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AUCD Experts

Melanie Fried-Oken, Ph.D.

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Contact Information:
503-494-7587
Leadership:
Co-UCEDD Director
Principal Investigator
Primary Activity Coordinators:
Research Director
Discipline Coordinators:
Assistive Technology
Specialty Resource Contacts:
Augmentative and Alternative Communication Assistive Technology Neurogenic Communication Disorders Speech-Language Pathology
Project/Program/Clinic Contacts:
REKNEW: Reclaiming Expressive Knowledge in Everyone with Communication Impairments
Translational Refinement of Adaptive Brain-Computer Interface System for Locked-In Patients
Discipline(s):
Speech-Language Pathology
Assistive Technology
AUCD Council Membership:
No Council Membership
Vita/Bio:

Melanie Fried-Oken, Ph.D., CCC/Sp is a certified speech-language pathologist and a leading international clinician and researcher in the field of Augmentative and Alternative Communication (AAC) where she provides expertise about assistive technology for persons with acquired disabilities who cannot use speech or writing for expression.

She is co-author of the book Speaking Up and Spelling It Out, a collection of essays written by adults with disabilities using speech technology. Dr. Fried-Oken has a number of federal grants to develop, evaluate and add knowledge to the field about communication technology for persons with Alzheimer's disease and primary progressive aphasia, locked-in syndrome, ALS and other neurodegenerative diseases, and older adults. Additionally, she participated in podcasts and webinars related to assistive technology for adults with complex communication needs. Dr. Fried-Oken has worked with the UCEDD and community-based disabilty organization, AT Lab at Community Vision, to produce a series of videos on telehealth for people with I/DD who rely on AAC, and to publish symbol-based patient decision aids for people with I/DD and emergent literacy skills. 

She sits on a number of national and local boards, is a member of an NIH standing committee, and is an active editorial consutant for journals related to Augmentative and Alternative Communication, assistive technology and speech-language pathology. 

Recent Publications:

Peters, B., Bedrick, S., Dudy, S., Higger, M., Kinsella, M., Mclaughlin, D., Erdogmus, D. & Fried-Oken, M.. (2020). SSVEP BCI and eye tracking use by individuals with late-stage ALS and visual impairments. Frontiers in Human Neuroscience, 14, 457.

Fried-Oken, M., Kinsella, M., Peters, B., Eddy, B., Wajokeowski, B. (2020). Human visual skills for brain-computer interface use: A tutorial. Disability and Rehabilitation: Assistive Technology.

Eddy, B., ..... Fried-Oken, M. (2019). Trends in research participant categories and descriptions in abstracts from the International BCI Meeting series, 1999 to 2016. Brain-Computer Interfaces (BCI). DOI:10.1080/2326263X.2019.1643203

Light, J., McNaughton, D., Beukelman, D., Fager, S. K., Fried-Oken, M., Jakobs, T., & Jakobs, E. (2019). Challenges and opportunities in augmentative and alternative communication: Research and technology development to enhance communication and participation for individuals with complex communication needs. Augmentative and Alternative Communication. 35(1). DOI: 10/1080/07434618.2018.1556732.

Fager, S. K., Fried-Oken, M., Jakobs, T., & Beukelman, D. R. (2019). New and emerging technologies for adults with complex communication needs and severe motor impairments: State of the science (Special Issue]. Augmentative and Alternative Communication, 35(1). DOI: 10.1080/07434618.2018.1556730

Oken, B., Memmott, T., Eddy, B., Wiedrick, J., & Fried-Oken, M. (2019). Vigilance state fluctuations and performance using Brain-Computer Interface for communication. Brain-Computer Interfaces. 10.1080/2326263X.2019.1571356

Fried-Oken, M. (2018). Person-centered approaches to communication participation and
engagement for individuals with primary progressive aphasia and dementia. Seminars in Speech & Language, 39(3): 195-196.

Mooney, A., Beale, N., & Fried-Oken, M. (2018). Group communication treatment
for individuals with primary progressive aphasia and their partners. Seminars in Speech & Language, 39(3).

Mooney, A., Bedrick, S., Noethe, G., Spaulding, S., & Fried-Oken, M. (2018). Mobile
technology to support lexical retrieval during activity retell in primary progressive aphasia. Aphasiology, 1-27. DO1: org/10.1080/02687038.2018.1447640

Peters, B., Higger, M., Quivira, F., Bedrick, S., Dudy, S., Eddy, B., ... & Erdogmus, D. (2018). Effects of simulated visual acuity and ocular motility impairments on SSVEP brain-computer interface performance: an experiment with Shuffle Speller. Brain-Computer Interfaces, 5(2-3), 58-72.

