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AUCD Experts

Elizabeth Perkins, PhD, RNLD

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Contact Information:
813-974-7076
Leadership:
Discipline Coordinators:
Specialty Resource Contacts:
Health Coordinator
Discipline(s):
Gerontology
Psychology
AUCD Council Membership:
Council on Community Advocacy
Multicultural Council
Community Education Directors' Council
Vita/Bio:

Education 2010 Post-Doctoral Fellowship: Florida Center for Inclusive Communities, UCEDD, University of South Florida. 2009 Ph.D. University of South Florida. Major: Aging Studies 2003 B.A. (Summa Cum Laude). University of South Florida. Major: Psychology 1992 RNMH (Registered Nurse Mental Handicap). Hereford & Worcestershire College of Nursing & Midwifery, England. Publications - Peer-Reviewed Journals Woodard, L. J., Havercamp, S. M., Zwygart, K. K., & Perkins, E. A. (2012). An innovative clerkship module focused on patients with disabilties. Academic Medicine, 87(4), 537-542.   Perkins, E. A., & LaMartin, K. (2012). The internet as social support to older carers of adults with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 9, 53-62. Perkins, E. A., & Haley, W. E. (2010). Compound caregiving: when lifelong caregivers undertake additional caregiving roles. Rehabilitation Psychology, 55, 409-417.     Perkins, E. A., & Moran, J. A. (2010). Aging adults with intellectual disabilities. Journal of the American Medical Association, 304(1), 91-92. Perkins, E. A. (2010). The compound caregiver: a case study in multiple caregiving roles. Clinical Gerontologist, 33, 248-254. Perkins, E. A. (2007). Self and proxy reports across three populations: Older adults, persons with Alzheimer's disease, and persons with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 4, 1-10. Perkins, E. A., Small, B. J., Balducci, L., Extermann, M., Robb, C., & Haley, W. E. (2007). Individual differences in well-being in older breast cancer survivors. Critical Reviews in Oncology/Hematology, 62, 74-83. Robb, C., Haley, W. E., Balducci, L., Extermann, M., Perkins, E. A., Small, B., & Mortimer, J. (2007). Impact of breast cancer survivorship on quality of life in older women. Critical Reviews in Oncology/Hematology, 62, 84-91. Perkins, E. A., & Small, B. J. (2006). Aspects of cognitive functioning in adults with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 3, 181-194. Haley, W. E., & Perkins, E. A. (2004). Current status and future directions in family caregiving and aging people with intellectual disabilities. Journal of Policy and Practice in Intellectual Disabilities, 1, 24-30. Publications - Book Chapters Perkins, E. A., Lynn, N., & Haley, W. E. (2007). Caregiver issues associated with wandering. In A. L. Nelson & D. L. Algase (Eds.) Evidence based protocols for managing wandering behaviors. (pp. 123-142). New York: Springer. Publications - Books Saxon, S.V., Etten, M. J., & Perkins, E. A. (2010). Physical Change and Aging: A Guide for the Helping Professions (5th ed). New York: Springer.   Translated: (2011). Physical Change and Aging: A Guide for the Helping Professions (5th Ed). Taiwan: Farterng Culture Company Ltd., (Traditional Chinese). Professional Service Editorial Board - Journal of Policy and Practice in Intellectual Disabilities, Learning Disability Practice Ad hoc Reviewer: American Journal on Intellectual and Developmental Disabilities, Anxiety, Stress & Coping, Archives of Internal Medicine, British Journal of Cancer, European Journal of Surgical Oncology, Journal of Policy and Practice in Intellectual Disabilities, Psychology, Health & Medicine, Rehabilitation Psychology. President - Gerontology Division - AAIDD (from April 2008-June 2012). Member at Large - Board of Directors - AAIDD (July 2012 - July 2016). FCIC Representative: Florida Developmental Disabilities Council (September 2010 - present). Co-convener - Special Interest Group on Developmental Disabilities - Gerontological Society of America (November 2008 - November 2011).

