (e) value and outcomes. Themes provide practical guidance to organizations as well as highlight broader systemic issues.

Keyword(s):

Product/Publication Type(s):

Peer-reviewed publications in scholarly journals Published/In Press

Target Audience:

Alternative Format:

To Obtain Copies (URL or Email):

COVID-19 Related Data:

N/A

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