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AUCD Experts

Monica McClain, PhD

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Center:
NH-INACTIVE-Institute on Disability, UCEDD
Contact Information:
603-862-4320
Leadership:
Primary Activity Coordinators:
Research
Discipline Coordinators:
Genetics
Epidemiology
Special Education
Specialty Resource Contacts:
Genetics
Discipline(s):
Genetics/Genetic Counseling
AUCD Council Membership:
No Council Membership
Vita/Bio:

Professional Background

Dr. McClain is Research Associate Professor in the Health Management and Policy Department and the Institute on Disability at the University of New Hampshire.  She received her Ph.D. in Epidemiology from Tulane University, and has a strong background in applied research, medical screening, and public health.  The focus of her career as an epidemiologist has been on the evalution and implementation of evidence-based practice in medicine, and more specifically genetic testing and medical screening.  Dr. McClain works closely with each of the six New England states' Title V and Newborn Screening Public Health Programs to assess needs, implement change, and evaluate newborn screening program results.  Another area of interest is hereditary cancers, specifically how to ensure that those who are at risk are identified and receive genetic services.  Dr. McClain also has extensive experience in health services research using administrative claims data, vital records, and other large data sets.  

Service:
Linked Projects
New England Genetics Collaborative
New England Genetics Collaborative
New England Critical Congenital Heart Disease Demonstration Project
New England Critical Congenital Heart Disease Demonstration Project
New England Genetics Collaborative
Linked Products
NE Genetics Collaborative Special Educators Project Focus Groups
Family Care Plan
Understanding Galactosemia
Galactosemia - Resources for Educators
Moving Forward: Your Guide to Galactosemia and POI
A Guide for Prenatal Educators
State Laws of New England: Use and Disclosure of Genetic and Newborn Screening Information for the Purposes of Treatment, a Registry, and Research
Population-based research within a public health system; two models for common rule compliance in the Massachusetts Newborn Screening Program
Oropharyngeal flora in health infants: observations and implications for cystic fibrosis
Establishing a consortium for the study of rare diseases: The Urea Cycle Disorders Consortium
Projected Costs, risks, and benefits of expanded newborn screening for MCAD
Psychosocial issues and outcomes in maternal PKU
Final Commentary: A New Chapter
Psychiatric symptoms and disorders in PKU
Screening for cognitive and social-emotional problems in individuals with PKU: Tools for use in teh metabolic clinic
A Guide for Prenatal Educators
Establishing a consortium for the study of rare diseases: The Urea Cycle Disorders Consortium
Family Care Plan
Final Commentary: A New Chapter
Galactosemia - Resources for Educators
Moving Forward: Your Guide to Galactosemia and POI
NE Genetics Collaborative Special Educators Project Focus Groups
Oropharyngeal flora in health infants: observations and implications for cystic fibrosis
Population-based research within a public health system; two models for common rule compliance in the Massachusetts Newborn Screening Program
Projected Costs, risks, and benefits of expanded newborn screening for MCAD
Psychiatric symptoms and disorders in PKU
Psychosocial issues and outcomes in maternal PKU
Screening for cognitive and social-emotional problems in individuals with PKU: Tools for use in the metabolic clinic
State Laws of New England: Use and Disclosure of Genetic and Newborn Screening Information for the Purposes of Treatment, a Registry, and Research
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