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Product

Journal Publication: In Their Own Words: Caregiver and Patient Perspectives on Stressors, Resources, and Recommendations in Craniofacial Microsomia Care.

Center:

CA-USC, Childrens Hospital, UCEDD/LEND

Fiscal Year:

2019

Contact Information:

Alexis Johns
[email protected]
323-361-7060

Product Description:

This study describes stressors, resources, and recommendations related to craniofacial microsomia (CFM) care from the perspective of caregivers of children with CFM and adults with CFM to inform improved quality of healthcare delivery. Overall, caregivers' and patients' responses reflected the complexity of CFM treatment. Incorporating these perspectives into routine CFM care has the potential to reduce family distress while improving their healthcare.

Keyword(s):

Product/Publication Type(s):

Peer-reviewed publications in scholarly journals Published/In Press

Target Audience:

Professionals

Alternative Format:

To Obtain Copies (URL or Email):

https://www.ncbi.nlm.nih.gov/pubmed/30334912

COVID-19 Related Data:

N/A

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