Frontera, W. R., Bean, J. F., Damiano, D., Ehrlich-Jones, L., Fried-Oken, M., Jette, A., ... &
Ottenbacher, K. J. (2017). Rehabilitation Research at the National Institutes of Health: Moving the field forward (executive summary). Neurorehabilitation and Neural Repair, 31(4), 304-314.
Note: This article appeared in 6 additional journals

Chavarriaga, R., Fried-Oken, M., Kleih, S., Lotte, F., & Scherer, R. (2017). Heading for new             shores! Overcoming pitfalls in BCI design. Brain-Computer Interfaces, 1-14.

Childes, J.M., Palmer, A. D., Fried-Oken, M., & Graville, D. (2017). The Use of Technology for Communication after Total Laryngectomy: A Mixed Methods Study. American Journal of Speech-Language Pathology.0.1-17

Orhan, U., Nezamfar, H., Akcakaya, M., Erdogmus, D., Higger, M., Moghadamfalahi, M., ... &            Fried-Oken, M. (2016). Probabilistic simulation framework for EEG-based BCI design. Brain-Computer Interfaces, 1-15.

Peters, B., Mooney, A., Oken, B. & Fried-Oken, M. (2016). Soliciting BCI user experience feedback from people with severe speech and physical impairments. Brain Computer Interfaces. DOI:10.1080/2326263X.2015.1138056

Fried-Oken, M., Beukelman, D., and Hux, K. (2012). Current and future AAC research considerations for adults with acquired cognitive and communication impairments. Assistive Technology, 24: 56-66.

Fager, S., Beukelman, D., Fried-Oken, M., Jakobs, T., Baker, J. (2012). Access Interface Strategies. Assistive Technology, 24: 25-33.

Rowland, C., Fried-Oken, M., Steiner, S., Lollar, D., Phelps, R., Simeonsson, R., Grandlund, M. (2012). Developing the ICF-CY for AAC Profile and Code Set for Children Who Rely on AAC. Augmentative and Alternative Communication, 28(1), 21-32. 

 


 

 

Service:
American Speech-Language-Hearing Association International Society for Augmentative and Alternative Communication United States Society for Augmentative and Alternative Communication Rehabilitation Engineering Society of North America
Linked Projects

ReKnew PPA: Systematic Study of the effectiveness of AAC Intervention
ReKnew R01/BCI: Translational Refinement of Adaptive Communication System for Locked-In Patients
ReKnew RERC: Communication Enhancement
ReKnew PPA: Systematic Study of the effectiveness of AAC Intervention
ReKnew R01/BCI: Translational Refinement of Adaptive Communication System for Locked-In Patients

