NIRS Data Coordinator's Quarterly Call (5/23/2023)

Tuesday, May 23, 2023
4:00 PM EST - 5:30 PM EST
Location: Zoom

NIRS Data Coordinators from all Centers and Programs meet quarterly.

Note:  English and Spanish captioning are provided for this event.

At this meeting, AUCD's TA team will review preview NIRS updates and upcoming events for the upcoming year. We will provide UCEDD-specific updates and LEND/DBP-specific updates. These updates will be followed by Q&A and open floor discussions. 

NIRS is the national, web-based data reporting and retrieval system for the AUCD Network. NIRS enables Network members to manage data on their training programs, projects, activities, and products and helps them comply with federal reporting requirements. The data gathered in NIRS also enables AUCD to develop composite snapshots of the UCEDD and LEND programs. Learn more about NIRS and search the database at https://www.aucd.org/nirs-search.

Please contact [email protected] if you have questions.

 

Presenters

Brandon Lewis is the Data Support Manager supporting Leadership Education in Neurodevelopmental Disabilities (LENDs), University Centers for Excellence in Developmental Disabilities (UCEDDs), Leadership Education in Adolescent Health (LEAHs), Pediatric Pulmonary Centers (PPCs), and Developmental and Behavioral Pediatrics (DBPs) programs through training and troubleshooting on federal and state mandated reporting through NIRS. Brandon also assists in maintaining and developing training materials across the AUCD network and helps to maintain data integrity and research efforts. Previously, Brandon served as a LEND trainee at Riley Hospital for Children at Indiana University Health in Indianapolis, IN for 2 years. Brandon conducted research exploring social factors that might affect developmental delays in children 1-42 months. Brandon formally worked at the Supplemental Nutrition Program for Women, Infants, and Children (WIC) in Indiana, supporting families in low-income communities as a Nutritionist.

Danielle Webber is the Director of AUCD’s Community Inclusion Team. Her responsibilities include overseeing the development, delivery, and evaluation of technical assistance (TA) provided to the UCEDD network through the UCEDD Resource Center (URC). Danielle brings almost fifteen years of experience with AUCD, its network centers, and partner organizations to this role.

 

 

Oksana Klimova is the Director of Web Services at the Association of University Centers on Disabilities (AUCD). Oksana directs and oversees all aspects of AUCD's web systems in support of the association and network's strategic goals and priorities. She is responsible for creative design and development, from conception of prototype concepts through final programming, for all areas of online design, including association websites, extranet, online applications, online reporting systems and online marketing website. Oksana helps identify appropriate internet technologies to meet objectives and assist in implementation of web services.

 

Jackie Czyzia is the Director of AUCD's Maternal and Child Health Engagement Team. Her responsibilities include overseeing the development, delivery, and evaluation of technical assistance (TA) provided to LEND and Developmental Behavioral Pediatrics (DBP) training programs through the Interdisciplinary Technical Assistance Center on Autism and Developmental Disabilities (ITAC). With subject matter expertise and leadership experience in pregnancy and infant health, Jackie brings over nine years of experience in public health and program management. Previously, Jackie served as Assistant Director of Maternal and Child Health Programs at Genetic Alliance, where she managed federal grants focused on both family and provider education and engagement. Her position involved developing educational materials, webinars, newsletters, trainings, and message platforms for diverse audiences on complex or nuanced topics in maternal and child health, such as genetic testing and newborn screening.