Product Description:
The Heartland Genetics Services Collaborative (formerly the Heartland Genetics and Newborn Screening (NBS) Collaborative) is a network of representatives (parents, patients, clinicians, researchers, industry representatives, laboratorians, and public officials) from eight (8) states. This eight-year=old Collaborative actively engages with its partners at a regional and national level to increase access to and improve quality of genetic and NBS services in the region and at the same time, contribute to projects of national significance. This workis completed under the leadership of the Heartland Regional Coordinating Center (HRCC) with planning and direction supported by the Heartland Advisory Board and three work groups (e.g.Newborn Screening (NBS), Clinical Services and Advocacy) and through a grant from the Health Resources and Services Administration (HRSA). The Heartland Collaborative implemented strategies related to five primary HRSA priorities for this funding cycle.
Target Audience:
Consumers/Families, Professionals, Policymakers, Students