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Product

NationalCenter_Improving the Diagnosis Experience: What we can learn from families of children with Down syndrome

Center:

KY-Interdisciplinary Human Development Institute, UCEDD/LEND

Fiscal Year:

2024

Contact Information:

Stephanie Meredith
[email protected]
859-257-1714

Product Description:

Delivering an unexpected pre- or postnatal diagnosis, such as a Down syndrome diagnosis, is challenging. How a diagnosis is delivered can significantly impact parents' views of the condition, trust in medical professionals, utilization of healthcare services, and adaptation. Our vision for this session is to have a moderated parent panel describe their varied experiences, positive and negative, in receiving a prenatal or postnatal diagnosis of Down syndrome.

Keyword(s):

Down syndrome, genetic counseling

Product/Publication Type(s):

Conference presentations and posters presented

Target Audience:

Professionals, Students

Alternative Format:

To Obtain Copies (URL or Email):

[email protected]

COVID-19 Related Data:

N/A

1100 Wayne Avenue, Suite 1000 Silver Spring, MD 20910