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Concurrent Sessions Group 2

Monday, November 4, 2024

2:15 pm - 3:30 pm

Meeting Level

Concurrent sessions are 75-minute small group discussions or panel presentations.

Meetings & Sessions

Leveraging the LEND Family Discipline Network: Benefits to Full Integration of the Lived Experience and How to Capitalize On It

This session will delve deeper into the various ways that LEND/UCEDD directors and faculty, researchers (IDDRC), and other practitioners and professionals can and should collaborate with the LEND Family Discipline Network (LFDN) to assure that the family discipline is fully integrated throughout curriculum, interdisciplinary teams, clinical experiences, and more.

Presenter(s)

Stephanie Coleman,

LEND Family Discipline Faculty Schiefelbusch Institute for Life Span Studies, UCEDD/LEND

Co Presenter(s)

Kristin Mayleben-Flott, NE - Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND
Jonna Mulvaney, RI - Rhode Island, LEND
Dori Ortman, PA - LEND Center of Pittsburgh, LEND
Wanda Felty, OK - Center for Learning and Leadership, UCEDD/LEND
Linda Russo, AL - Civitan International Research Center, UCEDD/LEND
Susan Adelman

Roots and Wings: Embracing Heritage and Supporting Black Families of Children with Developmental Disabilities

Discover the "Roots and Wings: Empowering Black Families of Children with Developmental Disabilities" training modules from the UC Davis UCEDD and LEND. This session features a three-part video manual on the Sankofa Framework, aimed at guiding UCEDDs and LENDs in the AUCD Network to create inclusive, empowering communities. Learn strategies to center Black voices and reshape traditional engagement methods, enhancing support systems for families of Black disabled children.

Presenter(s)

Elizabeth Morgan, Ph.D.

Associate Professor UC Davis at the MIND Institute, UCEDD/LEND

Co Presenter(s)

Lisa Kain, MACC, CA - UC Davis at the MIND Institute, UCEDD/LEND

Contributing Author(s)

Benita Shaw, BS, CA - UC Davis at the MIND Institute, UCEDD/LEND

Supporting Healthy Relationships for People with Disabilities and Others in their Social Worlds

This panel examines the question "what constitutes a heathy relationship?" The trauma-informed discussion will cover how to support healthy relationships for individuals with disabilities, acknowledging the complexity of the question above. Because so many people with disabilities are mistreated by their partners, we will discuss the cycle of abuse, victim's rights, wellness, recreation, and safety. This session is relevant to professionals in social work, healthcare, psychology, and disability studies.

Presenter(s)

Wesley Witherspoon, BS

Consumer Advocate USC, Childrens Hospital, UCEDD/LEND

Co Presenter(s)

Robert Levy, CA - UC Davis MIND Institute, Sacramento, CA - IDDRC
Maria Marquez, CA - USC, Childrens Hospital, UCEDD/LEND

Contributing Author(s)

Imani Franklin, BS, CA - USC, Childrens Hospital, UCEDD/LEND
Tracy Evanson
Essence Guss
Sandra Aldana
Julie Gaona, CA - USC, Childrens Hospital, UCEDD/LEND
Rigoberto Gaona, CA - USC, Childrens Hospital, UCEDD/LEND
Alexis Deavenport -Saman, DrPH, MPH, CA - USC, Childrens Hospital, UCEDD/LEND
Crystal Ashe, MPH, CA - USC, Childrens Hospital, UCEDD/LEND
Larry Yin, MD, MSPH, CA - USC, Childrens Hospital, UCEDD/LEND
Olga Solomon, PhD, CA - USC, Childrens Hospital, UCEDD/LEND

Co-Creating Educational and Training Curriculum with Individuals with Intellectual/Developmental Disabilities (IWIDD): Recommendations for Researchers, IWIDD, and Community Partners

This panel describes three projects across two university's UCEDD and LEND programs: (1) SCOUT teams (UC Davis MIND Institute CEDD), (2) the Neurodiversity and Autism course (UCLA), and (3) the UC Leadership Academy (UCLA Tarjan Center UCEDD and UC-LEND). Each project highlights collaboration with individuals with intellectual/developmental disabilities (IWIDD) to create educational and training curriculum. Panelists will discuss recommendations for other programs aiming to collaborate with IWIDD during curriculum development.

