|

AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

Learn More
|

AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

Learn More
|

AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

Learn More
|

AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

Learn More

Donate

Product

You've been told your baby has Cystic Fibrosis...What now

Center:

KS-Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Fiscal Year:

2011

Contact Information:

Catherine Fox
[email protected]
913-588-5744

Product Description:

This fact sheet is designed to provide basic and specific information to new parents who now have an infant with cystic fibrosis. Information provided includes sodium intake during the first year, usual number of stools and wet diapers during the first weeks of life, explanation of the fecal elastase test and what that means, discussion ofn enzymes and how they are admisitered,formula preparation and caloric needs of infants with cystic fibrosis, and do's and don'ts of infant feeding.

Keyword(s):

Cystic Fbirosis, newborn

Product/Publication Type(s):

Pamphlets, Brochures, or Fact sheets

Target Audience:

Consumers/Families

Alternative Format:

To Obtain Copies (URL or Email):

[email protected]

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910