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AUCD Experts

RRTC Clearinghouse

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Contact Information:
800-996-8845
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Staff
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Linked Projects

Caregiving and Gender Issues Conference
Atherosclerotic Burden and Cardiovascular Disease Risk in a Unique "Atheroma Free" Down Syndrome Population
Atherosclerotic Burden and Cardiovascular Disease Risk in a Unique
Unified Approach to Healthy Lifestyles for Adults with Intellectual and Developmental Disabilities
Creation of Web-Based Health Education Matrials for Women with Intellectual/Developmental Disabilities
Linked Products

Family future planning: Training, support and advocacy program for adults with developmental disabilities and their families
Future planning resource guide for families and adults with developmental disabilities in Illinois.
Special Issue on Aging and Developmental Disabilities, Healthcare and Aging newsletter
Management of respite and personal assistance services in a consumer-directed family support program.
Exercise and nutrition health education curriculum for adults with developmental disabilities

Supporting adults with intellectual disabilities and their families: A literature review
Person-centered planning for later life: A curriculum for adults with mental retardation
The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final report
Aging family caregivers: Needs and policy concerns
The future is now: A future planning training curriculum for families and their adult relatives with developmental disabilities
Aging with mental retardation: Oral health for older individuals with disabilities
Person-centered planning for later life: Death and dying - A curriculum for adults with mental retardation
Aging and intellectual disabilities: Improving longevity and promoting healthy aging
Aging with developmental disabilities: Women's health issues
Hearing changes in aging people with mental retardation
Aging with developmental disabilities: An information packet on understanding age-related changes and supporting successful aging
McCracken Intervention Matrix: Guidelines for carers to help older adults with mental retardation maintain optimal functioning
Aging, mental retardation and physical fitness
Aging with developmental disabilities: Changes in vision
Promoting health in adults with Down syndrome
Health Promotion for Adults with Intellectual and Developmental Disabilities: Train the Trainer Program Executive Summary
Exercise Adherence among Adults with ID - Final Report
Aging with Autism and Intellectual Disability: Challenges and Rewards of Caregiving by Older Parents and Adult Siblings
Family Involvement by Aging Parents and Adult Siblings with Individuals with Intellectual Disabilities Living in Residential Settings
Research Brief: Evaluation of a Model Consumer - Directed Program: Illinois
Research Brief: Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning
Supporting Adults with Intellectual and Developmental Disabilities and their Families in Future Planning and Advocacy
Making choices as we age: A peer training program
Community living options: Family funded, individually owned, or shared
The future is now: A future planning training curriculum for families and their adult relatives with developmental disabilities
Coordinating systems serving carers of children and adults with developmental disabilities
An eight year follow-up study of the impact of environmental characteristics on the well-being of adults with mental retardation
Envejeciendo con impedimentos del desarollo - Guia para las familias, (Aging with developmental disabilities: A guide for families)
Various Journal Articles
Adolescents and adults with autism: Recommended resources from families, Report #4
Grandparents raising grandchildren with developmental disabilities
Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities
Innovative internetwork service models serving older adults with developmental disabilities and older family caregivers: Final report
Aging related changes for adults with mental retardation: Final report
That's What Friends Are For (20 minute videotape)
RRTC's Brochure
Aging with developmetnal disabilities: Emerging models for promoting health, independence, and quality of life.
Rehabilitation research and training center on aging with developmental disabilities: Final report submitted to NIDRR
Exercise and nutrition health education curriculum for adults with developmental disabilities (2nd edition)
Exercise programming for older adults with disabilities
Health promotion pilot programs evaluation: Improving athletes' health
ADDvantage E- Newsletter, Editor
Dissemination: Staff guide for establishing exercise and nutrition health promotion for adults with developmental disabilities
Research Brief: Evaluation of a Model Consumer - Directed Program: Illinois
Research Brief: Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning
Aging family caregivers: Needs and policy concerns
Aging related changes for adults with mental retardation: Final report
Aging with developmental disabilities: An information packet on understanding age-related changes and supporting successful aging
Aging with developmental disabilities: Changes in vision
Aging with developmental disabilities: Women's health issues
Aging, mental retardation and physical fitness
An eight year follow-up study of the impact of environmental characteristics on the well-being of adults with mental retardation
Community living options: Family funded, individually owned, or shared
Exercise and nutrition health education curriculum for adults with developmental disabilities
Hearing changes in aging people with mental retardation
Innovative internetwork service models serving older adults with developmental disabilities and older family caregivers: Final report
Making choices as we age: A peer training program
McCracken Intervention Matrix: Guidelines for carers to help older adults with mental retardation maintain optimal functioning
Person-centered planning for later life: A curriculum for adults with mental retardation
Person-centered planning for later life: Death and dying - A curriculum for adults with mental retardation
Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities
That's What Friends Are For (20 minute videotape)
The future is now: A future planning training curriculum for families and their adult relatives with developmental disabilities
The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final report
Various Journal Articles
A family handbook on future planning
Voices That Count Training Package
Exercise and nutrition health education curriculum for adults with developmental disabilities: Train the trainer
Exercise and Nutrition Health Education Curriculum for Adults with Developmental Disabilities (3rd ed.).
Exercise and Nutrition Health Promotion Programs for Adults with Developmental Disabilities: Personal Notebooks.
Health Promotion Pilot Programs Evaluation: Improving Athletes' Health - Final Report
Guidlines for building partnerships with self-advocacy orgainzations
Impact of a consumer-directed family support program on reduced out-of-home institutional placement
Promoting physical activity among older persons
Health promotion pilot programs evaluation: Improving athletes' health
ADDvantage E- Newsletter
Dissemination: Staff guide for establishing exercise and nutrition health promotion for adults with developmental disabilities
Research Brief: Evaluation of a Model Consumer - Directed Program: Illinois
Research Brief: Supporting Aging Caregivers and Adults with Developmental Disabilities in Future Planning
Project Vote: Guidelines for Building Partnerships with Self-Advocacy Organizations
Aging family caregivers: Needs and policy concerns
Aging related changes for adults with mental retardation: Final report
Aging with developmental disabilities: An information packet on understanding age-related changes and supporting successful aging
Aging with developmental disabilities: Changes in vision
Aging with developmental disabilities: Women's health issues
Aging, mental retardation and physical fitness
An eight year follow-up study of the impact of environmental characteristics on the well-being of adults with mental retardation
Community living options: Family funded, individually owned, or shared
Exercise and nutrition health education curriculum for adults with developmental disabilities
Factsheets for Healthy Aging
Hearing changes in aging people with mental retardation
Innovative internetwork service models serving older adults with developmental disabilities and older family caregivers: Final report
McCracken Intervention Matrix: Guidelines for carers to help older adults with mental retardation maintain optimal functioning
Person-centered planning for later life: A curriculum for adults with mental retardation
Person-centered planning for later life: Death and dying - A curriculum for adults with mental retardation
Promoting healthy aging, family support, and age-friendly communities for persons with developmental disabilities
That's What Friends Are For (20 minute videotape)
The future is now: A future planning training curriculum for families and their adult relatives with developmental disabilities
The Tampa Scientific Conference on Intellectual Disability, Aging, and Health: Final report
Various Journal Articles
A family handbook on future planning
Aiding Older Caregivers of Persons with Intellectual and Developmental Disabilities: A Tool Kit for State and Local Aging Agencies
Getting involved in research and training projects: A guide for persons with disabilities
Voices That Count Training Package
Exercise and nutrition health education curriculum for adults with developmental disabilities: Train the trainer
Exercise and Nutrition Health Promotion Programs for Adults with Developmental Disabilities: Personal Notebooks.
Health Promotion Pilot Programs Evaluation: Improving Athletes' Health - Final Report
Engagement Through Fitness: Training Manual.
Creativity, Independence and Meaning: Training Modules and Activities for Centers Serving Younger Adults.
Guidlines for building partnerships with self-advocacy orgainzations
Carer reports of health status among adults with intellectual/developmental disabilities in Taiwan living at home and in institutions
Health and Risk Factors of Cardiovascular Disease for Older Family Caregivers of Adults with Developmental Disabilities in Illinois
Short Publication List
RRTCADD Brochure
Exercise and Nutrition Health Education Curriculum CD
Dementia and People with Intellectual Disabilities: What Can We Do? CD
Person Centered planning for Later Life Student Notebook
The future is now: A future planning training curriculum for families and their adult relatives with developmental disabilities CD
Supporting Aging Caregivers with DD
Using assistive technology to maximize function in older adults with developmental disabilities CD
"Retirement" for older persons with developmental disabilities
Prospective Study of Menopause
Adaptive behavior and cognitive function of adults with Down syndrome
Bridging the equity gap: Health promotion for adults with intellectual and developmental disabilities
Brothers and Sisters of Adults with Mental Retardation
Building Community coalitions with people with disabilities
Change in social support and psychological well-being: A longitudinal study of aging mothers of adults with mental retardation
Disabilities and Health Limitations
Distribution of apolipoprotein E genotypes in Fragile X Syndrome and Batten disease
Fact Sheet for Healthy Aging: Foot
Fact Sheet for Healthy Aging: Arthritis
Fact Sheet for Healthy Aging: Exercise
Fact Sheet for Healthy Aging: High Blood Pressure
Aging Family Caregiver: Changes in Burden and Placement Desire
Aging Parents of Adults with Disabilities the Gratifications and Frustrations
Aging with Intellectual Disabilities and Later Life Family Caregiving
Aging with mental retardation: Oral health for older individuals with disabilities
Exploratory Analysis of Leisure and Life Satisfaction of Aging Adults with Mental Retardation
Attitudinal and Psychosocial Outcomes of a Fitness and Health Education Program
Barriers and supports for exercise participation among adults with down syndrome
Group home care for adults with intellectual disabilities and Alzheimers disease
Future planning resource guide for families and adults with DD
Health Promotion for Individuals with Disabilities