Presenter(s)

Jasper Estabillo, PhD

Director of Training Tarjan Center UCLA, UCEDD

Co Presenter(s)

Russell Lehmann, CA - Tarjan Center UCLA, UCEDD
Maya Ayoub, MD, EdM, CA - Tarjan Center UCLA, UCEDD
Aubyn Stahmer, PhD, BCBA-D, CA - UC Davis at the MIND Institute, UCEDD/LEND
Blake Warner, MA, CA - Tarjan Center UCLA, UCEDD
Kashia Rosenau, PhD, CA - UC-LEND

Contributing Author(s)

Elizabeth Laugeson, PsyD, CA - Tarjan Center UCLA, UCEDD
Robert Levy, CA - UC Davis at the MIND Institute, UCEDD/LEND

Cancelled: Writing the Handbook for Radical Higher Education Change Led by Inclusive Postsecondary Education

There is a crisis in higher education involving financial, ideological, and procedural issues. This session will explore how inclusive postsecondary education (IPSE) can drive positive disruption. Participants will engage in group work to answer key questions about supporting students with intellectual disabilities and developing innovative education models. Themes and action items will be identified and synthesized for post-conference distribution.

Presenter(s)

Thomas Neuville, PhD

Professor / P.I. Millersville University

Co Presenter(s)

Gabriela Hagiu, BSW (in process), Millersville University

Bridging the Gap: Leveraging Family Engagement to Improve Health Equity for NYS Children and Youth with Special Health Care Needs

Family Specialists from the three New York State (NYS) UCEDDs will describe their process to engage with families in NYS, the findings of these conversations and recommendations to enact positive change in the Children and Youth with Special Health Care Needs (CYSHCN) Program, and more broadly in NYS systems of care. The presentation will detail the importance of collaboration with family specialists and families of CYSHCN in providing directional guidance.

Presenter(s)

Angel Morales, MPH

Westchester Institute for Human Development, UCEDD/LEND

Contributing Author(s)

Jenna Lequia, PHD, NY - Westchester Institute for Human Development, UCEDD/LEND
Jessica Goh, MBA, NY - Westchester Institute for Human Development, UCEDD/LEND
Keri Kanetsky, MBA, NY - Westchester Institute for Human Development, UCEDD/LEND
Sabrina Moore, MS, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Sabrina Smith, MPA, MPH, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Susan Hetherington, PhD, NY - Strong Center for Developmental Disabilities, UCEDD/LEND
Miriam Franco, NY - Rose F. Kennedy Center, UCEDD/LEND

Leveraging the Charting the LifeCourse Framework to Drive Person-Centered Transformation that Focuses on All

Person-centered transformation is critical to policy, practice and systems-change to ensure the services and supports are driven by the person to achieve their good life, defined by them. Hear how four UCEDDs bring together diverse advocates and others using the Charting the LifeCourse framework and tools to elevate the voice of the person (and their families) at all levels of change within the United States and around the world.

Presenter(s)

Michelle Reynolds, PhD

Sr. Associate Director University of Missouri, UCEDD/LEND

Co Presenter(s)

Lynda Anderson, PhD, MN - Institute on Community Integration, UCEDD/LEND
Colleen McLaughlin, MEd, NJ - The Boggs Center on Developmental Disabilities, UCEDD/LEND
Celia Schloemer, OH - University of Cincinnati UCE, UCEDD/LEND
Sarah Adams, M.ED., MO - University of Missouri, UCEDD/LEND

Empowering Network Collaboration: Meeting the Mental Health Needs of People with Intellectual and Developmental Disabilities

Explore effective strategies for leveraging collaboration among diverse stakeholders to meet the mental health needs of individuals with intellectual and developmental disabilities (IDD). This session will illustrate how LEND/UCEDD programs can expand mental health resources and networks within the AUCD community, highlighting actionable steps and successful projects. Relevant to disability studies, mental health, public health, and social work, this session underscores the importance of collaboration in creating inclusive environments.

Presenter(s)

Connie Mathis, Doctor of Nursing Practice

Meeting the mental health needs of people with IDD Center for Learning and Leadership, UCEDD/LEND

Co Presenter(s)

Andrea Witwer, PhD, OH - The Nisonger Center, UCEDD/LEND

Contributing Author(s)

Mark Fisher, PhD, OK - Center for Learning and Leadership, UCEDD/LEND

Collaborative Approach to Understanding and Increasing Access to Oral Health Services for People with Intellectual and Developmental Disabilities in Virginia

Presenters will review their collaborative research efforts to identify and address dental care barriers for Virginians with intellectual and developmental disabilities. They will summarize the barriers and recommendations they identified. They will discuss efforts underway to address the findings, including an interagency workgroup, provider training and recruitment, and mobile dental program. NCI-IDD survey question development, implementation, and recommendations for future practice will also be shared to support ongoing monitoring.

Presenter(s)

Kayla Diggs Brody, PhD, MPH

Partnership for People with Disabilities, UCEDD/LEND

Co Presenter(s)

Nia Harrison, MPP, Virginia Board for People with Disabilities
Susan Moon, RN, BS, Department of Behavioral Health and Developmental Disabilities
Casey Tupea, MSPH, BSDH, RDH, EMT-I, Department of Behavioral Health and Developmental Disabilities

The Family Support Project - Empowering Families to Navigate Complex Care Systems in NYS through Advocacy Support and Training

This panel addresses an interdisciplinary collaboration among LEND Trainees and mentors providing real-time advocacy and supports for family/self-advocates navigating educational and disability service delivery systems and in the process obtain community level data. The discussion will include capstone projects that contributed to the expansion of our Family Support Project LEND Brooklyn initiative. This panel will be of interest to family/self-advocates and clinicians providing service-delivery level care.