Service:
Linked Projects

Promoting the Participation of Individuals with Disabilities in COVID-19 Vaccines
Promoting the Participation of Individuals with Disabilities in COVID-19 Vaccines
Promoting the Participation of Individuals with Disabilities in COVID-19 Vaccines
Linked Products

Physical Changes and Aging: A Guide for the Helping Professions
Caregivers of Adults with Intellectual Disabilities: The Relationship of Compound Caregiving & Reciprocity to Quality of Life
Compound Caregivers: Overlooked and Overburdened - A White Paper
Aging Adults with Intellectual Disabilities
Compound caregiving: when lifelong caregivers undertake additional caregiving roles.

Reciprocity in older caregivers of adults with intellectual disabilities
Aging Caregivers - The Master Multi-Taskers?
Into the unknown: Aging with autism and caregiver challenges.
Aging adults with autism spectrum disorders
Aging adults with autism spectrum disorders
Aging - You can't escape it - so why not embrace it?
My Health Passport
Golden Years - Gerontology Newsletter (July 2010)
Golden Years - Gerontology Newsletter (December 2010)
Impact of training on medical students' knowledge, attitude, and comfort towards persons with disabilities
Golden Years - Gerontology Newsletter (December 2011)
Golden Years - Gerontology Newsletter (July 2011)
Compound Caregivers: Overlooked and Overburdened - A White Paper
The Internet as Social Support for Older Caregivers of Adults with Intellectual Disabilities/AAIDD
Promoting Successful Aging in Persons with Intellectual and Developmental Disabilities/DDNA
An innovative clerkship module focused on patients with disabilities.
The internet as social support for older carers of adults with intellectual disabilities.
Self-injurious behavior in older adults with intellectual disabilities.
Into the unknown: aging with autism spectrum disorders.
Invited Opinion Article - Reflections from over the Pond
Physical Change and Aging: A Guide for the Helping Professions - Chinese Translation
My Health Passport
Self-injurious behavior in older adults with intellectual disabilities.
Health care on both sides of the Atlantic Ocean.
Emotional and Tangible Reciprocity in Older Caregivers of Adults with Intellectual Disabilities
My Health Passport
Compound Caregivers: Overlooked and Overburdened - A White Paper
Into the unknown: aging with autism spectrum disorders.
Emotional and tangible reciprocity in older caregivers of adults with intellectual disabilities (IASSID World Conference 2012)
Special Issue - Aging and End of Life
Introduction to the Special Issue on Aging and End of Life.
Education for Lifelong Health: Cancer
Education for Lifelong Health: Cancer Treatment
Education for Lifelong Health: Diabetes
Education for Lifelong Health: Good Health and Hygiene
Education for Lifelong Health: Osteoporosis
My Health Passport: A Journey To Better Healthcare Article
Self-injurious behavior in older adults with intellectual disabilities.
Emotional and Tangible Reciprocity in middle and older-aged caregivers of adults with intellectual disabilities.
Supporting Individuals with Intellectual and Developmental Disabilities Through Life-Ending Illness, Grief and Loss.
FCIC Brochure
Family caregivers of adults with intellectual and developmental disabilities: Caregiver outcomes associated with US services and supports.
Guidelines on health care advocacy for adults with intellectual disabilities and dementia of the National Task Group on Intellectual Disabilities and Dementia Practices
Issue and Trends - Online Course
Review of the book Transition to Retirement: A guide to inclusive
Family caregivers of adults with intellectual and developmental disabilities: Caregiver outcomes associated with U.S. services and supports.
Duvall Home residents make transition to group homes
Physical Changes and Aging: A Guide for the Helping Professions - 6th Edition
Family caregivers of adults with intellectual and developmental disabilities: Caregiver outcomes associated with U.S. services and supports.
Guidelines on health care advocacy for adults with intellectual disabilities and dementia of the National Task Group on Intellectual Disabilities and Dementia Practices.
Education for Lifelong Mental Health - What I should know about depression.
Education for Lifelong Mental Health - What I should know about anxiety.
Family caregivers of individuals with intellectual and developmental disabilities: Experiences in U.S. States with Medicaid Managed Care Long-Term Services and Supports.
Planning for a healthy life beyond high school
Older caregivers of adults with intellectual disabilities: reciprocal and social networking relationships.
