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AUCD’s Maternal and Child Health Engagement supports the Autism CARES Programs, including LEND and DBP Programs.

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Product

Health-related quality of life in children with high functioning autism

Center:

VT-Vermont Leadership Education in Neurodevelopmental Disabilities, LEND

Fiscal Year:

2012

Contact Information:

Marie-Christine Potvin
[email protected]
802-318-0603

Product Description:

The health-related quality of life (HRQL) of school-aged children with High Functioning Autism (HFA) is poorly understood. The objectives of this study were to compare their HRQL to that of typically developing peers and to compare child-self and parent-proxy reports of HRQL of children. A cross sectional study of children with HFA (n=30) and peers (n=31) was conducted in a small rural state of the USA. Efforts were made to recruit a representative sample. Data collection took place in the participants? homes. The Pediatric Quality of Life 4.0 was the outcome measure. Children with HFA had significantly poorer HRQL whether reported by themselves (p<.001) or their parents (p<.001), although disagreement (ICC=-.075) between children and parental scores suggested that they had quite different points of view. This study was the first to estimate HRQL in children with HFA as compared to peers, from the child?s perspective.

Keyword(s):

Autism, Quality of Life

Product/Publication Type(s):

Peer-reviewed publications in scholarly journals submitted

Target Audience:

Professionals

Alternative Format:

To Obtain Copies (URL or Email):

COVID-19 Related Data:

N/A

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