Presenter(s)

Ivana Krstovska, PhD BCBA-D

Director of Behavior Services & Community Support SUNY Brooklyn, LEND

Co Presenter(s)

Harris Huberman, MD MPH, SUNY Downstate Health Sciences University, NY - SUNY Brooklyn, LEND
Farrah Rios, BBA, NY - SUNY Brooklyn, LEND
Jennifer Morrison-Diallo, PhD BCBA-D, NY - SUNY Brooklyn, LEND
Juliet Grillo, MS - BCBA, NY - SUNY Brooklyn, LEND

Contributing Author(s)

Veronica Peck, MA, NY - SUNY Brooklyn, LEND
Emily Bakaj, MD, SUNY Downstate Health Sciences University, NY - SUNY Brooklyn, LEND

Yes, You Can Actually!: Collaborative Planning for an Enviable Life

There is often a gap between research and practice that has a direct impact on opportunities for individuals as they transition to post-secondary life. This session highlights research and systems thinking to illustrate how transition does not end when students graduate, get a job, or move to post-secondary education. We ask, "what is next" when thinking about supporting individuals to have enviable lives.

Presenter(s)

Deborah Taub, PhD

CEO Interdisciplinary Human Development Institute, UCEDD/LEND

Co Presenter(s)

Stephanie Meredith, DrPH, KY - Interdisciplinary Human Development Institute, UCEDD/LEND

Contributing Author(s)

Tony Lobianco, Phd, KY - Interdisciplinary Human Development Institute, UCEDD/LEND

Leveraging AUCD's Network to Build Inclusive Communities through Home and Community-Based Services as Part of ACL's Grassroots Project

Get involved in building more inclusive communities for people with disabilities and their families. In this session, you will learn about the work of AUCD's Home and Community-Based Services Special Interest Group (SIG) and their priorities around stakeholder engagement, quality, and knowledge translation. You will also hear updates on the CMS' Access Rule, identify work being done across the Network, and you can share work that you are involved.

Presenter(s)

Sarah Swanson, Masters of Public Health (MPH)

Assistant Professor/Consultant to AUCD Munroe-Meyer Institute of Genetics & Rehabilitation, UCEDD/LEND

Co Presenter(s)

Caitlin Crabb, MPH, PhD, IL - Institute on Disability & Human Development, UCEDD/LEND
Wanda Felty, OK - Center for Learning and Leadership, UCEDD/LEND
Jon Neidorf, MA, MN - Institute on Community Integration, UCEDD/LEND
Dawn Rudolph, MSEd, WY - Wyoming Institute for Disabilities, UCEDD
Jennifer Bowdoin (or alternate), CMS

Contributing Author(s)

Susan Kohler, OH - University of Cincinnati UCE, UCEDD/LEND

Exploring Voluntary Credentialing Initiatives for the Direct Support Workforce in New York

Inclusive community living for people with disabilities is limited by a shortage and often short tenure of direct support professionals (DSPs). DSP positions are considered entry-level, but DSPs need training to provide quality support. No certification is needed to become a DSP, but some organizations and states are exploring voluntary workforce credentialing programs to equip workers and increase compensation with certification. We present data from three New York initiatives.

Presenter(s)

Julie Kramme, PhD

Researcher Institute on Community Integration, UCEDD/LEND

Co Presenter(s)

Julie Bershadsky, PhD, MN - Institute on Community Integration, UCEDD/LEND
Adrienne Mazeau, NYS Office for People With Developmental Disabilities
Cynthia Proctor, State University of New York (SUNY)

Contributing Author(s)

Sarah Hall, PhD, MN - Institute on Community Integration, UCEDD/LEND
Amy Hewitt, PhD, MN - Institute on Community Integration, UCEDD/LEND

BTS (Behind-The-Scenes) and Highlights of AUCD's 2025-2028 Strategic Plan

In this session, we present to you the highlights of AUCD's 2025 – 2028 Strategic Plan. We will use this opportunity to discuss and share out our experiences during this journey. Pulling 'back the curtain' we provide a behind-the-scenes perspective into the overall process that went into assembling the Plan.

Presenter(s)

Rodney Samaco, PhD

AUCD

Co Presenter(s)

Carol Salas Pagán, PsyD, PR - Institute on Developmental Disabilities, UCEDD
Derrick Willis, MPA, IA - Center for Disabilities and Development, UCEDD/LEND
Ilka Riddle, PhD, OH - University of Cincinnati UCE, UCEDD/LEND
John Tschida, MPP, AUCD
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