Funding Drives Move to Group Homes.
Guidelines for Dementia-Related Health Advocacy for Adults with Intellectual Disability and Dementia: National Task Group on Intellectual Disabilities and Dementia Practices.
MHS 6065 Issues and Trends in Developmental Disabilities - Online Version
How do I talk to my doctor? -EFLH Series Factsheet
Physician's Fact Sheet - Improving Communication
Improving communication between providers and patients with intellectual and developmental disabilities.
My Health Report
Family caregivers of individuals with intellectual and developmental disabilities: Experiences in U.S. States with Medicaid managed care long-term services and supports.
Family caregivers as needed partners: Recognizing their role in medicaid managed long-term services and supports.
Implementation of Medicaid managed long-term services and supports for adults with intellectual and/or developmental disabilities in Kansas.
Quality of life outcomes of aging adults with autism and their families.
Coping with caregiver stress.
Post-transition adjustment of brothers/sisters with a developmental disability to sibling co-residential care.
Implementation of Medicaid Managed Long-term Services and Supports for Adults with Intellectual and/or Developmental Disabilities: A States Experience
INTEGRATING DISABILITY: COMMUNICATION AND HEALTH PROMOTION AS A PLATFORM FOR OVERCOMING DISPARITIES
Health care access for adults with intellectual and developmental disabilities: A scoping review.
End the wait! Developmental Disability Policy Brief.
My Health Report: Enhancing the history taking process by primary care physicians to patients with intellectual and developmental disabilities.
Transition of persons with developmental disabilities (DD) from parental to sibling co-residential care.
Implementation of Medicaid Managed Long-term Services and Supports for adults with intellectual and/or developmental disabilities.
Florida's DD Waitlist Campaign
Education for Lifelong Health: What I should know about epilepsy.
Family caregivers of individuals with intellectual and developmental disabilities: Experiences in U.S. States with Medicaid managed care long-term services and supports.
Transition of persons with developmental disabilities (DD) from parental to sibling co-residential care. Effects on Sibling caregiver well-being and family functioning.
Promoting successful aging in persons with intellectual and developmental disabilities.
Promoting health and wellness in older adults with intellectual and developmental disabilities.
Physical change and aging: a guide for the helping professions (6th ed.).
Family caregivers as needed partners: Recognizing their role in medicaid managed long-term services and supports.
End the wait! Developmental Disability Policy Brief.
Health care access for adults with intellectual and developmental disabilities: A scoping review.
The impact of multiple informal caregiving roles on subjective physical and mental health status among older adults: Racial/ethnic differences existed.
When the journey ends: Parental caregiving and later life planning.
Family caregivers as needed partners: Recognizing their role in medicaid managed long-term services and supports.
Caregiving and Intellectual and Developmental Disabilities and Dementia: Report of the Pre-Summit Workgroup.
Integrating Disability: Evaluating the usefulness of "My Health Report" and its effect on doctor-patient communication.
My Health Passport - Chinese version
XCEL- Providing excellent care for patients with developmental disabilities.
XCEL-Training. Excelling in care for patients with developmental disabilities through communication, environment and logistics.
DD Waitlist Campaign Website & Facebook Page
Transition of Persons with Developmental Disabilities from Parental to Siblings Co-Residential Care: Effects on Sibling Caregiver Well-being and Family Functioning.
Social marketing interventions to primary care physicians to decrease health disparities for patients with a disability: A scoping review.
Florida DD Waitlist Campaign Website
Inclusion Florida website
Education for Lifelong Health - What I should know about Heart Health
Politico News - The health care system isnt ready to replace aging caregivers.
Medicaid Waivers. WJCT radio Jacksonville NPR affiliate.
Imagine, Include, Inspire: Let us preach beyond the choir! Invited Keynote Address
Promoting better health care appointments: Lets make the unfamiliar familiar!
Behavioral health services for persons with intellectual and developmental disabilities.
Compound Caregiving: Toward a Research Agenda.
Sports: An Underutilized Tool for Achieving Health and Wellness for Patients with Intellectual Disabilities