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Product

National PKU News

Center:
Fiscal Year:
2012
Contact Information:
Product Description:
National PKU News is a non-profit organization located in Seattle, Washington. It is dedicated to providing up-to-date, accurate news and information to families and professionals dealing with phenylketonuria. I started the organization in the Spring of 1989, after 16 years as nutritionist for a large PKU clinic in Madison, Wisconsin. The organization relies on generous donations from subscribers to continue thriving (all donations are tax-deductible for US residents).National PKU News now has over 2000 subscribers who receive the organization?s newsletter. Most subscribers are from the US, but an increasing number are from other countries (35 countries are now represented among subscribers, from Canada, Western and Eastern Europe, South America, East Asia, and the Middle East). Subscribers include parents, young adults with PKU, professionals, grandparents, relatives, and other persons connected to families of affected persons. Subscribers also includes some families of children with other inherited metabolic diseases requiring a low protein diet. Please see the section 'What is the newsletter?' for information about newsletter content.http://www.pkunews.org/
Keyword(s):
Product/Publication Type(s):
Pamphlets, Brochures, or Fact sheets
Target Audience:
Consumers/Families, Professionals
Alternative Format:
To Obtain Copies (URL or Email):
COVID-19 Related Data:
N/A