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Product

SOCIAL AND BEHAVIORAL RESEARCH NEEDS REGARDING CANCER SURVIVORSHIP IN PEOPLE WITH INTELLECTUAL AND DEVELOPMENTAL DISABILITIES, A SCOPING REVIEW

Center:

AZ-Sonoran UCEDD

Fiscal Year:

2018

Contact Information:

Julie Armin
[email protected]
520-626-4166

Product Description:

People with intellectual and developmental disabilities (PWIDD) often encounter barriers in the health care system when seeking general and specialized medical care. Literature has shown that PWIDD experience a lack of proper screening for and prevention of cancer compared to the general population. However, less is known regarding the cancer care and survivorship of PWIDD, especially in the United States. In this review, we examine what is currently known worldwide about the primary, psychosocial, and palliative care of PWIDD diagnosed with cancer. Our analyses reveal an immediate need for improvement in caregiver support, collaboration among health care providers, and ethical approaches to information disclosure for this population, as well as the establishment of more reliable standards of care.

Keyword(s):

cancer treatment, IDD, cancer survivorship

Product/Publication Type(s):

Peer-reviewed publications in scholarly journals submitted

Target Audience:

Professionals

Alternative Format:

To Obtain Copies (URL or Email):

COVID-19 Related Data:

N/A

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