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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders Community

AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Product

Children and Youth with Special Health Care Needs Family Engagement Report

Center:

NY-Strong Center for Developmental Disabilities, UCEDD/LEND

Fiscal Year:

2024

Contact Information:

Sabrina Smith
[email protected]
585-275-3378

Product Description:

This report analyzes responses to surveys and interviews conducted between July 2022 and September 2023. During the surveys and interviews, CYSHCN and their families reported their experiences accessing services and supports, the continued impact of COVID-19, and their interactions with their local LHDs and CYSHCN programs. In total, 195 participants completed the survey, with 121 completing a follow-up interview. These participants represented 260 CYSHCN from regions covered by all three RSCs.

Keyword(s):

CYSHCN, Health Disparities, COVID-19, Advocacy, School

Product/Publication Type(s):

Reports and monographs

Target Audience:

Consumers/Families, Professionals

Alternative Format:

To Obtain Copies (URL or Email):

[email protected]

COVID-19 Related Data:

N/A

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