ReKnew RERC: Communication Enhancement
ReKnew R01/BCI: Translational Refinement of Adaptive Communication System for Locked-In Patients
ReKnew PPA: Systematic Study of the effectiveness of AAC Intervention
ReKnew RERC: Communication Enhancement
Penn State University Collaborative Project
ReKnew PPA: Systematic Study of the effectiveness of AAC Intervention
ReKnew R01/BCI: Translational Refinement of Adaptive Communication System for Locked-In Patients
ReKnew RERC: Communication Enhancement
Penn State University Collaborative Project
ReKnew PPA: Systematic Study of the effectiveness of AAC Intervention
ReKnew R01/BCI: Translational Refinement of Adaptive Communication System for Locked-In Patients
ReKnew RERC: Communication Enhancement
REKNEW PPA: Systematic Study of the effectiveness of AAC Intervention
REKNEW R01/BCI: Translational Refinement of Adaptive Communication System for Locked-In Patients
REKNEW RERC: Communication Enhancement
REKNEW: Co-construction of external lexica with mobile technology in PPA (R21)
REKNEW: Co-Construction for AAC Devices (SBIR-InvoTek)
The Rehabilitation Engineering Research Center on Argumentative and Alternative Communication (formerly Penn State Collaborative Project)
REKNEW: Clinical Interactions with a Brain Computer Interface for Communication
Penn State University Collaborative Project
Penn State University Collaborative Project
REKNEW PPA: Systematic Study of the effectiveness of AAC Intervention
REKNEW R01/BCI: Translational Refinement of Adaptive Communication System for Locked-In Patients
REKNEW RERC: Communication Enhancement
REKNEW: Clinical Interactions with a Brain Computer Interface for Communication
REKNEW: Co-Construction for AAC Devices (SBIR-InvoTek)
REKNEW: Co-construction of external lexica with mobile technology in PPA (R21)
The Rehabilitation Engineering Research Center on Argumentative and Alternative Communication (formerly Penn State Collaborative Project)
REKNEW: Clinical Interactions with a Brain Computer Interface for Communication (R01)
REKNEW: Co-construction of external lexica with mobile technology in PPA (R21)
REKNEW:Rehabilitation Engineering Research Center on Augmentative and Alternative Communication
REKNEW: Clinical Interactions with a Brain Computer Interface for Communication (R01)
REKNEW:Rehabilitation Engineering Research Center on Augmentative and Alternative Communication
Communication Bridge: a person-centered internet-based intervention for individuals with primary progressive aphasia
CF Kids Play
Chronic Musculoskeletal Pain in Youth
Communication Bridge: a person-centered internet-based intervention for individuals with primary progressive aphasia
Comp C-Urologic Protocol for Infants with Myelomeningocele
Integrated Pediatric Behavioral Health Training Project
Maternal Chronic Pain: Risks for Pain and Poor Outcomes in Children
Project EF: Executive Function in Young Children
REKNEW: Clinical Interactions with a Brain Computer Interface for Communication (R01)
REKNEW:Rehabilitation Engineering Research Center on Augmentative and Alternative Communication
Automatic Voice-Based Assessment of Language Abilities
Automatic Voice-Based Assessment of Language Abilities
CF Kids Play
Communication Bridge: a person-centered internet-based intervention for individuals with primary progressive aphasia
Comp C-Urologic Protocol for Infants with Myelomeningocele
Project EF: Executive Function in Young Children
REKNEW: Clinical Interactions with a Brain Computer Interface for Communication (R01)
REKNEW:Rehabilitation Engineering Research Center on Augmentative and Alternative Communication
Ethical Considerations for Language Modeling within Brain-Computer Interfaces
19th Biennial Conference of the International Society for Augmentative and Alternative Communication (ISAAC)
Speak My Language! Using Visual Symbols for Supported Decision Making by People Who Use AAC
BCI Alzheimers (supplement)
19th Biennial Conference of the International Society for Augmentative and Alternative Communication (ISAAC)
BCI Alzheimers (supplement)
Communication Bridge: a person-centered internet-based intervention for individuals with primary progressive aphasia
BCI Ethical Considerations for Language Modeling within Brain-Computer Interfaces (supplement)
REKNEW: Clinical Interactions with a Brain Computer Interface for Communication (R01)
REKNEW:Rehabilitation Engineering Research Center on Augmentative and Alternative Communication
Speak My Language! Using Visual Symbols for Supported Decision Making by People Who Use AAC
WITH Telehealth - From My View: Preparing and participating in telehealth
BCI open-source software (supplement)
REKNEW: Optimizing Brain Computer Interface Functional Implementation Toolkit
19th Biennial Conference of the International Society for Augmentative and Alternative Communication (ISAAC)
BCI Alzheimers (supplement)
BCI Ethical Considerations for Language Modeling within Brain-Computer Interfaces (supplement)
BCI open-source software (supplement)
Communication Bridge: a person-centered internet-based intervention for individuals with primary progressive aphasia
REKNEW: Optimizing Brain Computer Interface Functional Implementation Toolkit
REKNEW:Rehabilitation Engineering Research Center on Augmentative and Alternative Communication
Speak My Language! Using Visual Symbols for Supported Decision Making by People Who Use AAC
WITH Telehealth - From My View: Preparing and participating in telehealth
BCI Ethical Considerations for Language Modeling within Brain-Computer Interfaces (supplement)
BCI open-source software (supplement)
Communication Bridge: a person-centered internet-based intervention for individuals with primary progressive aphasia
REKNEW: Optimizing Brain Computer Interface Functional Implementation Toolkit
BCI AI/ML Readiness (supplement)
REKNEW: Optimizing Brain Computer Interface Functional Implementation Toolkit
National partnership to advance peer-support models for AAC users
BCI AI/ML Readiness (supplement)
National partnership to advance peer-support models for AAC users
REKNEW: Optimizing Brain Computer Interface Functional Implementation Toolkit
Linked Products

Framing AAC IEP Goals Within the ICF-CY
Purposes of AAC device use for persons with ALS as reported by caregivers
Seeking common ground: Understanding meaning making among family caregivers and persons with Alzheimer's disease
ERP based communication system with language modeling
AAC For Persons with PRogressive Aphasia: From Research to Practice

