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AUCD Community Inclusion

AUCD’s Community Inclusion Team supports the University Centers for Excellence in Developmental Disabilities (UCEDD) Network in partnership with the Administration for Community Living.

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AUCD Maternal and Child Health Engagement

AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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AUCD Public Health

AUCD’s Public Health Team works to create health promotion and public health efforts that include people with disabilities.

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AUCD Emerging Leaders are a part of a community that includes trainees, early career professionals, self-advocates, and family members from AUCD member Centers and Programs.

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Product

LEND_Heritable Human Genome Editing Report_NCD

Center:

KY-Interdisciplinary Human Development Institute, UCEDD/LEND

Fiscal Year:

2024

Contact Information:

Stephanie Meredith
[email protected]
859-257-1714

Product Description:

This report identifies the possible impact of these technologies on the disability community and, through public comment, listening sessions, and individual interviews, gathers input about recommended policies and practices to ensure that any prenatal technologies developed and utilized are determined by including people with disabilities as decision-makers who have experience living with various prenatally diagnosed conditions.

Keyword(s):

heritable human genome editing, fetal surgery

Product/Publication Type(s):

Reports and monographs

Target Audience:

Consumers/Families, Professionals, Policymakers, Students

Alternative Format:

To Obtain Copies (URL or Email):

https://www.ncd.gov/report/from-fetal-surgery-to-gene-editing-the-current-and-potential-impact-of-prenatal-interventions-on-people-with-disabilities/

COVID-19 Related Data:

N/A

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