An evaluation of the satisfaction of users of an epilepsy toolkit.

2014

Kellie Ellerbusch
[email protected]
402-559-4892

This project was initiated based on feedback provided from focus groups of individuals and families affected by epilepsy. A significant need was identified for more resource options for individuals, parents, and professionals. A review of data on epilepsy and caregiving showed that caregivers are spending a substantial amount of time coordinating care and providing direct care and are exhibiting severe symptoms of depression. Individuals with epilepsy and caregivers were in need of a comprehensive toolkit. In the current study, an epilepsy toolkit was developed, disseminated, and evaluated to determine its effectiveness as a resource for newly diagnosed patients, caregivers, professionals, and physicians. The preliminary results from the survey indicated the toolkit was useful to patients and caregivers. Toolkit users acquired new knowledge about epilepsy. Overall the toolkit was rated high by survey respondents.

epilepsy, Seizure, management, family, toolkit

Conference presentations and posters presented

Consumers/Families, Professionals, Students

Electronic (disc, CD, 508 compliant web posting)

[email protected]

N/A