Impact of aging on persons with developmental disabilities
Impact of person-centered later life planning training program for older adults with mental retardation
Improvements in Physical Fitness in Adults with Down Syndrome
Innovative project supports later-life planning for adults and their aging family caregivers
Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning
Leadership by people with disabilities in self-determination systems change
Life Course studies of Siblings of Individuals with DD
Maternal and Paternal Caregiving of Persons with Mental Retardation
Older Adults with Mental Retardation:Vocational Evaluation Considerations
Permanency Planning for Adults with Mental Retardation Living with Family Caregivers
Promoting sexuality across the life span for individuals with I/DD
Psychometric Evaluation of a Self-Reported Measure of Depression for Individuals with Mental Retardation
Risk Factors for Injuries and Falls among Adults with DD
RRTC collaborates with Chicago Arc on family future planning project
Siblings of adults with mental retardation or mental illness: Effects on lifestyle and psychological well-being
Controlled evaluation of support groups for grandparent caregivers of children with developmental disabilities and delays
Supporting Adults with Intellectual Disabilities and their Families
The impact of assistive technology and environmental interventions on function and living situation status with people who are aging with DD
The life rope: A transitional approach to exploring worker and life role reportoire development
Making Choices as we age: A peer training program
Pooled trust programs for people with disabilities: A guide for families
Grandparents as supports to mothers of persons with DD
Disability Research Brief: Evaluation of a consumer directed program
Using assistive technology to maximize function in older adults with DD. (softcover)
Research Brief: Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning
Adolescents and adults with autism: Recommended resources from families, Report #4.
Health characteristics and health services utilization in older adults with intellectual disability living in community residences
McCracken Intervention Matrix: Guidelines for carers to help older adults with mental retardation maintain optimal functioning
Physical activities, dietary intake, and the insulin resistance syndrome in nondiabetic adults with mental retardation
Person-centered planning for later life: Death and dying - A curriculum for adults with mental retardation
Thats What Friends Are For (20 minute videotape)
Using assistive technology to maximize function in older adults with developmental disabilities CD
Voices That Count Training Package
Dementia-related care decision-making in group homes for persons with intellectual disabilities
Depressive disorders in adults with Down syndrome
Determinants of exercise in adults with cerebral palsy
Adaptive behavior and cognitive function of adults with Down syndrome
Dementia and People with Intellectual Disabilities: What Can We Do? CD
Fact Sheet for Healthy Aging: Arthritis
Fact Sheet for Healthy Aging: Exercise
Fact Sheet for Healthy Aging: Foot
Fact Sheet for Healthy Aging: High Blood Pressure
Older Adults with Mental Retardation:Vocational Evaluation Considerations
Short Publication List
The future is now: A future planning training curriculum for families and their adult relatives with developmental disabilities CD
Research brief: Involvement of Adult Siblings of People with Developmental Disabilities in Future Planning
Understanding the health experiences of women with intellectual/developmental disabilities: Case studies
Photovoice as Participatory Action Research Tool for Engaging People with Intellectual Disabilities in Research and Program Development
ADDvantage E- Newsletter, Editor
Aging related changes for adults with mental retardation: Final report
Community Living Options:Family Funded, Invividually owned
Dementia and People with Intellectual Disabilities: What Can We Do? CD
Exercise and Nutrition Health Education Curriculum CD
Exercise and nutrition health education curriculum for adults with developmental disabilities
Making choices as we age: A peer training program
Person-centered planning for later life: A curriculum for adults with mental retardation
Person-centered planning for later life: Death and dying - A curriculum for adults with mental retardation
Report on the State of science on Health Risks and Ageing in People with Intellectual Disabilities
RRTCADD Brochure
Short Publication List
State of the science symposium on aging and developmental disabilities
The Future is Now (revised edition 2009)
The future is now: A future planning training curriculum for families and their adult relatives with developmental disabilities CD
Dementia-related care decision-making in group homes for persons with intellectual disabilities
Health characteristics and health services utilization in older adults with intellectual disability living in community residences
The Future is Now (revised edition 2009)
Later-life planning: Promoting knowledge of options and choice-making
Nursing care resources for individuals with intellectual and developmental disabilities across the life span
Overview of health issues of older women with intellectual disabilities
Functional outcomes of assistive technology for adults with developmental disabilities
Health, fitness, and quality of life for older adults with developmental disabilities
Patterns of engagement in leisure activity by older adults using assistive devices
Practice guidelines for the clinical assessment and care management of Alzheimer's disease and other
Promoting health in adults with Down syndrome
The nature of leisure in the lives of older adults with intellectual disability
Nursing care resources for individuals with intellectual and developmental disabilities across the life span
Involvement of Adult Siblings of Persons With Developmental Disabilities in Future Planning
Dementia-related care decision-making in group homes for persons with intellectual disabilities
Health characteristics and health services utilization in older adults with intellectual disability living in community residences
The Future is Now (revised edition 2009)