International Clinicians Spotlight Techniques and Strategies for Individuals with Complex Communication Needs
Using AAC to reveal word deafness in a man with progressive aphasia
Treatment in Nonfluent Progressive Aphasia
OHSU RSVP BCI
Current and future AAC research considerations for adults with acquired cognitive and communication impairments
Access Interface Strategies
Developing the ICF-CY for AAC Profile and Code Set for Children Who Rely on AAC
A good fit to emphasize outcomes.
Augmented input reveals word deafness in a man with frontotemporal dementia
Brain computer interface: Locked in and reaching new heights
Towards technology-assisted co-construction with communication partners.
An ERP-based brain-computer interface for text entry using rapid serial visual presentation and language modeling.
RSVP keyboard: An EEG based typing interface.
Fusion with language models improves spelling accuracy for ERP-based brain computer interface spellers
A good fit to emphasize outcomes.
Access Interface Strategies
An ERP-based brain-computer interface for text entry using rapid serial visual presentation and language modeling.
Augmented input reveals word deafness in a man with frontotemporal dementia
Brain computer interface: Locked in and reaching new heights
Current and future AAC research considerations for adults with acquired cognitive and communication impairments
Fusion with language models improves spelling accuracy for ERP-based brain computer interface spellers
RSVP keyboard: An EEG based typing interface.
Towards technology-assisted co-construction with communication partners.
Developing AAC Educational Goals With The Web-Based Communication Supports Inventory-ICF
REKNEW: CMS Coverage Reminder Letter for SGDs
REKNEW: CMS Coverage Reminder Letter for SGDs
AIDD Core: Supporting communication for patients with neurodegenerative disease Lay-language Report
AIDD Core: Whats on Your Mind? Conversation Topics Chosen by People with Degenerative Cognitive-Linguistic Disorders for Communication Boards Lay-language Report
BCI Icons Webinar
REKNEW: Challenges and opportunities in augmentative and alternative communication: Research and technology development to enhance communication and participation for individuals with complex communication needs
REKNEW: Grand Rounds for AAC
REKNEW: New and emerging access technologies for adults with complex communication needs and severe motor impairments: State of the science
REKNEW: Vigilance state fluctuations and performance using Brain-Computer Interface for communication
REKNEW: From Practice to Research and Back Around Again
REKNEW: Cognitive Demands Checklist for AAC
REKNEW: Information Table at 2019 ALS Research Symposium
REKNEW: Saturday Academy: Medical Careers for Grades 11-12
REKNEW: Poster at OHSU Research Week: Performance Across Multiple Calibrations...
REKNEW: Poster at OHSU Research Week: Neurofeedback in Alzheimer's Disease
REKNEW: Trends in Research Participant Categories and Descriptions of Abstracts from the International BCI Meeting Series, 1999 to 2016
REKNEW: Workshops of the seventh international brain-computer interface meeting: not getting lost in translation
REKNEW Video: Speaking with Brainwaves
Human visual skills for brain-computer interface use: A tutorial (in press)
REKNEW: Published article: Human visual skills for brain-computer interface use: a tutorial
Primary Progressive Aphasia: A Practical Roadmap for Navigating Person-Cnetered Evaluation and Treatment
REKNEW: Book chapter: Primary progressive aphasia: A practical roadmap for navigating person-centered evaluation and treatment
Telesalud y tu series video 1
Telesalud y tu series video 2
Telehealth and You series video 2
Telehealth and You series video 3
Telehealth and You series video 4
Telehealth and You series video 1
Including Participants with Speech and Physical Impairments in BCI Research: Challenges and Lessons Learned
NeuroAbilities Webinar: Neurotechnologies for Expressive Communication: Current and Future Considerations
Data Privacy and Security for AAC
Telesalud y tu series video 3
Telesalud y tu series video 4
User-centered design influences in the integration of multimodal access in an AAC-BCI system
Ethical issues raised by incorporating personalized language models into BCI communication technologies
Personal Decision Guides
AUCD Young Professional Award Nomination
A recent survey of augmentative and alternative communication use and service delivery experiences of people with amyotrophic lateral sclerosis in the United States
Ethical issues raised by incorporating personalized language models into BCI communication technologies: a qualitative study of individuals with neurological disease
A systematic review of research on augmentative and alternative communication brain-computer interface systems for individuals with disabilities
Methodology and preliminary data on feasibility of a neurofeedback protocol to improve visual attention to letters in mild Alzheimer's disease
Effects of aided communication on communicative participation for people with amyotrophic lateral sclerosis
Brain-computer interface as an AAC access method
What stakeholders with neurodegenerative conditions value about speech and accuracy in development of BCI systems for communication